"As the BC world turns"

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  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited January 2014

    Jenny, when I first started this whole speed bump, you posted a message that had two photos--one of you right after your mx, bald, looking like cancer girl, and then with hair, confident, beautiful.  I clung to your hopefulness and beautiful outcome like a monkey on a banana tree.  Now it's our turn to do it for you.

    Like hopefour said...no matter what, there's hope.  It's doable.  Rascal Flatts, "I Will Stand By You."  

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  • faithfulheart
    faithfulheart Member Posts: 544
    edited January 2014

    Big prayers Girl,

    you have been on my mind all day.......You will be ok.....

    we are all with you my friend.

    love love love....

    steph

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  • Minnie72
    Minnie72 Member Posts: 61
    edited January 2014

    Hi Jenny, Im new here and the reason i joined is becuase Im kinda in the same situation.  I have been getting a lot of chest pain and GP keeps telling me its chondoathritis and tells me i should just ice it and take motrin.  It seems to help but it never went away.  Its been about 4 mos. Now i have respiratory issues and the pain came back and seems worst.  Last week it was my 6 mos check and i had bloodwork done.  Onc tells me my markers are up. Im on tamoxifen and have had low markers early this year but it was slowly going up from the last few check up.  First onc wasnt concerned but now he is sending me for a pet scan.  I did have a pretty good size tumor close to my breast bone and thats where the pain is.  i dont think it helped that I did hit the area with a box too (trying to organize my closet) I had mastectomy with 2/12 nodes +.  Did chemo, rad with boost and herceptin.  Im hoping its just inflammation thats causing the pain but I am very worried about the scan!  Im sending good thoughts your way....and a hug! 

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  • Kiss77
    Kiss77 Member Posts: 162
    edited January 2014


    Jenny, kathec and Minnie, hugs to you!

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  • Tomboy
    Tomboy Member Posts: 3,945
    edited January 2014

    so i did go in yesterday, and not only were they very concerned about that spot i mentioned, but two more close to it in the breast itself,  very close together. they sid it could be fat necrosis, swollen lymph nodes, or cancer. biopsy next week. not fun, but trying to mentally prepare myself, as if you really can.

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  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited January 2014

    Just popping in to say I'm thinking of you today.  Good vibes and prayers coming your way! :)

    Love,

    Sharon

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  • dutchiris
    dutchiris Member Posts: 855
    edited January 2014

    Thinking of you Minnie, Kathec, and Jenny.

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  • peacestrength
    peacestrength Member Posts: 690
    edited January 2014

    Jenny, Kathec, Minnie - love and hugs

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  • AgentMo
    AgentMo Member Posts: 72
    edited January 2014

    Wish you all the best.

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  • Tomboy
    Tomboy Member Posts: 3,945
    edited January 2014

    it just is sucky, being stage lllc, because i just feel that are you sure? are you really really sure? because maybe something just hasnt divided enough times to actually be detected yet. lllc/lV, same thing in my book, which i am working on like crazy, when i have the energy. think i will start a blog,if anyone is interested. have copious notes, and one of MY favorite things to do, is read other womens blogs about this merde. let me know if you think i should, and if you would come! it might be the last creative thing i build, besides dinner, i mean. thank god for bco, and the answers and camaraderie, and love i have found.

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  • jennyboog
    jennyboog Member Posts: 1,322
    edited January 2014

    Well, girls I'm back from the dr.  I've had myself a good cry and now to post on BCO :)  MO showed me the scans on her computer, seeing it made it all real, no denying it....that's my name in the top right hand corner and that's my crooked no recon chest on that screen, so yep that's me.  And there they are the enlarged LN's glowing with their measurements written in yellow.  Funny how you notice the unimportant details in a time you should be focusing on the important ones.  Of course, she won't say until the biopsy but feels it's back or a slim chance it could be lymphoma.  The LN's are like 20x17mm and had medium uptake on PET.  She said these particular LN's becoming infected are rare, they are located between my trachea and breast bone.  I see the surgeon on Friday and then pathology of course will determine the tx plan.  She mentioned systemic rads, Aromasin along with another AI and possibly chemo again.  Thank you all so much, you each will never know how much it means to read your post and have ya'll here for me.  I know easier said than done but please don't allow this to get any of your hopes down for yourself or any of us.  Advancements are being made everyday and there is always hope.  Never give up, I'm not.  I love ya'll bunches and thanks again for being my sisters in battle.

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  • Tomboy
    Tomboy Member Posts: 3,945
    edited January 2014

    oh, jennyboog. i am so sorry that you are going through this.  besides the one i had found, they found two more besides. hate this. they said could be fat necrosis, could be lymph nodes enlarged, or could be tumour. wow, they did a pet scan first? mine only did mammo + ultrasound, and biopsy scheduled next week. i am wondering if i should insist on pet to just take a look. if they do find something on me, i think i will insist upon it, before slicing and dicing.  i aint givin up either. (((hug jb)))) kathe

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  • Kiss77
    Kiss77 Member Posts: 162
    edited January 2014

    Jenny, I'm so sorry! You are strong and you can beat this!!! 

    kathec, you are in my thoughts. Good luck with the tests.

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  • hopefour
    hopefour Member Posts: 459
    edited January 2014

    Been waiting...so good to see your post and so like you to be reassuring to us!! So wish we all could have done a group hug/cry with you!!! I am always good for a cry after a visit with my MO...even when its good!! OK...we'll wait till the path report and than know you have lots of really smart sisters here that can help you discern what your MO recommends for treatment..if needed!! If it proves to be BC I know with out a doubt you will be NED soon again...believe that!! Great that its not possibly in the bones as you had shared earlier about starting to run...keep exercising , eating well and don't let this overwhelm you with fear...we'll get through this!!

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  • MaxineO
    MaxineO Member Posts: 555
    edited January 2014

    This is not what I wanted to hear. I am sorry you are having to face this beast again.

    I am glad you are feeling strong right now and not letting BC take your resolve. When you're feeling good, we're here for you. When you're feeling bad, we're here for you. Lots of love on these boards, and right now, much is being directed at you! Stay strong, lady.

    And kathec, I just noticed you're going through much the same. Sending you thoughts and strength too. We are here to fight with you.

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  • peacestrength
    peacestrength Member Posts: 690
    edited January 2014

    Jenny - I too, am sorry.  It sounds like a plan is coming together and they are moving quickly. Hope will shield you - Strength will carry you.

    Kathec - push for a PET scan if it's available through your insurance - makes sense what you said above.

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  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited January 2014

    Jenny...dear sister...I'm sorry.  I'm sorry.  I'm sorry.  Weeping for your crapalactic news.

    OK, now, I'm drying my tears and shoving every ounce of strength into my computer for you to use to fight this!  The airwaves are crackling between our keyboards! 

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  • AgentMo
    AgentMo Member Posts: 72
    edited January 2014

    I'm sorry.

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited January 2014

    Jenny,

     You are such a class act. I am so in awe of you, boosting us up, always staying so positive and hopeful..

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    Jenny - I've been following your posts.  You mentioned that the LN's are between your trachea and breastbone.  Have you had any cough at all?

    Oceana

    marvelous-nicole-rodriguez.jpg (180×119)

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  • lkc
    lkc Member Posts: 1,203
    edited January 2014

    Hi Jenny.

    OK, still not conclusive until you get your pathology report back form the biopsy. ...A local recurrence  with 2 small nodes is doable. They are not mega size or multiple in nature  which is good and the rest of your scans are clear!! keep your head focused on that should,  the path come back positive. The plan your doc suggests  (if path is  positive ) is a good one. If it is indeed a local recurrence it has been caught super early and dearest you'll be ok. I know a good many ladies who have dealt with a local recurrence and are FINE years later. I am sorry you've got this on you plate , but with your big girl boots on you will get through it, one day at a time.

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  • AmyQ
    AmyQ Member Posts: 2,182
    edited January 2014

    Yep more prayers and good wishes for you Jenny. I am sorry you're experiencing progression but as others have said there are lots of options.  Keep us posted on what you find out. 

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  • jennyboog
    jennyboog Member Posts: 1,322
    edited January 2014

    Kathec....I apologize I meant to say something to you earlier, I was rushing so I could pick up my daughter from school :)  I am so sorry you're going through this too.  I went straight to a PET after my TM's went up gradually for the pass 3 draws that's the only reason why a scan was scheduled.  I don't have anything left to mammo :)  We WILL get through this.  ((Big hugs))!

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  • jennyboog
    jennyboog Member Posts: 1,322
    edited January 2014

    Ahhh, ya'll are way to kind with the compliments....but I like it!Happy  I had my good cry now I'm in battle mode, might cry again later but for now it's on!  I will not give into it, it will not take anymore of me  or me....hear me roar!  (the BC battle cry) 

    Oceana...no cough at all, but its funny now that I know they're there it feels heavy or like a pressure.  I could have felt that way before but never paid attention until now, who knows.

    SBElizabeth....you cracked me up! I felt your almighty power....it had to come all the way across the USA!

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  • dancermom
    dancermom Member Posts: 53
    edited January 2014

    jenny and kathyc, my thoughts are with you.  You are definely role models on how to deal with the stress and anxiety that goes with the waiting game.  Hoping for good results on the biopsy for you both.

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  • Tomboy
    Tomboy Member Posts: 3,945
    edited January 2014

    For sure jenny! you dont have to apologize, plus you are a mother! i dont know at all how the moms do it. now i would be totally lovin up my kids, if i had them, but the strength it would take to take care of all that entails, you completely have an admirer in me, too! so i will be thinking of you too, and all we have to do is show up and do what we can. my bloods dont even have any of the normal, from what i have been able to figure out, markers even looked at. but the normal bloods the check is just a cbc, and i had noticed, all of the numbers had changed, up or down, from the previous blood draw 6 weeks before. may blessings rain upon you. i have been coughing off and on mostly on, for 8 years. but my ribcage has hurt since surgury. but especially for the last 6-7 months. i am so glad you started this topic, didnt mean to jump it, sounds like you have some good support here. i am on the hermits thread, pretty much, but read any ol where on bco.

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  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited January 2014

    (((Hugs))) Jenster----You are one amazing woman and I know will kick this shit to the curb.  Whatever it is.  Now batten down for the waiting game.  Once you know exactly what "it" is you will have a plan of action.!

    And Kathec, do push for those tests and get what you need to be in charge. 

    Thinking and praying for you all and all of us!

    Love,

    Sharon

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  • Minnie72
    Minnie72 Member Posts: 61
    edited January 2014

    You are all great inspiration to me and helping to take the fear of my upcoming pet scan.  I will be radioactive come Monday.  For now I am on antibiotics for my cough/congestion and anti inflam to ease the pain. Thanks everyone!  I'm so glad to have come here!

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  • Momine
    Momine Member Posts: 7,859
    edited January 2014

    Jenny, I am so sorry. This thing just is the biggest bitch ever. I have full confidence, however, that you can smack some sense into it once again.

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  • Elizabeth1959
    Elizabeth1959 Member Posts: 346
    edited January 2014

    Jenny

    I am so sorry that you are going through this.  There is nothing I can say to make this any better.  I hope the fact that your stage 3 sisters care so much will offer a little bit of comfort.  Please let us know the results of the biopsy.  There is a part of me that still hopes it could be something else besides recurrence.  

    Elizabeth

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