Atypical Lobular Hyperplasia

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DiannaA
DiannaA Member Posts: 5
edited June 2014 in High Risk for Breast Cancer

My biopsy luckily (I think?) came back as ALH.  My doctor told me this means I do not have cancer, and explained it somewhat, that it could mean I have an increased risk, etc.  Now I have an appointment with a surgeon to get more information and decide what to do about it.  I felt that this forum would be helpful for me to understand more about it, and perhaps get some recommendations on what questions to ask the surgeon.  Any advice would be great, and also any thoughts on Tamoxifin.   Thank you in advance!

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  • Moderators
    Moderators Member Posts: 25,912
    edited January 2014

    Hi DiannaA!

    You're sure to receive some helpful responses here, but we wanted to share with you the main Breastcancer.org site's page in the Lower Your Risk section on Certain Breast Changes as a Risk Factor, which includes info on ALH and also links to great info on Tamoxifen, along with other steps you can take to help lower your risk.

    We hope this helps!

    --The Mods

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  • pegasus68
    pegasus68 Member Posts: 73
    edited January 2014

    Hi Dianna,

    I am fairly new here too, so I am afraid I don't have any advice for you.  I'm sure others will be along with their recommendations soon.  Your story sounds similar to mine - I'm 45 and recently diagnosed by core needle biopsy with ALH with ductal involvement and/or LCIS (apparently the pathologist didn't want to commit one way or the other without a larger sample).  For various reasons, my excisional biopsy will not be until March, and my BS wanted to wait until final diagnosis from excision biopsy before discussing my management plan in more detail (although he did comment I would need increased surveillance).  So, I'm back to playing the waiting game and will be interested to hear how things go for you and learn from others in response to your post.

    - Peg

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  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited January 2014

    After my ALH diagnosis my BS sent me to a genetic counselor to determine my individual risk. ALH does increase your risk somewhat and can be a marker for breast cancer in both breasts. In hindsight I wish I'd known about Tamoxifen. If you do a search for ALH in the topic list you'll find many posts and threads about it. Best of luck!

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