DIEP 2014

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  • Sharon1942
    Sharon1942 Member Posts: 272
    edited January 2014

    I am a uni mastectomy with delayed DIEP reconstruction. My breast surgeon at an NCI hospital recommended just a uni & I am happy to have one natural breast with feeling since it was healthy. My PS shaped my DIEP flap to match my natural breast which he reduced & lifted. The girls match & are perky. I'm confident I made the best decision for myself. It is definitely a individual decision based on your own medical circumstances. 

  • kelleyb
    kelleyb Member Posts: 94
    edited January 2014

    Betsy and Maggie, I have necrosis on my spared nipple and put ointment on that area only.  Betadine everywhere else. 

    My tummy incision has gotten more blackish purple, the area is about 4 inches long across the middle on either side of the incision. It is sore and sometimes burns a little. I drove today with no problem but felt lots of pain when I did a little sweeping.  So I sat down.  LOL

    How long did it take for your tummy to heal?  Any danger signs?  I'm trying not to fret about anything since it's only 2 weeks out.  Maggie, my left ampit is very swollen and some hardness at top of breast,  I need to return Erin's call tomorrow (NOLA) but I think I want to avoid any more drugs since they made me feel awful.  Tonight I'm going to try to sleep in a chair, I get dizzy and sore in the bed.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    Iowa, I would gather to say that almost everybody here probably wonder's the same thing. All new foobs around here.  I would ask your PS, if he has been doing these for a while I would assume he has seen some diep flaps that are several years old, and can tell you how they hold up.  

    I do have a question for the uni girls, though.  Is one breast heavier that the other?  

  • Curlylocks
    Curlylocks Member Posts: 1,060
    edited January 2014

    KelleyB - I dont think you should be doing any sweeping...you are pretty fresh out of surgery you dont want to have any issues.  I know it is hard to sit still but you need to relax and allow things to heal.
    I am 5 weeks post op and my incision is starting to look really good.  

    Things to look out for pus, fever, extra drainage from incision, extreme redness around the area (the scar will look a little red as it heals), if it is hot to the touch.  My wound care nurse said if you put a piece of guaze on the spot that is draining fluid and it smells = infection.  

    Try not to worry it is hard though.  Do you have a nurse coming in at all?

    Michele

  • Sharon1942
    Sharon1942 Member Posts: 272
    edited January 2014

    Iowa, I'm assuming natural gravity will work the same on both my DIEP flap & natural lifted natural breast as time goes by.  Just like it would on a non-breast cancer woman.  

    Goldie, my flap & natural breast feel the same. 

  • jmb5
    jmb5 Member Posts: 532
    edited January 2014

    I have a question I haven't seen posted on here yet. I am having a BMX on Friday. Left side has a DCIS recurrence. Right side is healthy, as far as I know. My BS called today to go over a couple things, and asked if I wanted to have the sentinel node removed from the right, healthy side... just in case. I really didn't know what to say. The chances of an invasive cancer are so slim that the risk of removing the sentinel node is probably a greater risk than having invasive cancer. Her recommendation was to inject the dye, and if she could "easily pluck the sentinel node" she would. If it was difficult, she wouldn't do anything. Any thoughts on this? (I had a mammogram in October on the right breast and nothing showed up.)

  • bdavis
    bdavis Member Posts: 6,201
    edited January 2014

    Kelley... I agree that you should not be sweeping. No cleaning, bending, lifting etc. Just rest. And walk. And then rest. And no probing your new breasts. If you feel a lump or edge of the flap, then you are touching them. Don't do that. Just leave the flap alone and let it heal. Whatever you are feeling will go away or be resolved at stage II. But if you touch it, you run the risk of doing harm. You are so very fresh out of surgery. And there was a lot of trauma to your body. So if you have bruising around your incision, do not fret about it. This was a major surgery, and you need to be patient and heal. And again, no sweeping, cooking, cleaning, vacuuming, lifting, lifting, lifting.... Get someone to come help you. I hired a cleaning lady, had my son help with groceries, had friends bring meals. Pamper yourself. Better to take a month now and stay calm than to risk a complication.

  • bluewillowskys
    bluewillowskys Member Posts: 365
    edited January 2014

    JMB5: I dont know the answer to your question but ive wondered myself if i do the PBMX whether or not they will or should check nodes as long as they are rummaging around inside me. If the SN or other nodes are removed does that mean you are more likely to get LE?

  • Ridley
    Ridley Member Posts: 634
    edited January 2014

    Jmb and Bluewillow - there are some threads on this issue on the board.  One is entitled "Sentinel node biopsy - need advice". There is at least one more that I will try to find and bump to the first page of active threads.  

    I was trying to make this decision and in the process had a biopsy that confirmed DCIS in the other side, so that confirmed I would have an SNB on that side.  

    Doing an SNB does create a risk of lymphedema.

    Before confirming the DCIS, I had talked to my surgeon about the Angelina Jolie technique, where they used the dye to mark the sentinel node for later removal should any invasive cancer be found.  Could mean another surgery, should cancer be found.  

    Take care,

    Ridley

  • jmb5
    jmb5 Member Posts: 532
    edited January 2014

    Just starting to pack for the hospital and I threw away my list of things to take. DevilIt was on the same paper as questions for the surgeons and after my appointment last Wednesday, I apparently threw it away. Now I need to filter through the boards and look for packing tips. Crap!

    On that topic, did any of you contact lense wearers take your contacts, or did you just wear glasses the whole time? I wear mine daily, but am thinking I'm not going to want to bother putting them in. Will my arm even reach that high?

  • Ridley
    Ridley Member Posts: 634
    edited January 2014

    Jmb and Bluewillow - I bumped another thread on the SNB question "should I have a sentinel node biopsy on the preventive side"

    Jmb - I wear extended wear contacts.  I didn't put them back in until about a week after I was discharged.  I was napping so much that I figured they might get too dry.  I had no trouble putting them in once I decided to start wearing them again.  I feel better in my contacts, so I was glad to be able to start wearing them again.

    And key items I used in the hospital - Chapstick, biotene mouth spray, ear plugs, glasses, housecoat and slippers, iPad with earphones for music, phone, shampoo and conditioner (nurse washed my hair on day 4), toothbrush and toothpaste, and some facial wipes and other wipes.  I brought more stuff, but can't remember using anything else.

    Ridley

  • jmb5
    jmb5 Member Posts: 532
    edited January 2014

    Thanks Ridley. I just read through that thread, and now I'm not sure what to do. I honestly don't know much about lymphedema. I read that you need to be careful after surgery so you don't get any infections on the affected arm. It mentioned not getting blood pressure taken on that arm. So what do they do if you have the SNB on both sides? Do you have to be careful of cuts and infections for the rest of your life? Now I'm rethinking getting the BNS on the "good side". But darn, I would be so ticked if I don't get it and they find cancer. I thought I was done with decisions.

  • Beebop
    Beebop Member Posts: 206
    edited January 2014

    jmb-I can't offer you much advice on the SNB.  I had ALND on the right.   That was 2 years ago and I still have numbness and burning nerve pain.   I do have to be careful with that side, but so far all is good.  I have had pokes in that arm, just have to avoid if possible.  They can take blood pressure in your leg.   I forget, so probably should get one of those medical alert bracelets!

    You won't need much in the hospital.  The only thing I had was my phone (on day 2), Chapstick and face lotion.  Shampoo would not be a bad idea.  I would also recommend something called Ayr that keeps your nostrils moist while you have the oxygen in.  I forgot all about this.   Good luck with the surgery!

  • Ridley
    Ridley Member Posts: 634
    edited January 2014

    Jmb - I totally hear you.  I was trying to avoid an SNB on the preventive side, but once they found DCIS, I didn't feel I had a choice.  I have since relaxed about it.  I had two nodes removed on the invasive side and one removed on the DCIS side.  So far, no issues, so I'm just going to alternate blood draws and blood pressures.  A doctor or nurse told me to avoid continuous blood pressure readings on both arms.  When I had my surgery they put in an arterial line to monitor blood pressure (removed  in recovery, so just in for the day.)

    I remember thinking during the diagnostic process that once the next test was complete, I would have all the info I needed to make the decisions I needed to make.  Never happened that way. There was always a new piece of info or a twist.  Cancer sucks!!

    Good luck!

  • jmb5
    jmb5 Member Posts: 532
    edited January 2014

    Thanks Beebop and Ridley. So when nodes are removed, do you have to be careful for the rest of your life of infection and things that can trigger it?

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    JMB, the only reason I would avoid it is because then you have an arm to do needle sticks and blood pressure.  I let them take a node and each side, and now I have problems forever about where to take blood, get shots, etc.  If your doc feels safe not taking it, then I would leave it alone.  The only reason I did have both taken was because they saw something suspicious on my MRI, and we agreed it was the right thing to do.  But, gosh I wish I had one good arm.

    I would blow off the contacts for a while. One less thing to worry about. 

  • Beebop
    Beebop Member Posts: 206
    edited January 2014

    yep jmb, it is a life long thing 

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited January 2014

    I have lymphedema in both arms. I had sentinel nodes removed on noncancerous side and tons on cancerous side---3 positive there. I think I got LE on SNB side because I had a skin legion removed some months after bmx. There is some thinking that there is a generic component. There is a lot about it that we just don't know yet.  So many docs and nurses are not well-versed in it. I get BP on my leg, blood draws in my foot and IVs in my foot and neck. I wear compression sleeves every day--currently printed with fierce tattoos---and my LE is under control. My understanding is that once you have nodes removed, you have a lifetime risk of LE. Really stinks.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited January 2014

    oops, skin lesion, not legion, ha!

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited January 2014

    Oh, and you do have to be careful about hangnails, cuts, burns, overdoing it, etc. I am a determined and careful gardener.

  • Beebop
    Beebop Member Posts: 206
    edited January 2014

    I would also recommend seeing a LE therapist after surgery.  They can give you exercises to do and set you up with a compression sleeve and tell you when it's advisable to wear to prevent LE.

  • Kat-ski
    Kat-ski Member Posts: 212
    edited January 2014

    Question:  For the ladies that are using NOLA and Charleston, SC, just how much help do they give you for lodging and transportation?  I am using PRMA and I have done all of the travel plans and lodging on my own.  Their websites offer angelflights(but our income cancelled us out) things but I did all of it on my own.  As far as blood draws for INR levels, they have my clinic here in Michigan doing it all.  I just thought I would be able to have support from them, but so far really none.  At least I trust the doctor as I can't afford to back out nor do I want to just want to get it over with.  Can anyone help me out here, please?

    Kat

  • bdavis
    bdavis Member Posts: 6,201
    edited January 2014

    Kat-ski... I made my own plane reservations, but had them research prices at hotels and they booked it for me with the doctor discount... They also arranged all limo rides for me for airport and appointments. They pay for the limo so that makes sense.

  • MartyJ
    MartyJ Member Posts: 1,859
    edited January 2014

    Kat - I will reply to your PM later, but it made all of my own arrangements.  Flight, hotels, car.  On release from the hospital, we had to stop and pick up Rx.  I wasn't at St Charles Hospital in NOLA as they didn't take my insurance.  Was across the river in Covington. 

  • iowagirl1
    iowagirl1 Member Posts: 130
    edited January 2014

    Good luck to all of you flappers left to go this week.  It looks like a few of you are in areas affected by the frigid weather.  Stay safe!

    For those of you still contemplating uni- or bilateral , I wish you peace of mind.i



  • Donna2012
    Donna2012 Member Posts: 201
    edited January 2014

    The 24 hour count down has begun!  I know it is crazy but I like to be TOTALLY  prepared - have so much stuff packed, it looks like I am going on a cruise.  Pj sets each with matching slippers & very low bikinis, etc...  Going home outfit with accessories.... It just makes me feel good packing & having everything that I could possibly need with me (and keeps me busy while I wait).  I know that reality is  - I probably won't care how I look, may stay in hospital gown my whole stay & the suitcase may never even get unzipped!  

  • nihahi
    nihahi Member Posts: 3,841
    edited January 2014

    donna.....do WHATEVER works for you, because you are the only one who is having "your" surgery.....positive vibes going out to you!

    kat-ski....I'm a bit confused as to what kind of "help" you are asking of your fellow flappers? Are you considering relocating your surgery?? You mention that you trust your surgeon, and that is one of the most important factors, imo. You now have all the pieces in place, right??? Do you think it might be the understandable "pre-surgery" fears????  I'm so sorry you are stressing over "arrangements"....maybe take some deep breaths, and go over your reasons for choosing the surgeon and location that you are going with. I'm sure the travel/limo/etc. support from NOLA is helpful and reassuring, taking some of the "logistics" off the to do list for their patients and families. For ladies who travel to unfamiliar locations, it must be wonderful! However, in the "big picture", would having someone else book your flights, etc., affect your surgeon's skills, personal financial availability (health insurance coverage) or extended access to family post surgery? Those were your reasons for choosing your location weren't they??? Hope you find some peaceful moments going forward.

    jmb...the "what to pack" question was an on-going theme on the 2013 thread. Maybe when you are over your own surgery, you might find it helpful to include a brief list in the header for this thread....just a suggestion.

  • jenjenl
    jenjenl Member Posts: 948
    edited January 2014

    Im back home recovering well.  Surgery was Monday at 7am.  The boobs look good perfect round perky full A small B cup.  Tummy looks real good nice and tight.  I have one hip drain that is putting out a lot.   The breast tubes will come out Tuesday.  My right flap is a little red on top so I am on antibiotics.

    Home swet home.

  • Beebop
    Beebop Member Posts: 206
    edited January 2014

    Welcome home jenjen!  Glad the recovery is going well!

  • LucyV
    LucyV Member Posts: 177
    edited January 2014

    Donna- If it feels good to have everything you could possibly need that's fine!! I'm the person carrying around a 20 pound purse with lots of "just in case" stuff so I know where you are coming from. One thing on the p.j's. ..I wore the hospital gown and their non-skid socks the entire time. Didn't even bring a bathrobe. I didn't want a pile of laundry to do when I got home ! 

    Jenjen- you sound good! Rest rest rest

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