Ladies in your 30's getting FEC-D protocol?

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Hello Ladies! I just turned 36, and I was diagnosed with IDC three months prior to turning 36. After going through multiple tests, and 2 lumpectomies I will be starting my chemotherapy on Jan. 10th. I'm just wondering if anyone else out there has been/or will be getting the FEC-D protocol. One cycle every three weeks:

First three cycles will consist of:

  • F=Fluorouracil
  • E=Epirubicin 
  • C=Cyclophosphamide 
  • Followed by three cycles of:
  • D=Docetaxel, also known as Taxotere 

 My Med Onc said that FEC-D is the "strongest" and is the protocol that she would suggest, in order to decrease my chances of recurrence. My oncotype score was 19 and my age at diagnosis were both big deciding factors to start chemo. 

Here's to all of us getting through this with the least amount of side effects possible.  Smile

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Comments

  • slv58
    slv58 Member Posts: 1,216
    edited January 2014

    welcome and hi calmandstrong. I live in Ontario also and had this exact tx. If there is anything I can answer for you (from my experience, we are all different) please let me know. I am now 55, but had a very aggressive cancer and was lucky to achieve PCR (pathological complete response), so feel very fortunate to have had this!

  • Srh242
    Srh242 Member Posts: 328
    edited January 2014

    Hi :I am 37 years old, I did tc by 4 . Good luck,

    S

  • calmandstrong
    calmandstrong Member Posts: 23
    edited January 2014

    Thanks slv58. I know that certain Oncologists have preferences, and it also depends on the area. It sounds like this is a preferred cocktail in certain areas of Ontario. Glad to hear you are doing well. I'm sure I'll have many questions and will definitely keep you in mind. 

    Thanks Srh242.

  • flannelette
    flannelette Member Posts: 984
    edited January 2014

    FEC seems popular in Canada but not much mentioned by our friends to the south. I had 6 FEC in 2008, at age 61.

  • mommy13
    mommy13 Member Posts: 127
    edited January 2014

    I am 27 and starting the same regiment this month. 

    Send me a PM if you ever want to chat :)

  • calmandstrong
    calmandstrong Member Posts: 23
    edited January 2014

    Hi mommy13,

    Today will be my first treatment. Let's keep in touch and all the best to you :)

  • calmandstrong
    calmandstrong Member Posts: 23
    edited January 2014

    Hi flannelette (cute name btw)...congrats on being 6 years out!! And on looking so great and healthy. Today is my first..any pointers? Do you remember how your body felt after the first one? 

  • Oncearunneralwaysarunner
    Oncearunneralwaysarunner Member Posts: 252
    edited January 2014

    I'm 31 and was diagnosed in June. I had chemo prior to surgery and I too was able to achieve a complete pathological response. FEC-D eliminated all three tumours I had in my breast and the cancer that had traveled to my lymph nodes.

    here is my experience with FEC-D: overall I found the FEC much harder than the D. I was nauseous and slept for about a week with FEC but only had to deal with bone and muscle aches with the D. I also react strongly to medication that causes sleepyness and nausea so I'm sure that is just part of what is normal for me, not everyone is as fatigued as I am. 

    I would give the following advice based on my experience:

    1. You might be sore after your port placement, if you have a port, it will go away in a couple of weeks. My neck and back were really stiff for a few days, then the soreness was just at the port site.

    2. Emla cream is my friend! You can get it over the counter in Canada and it numbs the skin, put it on before going for a treatment and you won't feel the needle going in.

    3. If you have your blood work done at a lab and not through your port, make sure to keep well hydrated and your arm and hand warm. It makes it easier to find a vein, my veins disappeared during chemo.

    4. Take the anti-nausea meds and let your MO know if they don't work, I had to have mine constantly adjusted.

    5. Take pain meds as prescribed when on the D. I was alternating between Advil and Tylenol every four hours and it worked great. I learned my lesson when I skipped a dose :)

    6. Ask if they have hand and feet ice packs when on the D. I used them and it saved my nails. They are slightly more brittle than before but they look normal.

    Hope you have little side effects with chemo.

  • Jennt28
    Jennt28 Member Posts: 2,021
    edited January 2014

    Nausea was the worst on FEC. Ask for Emend... right from the start.

    Jenn

  • slv58
    slv58 Member Posts: 1,216
    edited January 2014

    Calmandstrong, thinking about you, hope everything went well. Be kind to yourself today, drink lots of water (I couldn't stomach water, but soda water was great), dont forget to take your nausea meds even if you don't think you need it-at least until you see how you feel. I found the FEC part quite easy, although it did give me chemo brain and I felt "cloudy" for a few days after. Rx kept nausea away and I was able to take 3 days off work each tx, so I slept quite a bit. Eat whatever appeals to you. A lot of women find white foods were craved-mashed potatoes, rice etc. I was the opposite and really craved spicy foods. I'm guessing just so I could  taste something. My taste buds gradually returned by the third week, just in time for next tx! Make sure you swish your mouth with warm water, salt and baking soda every time you think of it, this will help with mouth sores.

    Keep smiling knowing you are being given strong effective chemo- it's your friend! 

  • rozem
    rozem Member Posts: 1,375
    edited January 2014

    I had FEC D (with Herceptin) very common Canadian protocol - mommy13 and anyone else who is her2 positive, there were studies done at MD Anderson that this is a very effective chemo for us with the highest pCR rates - and I believe the E is less cardio toxic then the A

  • calmandstrong
    calmandstrong Member Posts: 23
    edited January 2014

    Thank you everyone for all the great tips and words of encouragement. 

    slv58, today was a long day! Finally home now and had some dinner. Feeling ok, just a bit dizzy from the Dexamethasone I think. Keeping up with the Zofran as prescribed and nausea is under control. Drank at least a liter and a half of water today and had some soup. 

    Oncearunner, thanks for the great list :) I actually got a PICC line inserted so no pain issues. Just a bit sore but manageable with hot compresses. I've used Emla cream for bikini waxes in the past (haha) and it does work great ;) 

    One down, 5 to go!! Wishing everyone a healthy, nausea, side effects free weekend!! 

  • Oncearunneralwaysarunner
    Oncearunneralwaysarunner Member Posts: 252
    edited January 2014

    thanks for the tip on how to use any left over Emla cream I have at the end of all of this! 

  • calmandstrong
    calmandstrong Member Posts: 23
    edited January 2014

    First FEC was yesterday. Went ok I guess. Nausea was pretty bad overnight and slept poorly, but has gotten better today. Been able to eat and just took it easy all day and napped. Hoping to make it to hot yoga tomorrow so I don't get too lazy. 

    Hope everyone's having a good weekend. 

  • slv58
    slv58 Member Posts: 1,216
    edited January 2014

    glad to hear your doing ok. Take it easy for a few days and eat whatever seems appealing. One down, yahoo! What hospital are you going to?  I found the chemo nurses were really great. Don't forget to rinse your mouth with salt/baking soda water to prevent sores. Keep up the positive attitude and you'll be done before you know it! Have a good restful week end!

  • calmandstrong
    calmandstrong Member Posts: 23
    edited January 2014

    I'm at Sunnybrook Hospital in Toronto. I agree with you, the chemo nurses have been wonderful so far. I've been doing the baking soda rinse since yesterday. I've already started the countdown, 1/6!  Talk to you soon. 

  • slv58
    slv58 Member Posts: 1,216
    edited January 2014

    Calmandstrong, I went to sunnybrook as well! Great hospital. It's almost a 2 hour drive for me but " I'm worth it"! 

  • calmandstrong
    calmandstrong Member Posts: 23
    edited January 2014

    Oh interesting, slv58! I like it very much and my surgeon is one of my favourite people. My drive is only 20 mins in good traffic. But absolutely you are worth it :) 

  • slv58
    slv58 Member Posts: 1,216
    edited January 2014

    so are you! My BS was Dr. Wright, my MO is Dr. Gandhi, love them both! Hope your feeling well, each day gets better!

  • calmandstrong
    calmandstrong Member Posts: 23
    edited January 2014

    NO WAY! Dr. Wright is my BS also!! I LOVE her. What a small world.  MO is Dr. Eisen. Today is been an ok day. More nausea so just taking it easy. Thanks so much for your encouragement. Every little bit helps. 

  • slv58
    slv58 Member Posts: 1,216
    edited January 2014

    don't forget to drink, maybe ginger ale would settle your stomach. For some reason I have always found "flat" water makes me feel queezie  so I drink plain soda water ( I make my own with a soda stream=no salt!). If you see Dr. Wright, please say hello to her for me-she released me after my surgery check up and I hope I don't have to see her medically again! Will send you pm with full name!

  • mommy13
    mommy13 Member Posts: 127
    edited January 2014

    Yoga 2 days after chemo... you go girl!! Hope the treatments are treating you ok! 

    I'm starting the 27th so I'll keep my eye on your posts :)

  • slv58
    slv58 Member Posts: 1,216
    edited January 2014

    mommy13, will be thinking of you!

  • calmandstrong
    calmandstrong Member Posts: 23
    edited January 2014

    mommy13, had to...it keeps me sane. I'm doing what I can. SE have been mostly nausea and just a bit of that chemo "fog", hard to describe...blurry eyes and hard to concentrate on something for too long. Managed to cook dinner tonight. Hubby cooked last night :) 

  • mommy13
    mommy13 Member Posts: 127
    edited January 2014

    thank you slv58

    So glad to hear it hasn't been too horrible on you so far. Hoping it stays that way for you!! 

  • jetnet91
    jetnet91 Member Posts: 9
    edited January 2014

    I would love to join all of you as I will be getting the same treatment starting Jan 21.  I am in Ontario also

  • Oncearunneralwaysarunner
    Oncearunneralwaysarunner Member Posts: 252
    edited January 2014

    calmandstrong - that chemo fog should lift gradually every day. Again, everyone is different but I didn't have that fog with docetaxel. I still had fatigue but was able to focus a lot better.  Hopefully your nausea is not as strong today if not all gone.

  • Donna2012
    Donna2012 Member Posts: 201
    edited January 2014

    I had 12 weekly cycles of taxol (same as docetaxel) followed by 4 cycles, every 3 weeks, of FEC.  FEC was definitely the worse for me.  Taxol was easy in comparison.  However my hair started growing back after my 2nd round of FEC, which was a nice surprise.  At the time, it seemed horrible & time moved sooo slow, but looking back now (9 mos later) it feels like it wasn't too bad and was over with rather quickly.  It did take several mos to begin to feel "normal" again. 

  • slv58
    slv58 Member Posts: 1,216
    edited January 2014

    I found the chemo fog also lifted each day so that by about day 5 I was pretty much back to normal. Queezieness was probably the worst SE of FEC for me but meds kept me from throwing up. I did have a very hard time with docetaxol, but I like to be different ;-) just want to reassure everyone that even if tx is difficult, you can do it and for me, even though I had a hard time with docetaxol, had SE that I thought would never go away, 7 months later I'm pretty much back to normal!  

    Jetnet and mommy13, if there is anything I can answer for you-from my experience-let me know. Honestly I think the fear of unknown is the worst part. I listened to Bernie Siegel  meditation mp3s prior to and during infusion. Helped me to relax and gave me a different perspective. 

  • Gonein40
    Gonein40 Member Posts: 90
    edited January 2014

    I am also going to be starting this same Tx on Feb 11th. I am nervous of the unknown, like most of the women on here. It is the fear of the unknown, that is making me "sleepless" and making me think too much.  Can anyone help with the nerves.  

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