How long can I wait before surgery?

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eas
eas Member Posts: 4
edited June 2014 in Just Diagnosed
How long can I wait before surgery?

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  • eas
    eas Member Posts: 4
    edited January 2014

    Diagnosed with extensive DCIS in late November that will require a mastectomy - surgeon wanted to wait until January - but because it was past insurance enrollment i now have to cover full deductibles for two years in the space of three months - is it safe to delay surgery until Jan 2015 when I can get the insurance coverage i need?  It is a stupid thing to worry about - but necessary.

  • Phebe38
    Phebe38 Member Posts: 197
    edited January 2014

    no you should get surgery as soon as you can or get another opinion from another surgeon. This is your life it's too long to wait till next year

  • Phebe38
    Phebe38 Member Posts: 197
    edited January 2014

    no you should get surgery as soon as you can or get another opinion from another surgeon. This is your life it's too long to wait till next year

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited January 2014

    Perhaps if you explain the insurance situation to the doctor he will take a payment plan? It couldn't hurt to ask---

  • Susie123
    Susie123 Member Posts: 804
    edited January 2014

    I agree with dogsandjogs, talk with your surgeons office and see if there is something you can work out financially or if there's a program that can help with your expenses. I would not wait another year. Let me explain why. DCIS, the diagnosis that you have now, is cancer that is still contained within the ducts. It's very early stage and has not broken out of the ducts yet to be able to spread to other parts of your body. If left to grow, which is what cancer does if left alone, it will break out of the ducts and become invasive, which means it could spread to other parts of your body. You do not want to take that chance by waiting a year. Your life is more important than money. I don't mean to scare you, but you should know the facts before making such an important decision. Please talk with your surgeon, there are a lot of people out there in your situation with high deductibles, or even with no insurance so even though we're not aware of it they do have alternate ways of accomidating everyone. I personally experienced this when I had to take my great nephew to the Dr recently. Actually the same family Dr my husband went to the week before and the insurance paid $128 for the same office visit that I paid $50 in cash for my great nephew who had no insurance. His mom told me that's what the office visit would cost when you had no insurance, she was right.  That was our family practice and we had no idea that option was available. Please talk with your surgeon.

  • Quasi
    Quasi Member Posts: 44
    edited January 2014

    Generally speaking when cancer is at play you are talking about weeks but certainly not months and not a year. I don't know what your doctors will say but mine said 3 weeks tops and a second BS said "You should have had your surgery yesterday ". It is urgent and important.

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2014

    DCIS and invasive cancer are not the same.  With DCIS, you have more time.  So it's important to not compare your situation, and timelines to surgery, to that someone who's had invasive cancer.

    If someone is diagnosed with just a small amount of low grade DCIS, waiting a year might actually be fine.  Personally I wouldn't do it, but there is controversy as to whether a small unaggressive DCIS even needs to be removed.  With extensive DCIS, however, the risks are higher.  And if the DCIS is high grade, then the risks are higher again.  The more DCIS you have, and the more aggressive the DCIS, the greater the risk that there might be some invasive cancer already hidden in with the DCIS.  If you've had a surgical biopsy and nothing more than DCIS was found, then this risk is significantly lessened.  But if you've only had a needle biopsy, then the extensiveness of your DCIS, and possibly the grade, presents a substantial risk.  

    The other risk is that even if today what is in your breast is all DCIS, the greater the amount of DCIS that you have, and the more aggressive the DCIS, the greater the chance that this DCIS might evolve to become invasive cancer within a relatively short period of time - maybe 6 months, maybe a year, maybe 2 years.  Here again, if you've had an excisional biopsy and most of the DCIS has already been removed, this risk is lessened.

    So the questions are:

    Have you had just a stereotactic biopsy or have you had an excisional (surgical) biopsy? 

    What is the grade of the DCIS? Is there any comedonecrosis present?

  • Kicks
    Kicks Member Posts: 4,131
    edited January 2014

    Talk to your Drs.  No one here can give you any real input as to how long it's 'safe' to wait.  Your Drs have your information so are tthe ones who can give you info on YOU and your prognosis.

    Talk with the Financial Offices at your Drs and hospital/facility about making financial arrangements.  Talk with the Breast Cancer Navigator at your facility - they are a wealth of info/resources.  If you have an ACS office in your area - contact them.

    Pay 2 years of deductibles within 3 months?  Makes no sense to me - but then in 'today's world' a lot doesn't.

  • eas
    eas Member Posts: 4
    edited January 2014

    I have to meet the full deductible for both 2013 and 2014 because it all happened at the end of the year - mammogram, biopsy in 2013 and now surgery would be in 2014 which starts a new year to meet the family deductible which is $7,000 a year, before insurance starts paying.  I will never go to a Dr. after August anymore.

  • eas
    eas Member Posts: 4
    edited January 2014

    I had a surgical biopsy and my DCIS is extensive throughout my breast. 

  • Kicks
    Kicks Member Posts: 4,131
    edited January 2014

    eas - I understand now.  I read it as you had to pay deductibles for 2014 and 2015. before coverage.  The 'written word' does not always come across as we mean it to -unfortunately.

  • Swimmom2
    Swimmom2 Member Posts: 169
    edited January 2014

    I'll share my history - I was diagnosed via an annual mammo the first week of Oct.  I asked my local BS if I could wait til the summer for the surgery.  She said absolutely not.  I then asked about mid-February, "No sorry it's pushing it".  After the new year? Reluctantly she agreed.  

    I went to MSKCC for a second opinion, and she felt because of my extensive DCIS (5+) you never know what's lurking in there.  Told me to have it done BEFORE the holidays not after. I probably waited about 8 weeks post diagnosis. 

    Initial patho was medium grade, but post patho indicated high grade - so I'm glad I did it sooner than later. 

     Good luck, I'm sure you will make the best decision for yourself (((hugs)))

  • redsox
    redsox Member Posts: 523
    edited January 2014

    As long as you have known DCIS in your breast you cannot be sure that you do not already have IDC.  The probabilities are favorable but somebody gets the short end of the statistics.  

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