DIEP 2014

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  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    Jmb, I know you didn't want to call attention to your situation, but support like that is curative, and a good thing.  You are blessed, and so is your daughter.

    Bella, I wish I knew somebody personally that used him.  I have read of other people on the forums that have, but can't remember their names now.  Maybe if you do a search on here with his name you will find some posts.  I just heard he was really good.  I had heard, and this could be wrong info, that he had a car accident back in the summer, and one women was schedule for an implant surgery with him, and it got changed to another doc, and she was very upset because she loved Saint-Cyr.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited January 2014

    Michele, I, too, wish I could just walk over and give you a big hug, go to your infusions and wait on you hand and foot. I'm sure you feel alone at times, but we are with you, heart and soul. 

  • nihahi
    nihahi Member Posts: 3,841
    edited January 2014

    I'm sending a "shout out" for a group hug tonight......seems appropriate. {{{{{{{{{{{{{{{{{{{{{{{{{{{{{{X}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

    For what it's worth, I understand the sentiment and "support" of the pink thing, I really do, honest...I get it.... but to me, it feels as awkward as heck...... I think many of the "gestures" are meant to be heartfelt shows of support, especially from young people, but, I am actually a rather private  person. I'd rather spend my public moments in denial, so I can loiter on the fringes of "the old normal"...I have had plenty of private moments of "awareness" that require nothing pink or "ribboned" to bring the reality of my bc to my attention. We're all different, and I respect everyone's views on the topic.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    Absolutely, Nihani.  And, let's put Curly right in the middle of the hug!!!! 

    Curly, I hope you get some sleep tonight. 

  • nihahi
    nihahi Member Posts: 3,841
    edited January 2014

    cherrie......I feel like chuckling at your message, and giving you a huge hug and a tissue to wipe your eyes.

    The image of you lying down with a tape measure to map out your "zone" made me smile.....but, hearing about your unhappiness makes me sad......I truly believe you should still have hope for some sensation return. Yes, you are 14 months out from your Stage 1, but.....remember....you HAVE had additional things done since then....didn't you have your incision redone.....that means some steps backwards......I have no idea what lipo and prolonged compression does, but I would think it would also have some impact.

    A c-section is basically, just an clean incision. It doesn't involve removing layers of tissues and then loosening and stretching body parts to cover the defect. It takes a long time sometimes,  for nerves to regenerate, and re-establish themselves and their "awareness" of their new location. Do you do a lot of massage....it really does help to reconnect the nerves and the mind and the whole "awareness" thing.....You've come a loooong way.....I do not believe you have reached the final result yet!!! 

  • nihahi
    nihahi Member Posts: 3,841
    edited January 2014

    I picture our group hug like a flock of penguins during the Antarctic winters.....we're huddled together so we can survive.........there's always someone in the middle, but as life goes, eventually, someone in the outer circle needs some "centre time" too. But yep....curly....you're in the middle tonight.

  • lahela
    lahela Member Posts: 515
    edited January 2014

    Beautiful analogy, Nihahi! I'm here hugging you too, Curly.

  • Zoemom
    Zoemom Member Posts: 50
    edited January 2014

    Nihahi- thank you for that wonderful analogy.  The support on this forum is amazing and I'm so grateful for it.

  • nihahi
    nihahi Member Posts: 3,841
    edited January 2014

    I have posted pics of my recon on the photo forum, for those who have access.

  • iowagirl1
    iowagirl1 Member Posts: 130
    edited January 2014

    Nihahi,

    The penguin analogy was a perfect way to describe the great women here.  It also made me think of the movie Happy Feet which put a smile on my face which never hurts!  I remember how the men carried the eggs on their feet to keep them warm.  We need more men like that in this world!  LOL

  • nihahi
    nihahi Member Posts: 3,841
    edited January 2014

    iowagirl....sadly, imho, that would mean there would be a lot less eggs making it to hatch time! 

    This reminds of the "game" we once played on the 2013 thread...."Seriously, I'm telling you, if you close your eyes.....you CANNOT find your bellybutton" 

    image

  • Zenful
    Zenful Member Posts: 599
    edited January 2014

    Love the penguin pic, Nihahi.  Seriously.  I put my finger about two inches below where they placed mine.  Mine is up around my waist.  Very strange placement, indeed.

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited January 2014

    Nihahi, I am STILL looking for mine (bellybutton!)........

    Curly....we are here for you......and will hold you up as long as it takes.....TOWANDA!

    Ladies, I am nearing the end of my DIEP journey....This Saturday is the girls' first birthday (I can't believe how quickly/slowly this past year has gone for me).....and  incredible as it sounds, I cannot remember most of the tough stuff....kinda like childbirth, I guess.  For those of you just starting this journey, be patient...........DIEP is a work in progress, and it takes TIME- a LOT of time.  Not all of it will be spent doubled over because you can't stand up straight, not all of it will be spent hurting.....there will be time to enjoy things around you (last year, after stage 1, Nihahi and I met up in Glacier National Park,to do some hiking)....time when life gets back to "just about normal".....and then stage 2 will be upon you.....you will bounce back, and then it is time for Stage 2b ( or 3, or whatever)......all are steps to getting you back to normal.....not the"old" normal...but a NEW normal......I am almost there.......in a few months I will be setting up an appointment for my nipple tattooing......and this incredible metamorphosis I have gone through will be at an end.....and the rest of my life will begin.....and so it will be for each of you.......Remember, a journey of a thousand miles begins with a single step (Lao Tzu).  

    TOWANDA!  Onward and upward!

    XO

  • Curlylocks
    Curlylocks Member Posts: 1,060
    edited January 2014

    Got some sleep last night and managed my daily afternoon nap.  I was going so stir crazy in this house I took the car out for a spin to the local store...felt awesome to get out again.  I am nervous to drive any long distance just yet though....

    Still waiting to hear back from my oncologist's office to see when my appt is....left a message yesterday afternoon....wonder whether or not they even looked or even got my referral yet.  I have a followup appt with the surgical oncologist tomorrow afternoon, I will ask her when she send the referral and act accordingly....I HATE WAITING!!!!!!!!!!!!!!!!!!!!!!!

    You ladies are the BEST, thank you I feel so loved:)

    Awe.. Movie good for you nearing the end of this crazy journey, know it hasnt been easy for you!

    Jmb/Jeannie - you ladies are too sweet.  I will think of you as being in my pocket when I start chemo.

    Michele

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    Curly, glad you are sleeping a little better.  I hope they get your treatment plan figured out pretty soon.  Now that you know what needs to be done I know you want to get moving on it.  That is great that you are getting out.  You are doing great as far as your recuperation from the diep.  I pray they rest of this journey will be as gentle on you.  

  • BellaMomma
    BellaMomma Member Posts: 77
    edited January 2014

    Well, tonight we get to flush the water lines and water should be flowing soon in our house again. This chemical leak that entered the water supply affected 300,000 West Virginians and has left us without water since last Thursday. We bought a camping shower gizmo, heated up spring water, and it worked well. Bottled water for drinking, but ready to do some laundry. Makes me appreciate all the things we do have. Camping and girl scouts thank you for your lessons!

  • Beebop
    Beebop Member Posts: 206
    edited January 2014

    Hi there ladies!   I am jumping in here.  I had my DIEP last Wednesday, January 8th.   It was intended to be a TRAM, but once he got in there he realized he did not need the muscle.  I was pleasantly surprised.    Came home on Sunday and not feeling too bad.   The drains have decreased dramatically today so hopefully can have them pulled this week.   I am going to go back and read the thread now so I can see how everyone else is doing.  Happy to be here!

  • BellaMomma
    BellaMomma Member Posts: 77
    edited January 2014

    nihahi, Appreciated being a part of the group hug and the penguins. You really know what's needed, just the right words at the right time for all of us.  Smile

  • BellaMomma
    BellaMomma Member Posts: 77
    edited January 2014

    Hurray Beebop!

  • Cherrie
    Cherrie Member Posts: 1,423
    edited January 2014

    Curly- We are here for at any time. It sucks, but you will get through this. You will need a major celebration when this is all over. Damn girl. 

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    Hey Beebop, welcome.  Sounds like you are doing great!!!!!  We are here to answer questions, chit chat, whine, etc.  Whatever you need.  Glad you found us.

    Your history as far as reconstruction sounds similar to what mine will be.  Did you ever have implants?  Our did you just keep your expanders till you had your diep.  I tried  the implants, and I am not happy with them.  I am hoping my diep will be June 3.  Would love to compare notes with you.

  • TBerg
    TBerg Member Posts: 27
    edited January 2014
  • Beebop
    Beebop Member Posts: 206
    edited January 2014

    hi goldie!   I actually had the expanders removed in Feb 2012 due to infection.  I am so happy with the DIEP, although may need some adjustments down the line to get more symmetry, but it's so nice to have my own tissue now after using prosthetics for almost 2 years!

    I have not had time yet to read the full thread, but for those who have had the surgery, how long were you told to keep the abdominal binder on?

  • Zenful
    Zenful Member Posts: 599
    edited January 2014

    Beebop, every doctor is a bit different about compression.  Mine wanted me to leave it on one week after the drains were out, but it wore it much longer.  I am four months out and still waring Flexees because I feel most comfortable that way.  I'm sure others will chime in.  Glad you found us!  You will find it to be a wonderfully supportive group.

  • Beebop
    Beebop Member Posts: 206
    edited January 2014

    thanks Zenful!  When I asked my Dr. How long I needed to wear it he said if it bothers me to take it off.   He is not convinced it is necessary.  I took it off today because it was pushing against my drain sites.   I hope to see him on Thursday to pull the drains, so I'll see what he has to say.

  • Curlylocks
    Curlylocks Member Posts: 1,060
    edited January 2014

    Beebop,

    The binder is more comfortable once the drains come out.  My PS has encouraged me to wear it for 8 weeks post op.  It helps support your back, keep everything held together and helps keep fluid from building in tummy post surgery.  I am 1 month post op and switched out from a binder to a spanx a few days ago..much more comfortable!

    Michele

  • Beebop
    Beebop Member Posts: 206
    edited January 2014

    That makes sense Michele, thanks!   I will put it back on once the drains come out.

  • AnnBR
    AnnBR Member Posts: 853
    edited January 2014

    goldie, I was so happy to read your comment about Dr. Saint-Cyr, who will be doing my DIEP in April. He was in a serious accident last summer, so my DIEP was pushed back 6 months. I was given the option of going with another surgeon, but I wanted to stay with him. I've heard he's an artist and a perfectionist. 

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    Yes, Ann.  You were right to wait, from what I hear.  I can't wait to see how it works out for you.  I am so glad to hear he has recuperated from his accident and is back in the OR where he belongs.  Good luck.  Keep us posted.

    Beebop, I know even after my hysterectomy which was laproscopic, they recommended light compression for comfort and swelling, and I wore it for months.  It just felt better to have it on, and I did notice it helped with swelly belly.

  • Sharon1942
    Sharon1942 Member Posts: 272
    edited January 2014

    Ann, Dallas & UTSW was crushed when Saint-Cyr left. He has a reputation beyond compare. He has done a lot of research & published lots of papers. He also presents at breast reconstruction symposiums nationwide. He is a leader in microsurgery. He left UTSW right before I had my reconstruction. He is tops in the field. He trained the PS that did my reconstruction & I am very pleased with my results.  You are lucky to have him do your reconstruction!

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