Having mastetcomy this Thursday

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Mikela
Mikela Member Posts: 37

hallo ladies,

I'm having unilater mastetcomy on my right breast this Thursday, I'm scared and very nervous but at the same time can't wait to get it over with. I would appreaciate if anyone can tell me what to expect and am I going to be fine?

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited January 2014

    Mikela a mastectomy is a big operation but you will be fine.  The pain is not too bad and you will be given pain meds to keep you comfortable but you will have some drains in that can be more of a nuisance than anything and will be removed as soon as they stop gathering fluid.

    Make sure you have someone at home to reach for those things that are above your head and perhaps help wash you hair for you but generally you can do most things for yourself.  

    You will be tired so rest and heal.  Good luck!

    Love n hugs.   Chrissy

  • LAstar
    LAstar Member Posts: 1,574
    edited January 2014

    Yes indeed, you are going to be fine!  You are going to have some pain when you move around, but meds will help a lot. You will rest and rest then be sorry when you try to do too much too soon. Most importantly, you will feel a HUGE weight lifted from you every time you realize that this is behind you. The relief will carry you far. The drains will be annoying as heck but they will do their wonderful job. The incisions will heal, the scars will fade, you will feel stronger and stronger, and one day you will realize that you've gone all day without thinking about cancer.  I'm sure there is lots to do before Thursday - stay busy and it will be behind you before you know it. Best wishes!

  • Rakovina
    Rakovina Member Posts: 132
    edited January 2014

    Hi Mikela,  My experience of a mastectomy.  Surgery late Mon afternoon, had a light snack later that night along with a couple of doses of endone (painkiller tablets).  The next morning I was desperate for a shower, waited for DH to visit and he came in and helped me.  It was a bit awkward with the drains, but I held them and he washed my hair.  The scarline was only covered with a strip of tape, so we made an effort to keep it dry, although I dont think it mattered that much.  I was walking around the hospital grounds that day, and didnt have anymore painkillers after the morning dose.  I went home the following morning.

    Basically everything was numb, so not much pain at all.  I was worried about accidently pulling the drains out during the night, but they are sewn in, so dont move easily.  I kept the drains in the open top draw of my bedside table overnight. 

    I was given exercises to do with my arm, and found that doing them regularly helped a lot. Gentle walks and light stretching made me feel better physically and mentally.  I had the drains removed at home after about a week, a simple procedure which only took about 10 mins. I expected more pain and a longer recovery time, but overall it wasnt too bad.  To be nervous and scared is perfectly normal.

    Best wishes, you will be fine <hugs>

  • Ariom
    Ariom Member Posts: 6,197
    edited January 2014

    Hi Mikela,

    I am a right Uni too! Just a year ago.

    Great advice from the others.

    You will be absolutely fine, it really isn't anything like you imagine. When I am asked about this surgery I always say, for me, it was a surgery of weird sensations, not pain. Although they were available, I didn't have any pain killers after the surgery. I was up and walking the halls of the Hospital chatting and drinking tea with the Nurses within a couple of hours of waking up. I went home the following morning and actually called into a shopping mall to pick up a few things, on the way home, with my drain in a shoulder bag.

    The drains are definitely the most annoying part of the recovery, but they are there for a really good reason as LAStar says. You will need to stop yourself from overdoing it because you feel good, but your body still needs plenty of rest. I found myself dropping off to sleep mid sentence and some of the sensations from the nerves regenerating could be intensified if I was very tired.

    It is absolutely normal to be afraid and apprehensive, we all felt that way, but the relief when it is all over, is amazing. I know this may seem a bit weird, but I had to disengage from my breast before the surgery, so I actually said "You've let me down, you have to go!" I know it isn't for everyone, but it did work for me, by making me feel calmer and a bit more in control.

    I massaged the area above and below the incision, and then the scar itself with aromatherapy massage oils, did the PT exercises religiously 4 times a day and started walking after about the first week. Nutrition is very important as is drinking lots of water to keep the kidneys flushed and to get the anesthetic out of your system. 

    I wish you all the very best, for a speedy uneventful recovery, it will be behind you soon! Please let us know how you're doing.

  • ballet12
    ballet12 Member Posts: 981
    edited January 2014

    Best of luck, Mikela.  Let us know how it goes.

  • Pattykoch
    Pattykoch Member Posts: 3
    edited January 2014

    hi ,

    I had my mastectomy done last July, (my right breast) . It did not really hurt. I was walking around the next day already. 

    The drains are a bit annoying, but it was ok. 

    I wish you all the best and will have a thought for you. Let us know how you are please. 

    Patty

  • Mikela
    Mikela Member Posts: 37
    edited January 2014

    Thank you ladies I really appreciate all of you, yes I will let you know how I did.

    Thanks and love you all.

  • sandcastle
    sandcastle Member Posts: 587
    edited January 2014

    Mikela,  just remember to stay ahead of the pain....also l bought a wedge to sleep on.....and yes those drains are annoying.....you will be fine....liz

  • Chantel
    Chantel Member Posts: 66
    edited January 2014

    I was the biggest stress ball of them all!  I was relieved it wasn't nearly as bad as I thought it might be.  You'll get through it and feel the same, I'm sure :)  Good luck!

  • Ariom
    Ariom Member Posts: 6,197
    edited January 2014

    Good Luck Mikela! 

    You'll be just fine, big breaths, and it won't be as bad as you imagine!

    Hugs to you, looking forward to hearing how you are doing!

  • hoping42
    hoping42 Member Posts: 117
    edited January 2014

    Wishing you good luck and well wishes!

    Hoping for quick healing for you!

    hugs!

    xo Danielle

  • Mikela
    Mikela Member Posts: 37
    edited January 2014

    Thanks ladies I'm about to go to see a plastic surgeon so he can mark my breast for tomorrow :(

    Surgery is tomorrow, let you know how I did. Love you all.

  • Mikela
    Mikela Member Posts: 37
    edited January 2014

    Hallo ladies,

    Well I'm at home since yesterday, spent one night at the hospital. They said that suregery went well but I woke up in soooo much pain, it hurts so bad I feel like a whole house is sitting on my right chest. They were giving me morphine at the hospital but all I take now is Percocet for the pain, I also have to take Kerflex antibiotics to prevent infections. I can barely move, when I walk I walk so slowly, the nights are the worst because I can't find a proper position to sleep. I knew that mastetcomy is not easy operation but honestly didn't expect it this bad. The medicine doesn't really help much, just makes me a little sleepy. Thanks everybody, today is the second day post surgery so hopefuly things will get better each day.

  • hoping42
    hoping42 Member Posts: 117
    edited January 2014

    Hi Mikela. I am sorry you are in so much pain.  I slept in a recliner for weeks.  This helped me get in a more comfortable position.  I also didn't worry as much about the drains staying where they needed to stay.  You might try that.  A mastectomy is a major surgery, but I do promise that moving, etc. does get better with some time.  You could ask your doctor if maybe there is a pain med that you could alternate with the pain pills you have?  

    Best of luck!!! (((hugs)))

  • LAstar
    LAstar Member Posts: 1,574
    edited January 2014

    Glad to hear it's behind you now. The only thing that helped me post-BMX was dilaudid.  It's morphine-based and very strong.  When I had my revision surgery, it was way too strong, but for BMX it was the only thing that removed the pain without making me nauseated.  I hope you find some comfort soon.

  • cinnamonsmiles
    cinnamonsmiles Member Posts: 779
    edited January 2014

    Hi. I wanted to let you know I totally understand your pain!! I,too, woke up in excruciating amounts of pain after my BMX w/node removal. I could not believe how painful it was. That is why I choose not to tell people that are having mastectomies that they will be fine, little pain, etc etc etc. I know we want to be positive, but for some, we come out with varying degrees of pain from little to none, to off the charts extreme pain. I try to be positive, but let them know that there is the possibility of pain. Everyone is different.

    I am so so sorry that you are experiencing this. Keep sleeping in the recliner. Use pillows and experiment how many and where to put them for the best comfort. Try behind your back, under  your arms on the recliner.

    If  you need to travel, put a small pillow between the surgical site and the seat belt if it hurts. Travel with a pillow under the effected side if that helps.

    DON'T OVERDO IT!!!!  I had the hardest time learning NOT to overdo it with the pain.

    Did you have any sentinel or lymph nodes removed?

    Sometimes during surgery, the surgeon nicks nerves. This can damage the nerves, causing them to interpret every sensation as pain to the brain. This is what happened to me. I am not saying that this is what happened to you. I have no clue.

    Can you use more descriptive words to describe what you pain feels like? EX: sharp, dull, burning,prickling, feeling like you got beat up with a baseball bat, skin hypersensitvity?

  • kcat2013
    kcat2013 Member Posts: 391
    edited January 2014

    Mikela,  So sorry about the pain.  I too woke up from surgery with alot of pain.  I'll second the others about recliner sleeping, I slept there for 6 weeks.  Also, if you have small pillows or rolled up small blankets use those to prop your arms comfortably or place behind your back.  The pain will get better with a little time.

  • sandcastle
    sandcastle Member Posts: 587
    edited January 2014

    Mikela  you need to get a wedge from bed and bath that will help you to sleep on a incline.....it is true the recliner is a big help, which l used in the hospital...liz

  • Rakovina
    Rakovina Member Posts: 132
    edited January 2014

    Happy to hear the surgery went well.  So sorry to hear you are in pain.  It will get better with time, and take whatever you need to in the meantime.

  • Mikela
    Mikela Member Posts: 37
    edited January 2014
    Hi girls,

    I feel so much better today, medicine is helping me finaly. Yesterday was just horrible i mean really horrible I was in so much pain, felt like some tall buliding is sitting on my chest and dull pain. Im feeling better today, still hurts but a lot less compared to yesterday. My husband is so nice and he is a huge help to me, he does everything for me. Im soooo itchy all over my body I want to scratch myself all the time, is that nirmal?The drain is a little annoying too but my husband helps me with that. The hardest and most chalenging is to find a proper position, and yes you ladies are right I do need lots of pillows, i find it easier sitting then laying down, if i lay down it hurts so bad to get up so sitting is better.
    Thanks ladies it is hard but we are heroes. Love you all
  • AZ85048
    AZ85048 Member Posts: 2,613
    edited January 2014

    Mikela - So sorry your first day home was so horrible.  But it gets better every day - it really does.  You'll have ups and downs, but just remember that this isn't a race - take your time and take it as slow as you have to .  I know it's frustrating (patience is not my strong suit) but it will be worth it down the road. 

    And sleeping propped up is the only thing that worked for me.  I don't think I slept lying down for about two weeks after my BMX.  I used a wedge from Brookstone to prop up my body and slept with each of my arms on pillows.  The tightness in your chest which is so enormous at first gets better too.  Hope you have a good night!

  • stellina
    stellina Member Posts: 69
    edited January 2014

    Hello, Mikela!

    It's good to read you are well after surgery and you will see, you will feel better each day and you'll be out and about in no time. I experienced this surgery in September, also the right breast. Be sure to be active: try to walk every day, but be careful with your right arm. Also, have someone around if you must lie down, you probably will need help when you want to get up or lie down, but it should be ok in a week, maximum two. Just don't force yourself. And when you get help in this situation, it is helpful if you are supported in the neck and shoulder area, rather than lower or mid back. It was less painful for me that way, but we are all different. Try to eat proteins so your operation scars fast.

    And smile often, it helps, smiling can set you in a better mood, it lightens the heart and this helps very much as well. 

    Best wishes!

  • wyo
    wyo Member Posts: 541
    edited January 2014

    Mikela hi!

    Sorry I am just picking up on this thread now- I am glad day 2 is better than day 1. 

     I have a "nurse" question.  

    Have you taken percocet in the past for anything else? The reason I ask is two-fold.  First it was not helping you at all and you were in extreme pain. Second- the itching you describe.  Sometimes if you are sensitive or allergic to a pain medication itching and no pain relief happens. Same question about the Keflex- have you taken antibiotics before like that with no itching or rashes.  

    Not sure how your drains and dressings are secured but adhesives can also cause itching but you describe all over so it would be more likely something you are taking internally.  Flush flush flush all that anesthetic out of your system with lots of liquids.

    Nothing to panic about at all but if you think sensitivity/allergy is possible- I would try taking tylenol or whatever non-narcotic you were told you could have and see if the pain is tolerable using those if not call doc. The antibiotic would not have a substitute and need a call to your doc.  

  • Mikela
    Mikela Member Posts: 37
    edited January 2014

    Thank you, you girls are awesome.

    Yes I do feel so itchy and you're right maybe is my reaction to Percocet, I never took it before this is my first time. It wasnt helping me yesterday at all even if I take two pills together, today it seems like it does helps a little and that's why today is a better day then yesterday. Thank you if itchying doesn't stop i need to call my doctor on Monday.

    Thanks

  • LAstar
    LAstar Member Posts: 1,574
    edited January 2014

    Mikela, I slept in a separate bed for a while and made a nest of pillows that could keep me propped up.  I had a large pillow keeping my body at an incline and pillows under each arm.  I agree that the itchiness is concerning.  I had itchiness but later on when I was healing and nerves were regenerating.  I'm glad to hear that today is better!

  • ponyo
    ponyo Member Posts: 15
    edited January 2014

    I agree about considering a non-narcotic pain medication. I took tylenol after discharge from the hospital because of prior displeasure from the constipating effects of narcotics.  Post surgical pain was preferable to the neuropathy I experienced two weeks later. I was not expecting that. Fortunately, a third surgery help dampen that and after a month, the neuropathy dampened quite a bit. One of the things I found helpful was I had about a five weeks from diagnosis to bilateral mastectomy, so I did my best to get in the best shape that I could--physically, emotionally, mentally and spiritually. 

  • Mikela
    Mikela Member Posts: 37
    edited January 2014

    hi ladies,

    Day three for me and happy to say that I'm feeling so much better, stopped taking Percocet last night and had only Advil this morning, it didn't really help much I'm handling the pain pretty much on my own now. Last night I couldn't sleep at all it is too hard to find a comfortable position no matter how many pillows I surround myself with. I feel so bloated and haven't gone to the bathroom in four days now so I think I'm constipated, great like I don't have enough on my plate already, but all in all it is a better day for me I even went outside for a walk just around the house, kept my drain inside the packet but for some reason I think it's not filling fast enough, since I got home my husband dumped it only three times I think, ohh I'm so tired and sleepy can't stop yawning can't wait to sleep comfortably at night again. Ohh the itchines has gotten better since I stopped taking Percocet. Thanks everybody!!!

  • percy4
    percy4 Member Posts: 477
    edited January 2014


    Hi Mikela - So happy to hear you are feeling better.  I did not have a mastectomy, but have certainly used narcotic painkillers, and they are constipating.  Sometimes, when you don't go for days, it's hard for the system to just start again on its own.  Better than over-the -counter laxatives, believe it or not, is a combination of two stool-softeners (Dulcolax, etc)  once a day and stewed prunes.  The prunes must be stewed; plain prunes do not work nearly as well.  Put into a saucepan several (10 for two times) dried prunes, barely cover with water, squeeze in a little lemon (also a laxative), cover and simmer low-medium about 20-30 minutes.  Pour into a bowl along with the remaining prune-water.  Eat this for a couple of nights, and believe me, you will go.  5-6 prunes each time (can be cold from the fridge).  Hopefully, your husband can stew them for you, as it's so easy.  Sorry can't offer mastectomy advice, other than it sounds great that it's improving rapidly, but this much I can do.  Love - Percy

  • AZ85048
    AZ85048 Member Posts: 2,613
    edited January 2014

    Mikela - So happy you're feeling better!  I'm allergic to Percocet because it makes me itch like crazy, so I think you've found your source...  Now I hope you can find a comfortable position for some much needed sleep!

  • Rakovina
    Rakovina Member Posts: 132
    edited January 2014

    Mikela, so pleased that you are feeling much better.  Pain meds are notorious for constipation, I swear I've been constipated for 5 years LOL.  Keeping yourself well hydrated helps a lot, as does more fibre in your diet.  If all else fails Coloxyl & Senna.

    Tanya

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