Does your doctor measure tumor markers? Any regular imaging?
Mine doesn't do them at all. I wish she did. I just get a cbc every three months. What does your doc do?
Comments
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Nothing, unless I am symptomatic. A mammo every year.
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mammogram 1 x per year
mri 1 x per year
no tumor markers
physical exam 2x year with oncolgist, once with pcp and gyn exam annually....
As I am at the 5 year mark, I expect the oncology visits will be annual and I am not sure what will happen with mri....
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Mine doesn't do them either. I asked my ONC's nurse why and she said I have early stage cancer and no symptoms to trigger a test so they don't do them. Maybe its just as well for me because I don't need yet something else to worry about. BTW I am Stage 2, Grade 1. Diane
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My other dr didn't do them at all, said they were unnecessary fear but my new one does them and scans yearly. I think its just who you get and their opinion about them.
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I see my medical oncologist every 6 mos. I see the rad oncologist every 6 months. No blood work. No scans. I also have a mammo once a year on the remaining breast.
I was uneasy at first too but now I'm glad that's all I get.
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tumor markers every visit (i'm on every other a week treatment right now so i get tumor markers every other week)
scans every 4 months for the first year, then every six months (he says, "we don't want any surprises")
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This is the plan so far:
Every month: Thyroid TSH, T4, and T3. I'm going to see about having my iodine levels checked for the first time this month. See my endocrinologist every few months. I have no thyroid.
Every 3 months - See my MO, lung CT scan (stupid lung nodules), vit D, metabolic panel, cbc, tumor markers. I've had several scans including brain MRI due to headaches
Every 6 months: PET scan
Every month: Naturopath. Tweak supplements and homeopathic if needed.
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I'm four years out, and have tumor markers every six months and blood tests. As far as imaging, I only have had regular chest x-rays.
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I had tumor markers done last week on my 6 month visit with onc. Also, we discussed past scans with nodes, and so he's sending me next week for new scans to look at those nodules on lung. I'm stressed so much over it, and now I'm having a lot of spinal pain, and wondering what this is about.
Oceana
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Im almost 3 yrs out. I get blood work every 4 mos and CT scans every 6 after that. Last few visits with my oncologist her tells me that tumor markers are good even though I noticed they were higher than before. I came for my check up last week and they have tripled! So now i am getting a PET scan. They say its unreliable but not sure why Drs still do check those markers. Now im very scared evenyhough CT scans have been cleared.
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I'm 9+ years ago, with no recurrence or mets. I see the oncologist every 4 to 6 months, with CBC & tumor markers. See BS every year, just after mammogram. Oh, and I get bone density scans every 2 years, even on Arimidex (some would have them more often, but so far I'm OK). I haven't seen the radiation oncologist since right after completion of Rads.
The only other scans I've had were due to symptoms. Once had to have a liver scan due to abnormal pre-op lab tests, but all checked out OK & later labs were normal. Also had a brain MRI due to (likely) chemo-brain issues. That was OK, too, and brain fog symptoms are much better with time & brain exercise. No routine scans.
Minnie72 -- sorry you are having such a scare. Let's hope it's just that -- a SCARE and nothing more!
Oceana -- I also had severe back pain a year or so ago. Turns out I ruptured several disks in my back, totally unrelated to BC. I must admit the fear of mets was in the back of my mind, so I was happy to find it wasn't that!
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Wow! Is it crazy that I am jealous of all of you who get scans and tumor markers?!!! I have some congenital and acquired back issues, osteoporosis, and had a traumatic brain injury two years ago....so I have plenty of pain on a regular basis. Plus, my blood counts have never returned to normal since chemo four years ago, so I am often tired and sick. I see my onc with cbc and cmp every three months. She just reassures me that it is okay that my blood counts are still low. I feel like mets could be rampant in my body and no one would know because I already have pain and am sick and tired all the time! I wish for a scan to reassure me.
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Every month: Blood test
Every 2 months - TM
Every 3 months - Ultrasound of internal organs, phisical exam
Every 6 months - chest X-Ray and mamography
Every year - bone scintigraphy.
This is the standard of care here, but I want to make MRI, too and will discuss that with onc.
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blood work at each visit - every 3 months first two years ( CBC and metabolic panel)
Physical exam 2x year
No tumor markers or scans unless symptomatic or blood work suspicious.
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I get a yearly mammogram and pushed for an MRI, which I think I will get six months after my yearly mammogram. No scans. I get the 15.3 tumor marker test done. It has been between 18 and 24 for the last 3.5 years averaging out to about 20. The tumor marker test causes me extreme stress and I have considered asking to not have it. I think I am in the unless you have symptoms why treat category. Say if the cancer did come back and was hanging out in my bones or somewhere else and I had no pain and no symptoms for six or so months (I don't even know if this is possible), Why would I want to have chemo or other treatment for any of that time when I didn't need it. I am very happy to not have scans, they would cause me a tremendous amount of stress....I initially did not feel this way.
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Hi Karody,
I can see why you would want more reassurance that there is no spread of the cancer since you have symptoms that make you fear metastasis. I was diagnosed 13 months ago and see my oncologist every 3 months. She does a CBC and a comprehensive metabolic panel on every visit. Last month, on the one year anniversary of my diagnosis, she ran a cancer antigen (CA 27.29) test. The results came in after my appointment with her and I read them online. My tumor marker is above the normal range. I called her nurse who spoke with my doctor before calling me back. My oncologist said not to worry about the tumor marker, but that she would run it again in 3 months. She said the variation over time is more important than the one time value, and that she will be looking at the trend. However, her nurse told me that if the marker is as high when she runs it again, my oncologist will be ordering scans. I've been a wreck ever since hearing that. I asked to see her sooner than the 3 month period. I'll be seeing her in a couple of weeks. I'll ask if she can run the scan again at that appointment.
Since getting that test result, though, I've researched the tumor marker tests on the internet. The general consensus is that tumor markers do not need to be run unless the patient is symptomatic or in Stage 4. I'm not sure what to think. Many sites on the internet say the outcome isn't any different for early stage cancer (Stages 1 through 3) whether the tumor markers are monitored or not.
I will post what my oncologist says about the tumor marker test when I see her in a couple of weeks. She didn't mention she was going to run a tumor marker test; I just found my results online when I went to look up my CBC and metabolic panel results. I want to better understand why she runs tumor marker tests at all if the general medical consensus is that they are not needed for early stage cancer. My recent test has been a huge source of anxiety for me.
My best to all of you,
Julie
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Julie, my doc says that the tumor markers are quite unreliable, but he likes to do them, because it is one more tool. He also explained that the range given as "normal" for the test is the range that 90% of tested, healthy patients fall in. However, there is a small percentage of women on either end of that spectrum who are healthy but consistently "score" above or below the normal range. That is why your doc wants to run it again. A friend of mine had BC 10-15 years ago. She said her TMs were always higher than normal, but they were always around the same number. Her doc was not worried, and my friend is still here and cancer-free.
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Okay, good to know we aren't just behind the curve in the middle of the country! I thought I would live to be 90, but now I realize that 50 more years is a bit much to ask for
and I am just so focused on raising my kids. I have known a couple of people who found out they had mets when it was way to late to do much about them. I hate the idea of not being proactive. Now, my onc has made my next checkup and cbc/cmp for 6 months instead of every 3 as we have done for the first 4 years. I am going to have to work on chilling out!
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Tumor markers are unreliable for some and very reliable for others. If your oncologist doesn't draw them routinely then it is hard to know whether yours are reliable or not. My oncologist drew them every 6 mos. they were always normal. Last Sept they doubled which made us go for a PET scan. Found one met to the pelvis. I I am very thankful my oncologist had always drawn them.
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Momine, Thank you for that example about your friend; it is reassuring. You are always such a voice of reason and wisdom. I always look for your comments on any of the questions on these boards. You calm my anxious soul and that means a lot to me.
Kandy, I read exactly what you are describing on the internet, that the increase in the markers can be grounds for a scan. I'm so bummed you found a met to the pelvis. Are you feeling okay on Faslodex?
Karody, why not hope for 50 more years? I hope that for all of us.
Julie
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I see my oncologist every 6 months....since finishing Tx at every visit onc does blood work (tumor markers, cbc, cmp), physical and history....no scans unless symptomatic....I don't see rad onc, but medical onc sends reports....no mammo as I had bilat....Next month marks 8 years since hearing thosed dreaded words!!!
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So now I don't see my onc for 6 more months. All my blood counts are low (WBC,RBC, hemoglobin, neutrophils) as they have remained since chemo was over 4 years ago. I am tired and sick all the time, because of neutropenia. The problem with waiting until a patient is symptomatic to investigate, is that I am symptomatic all of the time, it's just that my symptoms could be from mets or low blood counts, or my head injury, or my congenital back issues, or mets........I am thinking of calling tomorrow and requesting that she begin to check tumor markers on my since my symptoms might cloud a diagnosis of mets. And Kandy's story is a great example of those tumor markers helping find a met before it was even causing symptoms. I think I will call my doctor tomorrow and try to persuade her to use tumor markers on me.
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I've never had a tumor marker test. My Chemo Dr said they are unreliable for some of us so no reason to bother. I have had a couple of scans in the last 4 1/2 yrs but it's been 2+ yrs since last one and they were all done for specific issues at the time that my PA wanted to be sure about - all were fine. No 'routine' scans. I saw her on Tues for my 6 mth appt. My back has been hurting more, in a slightly different area so after a lot of discussion we decided to be on the safe side and do a bone scan 'just in case' so we can get on it quickly IF need be. We both think that it's just my arthritis (been there for MANY years) getting worse, possibly pinching a nerve at times or to do with the osteoporosis - but going to be sure.
I have blood work every 6 mths when I see her - basically just 'general stuff' for any usual draw.
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