New here. DCIS - 3 Xs

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WOT
WOT Member Posts: 19
edited June 2014 in DCIS (Ductal Carcinoma In Situ)

Hi. This is my first post. I have just been dx with DCIS for the third time. First time was in 1994 right breast. I had a lumpectomy & radiation. Second time 17 years later 2011 left breast. Once again had lumpectomy & radiation. I just got biopsy results yesterday - left breast DCIS. I am seeing PS next Wed. to discuss next step. 

Just wanted to say hi.

Alice

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  • LAstar
    LAstar Member Posts: 1,574
    edited January 2014

    I'm so sorry to hear that you find yourself dealing with this again. Since you are seeing a PS, I'm assuming that means you will have MX this time. I wish you the best in all the decisions that come at this point and hope  you find a great team for your treatment. 

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  • WOT
    WOT Member Posts: 19
    edited January 2014

    Thank you. MX is my only option because I can't have radiation, having already had it. I know I want reconstruction, not sure what kind. Also, thinking about MX on my right breast also. Hard decision. 

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  • 1toughmomma
    1toughmomma Member Posts: 87
    edited January 2014

    Good luck!


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  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited January 2014

    Best of luck!

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  • penguin1
    penguin1 Member Posts: 91
    edited January 2014

    Hi Alice,

    So sorry ya have to go through this again.  I'll just share a tiny bit that might help with your very personal decision.  I had dcis 4 years ago and had 2 lumpectomies and went on Tamoxifen.  Last Apri dcis returned....my friend who had stage 3, chemo and rads told me dcis was like winning the lotto, it's a huge warning flag...she told me to take the 'sign' and get rid of everything.  She also happens to be an ooncology nurse.  I took her advice and had a bmx in May with recon.  Turns out after the reports came back, that the right decision was made...dcis was all over the one side!  I am so happy with my decision.... Life is too short!!  Hope this helps!  Good luck!

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  • WOT
    WOT Member Posts: 19
    edited January 2014

    Thanks to all that replied. It means a lot!

    I've made the decision to have a bmx. penquin, your friend is so right about DCIS being like winning the lottery. I've won 3 times, it's time to quit pushing my luck. Waiting for the last biopsy results about did me in. 

    I thought I was meeting with a PS yesterday but turns out she was the surgeon that will do the bmx & I now have to consult with the PS, so I don't yet know what my recon options are. I'm sure, I'll be asking for input on that. Also, might need to borrow some courage, if anyone has any to spare.

    Alice

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  • AZ85048
    AZ85048 Member Posts: 2,613
    edited January 2014

    WOT - Hi, Alice.  So sorry you have to be here again, but it sounds like you've made peace with your decision.  And that's a great thing.  You're going to have a hundred questions along the way so please know that all you have to do is ask and someone in here will be along to help.  Sending you a hug and a prayer - good luck to you!!

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  • LAstar
    LAstar Member Posts: 1,574
    edited January 2014

    The Breast Reconstruction Handbook by Kathy Steglio is a good place to start. I went into fact-finding mode when I decided to reconstruct, and I ended up going a very different way than I had planned. We get a little more time to decide with DCIS, so take time to make the right decision for yourself. That little voice inside will not steer you wrong. Best wishes!

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  • laura11103
    laura11103 Member Posts: 87
    edited January 2014

    I chose a BMX after being DX'd with multifocal DCIS in the right breast... mine was er-, pr-.  I felt like if I was removing one I might as well remove both so I never have to worry about it again... best decision, never had a regret and feel as good as new.  In fact, I am 7 weeks pregnant!  Life is fine after a BMX...  GL to you!

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  • WOT
    WOT Member Posts: 19
    edited April 2014

    Just wanted to update - I did have the BMX and tissue expanders (even with having had radiation on both sides). Have had some minor bumps, nothing too serious. Almost 5 weeks out & still have burning, hate TE, etc. Ever once in a while I have to get out my final pathology report to remind myself to count my blessings. laura11103, many times I have reread your sentence....best decision, never had a regret and feel as good as new. 

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