Charleston Bound, part 2

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  • bdavis
    bdavis Member Posts: 6,201
    edited January 2014

    lbrewer... its a girdle. For buttock, it usually runs from above the knee to just below the breast.

  • lbrewer
    lbrewer Member Posts: 766
    edited January 2014

    like spanx?  Excuse the bluntness, but how does one pee?

  • bdavis
    bdavis Member Posts: 6,201
    edited January 2014

    Spanx is a little different. The compression girdles are crotchless. USUALLY works to not pull them down, but some brands are better than others with that.

  • lbrewer
    lbrewer Member Posts: 766
    edited January 2014

    Gee, this sounds FUN!!!!!!!!!!!

  • bdavis
    bdavis Member Posts: 6,201
    edited January 2014

    I was a skeptic, but it does work.

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited January 2014

    Lbrewer, Dr K will order the garment through the hospital, you will wake up with it on and can ask for a spare to go home with. He generally doesn't keep one in them for very long, so the 2 they give you should be good for one to wash while wearing the other.  I even learned how to 'pee' standing up so I didn't have to take it off very often.  (I wore panties on the outside of the garment - looked LOVELY LOL, but worked).  It will soon be a memory so wouldn't worry too much about it.

    Hope this helps?  I also had the same done, plus a 'scar revision' and seroma drained and was able to go to a Komen luncheon the day I was released from the hospital - of course still on drugs, but doable even right away to wear the garment!!!

    Hugs

    Catie

  • mags20487
    mags20487 Member Posts: 1,591
    edited January 2014

    compression can be a necessary evil.  I have been in compression since March after my gap surgery complication allowed me to-- which was 3 weeks after the surgery.  Those 3 weeks out caused a seroma to form which turned into a pseudo bursa that had to be surgically removed.  By wearing the compression from surgery until doc clears you, you are making sure that the skin and fat adhere where you want them to and it will produce a great result.  Dr M is shocked that my behind turned out looking any good at all and she contributes it to me wearing the compression since I was able to since the bursa was fixed.  You get used to it pretty quickly and you will most likely be out of it soon after that....You can do it!

    Maggie

  • lbrewer
    lbrewer Member Posts: 766
    edited January 2014

    thanks guys.  i needed some encouragement today!  i'll try to remember to ask for a spare to take home!

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited January 2014

    Lbrewer, the compression used to be the thing that I feared almost as much as the surgery - but as Mags said, it really wasn't bad at all, and you do get used to it and then it's gone!  So don't sweat that part.  You can also ask for the pillows!!!  Good padding for the car!  East cooper is very happy to accommodate !

    Hoping for smooth sailing for you

    Hugs

    Cathie

  • lbrewer
    lbrewer Member Posts: 766
    edited January 2014

    thanks. I kinda need talking down off the wall. Dr K says he can't make my sgap as big as the diep side. I don't really care about being as big, I just want them to be symmetrical and look like a boob not a sausage!  I'm afraid it has really affected me mentallyo

  • MartyJ
    MartyJ Member Posts: 1,859
    edited January 2014

    Lbrewer - you will be fine.  Dr K will make sure you are symmetrical and beautiful. Relax!

  • lbrewer
    lbrewer Member Posts: 766
    edited January 2014

    thanks for the encouragement. I am also dealing with having the right side of my colon removed tp try to help prevent colon cancer. I'm afraid it is all starting to squish my brain!  And my son is getting married in April so that's a stress too.  It helps so much to be able to talk here cause it's hard to explain it all to someone who hasn't gone thru it all

  • brca35
    brca35 Member Posts: 68
    edited January 2014

    I live in Michigan and scheduled for DIEP w/ Craigie in the summer. MT. Pleasant is 14 hours from me, so a 2 day drive with 7 hours each day there and back. Is that doable after surgery or do I need to fly? )trying to find a way to save money.)

  • MartyJ
    MartyJ Member Posts: 1,859
    edited January 2014

    BRCA - you can drive (or ride in a car, you won't be driving).  The docs usually require that you stop hourly to walk to keep the blood flowing properly and help prevent blood clots.  You might want to consider a 3 day return trip.

  • cascader
    cascader Member Posts: 599
    edited January 2014

    lbrewer you have lots going on so it is normal to be a bit anxious. Regarding compression, I actually thought it felt good, I used a mareena garment as a back up which also had an open crotch making it easy to pee. I was really uneven after Stage 1, (i'm a uni)but after Stage 2 there was a huge improvement and I am now symmetrical . Make sure you let the doc know that symmetry is more important to you than size and have this discussion with him. Thinking of you!

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited January 2014

    Brca35,

    It was 12 hours from Indiana for me. My husband drove back of course. We had a bed made in back of minivan for me. I was too uncomfortable to sit in captains seat in front -- but I had SGAP so that may be why. We stopped almost every hour for quick stretch and walk. I wore compression stockings provided by hospital. You will also need to continue with blood thinner shots of lovenox or Arixtra each day until you get home and more mobile. 

    What is date of your surgery?  If you would like to add it to list at top please do. 

    Depending on time of year will be higher rates. I have been able to get the medical rate of $63 per night at Comfort Suites which is 5-10 minutes to beach and 5-10 to Drs office and the hospital. Even got that rate during July 4th weekend by luck. So three surgeries I had that rate for a nice hotel in a very nice location. Not the Mariott, but works for me. I also stay with an old friend when I go for surgeries. My husband only went for first big Stage 1 surgery. 

  • lbrewer
    lbrewer Member Posts: 766
    edited January 2014

    the sad part about Chs is how hard it is to fly into. There are very few direct flights. It takes me six hours to fly there and about seven to drive.  Even flying you are looking at a long trip and can not break it up as you choose,  at least driving you are in control of when you want to stop.  Don't know which is cheaper in the long run

  • brca35
    brca35 Member Posts: 68
    edited January 2014

    Thanks ladies. Surgery is scheduled for July 18 w/ Craigie, Delta offers direct flights from SE Micjigan to Charleston, but they are $380 per ticket and small jets - 13 rows on delta. I have a fear of small planes so that's unfortunate. I am really struggling with making this work. I was thinking if driving so we could afford to bring our 2 children. Definitely can't afford 2 extra plane tickets for them and one for a babysitter. That's 5 plane tickets for one surgery. I have very little support and my kids are special needs so people who babysit have to be specially trained to watch them. My husband (and everyone else) would prefer I have the surgery in Michigan. I am beginning to relent as the logistics seem impossible. I don't have enough people on board to care for my kids for the amount of time I am going to be gone. I really am at a loss as to how this is going to work. I have scoured this board and others to talk to people who have seen my local surgeons but haven't had much luck. I appreciate the feedback in this thread. 👍

  • MartyJ
    MartyJ Member Posts: 1,859
    edited January 2014

    BRCA - I will add an additional challenge - if you do bring the kids you are probably going to need to rent a condo.  There are lots here, but the pricing is much, much higher in the summer as we are a strong beach community.  Southwest flies from Chicago direct and from Grand Rapids with only 1 stop.  Their planes are big and comfy.  Grand Rapids is about $240 round trip.

    Even if you have the surgery in Michigan, you will need people to care for your kids.  Your husband can do much, but if he is at work you will need help.  You really won't be up to doing much for them for 2 - 3 weeks and you job will be to heal (inside and out).  I am not trying to discourage you, but want you to be fully aware of what to expect.

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited January 2014

    Brca35,

    Have you reached out to your children's teachers or teacher assistants?  They may be able to babysit for you since your surgery is during summer break and they may want to earn extra income. Or they may know of someone else who has experience with caring for kids with special needs. My heart goes out to you. It helps that you have six months to work things out and I hope that you can. 

    I almost went for a consult with a Dr Hammond in Grand Rapids but cancelled. He was into the lat flap thing. So thankful I found Dr Kline. Keep us posted!

  • Davy
    Davy Member Posts: 114
    edited January 2014

    Brca35, 

    Great suggestion above from Pink. I, too, felt that there were a lot of obstacles to traveling for surgery. Although I didn't have to travel as far, but I have three little kids and am in the midst of a divorce. But by God's grace it all came together just as I was about to throw in the towel. I encourage you to keep going over the possible options and talking to different people who may point you in a direction you had not considered. 

    And while I realize that for many people their spouse is their biggest supporter, could you maybe have a family member or friend accompany you for surgery and leave DH with your kids. You will save on babysitting costs assuming your DH is up to doing the care taking alone.  And when you're back home maybe you could call on the babysitters you didn't use while out of town to help if your DH has to go to work (don't know if your kids attend school or not) because you will need help for the first few weeks at least. 

    Don't give up even though it can be overwhelming with your other responsibilities weighing on you.  After all, the outcome is yours for the rest of your life, you want someone who has the experience and knowledge to do it properly. 

    All the best,

    Davy

  • bdavis
    bdavis Member Posts: 6,201
    edited January 2014

    I agree with the ladies about support... For my first stage I, I had a friend help me out and my husband flew in pretty much just to fly me home... we did take an extra 3 days so that it wouldn't be an in and out... To be honest, while in the hospital, you don't need anyone. The nurses will take care of you. You need the most help when you are discharged.

  • lbrewer
    lbrewer Member Posts: 766
    edited January 2014

    you will need someone to take you from the hospital to wherever you are staying as dr craigie will want to see you about seven days from surgery before you head home. But the nurses at east cooper are wonderful and will see you ear we'll taken care of in the hospital

  • brca35
    brca35 Member Posts: 68
    edited January 2014

    Thank you for the information that each one of you have offered. I have been researching this for over a year now and it's always nice to get more information from ladies who have been there. I really appreciate that you took the time to respond to my post.

  • lbrewer
    lbrewer Member Posts: 766
    edited January 2014

    headed to Chs for surgery on Friday. Scared but glad to be getting on with it. It looks like it will be freezing!

  • MartyJ
    MartyJ Member Posts: 1,859
    edited January 2014

    Since you will be sleeping much of Friday, you will miss the rain.  Cold, but not too bad.  Best wishes!

  • cascader
    cascader Member Posts: 599
    edited January 2014

    lbrewer I  am also hoping the weather warms up quickly as I will be heading to Fla next week, but I really miss CHS and office staff. Good luck with your surgery, you are in the best of hands. Stage 2 made such a big difference. There is light at the end of the tunnel, none of this is easy but stay focused. 

    I was able to get an earlier appointment with Vinnie , so now scheduled to get my tattoo sooner on Mar 17. Catie I am sorry I will not see you in MD, you still in May?

    Had my Onc  appointment last week and she noticed I had some pec muscle atrophy.. big surprise(not) so I started some upper body stuff at the gym and now my  LE  has flared up like never before ! Can't win. 

    Brca, traveling and all that it involves can be overwhelming for sure, but it really is doable. Try breaking the challenges down to smaller parts, kids, house, food , etc. Now is a really good time to ask for help, even tho I know how hard that is to do. You might be surprised , people want to help but often don't know how. You have some time, don't get discouraged, this is important. 

    Getting late, stay warm everyone!

  • lbrewer
    lbrewer Member Posts: 766
    edited January 2014

    fla is cold this week but it will warm up.  We don't stay cold for very long

  • lbrewer
    lbrewer Member Posts: 766
    edited January 2014

    Cascader, thanks for the encouragement.  Do you wear a lymph sleeve when you exercise?  Latest studies show upper body exercise is good for lymph seam but I was told to wear my sleeve when I did weights. 

  • lbrewer
    lbrewer Member Posts: 766
    edited January 2014

    well no fat grafting tomorrow.  Gonna lift my other side and shape my sausage!  Fat will come next time. I feel real good about it.  I was upset with the shape and Dr K thinks it can be much better

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