How's your mental health/stress level, stage 1 ladies?
How are you all doing with the stress/worry/mental health? I asked my doctor about support groups, but they are mixed stage, and I just don't feel comfortable voicing my stage 1 concerns amongst people with more dire diagnoses...still, there is a lot to process, even when we are the "lucky ones," yes?
My prognosis is good, my surgery went well, radiation is over...I'm now at the crossroads of "we think the cancer is gone" and "let's keep it away": I have an appt with a naturopath tomorrow and I am supposed to start taking tamoxifen after the holidays. I have concerns about tamoxifen, but that is sort of a separate matter. I think the diagnosis (I was 41) and surgery and radiation and things happening at my work this fall were all such a whirlwind, and now I have time to actually think about it, and feel it.
Just...how are you handling all of it? I think I am still a little tired from rads; when I overdo it or get worn out, it's like someone pulls a plug on my energy and patience, and I get really crabby. When people who are trying to be supportive talk about how I'm all done or cured, it rubs me the wrong way. A couple family members told me they kept forgetting I had cancer, which I think was meant to be a comment on my supposed strength, but if they read my blog, they would know what is really on my mind, and I am not that stoic at all.
I should feel fortunate that I am still here and that all is going well. I do feel fortunate, but there is a tangle of other emotions, too, and I don't have anyone quite right to talk with.
I have made a few changes to treat myself and my body a little better: I started writing again, I am going to take a class solely for my own personal enrichment, and I am working on changing my diet (I am conscientious and careful, but of course there is room for improvement).
How are YOU doing? Sound off here about your worries or fears, and/or tell the rest of us how you vent, what you're learning or changing, and how to stay upbeat if you are. Thanks and good luck!
Comments
-
Hi Cecilia,
I am 7 months from diagnosis, had a MX (no chemo, no radiation), and am taking tamoxifen and zoladex for ovarian suppression. I am 37, so "young" for this cancer nonsense too. Physically, I am ok - maybe even better than ok on most days. Emotionally, though, I really struggle. I have young children and am always worrying that I won't see them grow up. My doctors all tell me what an excellent prognosis I have, but there is - and always will be - the "what if's." I don't think that I am coping very well and actually feel guilt when someone talks about how strong I am (not to mention that it's kind of ridiculous - what choice do we have?!) because they don't see my constant anxiety and fear. It's so hard and I can only hope and pray that it gets easier! Hugs to you.
-
I"m doing pretty well now, about a year later (from surgery, anyway), but if you had asked me just a few months ago, I might have had a different response. It takes time to reach some sort of resolution/acceptance or what ever you want to call it. Probably different amounts of time for different people, but hang in there as it does get easier ... wish I could tell you specifically when!
I had a friend who went through this and she said eventually, one day about 2 years out she realized she hadn't thought about breast cancer in a few days. I'm not there yet ... now I can say I haven't thought about it for a few hours, LOL, but that's an improvement already, so I have faith that it will come.
Just read the original post, and yes, people commenting about how we're cured do rub me the wrong way. I mean, we very well might be, but the thing is we'll never know for sure until we die in our 90's of something else, so there will always be a tiny bit of worry in the back of my mind and it would be nice if other people were aware of that, but at the same time, prior to being sucked into cancer world myself (first by my mom's diagnosis and then 6 weeks later by my own), I wouldn't have been aware of that either.
-
Cecilia - I think time helps. I am still anxious but I don't stress about it as much as I used to except right before my mammogram and Oncologist visit. I am 3 years out from my DX in January. I am Stage 2(micromet in the SN) and Grade 1. I had a lumpectomy and 33 RADS treatments. They weren't a walk in the park but not too bad at all and certainly better than having chemo. I am currently taking Tamoxifen. I did have a minor scare a few weeks ago when the back of one of my calves was burning. I was afraid I had DVT which can happen with Tamoxifen. It wasn't. Ultrasound said it was not a clot and probably due to my pounding on the treadmill...I walk hard and fast. Haven't had an incident since I stopped walking on the treadmill. We all know there aren't any guarantees but I have been told the odds are in my favor. Regardless we will always be branded with the C word and looking over our shoulder but we still have to find some optimism in the strides that have been made in BC. I know people who are many years out who had a more dire prognosis than I have. I hope we reach the point when an ache or a pain doesn't mean it has metastasized or is a new cancer but its hard. I differed with another lady on this forum about the term cure...I have always been told there is no cure but it can be treated and managed. Diane
-
Is does take time as the ladies point out. I still think about BC a lot. I'll be starting my third year in February - notice the "starting" part, somehow putting distance between diagnosis and now makes me feel better. I am not quite two years out. Now there is much less fear, and more curiosity, and empathy for those who are hearing the dreaded words for the first time. I have decided I'm cured. I know, I know we'll never know for sure, but me dwelling on the fact that I may not be is a waste of time. Someone on this site recommended the book After Breast Cancer. I have not yet read the whole thing, but the forward and the first chapter - Finishing Treatment: The Very First Weeks speak a lot about the emotional issues that crop up after active treatment ends.
It is so very scary. Hugs to all of you.
-
Ladies
I am just over 5 years out--and really, time is about the best medicine for this. I, like many of you, powered through the lumpectomy, chemo and radiation. I kept working, took care of my kids, etc. I have had friends actually say to me "well, if I get breast cancer, I won't be as worried because I watched you do this and you are fine" By and large, that was true. And while I was in the process, it was my job to get through it. But there is an associated crash at the end. I clearly remember my last day of radiation and thinking I had never ever been that tired in my life. That fatigue took about a month to lift. I did see a counselor throughout the process and I found that helpful. I processed as much of my fear, anger, hope as I could in those sessions.
At this point, 5 years out, I only think about it in the abstract or it becomes more concrete every November and May when I have tests or check ups. But overall, it does not rule my life. I think it taught me some things about how I was living my life and I was able to make some adjustments (not getting too worked up over things, getting over perfectionism, etc).
I felt like I was pretty healthy before bc, and I feel that I am pretty healthy now. I have 5 months left on my AI.... very much looking forward to having that behind me.
At the 1, 2 and 3 year mark, I felt as some of you do. The best advice the counselor gave me at the time was "feel your feelings"...... it really helped.
This too will pass...
-
My cancer center offered free private counseling to patients. I was able to go after I finished treatment and needed help processing all that had happened. I went a couple of times and felt much better. Maybe you can ask your onc about a service like this. Soooo helpful in moving forward.
-
I finished radiation on Dec. 23rd and went to visit family on the other side of the country on the 24th. I did pretty good while I was visiting but I cried half the way home on the plane. I've been very emotional (cry at the drop of a hat) and very very impatient with my husband and kids. I'm hoping that when I get my energy back I'll be nicer
.
-
starshollow, this sounds like a normal occurrence. I think once you are done with your active treatment that is when reality sets in. I can certainly verify this happened for me. Be kind to yourself. You need time to process what you have been though. Sending hugs!!
-
It's been a couple of years for me and I think like the others have said, time works wonders. I too felt like you did at a support group. I try to eat and live healthier, take my Tamoxifen every day. Luckily the side effects are minimal for me. I have found that yoga with meditation helps me to focus and quiet the thoughts when they come. That also helps for stress of worrying. I too feel very anxious before my appts, but am so thankful they have all gone well.
Give yourself some time. Read positive posts. Take time to stop worrying and live life.
-
First time I posted here, but the noticed the title of the topic and thought I would put down some thoughts. I am still in treatment, just over half-way through rads, will finish on the 23rd of Jan. I have been anxious and emotional since my diagnosis in August, 2013, lately seem to have calmed down. Perhaps I see light at the end of the tunnel. The hard part for me was the waiting for test results and waiting for radiation to begin -- 12 weeks from lumpectomy. I can see from the other women that with time the anxiety and worry lessens. I have cried many time, sometimes, I'm not sure why. After, I usually feel better. I also have a close friend who is going through cancer treatment as the same time and we have been able to share; also in a breast support group that meets once a month. It's been a roller coaster and I guess a lot of these emotions are normal. I want to live life, not worry about cancer or have it rule my life. That is not what life is all about. 2014 will be a better year. Staying positive is so true.
-
Hi ,
First time posting. It's been almost a year since I sat in the exam room waiting for test results.I too have found it difficult to voice my fears and concerns in a support group. Feels petty to complain about thinning hair and no sex drive when the women sitting next to me have much more at stake. I have been lurking in the background and found support and advice here reading everyones post. There are days I hardly think about bc, and there are days I break and cry at the drop of a hat. Just taking it a day at a time and hope for the best. Thank you all for the words of wisdom. Weare not alone.
-
Welcome, Smilemaker. As most of us say, sorry you have to be here, but you will find a great sense of community among all of these wonderful ladies (and men).
-
Thanks wenweb. I see all the support given here. Now that I put my toe in the water,will inch my way in.
-
Welcome Smilemaker. Glad you found us. I got scared off BCO after my diagnosis. (My own doing, no one else's) I think I took a lot longer to recover because of it. Now I look forward to logging in and seeing what all my cyber friends are up to.
-
Thanks farmerlucydaisy, I got through active treatment okay. It is now dealing with the mental aspect, and minor(to me) se of anastrozole. Sometimes I'm my own worse enemy.
-
I am hurting emotionally right now, because a good friend of mine who went with me Monday for surgery and brought me home and looked after me asked me to do something I couldn't. I am hurting because, now is not the time to ask me to do anything. My surgery was fine. I feel just as I did when I went through the biopsy. As a matter of fact the biopsy was worse to me. I know as soon as I start healing, things are going to change. I will probably physically hurt. I think I am going to be the strongest I have ever been and I have been strong. Although, I do find myself crying every now and then.
-
OK, I'm over that. I am OK. I went through the lumpectomy surgery. I got frightened when the nurse said partial mastectomy, but the doctor said that this is the terminology used. He did a good job, leaving my breast looking almost even. He said he got all the cancer. I've got to see the oncologist so I can start the radiation. The nurse was intent and told me that I had to pay my co pay in cash or with a check, so I asked her to reschedule my appointment after I got paid which is three weeks away. I had my surgery on the 30th of December. I prayed and I will be okay.
-
simplypoised - I'm sorry you had to reschedule. I'm sure you wanted to get started. Just walking into a "cancer" center was traumatic for me. I'm glad your breast looks ok. It is amazing how much tissue they can remove and have it still look just fine. I hope you are doing ok emotionally. Right now is a very scary time for you. It does get better as the days and weeks go by. Gentle hug.
-
farmerlucydaisy,
I feel better already, because someone is there for me to talk to. My sisters are so far away and I have friends, but I don't want to be pitied. I want to do this and go on with my goals. I am going to use this time to learn all I can about my new career-computer repair technician. I retired early from education. They played so many games about promotions, so I came out, took what they gave me, and decided to find another career. I had just started getting some work when all this happened. I am struggling financially, but I want be beaten. I am brave, daring, and beautiful. God bless you.
-
I am still two rounds away from finishing my chemo and I will start radiation in about a month. Since the beginning of this whole journey last summer it has definitely been a roller coaster of emotions... After the initial stress/worry/anxiety/fear of the diagnosis, surgery, and start of chemo... I fell into a mental mindset that the treatments were more of 'inconvenience' than anything and I didn't find myself worrying too much about the actual cancer. Most of my stress has been related to the treatments, side effects, and their impact on my school and life. However, now that I am approaching the end of chemo I have found myself thinking a lot more about recurrence in my future and it scares me. I will have nights I cry about all of it. Then, the next day I wake up feeling strong and determined. Just depends on the day. I know time heals things, but I'm sure the amount of time needed is different for everyone.
-
Interesting...I just joined this group and still waiting to decide if I have to go through chemo or not and have not started radiation...My surgery was on December 17...almost a month and I still don't know which direction I am going...very upset over this and just want to get this process over with and get back to my normal life. I am so tired of worrying and being a cancer victum. No one understands and I can't stop crying.........
-
I can so relate...I cry when someone mentions how I am doing...work is so difficult. I just wish I could stay in my apartment...close my shades and blinds and keep to myself...I am having trouble dealing with it all........
-
sisters - and we all are sisters now - linked forever with this diagnosis - everything you are feeling is completely normal. In her book After Breast Cancer, Heather Hill Schnipper speaks of those early days "Terror and grief overwhelm you" "It was your last thought at night and your first thought in the morning" "You may have trouble sleeping, you may have lost your appetite." " You must have cried and wondered whether, ever again, you would laugh and feel like yourself"
She goes onto say "We know from psychological-crisis theory that an acute crisis cannot last more than a few weeks. No matter what the stresses, no matter what the situation, human beings are amazingly resilient and adaptable and in time begin to find a way to live with their new circumstances." You can read excerpts here http://www.amazon.com/After-Breast-Cancer-Common-Sense-Treatment/dp/0553384252/ref=sr_1_1?ie=UTF8&qid=1389972827&sr=8-1&keywords=after+breast+cancer
While I may have been somewhat prepared for the physical aspects of my dx, I was blown away by the emotional aspects, something that was addressed in the annual Breast Cancer Symposium in December. You can hear a summary here http://www.breastcancer.org/community/podcasts/sabcs-20131213
It is going to take some time come out of this. As my counselor told me "You have a lot of work to do before you feel better, and you know how long it's gonna take? As long as it takes!" Hugs to everyone. Coming and staying at BCO was a powerful first step for me towards healing and I hope it will be for you.
-
Hi
Stage 1b does anyone know if it is worse than a.
-
Stage I
Stage I describes invasive breast cancer
(cancer cells are breaking through to or invading normal surrounding
breast tissue) Stage I is divided into subcategories known as IA and IB.Stage IA describes invasive breast cancer in which:
- the tumor measures up to 2 centimeters AND
- the cancer has not spread outside the breast; no lymph nodes are involved
Stage IB describes invasive breast cancer in which:
- there is no tumor in the breast; instead, small groups of cancer
cells – larger than 0.2 millimeter but not larger than 2 millimeters –
are found in the lymph nodes OR - there is a tumor in the breast that is no larger than 2
centimeters, and there are small groups of cancer cells – larger than
0.2 millimeter but not larger than 2 millimeters – in the lymph nodes
I hope this information helps you
Sheila
-
Thanks
But confused because Onc said my report states no lymph involved Mri dito. Mean curve neg.
I did see Def. On Web site still a bit of a conflict in my mind.
Thanks
-
I am six weeks past surgery and this week I became numb. I had a MRI a couple of weeks ago, they found something suspicious, had a biopsy and it came back positive for DCIS. So now I am waiting for my third surgery to get scheduled. I too want to start radiation and just get past this phase. I don't know if I am coming to some place of acceptance or am so overwhelmed by it all that I have shut down. Does anyone else go through periods where you don't feel anything?
-
About two month post dx I'd reached a very scary stage - I was near catatonic. All I could do was lie in the chair or the bed I was so frozen in fear. I felt like I was alone in the ocean floating on a raft. My DD called my brother who is an oncologist, and he recognized it as anxiety and depression. He said I needed antianxiety meds, an antidepressant, and counseling. I went to my PCP and he said he was treating three other ladies for the same thing and jokingly said we should form a club. He put me on the right meds, and I was able to get some counseling through my church. It was a long climb out of the dark well. I know what you are going through, it is perfectly normal, but terrifying nonetheless. Please PM me if you ever need to talk.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team