DIEP 2013

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  • Pattysmiles
    Pattysmiles Member Posts: 954
    edited January 2014

    I'm on the tamoxifen and have not noted hair loss, and I am still having hair come back in from chemo (ended in July).  I had beginnings of hot flashes at night prior to chemo.  Chemo/tamoxifen has stopped my periods.  I have not flashes at night (but did before tamoxifen). I take mine in the am.  Of course the menopause gives a bunch of side effects (vaginal dryness comes to mind) so you could say it is from tamoxifen because it put you into menopause but that's a stretch if you ask me.

    Good looking out now, by the time you are done with the other treatments you will know the exact questions for your doctors

    Pat!

  • lahela
    lahela Member Posts: 515
    edited January 2014

    Got my Effexor - look out hot flashes, your days are numbered!

    My belly tightening thing is so odd - I can be walking along, no problem, then it just spasms and feels like I'm wearing one of those (ever so attractive) 1980's wide elastic belts. 

    Cherrie, the Scarfade blurb on Amazon says it's effective on old scars and my PS says the silicon tape can be used on old scars (she actually had some on an old arthroscopy scar herself) - either of those might be worth a go.

  • jlbloom
    jlbloom Member Posts: 228
    edited January 2014

    Janet, that made me laugh.  The four footed girls are much cuter than my breasts.  

    I'm starting to have a size complex after seeing the NOLA ladies on the picture forum.  I had quite a bit of belly fat but have much smaller, or less full, breasts than most of the recent pictures I have seen.  If my breast bone was not so prominent I would be fine with them.  I will try the fat grafting until it works, or insurance stops paying for it.

    Jeannie, we are up to 20 F degrees.  Schools are still cancelled for today.  I don't think the roads are in too good of shape.  Michigan was much better prepared for this type of weather than Indianapolis seems to be.

    Liza and Maggie are much happier with this warmer weather!  Have a great day everyone...

  • nancykat22
    nancykat22 Member Posts: 3
    edited January 2014

    How to you get to the picture forum.  I am considering having LAT recon.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    jbloom,  are your foobs smaller than your real ones?  I know some people want bigger, some want smaller.  It's all a matter of what's most comfortable.  But, no complex's!!!!  I am sure you look great!!!!  We are our own worst critics. 

    I must have missed Janet's joke.  Will have to go back to look.

    Nancy, the picture forum people will want you to have more seniority (for lack of a better word) on BCO before they give you admittance to the picture forum.  Sorry.  

  • MartyJ
    MartyJ Member Posts: 1,859
    edited January 2014

    Nancy - in the Breast Reconstruction Forum, there are directions for the picture forum.  They pic forum owner/administrators are very protective of those who are granted access.  One thing they look at are posts on BCO.  Although you have been a member for almost a year, you haven't posted and participated very much.  First build some history here by asking questions and looking at the lat flap threads where there will be women who can give you first hand information.  DIEP (this thread) is a very different kind of surgery that doesn't involve muscle. Hope this helps.

  • christina0001
    christina0001 Member Posts: 1,491
    edited January 2014

    Jeannie, so sorry to hear about your friend/former neighbor. I hate cancer... it makes me sick to think about it. Also reminds me, I'd better live it up now, there's no guarantees...

    Ridley - congrats on being drain free! A big step towards getting back to feeling normal.

  • Zenful
    Zenful Member Posts: 599
    edited January 2014

    Goldie, it's not really fair for us to call it iron tummy.  It's really not that bad.  For me, it's  more like the size of a rubber band being stretched tight over my incision line. It's not something that I am always conscious of.  Maybe if I was more conscious of it, I would think about stretching more!  I think you will be very happy with your results.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited January 2014

    I was just thinking that my tummy occasionally still feels like it has a metal plate sewn to it.  Not often, but it's there.

    Jeannie, I hate hearing news such as your neighbor's.  I'm with Christina--it makes me sick just to think about it.  Damn cancer.

  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited January 2014

    Went in for my pre-op today. My plastic surgeon (who claims to be a pioneer and one of the best) has my flap removal listed on the hospital records as a "debridement".  I told the office that should be changed, but they said that's how he reported it.

    I'm thinking he wants to keep it that way so it is not part of his record for losing flaps.

  • jlbloom
    jlbloom Member Posts: 228
    edited January 2014

    Goldie, they are definitely smaller.  That's okay because my DDs were headed south. The things that bothers me the most are the divots above the foobs.  They make the breast bone look more prominent than it did before.  I'm sure fat grafting can help.  However I think all of it went away that was done during my stage II.  I would still do it again in a heart beat.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited January 2014

    Bluebird, that is interesting about your PS. As long as he makes you look the way you want, I won't be too frustrated with him.  😉

    Yeah, my DD's neighbor was diagnosed in 2009. I don't know the particulars of that diagnosis. It just stinks. It does make me realize what a gift each moment is.

    I don't really have iron tummy, can do crunches (if only I would) or whatever. Maybe it's because I had a lot of belly fat to contribute and I wasn't pulled as tight as some of you. I was standing upright by ten days out or so. I am also pretty flexible genetically --don't know if that is a factor. So don't worry, Goldie! Everyone is a little different.

    I am on Tamoxifen because I have bone density issues. My only SE is hot flashes, yuk.

  • mammalou
    mammalou Member Posts: 823
    edited January 2014

    I just started the 30 day plank challenge with my DD.  20 seconds is tough and it feels weird with all the tightness and the lipo incisions.  I'm not sure why I'm doing this except my DD thought it would be fun.  Maybe it will strengthen my muscles. 

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited January 2014

    Planks are the best! Sadly, I can't put that kind if pressure on my arms with LE. LE sucks in every way.

  • mammalou
    mammalou Member Posts: 823
    edited January 2014

    I have to go for mammo and ultrasound on good breast tomorrow.  I feel like canceling!  I am so tired of little stuff constantly coming up.  In the last 2 years I have had two biopsies on this breast.  I'm about ready to just ask for room over there.  Although, they have never seen cancer on any of my mammos, so maybe it will be just fine.

  • Sharon1942
    Sharon1942 Member Posts: 272
    edited January 2014

    I see my PS in the morning to see what can be done about my shrunken nipple. Will keep you posted on what he says in case this ever happens to any of you. It's always something - no matter how minor. I want to be done, done, done!!!

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    I had the most sad and awkward visit with my gyno today.  The waiting room was filled with real flower arrangements, and I thought that was weird, but stopped thinking about it once I got in the exam room.  Why do we all HATE that silly pap smear?  I always go at the beginning of the year to get it out of the way like it's the worst chore in the world.  Anyway, my doc is female and has a fairly heavy accent, and she is chatting away about that she came in today because she is always so glad to see me, but everybody is upset with her about coming back to work so soon, but she is so glad I am cancer free, blah blah blah.  I said I believed in destiny and that is why my cancer was found when they were looking for something else, and she says, "yes, that is what I kept telling myself during the funeral." Then it all hit me, flowers, she was way too chatty and weird, and then the funeral statement, finally after a few more exchanges it comes out her only son was killed xmas eve.  OMG.....but she didn't want to disappoint me because I have been through enough!!!!  That is way she didn't cancel her day?!!!!  This poor women is in shock, and I wanted to scream at everybody in her office, "get her some help, stop the madness.!!!!"  Everybody is scared of her.  She is a tough, straight forward, no nonsense doctor that nobody would try to even tell her what to do.  The nurses at the hospital hate to see her coming.  My heart was breaking for her.  Just breaking.  And, the next thing you know I am telling her what to do, and how she must grieve and not just buck up and get on with it.  She has to give herself time, blah blah blah. But, I could see she was shut down, and when she finally let's it out it going to be a landslide of pain. 

    I also dropped my abdominal CAT scan off with Kuka at my new PS office.  I am praying he thinks I have good vessels.  I already warned them the about the incidentalomas on the liver, and to ignore them.  Not going through that again!!!!!!  

    Jbloom, it couldn't hurt to try the fat grafting again.  Mine didn't take much at all, if any.  UGH.

    Mamma, we both have dreaded appts!  Hope yours is less eventful than mine. I am also trying the plank thing several times a day.  Much harder than it looks.  The schedule my DIL gave me gets you up to 2 minutes....ha

    Thanks for all the input on the tummy tightness.  It will be what it is, I guess.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited January 2014

    Goldie, that's so sad about your gyno's loss. Two Christmases ago, my beloved PCP's beautiful daughter unexpectedly died. She was recovering from drug addiction. He came back to work about a month later. His patients were all sent a letter requesting that they not bring up his loss during their exams. Work was a really good distraction for him. He is a lymphoma survivor who had chemo escape into his arm during an infusion---not pretty. He is my favorite. Anyway, I'm sure your doc appreciated your concern and it sounds like she has a much different personality than my doc!

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited January 2014

    Goldie, how horrible for your gyno. Some people have to keep moving and working just to get through the shock of it all. My husband did that when his son passed away 2 years ago. I had no idea what to do for him. It's still tough. I just hold his hand and let him know I'm here. Ugh!

    On a much lighter note, my bone scan came out clean so I am green lights to my hyster / ooph on the 17th then today made my appts in Seattle for consults with BS and PS for my prophy mx on my raining side and immediate bilat DIEP. SO FRICKEN excited right now!!! Jeannie57, who did you go to? I'm seeing Calhoun and Louie...

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited January 2014

    That's great, Dyvgrl! I see Linden and Said. I was originally scheduled with Louie but his wife had a baby when I needed surgery. My friend goes to Louie and LOVES him! When are your appts.?

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    Dvygirl....everything is falling into place.  Yeah!!!  Maybe you and I will be doing this together. I am scheduled for June 2, God willing.

    I am so happy for you clean tests!!!!  Doesn't that make you feel lighter than air when you get good results?

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited January 2014

    Jeannie,

    My consultations are on Feb 24th so we'll see. Hoping for April ish for recon. Good to hear your friend is happy with Louie. My PS recommended him since he did his residency there.

    Goldie, We'll be all over the recon biz together! Yes, having a clean scan sure gave me a sigh of relief for sure. Yay me! Lol

  • lahela
    lahela Member Posts: 515
    edited January 2014

    Bluebird, I think that sucks because fudging the statistics will mean his future patients won't be fully informed.

    Sharon, all the best for your PS visit - hopefully he can find your nipple!!!

    Dyvgrl - three cheers for a clean bone scan and being able to organise your surgeries! It must feel great to take such significant steps forward in your recovery!

  • RHGSR
    RHGSR Member Posts: 774
    edited January 2014

    Goldie - wow. How sad for your Gyno.  I was a full time college student last semester and am majoring in applied sociology with a minor in psychology. I'm really interested in aging and death/dying (not as morbid as it sounds. I'd like to work with hospice). I always thought that denial is a bad thing but I learned last semester that short term denial is actually a way our body protects itself. It allows our body not to take too much on all at once. Our body and mind are so amazing. I did the same thing after my diagnosis (which I'm sure many of us did). It all felt like it was happening to someone else. I was so disconnected.  

    How long will I still have pain from my DIEP? It's mainly on the side they took the nodes. It's muscular. Under my foob on my rib cage. And my chest. And the foob itself. I'm going to PT. I'm 7 weeks out. 

    This sounds weird. But I'm thinking about clearing some brush this weekend. Supposed to be nice weather here. Probably just going to use my clippers and rake some. No chainsaw or anything :0). The chemo fog seems to have lifted and I love being outdoors. This should be okay... Right?

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    rhg, you are absolutely right.  That is probably what she is doing.  It's too painful for her right now.  And, I did do the same thing as you after my dx.  I went some place else.  It was like it was happening to somebody else.  Thank you for the explanation.  What do they say about the four stages of grief?  Isn't the first stage denial?

  • nihahi
    nihahi Member Posts: 3,841
    edited January 2014

    Hey Ladies....

    Didn't get into the OR until sometime after 4:30pm yesterday, didn't get home until after 10. Still feel like I could sleep another 10 days.

    Pain isn't too bad, which I expected....but best news of all.....no barfing!!! Being npo for that long may have been the trick for me. The post op shivers and shakes were horrible though, thought I was going to shake right off the bed. 

    Super sore throat from the endo tube....the day surgery nurse said it "came loose" 4 times, and they had to keep moving it....that sounds bizarre to me????? But my throat has never been this sore after any GA either.

    Wilbur is not my friend....I was crazy disorientated and confused in post-op recovery...could not figure out where I was or what had happened to me. Not a pleasant feeling at all.

    Small "somethings" to both ends of tummy incision, and lift, reduce and shaping to flap boob. Can't see much detail, as gauze pads are covering everything.....it's nap time again...night night.

  • lahela
    lahela Member Posts: 515
    edited January 2014

    Nihahi, gentle healing thoughts coming at you!

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited January 2014

    Nihahi, glad to hear from you from the other side! And no barfing! Sorry about the sore throat and Wilbur shenanigans. I learned the hard way to ask for a small endo tube. Why would yours come loose?? The good thing is those cells in your throat turn over fast and you will soon feel better. I hope you are sleeping and healing now!

  • Curlylocks
    Curlylocks Member Posts: 1,060
    edited January 2014

    Got my pathology report back...not good news they found invasive cancer in my left breast again (same one as 2005).  It is er-,pr-,her2- this time.  It is .9 cm.  Chemo is in my future again.

    Breast surgeon is referring me back to my regular oncologist.  I F*****ING HATE CANCER!

    Michele

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited January 2014

    Michele,

    I'm so sorry girl. Big giant hugs... Are there any other options for triple neg? Check out PubMed and see what they have in the way of clinical trials. Lots of new chemo drugs for triple neg that are supposed to be more effective. I will keep you in my prayers!!

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