Any HER 2 ladies who had lumpectomy?

Options
Art123
Art123 Member Posts: 115
Any HER 2 ladies who had lumpectomy?

Comments

  • Art123
    Art123 Member Posts: 115
    edited January 2014

    My wife was diagnosed with breast cancer in August, 5cm triple positive. MRI PET neg lymph node neg. no family history breast cancer

    She did taxol/Herceptin and finishes AC on 1/14.

    We weren't sure what surgery to get and were leaning toward BMX. Last week, MO said tumor was size of a pea and that we should talk to breast surgeon about lumpectomy.. We met with RO for a consult today and no lump was felt. He said based on the reords he review he thinks my wife is excellent candidate for lumpectomy with small chance of recurrence and not to do anything "drastic". He said we will know more when we get post chemo MRI.

    I'm just wondering how many ladies that were HER2 + that chose lumpectomy.

    We are obviously concerned about recurrence issues but also frazzled by the long recon road if do bmx.

  • Bold
    Bold Member Posts: 692
    edited January 2014

    Hello:

    I am over 5 years ned and I had a lumpectomy.. I am doing well.


     

  • sheila888
    sheila888 Member Posts: 25,634
    edited January 2014

    Hi.....I was Triple Positive and had a Lumpectomy

    Tumor was 1.2 cm and no node involvement

    I also did AC 4DD

    Taxol 4DD

    Herceptin 1 year

    Radiation

    FEMARA 5 years

    It was almost 9 years ago.......

    I was 9 months POST MENAPAUSAL

    Since everybody's treatment is different whatever you choose I wish you the best

    Sheila♥

  • marvelher2
    marvelher2 Member Posts: 62
    edited January 2014

    My sister was triple positive, grade three 21/25 node positive stage IIIc.  Had a lumpectomy, chemo, rads and a belated year of Herceptin after all other treatments were complete because it had just been approved.  She is now 11 years NED!!!

  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited January 2014

    Hi

    Dx 2002 (before trastuzumab was approved for adjuvant use), so I had no trastuzumab.

    Her2+++, ER+/PR+, 1.6 cm IDC, age 51, lumpectomy, SNB 0/1, CAFx6, IMRT rads, 1 3/4 years tamoxifen, 11 years out and no evidence of disease. On metformin because it is considered to deal with stem cells that chemo does not, and it helps with weight maintenance.

  • LouLou40
    LouLou40 Member Posts: 180
    edited January 2014

    Multifocal  triple positive node positive lumpectomy, 5 yrs out doing great, no regrets having lumpectomy.

  • Art123
    Art123 Member Posts: 115
    edited January 2014

    thank you for your responses. Well know more at the end of the month after the MRI 

  • MiracleMileM
    MiracleMileM Member Posts: 103
    edited January 2014


    I was diagnosed stage IV the end of November/beginning December2007.  ER 95%/PR 20% HER2 +++.   No involvement of nodes going to armpit but nodes involved under sternum. mets to sternjm,ribs, cartilege at collar bone.   Had lumpectomy followed by IMRT radiation.  NED since fall of2008.  Still on Herceptin now every 4 weeks, arimidex generic and now xgeva shot every 4 weeks. And some complementary like curcumin, green tea extract, brewer's yeast, mushrooms, etc.  I would go with a lumpectomy if recommended because it is less of a shock to the system.  You're in and out the same day.  And I had zero pain after the lumpectomy.  Not even a twinge.  

  • CameraKim
    CameraKim Member Posts: 81
    edited January 2014

    I too chose a lumpectomy. I had one positive node so radiation was a given, but both my oncologist and breast surgeon thought it was a good choice for me as my tumor was basically gone after neoadjuvant chemo. I also had no pain and healed very quickly. No regrets :)

  • Art123
    Art123 Member Posts: 115
    edited January 2014

    thanks again for the responses.

    One thing I'm a little confused about is if the tumor was size X prior to chemo, then either gone or very small after, how do they know how much tissue to take out at time of surgery? Do they go by the original size? I ask because my wife is small breasted.

    I should have asked the surgeon but every way I asked whether my wife was candidate for lumpectomy she says need to wait for MRI. She couldn't give me an opinion based on her expertise.

    Waiting to have the MRI and getting results is going to drive us crazy.

  • marvelher2
    marvelher2 Member Posts: 62
    edited January 2014

    From what I understand from my doctor is that they will  determine how much tissue must be taken to obtain clean margins. They must take some healthy tissue around any remaining cancerous cells or they have to go back and take more, but the main reason for neoadjuvent therapy is to shrink the tumor so that less has to be taken, or in some cases when the tumor is near the chest wall, keep from having to do a more radical mastectomy.

    I think the surgeons are trained not to give an opinion on whether to go lumpectomy or mastectomy other than to tell you what the science is on the subject, which I understand tells them there is no difference in outcome between mastectomy and lumpectomy with radiation.  From what I understand, recurrences on the opposite breast carry the same risk as she would have had the first time as it is considered a new cancer, unless she was tested positive for BRCA.  What I'm gleaning from this process is that they are very careful to leave the choice of surgery to the patient out of respect for their decision, unless there is a medical reason to go one way or another.     Many patients choose bilateral MX because it makes them feel less vulnerable to recurrence or new cancer in the opposite breast, but they do not necessarily have scientific evidence to prove this is true.

    I feel for you with the waiting for the MRI.  Mine showed an additional 4mm lesion on the completely opposite side of my breast, but this lesion does not show up on PET/PEM or mammogram, so I just went through a second MRI guided biopsy,  to find out if it is malignant. They were not sure if it would even show up on the second MRI because it could have been a hormonal thing, but it did, and I had this procedure on Friday and am now waiting on the results.  I hope they will still give me neoadjuvent chemo even if they think they have to do a mastectomy because of this other lesion.  I am scheduled to start my chemo on Tuesday.  I was diagnosed right before Thanksgiving and still haven't had any treatments, but I understand it is ok to wait.  It is good they are being so very careful.  Whatever your wife's decision is will be the right one because it is her decision, but please know that there are many people like my sister who have had great results with lumpectomy.

  • AZ3771
    AZ3771 Member Posts: 4
    edited January 2014

    hi...I had a lumpectomy and then brachytherapy radiation (SAVI) supposedly the cancer is gone and I am on taxol for 'insurance' that the got it all and herceptin for the Her2.  My surgeon and radiation onc say its just as good as a mastectomy.  Best wishes for a healthy outcome!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    Nine+ years ago, I had a lumpectomy, followed by radiation, chemo (ACT), Herceptin & still on Arimidex.  My surgeon emphasized that the outcome was the same whether I had MX or lumpectomy, and possibly even a little better with the lumpectomy/radiation combo. Since I had cancer involvement in 5 lymph nodes, I think having radiation (that was automatic with lumpectomy) was an added benefit for me. Oh, and radiation was a breeze compared to surgery & chemo. The mass was 2.7cm., so not small.

    And I'm still NED!!!! (no evidence of disease). 

  • Art123
    Art123 Member Posts: 115
    edited February 2014

    we had the MRI last Thursday and meet with surgeons at end of week. 

    Thanks again for all the responses and info. I'll let you know as soon as I can.

  • Art123
    Art123 Member Posts: 115
    edited February 2014

    well, the MRI results mean lumpectomy is out of the question.

  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited February 2014


    Art, I'm sorry for the disappointment, and the need to move forward regardless at the same time. I take it from your conclusion that a second opinion is not going to make any difference?

    All of these options have somewhat different effects on different patients, depending on additional treatment.

    Prior to my lumpectomy I had believed that the remaining breasts would basically have a similar level of sensation as they had in the past, since no information was available to me to the contrary. For me at least, that turned out not to be true in combination with becoming postmenopausal at age 52 due to chemo and tamoxifen. The lumpectomy breast, post-chemo and post-radiation and post-short-term tamoxifen, has no sensuality of any kind, and the "unaffected" breast has very diminished sensation at best. At 11 years out, they are simply uncomfortable and useless. So if the sensuality of the breasts is one concern, lumpectomy doesn't necessarily preserve that benefit.

    I wish you both the best outcome.

    A.A.

  • Art123
    Art123 Member Posts: 115
    edited February 2014

    the MRI is the MRI. We puzzled as to how it could go from no lump to 4.6 cm in 2 weeks. Now I don't trust what any of these doctors tell us anymore.

  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited February 2014

    Different imaging tests can differ significantly, which is why they are used. Mammos are for detecting the size and shapes and number of calcium deposits, for example, since certain combinations of those things tend to be cancerous. Ultrasounds don't do that, but they detect whether spaces are fluid-filled or solid. MRI's show other factors that don't show on mammograms. So a mammogram can show something "less" without showing what an MRI shows, even though the actual existing internal objects were there to begin with.

    I agree, it is hard to know what to trust and what not to.

  • Girlstrong
    Girlstrong Member Posts: 438
    edited February 2014

    Art123: sorry that the MRI came up with a surprise. Please know that if a masectomy is in your wife's future, it is doable. Many women on these boards and in the general population have had to have it done. I wish you and her nothing but the best. 

Categories