Positive Posts

Hi ladies

For me AC was not that bad. With my first round I had no effects at all. The second round my appetite was gone the first 3-4 days and my tongue was coated. I lost my hair around day 16 after my first treatment. I never had bone pain, just flu like symptoms from the Neulasta shot. Actually I think that shot is what causes most of the problems. Constipation and nausea were never an issue and I did not notice great fatigue. I guess I would say the 4th round was the worst (indigestion and tongue hurting). The palm of my hands turned a brownish color and my feet soles are dark. (I have a dark skin ).

I have started Taxol/Herceptin on 31 Dec. I guess so far its been ok, but due to the fact that it is weekly I do not have time to bounce back. After my second Taxol my fingertips felt a little numb and I always wake up at night. My last menstruation was after my 4th AC. I guess now I am in chemopause. I have heat flashes, but only on my head. 

This is a small list of pre meds that I had;

AC- Nausea premed- Aloxi ,Emend, Decadron (steroid) and Zantac (for stomach) 

next day- Claritan (for Neulasta)  1bag fluids/magnesium (because I am always low).

I hope you ladies get through your treatment without a lot of side effects! If you have any question do not be scared to ask :-)

Milane

I worked during my treatment. Usually on the third and fourth day after treatment I wasn't running any races but nothing I couldn't tolerate. I was tired the further on I got into treatment, but overall very doable, especially knowing when I got to the finish line I had a chance to beat this beast. I'm thankful there was treatment available for me and thanking the lord big time for herceptin. I know everyone has different SE and intensity. I can only speak for me. I did not have pain after mastectomy nor had to use pain medications at any time after surgery or during treatment. Herceptin was a breeze. I had my last Herceptin the day after Christmas. I'm currently taking Arimidex(anastrazole). Yes, it makes me a little achy but other than that, I think I'm doing pretty good. Love to all!

I'm 4+ yrs post DX for IBC

I did 4 DD A/C, then 2 weeks later UMX, then 3 weeks later12 weekly Taxol, then a week later 25 rads and Femara/letrozole for almost 4 yrs.  A/C was not bad at all. Surgery was surgery but could have been a lot worse.  Taxol - nasty during but better a week after last one..  Rads easy til day after done when the nasty burns showed up.

Would I rather have not had to deal with IBC - ya betcha!  But I did.and it's in the past.  I'm ALIVE and can do anything I want to so I'd do. Anything I went through during that times if I had to again - in a heart beat.   None of us know what tomorrow brings (or even the next minute).

There are always those who are not 'happy'  unless they be negative/how bad life has treated them and try to take others down.