DIEP 2013

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    Nihahi...i tried to send a pm but it won't let me for some reason. What in the heck is causing the whole body aches? Don't want to be a fear monger, but I can't ignore my worry. Please don't discount the possibility of some other cause. Were you exposed to the flu, that you know of....or worse? Menengitis? The neck pain is concerning to me. It would be easy to misclassify symptoms of something else immediately following surgery. 

    No hugs right now....just prayers.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited January 2014

    Donna, I was off Tamoxifen for at least two weeks before DIEP but it may have been four in addition to two weeks after, I think. MO was ok with it but it did worry me. My PS is conservative when it comes to what HE does.

    Nihahi, I have to admit I was wondering the same thing as Bailey. It doesn't make a lot of sense that you are so sore just from surgery. Praying for you right now, friend.

  • Sharon1942
    Sharon1942 Member Posts: 272
    edited January 2014

    Yes, nihani, check out your symptoms with your doctor. Stage 2 shouldn't be the cause of your symptoms. Better safe than sorry.  

  • Ridley
    Ridley Member Posts: 634
    edited January 2014

    Nihahi - I agree with the others. Maybe time for a call to your surgeon?  I've seen.people have a bad reaction to anaesthesia, but nothing like you describe.  So odd that we react so differently to the same drugs and procedures.  In any case, I hope you are feeling better.

    Ridley

  • jlbloom
    jlbloom Member Posts: 228
    edited January 2014

    Getting caught up again...  

    Michele your spirit is remarkable!  Just like all the rest of the gang, I am praying for you.

    Nihahi, I feel like I gave you bad information on stage II.  I didn't have any of that muscle ache, just the sore throat.  Sorry that anesthesia does that to you.  It does my mom and my sister.

    Goldie, that is a really cute movie.  I helped hang a Frozen poster in my grand daughter's bedroom last night.

    Deb, I hope your attorney can help you get some of what you have coming.

    Jeannie, you are sounding much more positive, just like your smiling picture!

    RHG, I didn't have any tummy revision during stage II.  I'm hoping to donate some of it for fat grafting during the next year.  I didn't know what to expect either and was a little disappointed that the abdomen didn't go with the belly fat.  When they said they took out a football shaped section that was exactly what they did, and stitched it together.  I need to work on it myself, too!  Sharecare had some tips on belly fat today.  I guess I will be adding apple cider vinegar and green tea to my daily diet.  Sooner or later I'm going to be too full of good things to find room for all the bad things I'm currently eating. 

    http://www.sharecare.com/health/weight-loss/articl...

    We have grand kids and birthday parties this weekend.  A week from today, Florida, here we come!  Cherry, where will you be in Florida?

    Have a good weekend my friends. ...Julie

  • Morningsun1
    Morningsun1 Member Posts: 649
    edited January 2014

    Hope your pain is going away, nihahi. I remember you had a very long absence post stage I. Hope the post-stage II sore is not any worse than that one. Have a good weekend, everyone.

  • Curlylocks
    Curlylocks Member Posts: 1,060
    edited January 2014

    Thank you ladies, all for your kind words of support!  I really need the encouragement right now, feel like I am living on a different planet right now and this isnt happening to me again.  I guess it will take awhile for me to come out of the shock and put my REALLY big boxing gloves to nail this sucker against the wall for good!  

    So many of you have sent me private messages, I am in awe of your thoughtfulness...thank you!

    Hope everyone has a good weekend, I will be back to respond more once I get my feet planted back on this earth.

    Michele

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    It seems like we have good news in spurts, and then bad news in spurts.  Curly, you keep popping into my head during the day, and I say a little prayer for you every time.  I still believe God has a plan. He guided you to have the diep for a reason.

    Nihani, you are too quiet.  Even if it's just to bitch, keep us posted. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    Nihahi...I always like Epsom salt baths for all over muscle pain. You probably can't soak in a tub, but maybe soak hand towels in epsom salted water and put the compresses wear you hurt.

  • christina0001
    christina0001 Member Posts: 1,491
    edited January 2014

    goldie, that is so sad about your gyn. I cannot imagine the pain of losing a son. Sort of puts my own worries into perspective, hearing something like that.

    Dyvgirl - congrats on the bone scan! It's always such a relief to get good test results. Stage 2 - for me the only tummy work was a little bit of lipo and they revised some of the scarring (cut it out and made a new one - the new one is thinner).

    RHGSR - off topic but I have to interject since you are interested in hospice; I interned in hospice a few years ago and loved it! If you want to work in hospice, you might have more options as a nurse, a social worker (and hospices that bill Medicare, which is most of them, require at least a BSW/BS in social work degree for social workers, not a BA or BS in any other major), or be a licensed clergyperson. It might be worth looking into transferred to a BSW program if possible. I started out with a BA, psych major, and it was very frustrating as in healthcare, many positions I found desirable required a social work degree, not psych or soc. Eventually I went back for my MSW but if I knew then, what I know now, I would have gotten a BSW and saved myself a lot of expensive schooling and hard work.

    nihahi, rest well, I hope you heal quickly and without too much discomfort. Hope the sore throat gets better quick.

    curlylocks - (((Michele))) Sending thoughts and prayers your way. I can't imagine how you are feeling... but you are a strong woman, you will get through this though, you've done it before, you can do it again... it's just so unfair though.

    Sharon, so glad things have worked out with your nipple! That was scary! Congrats to you for feeling ready to move on from all this.

  • kelleyb
    kelleyb Member Posts: 94
    edited January 2014

    Stage 1 surgery in NOLA done!  

    Just now getting on the computer. Surgery went well (NOLA) and I'm very pleased I had it done here. I'm having less pain than I did with my mastectomy.  Not much pain in the surgical sites unless I get up and move around.  My biggest gripe is the nausea all the pain meds seem to give me. I had surgery Wednesday and should get a shower today. Dr. Sullivan did a bilateral DIEP from tummy, Dr. Stolier did the right side mastectomy. The facilities here are lovely. I've finally figured out a way to get in and out of the bed on my own. They'll let me out of here either tomorrow or Monday.  So far I've not needed much of anything beyond my toothbrush and toothpaste, of course I overpacked but am glad I brought the laptop and Kindle.

  • nihahi
    nihahi Member Posts: 3,841
    edited January 2014

    kelleyb.....welcome back!!! So glad to hear from you...sounds like things are going great for you!!!!! Hope things keep on the same track and you get sprung soon. 

    curly...thinking of you lots, we know you can do this, we just wish you didn't have to. {{{{{X}}}}}

    Bluebird....no....do not boycott your stage 2. I am sorry if I made you apprehensive. I am better today, everybody...thanks for your messages. My issues had nothing to do with what my PS did....I'm still amazed at the symmetry he's gotten for me. I won't know for sure until I find out what anesthesia drugs I was given, but, I'm pretty sure I had a muscle reaction to one of those drugs. I'm just "sore" today, not the intense pain of before. 

    Sun is coming up.....it's going to be a great day!!!!! hugs to all!

  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited January 2014

    Congrats Kelley! Rest and recover!

    I've read that some people get neck injuries from positioning on the table. I sure hope that is not the case for nihahi! Hope you are feeling better by now! 

  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited January 2014

    We crossed posts! So happy you are feeling a bit better!

  • nihahi
    nihahi Member Posts: 3,841
    edited January 2014

    thanks bluebird....I'm sure I've been dealing with something called post anesthesia myalgia. Stage 2 wise....I couldn't be happier, and in very very little discomfort. You'll do great in yours....surely you have gotten over all the potholes this journey can toss at you!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    So glad today is better, Nihahi!!! 

    Love to all! Enjoy your day...I am doing housework! YAAYYYYYYYYYYY!

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited January 2014

    It's SATURDAY!  Bike ride this morning, Aubrey is coming over all afternoon!  

    Nihahi, what a miserable experience.  I hope each day brings more calming of the muscle aches.  

    Curly, like Goldie, you're in my thoughts a lot throughout the day, and you're in my prayers.  And you're right--put on those boxing gloves and flatten BC--this time it'll stay flat!

    I have to remember it's only been a month since my Stage II surgery in December.  I was lifting chairs yesterday and thought "ouch..."  No more of that for a while.

    Happy weekend everyone! (Maggie Smith's character, on Downton Abbey, "What is a weekend?")

  • RHGSR
    RHGSR Member Posts: 774
    edited January 2014

    Christina - thank you for taking the time to type all that awesome info. I will look into that. The college I'm going to also just opened a new graduate program in aging and geriatrics which I'm interested in as well. I only have 7 more classes to finish for my current degree. 

     I'm actually an LVN/LPN (since 1999- it always amazes me howuch time has passed).  Although I haven't worked full time since I had my babies. One of my very first jobs as a new nurse was providing respite care for Hospice patients. The Hospice nurse would come in and write the orders and I would help carry them out. I am wanting to get my BS in nursing but knew I couldn't go back tonursing  school with 3 little ones.  Its too intense. Plus i homeschool and need to be here with my little ones. So we thought I should get a BS in applied sociology since I could do most online and in night classes. I thought it would supplement a nursing degree. Then- there are several nursing programs in my area that have an accelerated nursing program if you already have a degree in another field. I hope to do that once my children are older. 

    Whew... Makes me tired thinking about it. My husband keeps telling me it's a marathon not a sprint. But I'll probably be in school till I'm 80!! Lol. 

  • RHGSR
    RHGSR Member Posts: 774
    edited January 2014

    I can say that cancer lets you know who is truly a friend. My friend from high school has pretty much dropped off the face of the earth since my diagnosis. I just texted her to see how she was and she is upset because I didn't respond to a text she sent me on the 30th if December. That was my first infusion day. And yes she knew about it. Her father in law just passed from cancer and so she knows about it. She also told me she didn't understand what the big deal was since I had surgery the cancer was gone.  Ugh. Just really hurt...

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    Yeh, Nihani. Glad you are better today, and pleased with your results, too!!!  All bonuses.  Rest rest rest.

    Kelly, you are doing awesome!!!!!  I am a little confused.  You said you are having less pain than your mastectomy, but they you go on to say you had a mastectomy on the right side with the diep?  So, did you have a prophylactic mx on the right side when they did the diep?   Either way, I can't believe how good you sound!!!!

    Christina, terrible thing about my gyno son, but RHG did help me understand why she was behaving the way she was.  Makes so much sense. 

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited January 2014

    RHGSR, so sorry about your friend! The value of these boards is we KNOW. Those without breast cancer just don't get it. That doesn't excuse the hurt she caused you, though. You certainly don't need negative energy in your life. It doesn't seem fair that with all we lose with bc, friendships are sometimes lost, too. I hope she puts the effort into trying to understand a little, at least, of what you're going through. We do! My best friends said the most hurtful things to me but at least I know they were well-intentioned.

  • jlbloom
    jlbloom Member Posts: 228
    edited January 2014

    Nihahi, so glad to hear you are feeling better! 

    I guess you can't expect anyone to really understand if they haven't walked in our shoes.  Just hoping I'm not so blind to the heartaches of others.  It sure is comforting to have you all here.  

    Michele, thinking of you.  

    Have a good weekend.  Sbe, I don't think my retired DH knows what a weekend is either.  ...Julie

  • christina0001
    christina0001 Member Posts: 1,491
    edited January 2014

    kelleyb, congrats on getting through surgery so well! Take it easy over the weekend... the hard part is after you get home and really start healing. Impressive that you are already getting in and out of bed so well!

    RHGSR - wow, what an amazing background you have, nursing + now a degree in sociology. Don't know how it is where you are, but nurses are in great demand where I am. Sorry to hear about your "friend;" that is infuriating. Yes, cancer does reveal who in life we can really count on, doesn't it...

    My boobs are shrinking... I'm officially down a cup size. I'm grateful that as I have lost weight, my breasts have lost weight symmetrically. Did not really want them to get smaller but unfortunately we don't get to pick where the weight comes off, do we. Glad I have not bought many bras yet, and the ones I have are stretchy. Has anyone found any pretty underwires that aren't painful, does this eventually get easier as we heal? I tried a few on today and they weren't as bad as when I last tried underwires on, but it still felt weird. Or at least I'd like to find some bras that aren't underwire, but don't come up as high. Seems like everything I have tries to peek out of the top of my dresses.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    RHG...I am so sorry that happened to you. I sometimes say something like, "I can see that you don't understand what we are going through and I truly pray that you never do."

    Oh, hugs, just makes me so sad. You don't need any additional stress. 

    Like any crisis in life, it does tend to separate the wheat from the chaff. 

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    RHG, I had similar situation not to long after my dx and bmx.  Lost a 20 year friendship because of it.  I am really sorry.  It hurts, but now you know what kind of person she is, and I hope nothing bad ever happens to her because she is going to be going it alone.  We are here for you, and I know that you have people outside of this site that are there for you, too.  Who knows, she might think about what she said, and realize what an ass she was, and apologize. 

  • RHGSR
    RHGSR Member Posts: 774
    edited January 2014

    thanks ladies. It helps to know I'm not alone.  

    The thing that gets me is that she has gone through a couple of failed IVFs and complained (to me none the less) about how insensitive people were. You'd think she would understand. I just feel like she is belittling what I'm going through. 

    I am truly fortunate to have a wonderful support system otherwise. It does separate the wheat from the chaff. It's funny how people can surprise you. How the ones you would expect to be there aren't and those that you never realized cared so much are there every step of the way. 

  • nihahi
    nihahi Member Posts: 3,841
    edited January 2014

    christina....thanks for the first chuckle I've had in a couple days, though maybe you didn't mean to be humourous....exactly "what" is trying to peek out of the top of your dresses??? boobs or bras????

    Emotionally, this whole "thing" is quite a mixed bag.....It is crazy how some people we expected to be understanding and supportive, turn out to be anything but. Sometimes it makes me angry, more often, it makes me sad. Sometimes, I wonder if it isn't more a combination of their "uncertainty or foundering", combined with my increased sensitivity to my "circumstances". I would like to think that having been on the receiving end of hurtful or insensitive comments by others, would make me more "tuned in" to the fact that everyone has "issues and struggles"....but, I'm not sure that happens. I'm pretty sure that there have been times in the past years when I have been struggling so much emotionally or physically with my own issues, that I don't always recognize the struggles of others. We have a much better insight to the whole bc journey than do women who have never heard "those words"...I only hope that I learn from the experience. 

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    Nihani, what I find interesting is that there are women I know that had breast cancer seem to want to leave it behind when they are done with their treatment and recons.  Maybe it's too painful to go there once it's over.  I hope I am not like that.  I want to be there for anybody who needs help with their bc journey.  I really believe I want to pay it forward, and I hope I figure out how. 

  • christina0001
    christina0001 Member Posts: 1,491
    edited January 2014

    nihahi - lol the top of my bra peeks out of the top of some of my dresses. Not the tops of my boobs. lololol I need more like a demi-cup bra, or some sort of bra that does not come up so high, ideally with thinner straps than what I have... but it also has to be comfortable, and have enough coverage for the sides of my boobs. I need to spend some quality time at the lingerie department of JCPenney's... might do that next weekend.

    Oh and I got my ScarFade cream in the mail today! Can't wait to start using it tonight!

    goldie I try to leave the bc stuff behind, except when it comes to other women with bc. Then I can talk about it all day. But - and this is just me, I know others feel differently and I think it's a personal choice - I don't want "breast cancer patient/survivor" to be one of the primary things I label myself with. I am a woman, a sister, daughter, wife, social worker, friend, bird lover, Jersey girl, etc etc etc... I want any mention of having gone through breast cancer to be far down on that internal list I have of things I label myself with, or things that other people see me as being. I give great credit though to those women who sort of "own" having had breast cancer, and it's a big part of who they are, and they are comfortable with that... those are the women I feel like I can count on the most, to be available to give me support when I need it.

  • lahela
    lahela Member Posts: 515
    edited January 2014

    RHGSR, your story brought tears to my eyes. I'm so sorry your friend was so insensitive. I have a sad friend story to share, too, if I may. Last Saturday, I finally got up the courage to tell my closest friends back in Australia - I had decided not to tell them at the time because they would feel helpless being so far away so I would tell them when things were looking better. Of the three, I got a beautiful email of love and support from one, had a lengthy, lovely and supportive facebook chat with another, but the third - my bridesmaid, the woman who is unofficial "godmother" to our first son and was our birth partner for our second son - not a word. The message shows as "read" last Saturday, the day I sent it, but a week later I have had no reply. I don't know if she's mad at me for not telling her or mad at me for telling her, but it breaks my heart to have no word.

    Nihahi, so glad you are feeling better. Those chemicals must really do a number on you!

    Kelly, so god to hear you're feeling so good! You sound really positive!

    Christina, I'm having the same bra issue - seems like an endless merry-go-round of trying things on! There must be a perfect, normal bra out there for us!

    My last bit of scab from the ooph came off today (one of the incisions opened up the day after they took the stitches out), so I'm ready to resume scar treatment. I've got miles of the silicon tape left, but it's not wide enough for parts of my belly scar, so I'm going to order some scarfade from amazon. It feels daft to be so excited about that! LOL!

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