In shock

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  • Jackpot
    Jackpot Member Posts: 167
    edited January 2014

    thank traii and adagio

    I'm starting to feel normal again after finishing chemo thanx except for the tiredness....

    My hair has already started to grow back before chemo ended my onc said this was quite common but it's only a couple of mm so to short to see if its going to have any curls in it but it does look darker...can't wait for proper hair and be able to ditch the hats.....I've started using fast shampoo and conditioner it had good reviews, has anyone else heard of it or used it...I'm interested to know if it worked for them 

  • scouser47
    scouser47 Member Posts: 963
    edited January 2014

    Adagio, have an amazing Hawian adventure. Green with envy. X

    Websister, defo in those pockets with you next week. Happy hibernating X

    Jackpot, looking forward. To catchup Monday. X

    Traii, keep well and happy x

    Off to panto with daughters and Gd's more excited than the. Ha ha. X

    Movie hope you healing quickly X

     love to you all.

  • nihahi
    nihahi Member Posts: 3,841
    edited January 2014

    Hey gals....still around...didn't mean to imply I'd NEVER return, just not as often....

    stunned59...these are wonderful ladies, you will be well supported. Hope things go well for you.

    I had a brief chat with movie yesterday...she sounds horrible, but is still hanging in there. She's a hard person to keep down for long!!!

    Also had a chat with benny a few days ago, and am meeting her for coffee on Tuesday (weather permitting). I'll give her hugs from all of you. 

    Websister, can we share the party people on Wednesday?...that's my next surgery day. Should be a short, day surgery thing, but I admit, I'm not looking forward to it. 

    Stay warm Calgary girls.....again....it's too cold to play out there!!!!!

  • scouser47
    scouser47 Member Posts: 963
    edited January 2014

    Hi Nerdy,
    Everyone sounds happy and moving forward.

    Websister, get BIG pockets we will all be there. Hope your weather improving. We went to panto yesterday where our dreadful floods happened last month and all so normal now. Even the childrens on the beach boat that was destroyed has been rebuilt. There was a threat again this week but it didnt happen here, other parts of England getting battered instead. Whole cliff faces being washed away Scared
    People are told to keep away but NO, lovely young man has been missing for days after going to take photos of the waves.A man was holding his toddler above his head to see the waves and one huge one engilfed them both, thank goodness they survived but have they no brains ?

    Nihahi, glad you still out there Happy Give our Benny love, hugs and convince her life is worth living and we miss her so.If anyone can lift her spirits YOU can.BIG pockets for you too. I am bringing tea and cucumber sandwiches.

    Movie, ((( HUGS )))

    Liefie, hope you all settled back and recovered from that GORGEOUS wedding.

    Went to supermarket this morning, DH cleaned and polished whole of downstairs even steam mopped !! Said he loved it, now his job ha ha, lets see how long it lasts.

    Better get a wiggle on, visitors this afternoon and for once I don't feel the need to go to sleepSnoozeChicken roasting, spuds, spring greens and carrots in pans plus apple strudel and custard for afters ready to be baked. I am on a ROLL.

    Be good and if you can't be good be CAREFUL X


     

  • websister
    websister Member Posts: 1,092
    edited January 2014

    Edi - you sound so good! :) Loved the Facebook pic of GD's at Panto (by the way - what is Panto? Thinking maybe a mime group?) 

    Nihahi - definitely we can share on Wednesday, I will be there with you, my appt isn't until 3:15 and I will have to make good time from Peter Lougheed Hospital over to Richmond Road - my meeting at PLC ends at 2:30! Cutting it close but only time I could get everyone who needed to be there booked 

    Spending a lazy Sunday inside. Last week I bought a couple's membership for DH and myself at a fitness facility close to us, we checked it out yesterday. Nice - and my personal spending account at work pays for it so even nicer. Today, I'm de cluttering. Feels good , no pressure but everytime I make progress it inspires me to tackle another area.

    Hope all are warm and feeling well

    Take care

  • scouser47
    scouser47 Member Posts: 963
    edited January 2014

    Websister thanks. Panto is pantomine, musical and comedy version of Jack and the Beanstalk. Lots of gorgeous costumes, singing and dancing, lots of laughter and the kids adore it. We saw Peter Pan last year and ED is going to book for next January as soon as possible. Xmas tradition here, quite often famous stars of tv are in it.Think the adults enjoy it just as much.Happy

    Visitors gone dinner was enjoyed even though I slightly burned the Yorkshire puddings Scared fighting to stay awake now, think I may have overdone it Shocked Will behave tomorrow.

    Love to all X

  • scouser47
    scouser47 Member Posts: 963
    edited January 2014


    Nana's Princesses at the panto, lady behind asked them to switch off their flashing crowns as they were distracting her !! The theatre was packed with kids all with flashing swords, wands and tiaras all bought by us doting grandmas at a  ridiculous prices. Miserable bxxxh Grrr.

  • scouser47
    scouser47 Member Posts: 963
    edited January 2014

    Just found this pic taken 38 years ago Me and Ed.  Youngest GD's Mom where did the years go ????
    My spectacles look like TV screens ha ha.

  • liefie
    liefie Member Posts: 2,440
    edited January 2014

    Edi, love the picture of young Edi - yes, where did the time go? Enjoy the visit with Jackpot today! Last Saturday when we were visiting with my cousin in Twickenham the sun was shining there . . . we felt really honoured that it came out just for us - lol. So sorry to hear about the drownings. People do such mindless things, don't they? My nephew almost drowned when he got swept off the rocks by a huge wave last year. His legs were cut really badly, but he made it out alive. The sea inspires a healthy respect in me. I swam when we were there, and thoroughly enjoyed it, but never go far from shore, and never turn my back on the waves. Then in S.A. waters there is always the thought of sharks too. . .grrrrrr! Traii, you have the same thing down under, eh?

    Welcome here Jackpot and Stunned! You will find wonderful support, love and humour here. Together we can make it through this quagmire, and nobody understands like these ladies do

    Websister will be with you on Wednesday. Good for you and DH on the gym membership! Is the cold abating yet? My kids came from plus 30 degrees in S.A. to minus 30 in Alberta, quite a shock to the system. They had to buy an extra big suitcase to bring the wedding gifts, and I'm wondering where they are planning to put it. Their place is so small you can't swing a cat in there. Oh well, we all have to crawl before we can walk, right? We had nothing when we got married. DH was still a fulltime student, and we somehow survived on my small salary as a beginner teacher. Love and cold water got us through - hehehehe.

    Nihahi, in your pocket too on Wednesday! The same awaits me on April 23. I have decided that that will be the very last surgery I'm submitting to. Enough is enough. It is not even a big deal, but I've just had it. I want this whole ordeal to be DONE, OVER, FINISHED. Say hi to Benny tomorrow!

    Adagio, enjoy Hawaii! I loved your beautiful snow white curls when I met you last year, and wished mine would be so white. I have a distinct black line in the back like a skunk. Weird how everybody's hair is so different after chemo. At least we have hair again, and that is something to be grateful for. Was no fun to be bald as an egg.

    Movie, soooo looking forward to see you in 3 weeks' time! You get better now, girl - that cough had me cringing every time on the phone last night. Take good care of yourself, please. I believe in slathering myself with Vicks whenever I have a cough. It somehow soothes everything, opens the airways, and makes you breathe way easier. Does not smell too good, but it works.

    I'm beginning to feel more like myself now and less like a zombie. Will have to get myself together, and go to the gym, just not today . . . Those of you interested in some wedding photos can type in on Google 'Hendrik Steytler Gideon en Zanie - Stellenbosch', and the photographer's website will come up.

    Now I've written a novel. Sorry!

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited January 2014

    happy new year everyone !!!! It's been a crazy couple if weeks !!!! Hockey still going string and now indoor soccer has started !!!!! Feeling great hope you all are too !!!! Love to all !!! Muah :)

  • websister
    websister Member Posts: 1,092
    edited January 2014

    Edi - love the young Edi pic, thanks for the explanation of Panto - sounds like a lot of fun

    Liefie - so good to hear from you again! I googled the pictures - what a handsome couple! Beautiful pictures, I think I spotted you a couple of times, you look great. Thanks for being in my pockets this week :)

    Dakota - you are one busy lady!

    Nihahi - have a wonderful visit with Benny tomorrow, I will be thinking of you as I get my teeth cleaned :)

  • maureenb
    maureenb Member Posts: 81
    edited January 2014

    Bennymuffins-   

    That is exactly how I felt.  Shock seems too small a word for what you are feeling.  And the nightmare feeling-  boy do I know that all too well.  Every day when I would wake up I would have a millisecond where I wondered if it was all just a nightmare.  Even during the day I would think that maybe it wasn't real.  Or that the doctors would say they messed up.  And I wouldn't even be mad at them.  Just give me my health back and no hard feelings.  That's called magical thinking.  I guess it's our brain's way of trying to cope with this bomb that has been dropped on you.  I am not going to sugar coat anything because that's what I wanted-  the truth.  The next few months will be extremely difficult.  I had times after surgery and when I was going through chemo that I just wanted someone to put me out of my misery.  But now-  and I am only 5 months since my last chemo-  I feel absolutely great.  Better than ever.  When I think about last summer it's still like a bad dream.  But it's over now.  You'll get a lot of advice on here from lots of different people and that's what's so good about places like this.  If what I tell you bothers you, then chances are the next person will have something to tell you that makes you feel better.  What helped me was hearing from people that went through it, admitted it was awful, but then got to be happy and feel good again.  Right now, I do need a revision surgery on my mastectomy reconstruction, and my hair is still crew cut short, but other than that, I am happier than ever to be alive.  You can and will get through this.  You will have times of doubt and fear.   If you're like me, you'll have more than just crying, you'll have absolute wailing on the bathroom floor.  But then it's over.  Everyone will have times like these in their life.  This is yours.  Know that there is happiness and fun and feeling good and looking pretty on the other side.  We are all here for you.  Post every time you are scared or worried or lonely and someone will make you feel better.  

    xoxoxoxo  to all of you on this crazy journey!

  • adagio
    adagio Member Posts: 982
    edited January 2014

    liefie - just googled the wedding pics - gorgeous bride  and stunning wedding indeed. What a handsome son you have. I recognize the church  - I was in it in September - I found the arrangement of the seats very interesting! So glad you are feeling better.

    I am having a blast here in Hawaii - the weather is so amazing and the ocean was so warm today - I plan on swimming every day while here.

    Thinking of you all while going through procedures - in your pockets, for sure.

  • caitlin61
    caitlin61 Member Posts: 214
    edited January 2014

    Just a quick drop in to say I'll be joining your pocket parties tomorrow, Websister and Nihahi.  Hope all goes well for both of you.

    I looked up the wedding photos too, Liefie - beautiful couple and looks like everybody had a great time.

    Movie, hope you are on the mend - those respiratory things can take forever to shake.  

    So jealous of you being in Hawaii, Adagio - you'll have to post some photos so we can all bask in the warmth - or at least dream of it!  We're just recovering from a major storm, by Indiana standards - a foot of snow, with temps as low as -14F (and windchill of -40).  We actually had a snow day yesterday, which is pretty much unheard of at my company.

    Edi, loved you photo from yesteryear - you were cool then and still are!!  So nice that you were able to meet up with Jackpot!

    Hoping everybody else is doing well!

  • Jackpot
    Jackpot Member Posts: 167
    edited January 2014

    hi all 

    Hope everyone's ok

    just thought I'd put a pic on of myself and the lovely edi....

    image

    And thank her for her wonderful company 

  • Jennie93
    Jennie93 Member Posts: 1,018
    edited January 2014

    You are both beautiful!!

  • scouser47
    scouser47 Member Posts: 963
    edited January 2014

    Hi Nerdy

    Jennie thanks Happy Jackpot IS beautiful. We did have a lovely afternoon at the hospital and she was soooo brave. She starts her Rads on Monday 13th so do hope she will call for a cuppa on her way home.

    Jackpot I have tried about 10 times to copy and paste this photo on here but heaven knows WHAT I am doing wrong Scaredno result.!! You will be through rads before you know it.

    Going to skype Liefie tonight, looking forward to that so much.
    Won a little cash at Bingo YAY and it is good to get back to normal after Xmas.

    Nihahi, did you meet up with Benny ?

    For any of you ladies feeling URGH Sad please don't give up. Suddenly I have energy, can taste food again, Feeling Good ThumbsUp

    Good news to start 2014 as well Shedman has had the results of pre xmas PET scan. NO SPREAD and tumour appears to have shrunk a bit. It is his birthday today so DH and I are going to see him shortly.Hopefully we can encourage him to move forward.Know he had almost given up, he has been so brave.

    Have been watching on the news about the dreadful weather some of you have been experiencing. Please keep safe.

    Love to all X

  • Cici566
    Cici566 Member Posts: 22
    edited January 2014

    Hi Bennymuffins,  This is a terrible place to be right now.  I found my lump on Dec 3 and I am going into surgery next tuesday the 14th.  My mind has gone to all the dark places and then I come back and I know that I can be cancer free.  I have read through all of these stories of these amazing strong women and I know that I and you can do it too.  This is such a hard time because information is slow coming.  Every time I turned around this past month more tests were being ordered.  As scary as that is, I just kept thinking that they were being thorough to better understand what was going on and how to best treat me.  So far what I know, is I have a lump that is 2 cm.  It IDC,  There is a lot of cancer cellls around the tumor that are loose that are making the whole area 8 cm.  When I heard that I really started freaking out but the tumor is not that size.  I have a lymph node that has cancer in it.  I am her2+ which means it is an aggressive cancer.  I have had a bone scan, ct scan for abdomen, and ct scan for chest.  Everything came back clear.  That is great news.  I am having a masectomy and I have decided to have the other breast removed as well.  I will follow up with chemo and then radiation and reconstruction.  I am visualizing the cancer completely leaving my body when I go in for surgery. I have had a couple of horrible days because we finally told my children (12 and 9) what was going on. but today I am making myself think positive until I get to surgery.  I am taking control of what I can until then.  Personally, I have stayed away from the internet except for the discussion board.  Do you have a friend that could look up things for you?  I have done that.  I think it is a little less scary and overwhelming.  

    This is the hardest place to be right now.  Stay strong and stay in the moment.  I find it helps to find humor. I wish you well.

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited January 2014

    welcome cici!!!

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited January 2014

    you got this girlfriend we are here and happy to help ;)

  • nihahi
    nihahi Member Posts: 3,841
    edited January 2014

    cic....you sound like this dx has met it's match!!!! Glad you found these ladies, as they are amazing.

    Coffee with benny didn't materialize yesterday. She has given me the ok to update you all a bit, but she also said that she would be coming back to the thread herself. I hope she does, as the love and support she will get from everyone can only be a positive thing, right!!!

    Benny has been dx'd with radiation pneumonitis. I have no knowledge of this, other than it can be a side effect of rads, but it is NOT a recurrence/mets kind of thing. Her worries, again, that something "off" meant cancer had returned, have understandably taken a toll on her energy and her "outlook". I'm hoping that having gone through this a couple times, she will start to gain some faith in hope for the future. She is exhausted, and has been told to eat well, drink lots of fluids and rest as needed. Lets all cheer her on to making those things a priority, and to having her back on the thread.

  • liefie
    liefie Member Posts: 2,440
    edited January 2014

    Cici, welcome here. You will find all the support and encouragement here that you need. I was diagnosed in Dec. 2011 with a tumour almost the size of yours, and one positive lymph node. Mastectomy followed, then chemo, rads and reconstruction surgery. Today I'm out on the other side, healthy, happy, and back to normal. You will get there too - THIS TOO SHALL PASS! Repeat this to yourself as often as necessary.

    Nihahi, not long to wait now. Big hugs, sista!

    Edi, looking forward to skype later. Still in my pj's - better get dressed. Went to gym for the first time yesterday after my 6 weeks' 'leave', and I'm sore from my shoulders to my knees this morning, so not very limber today. LOL. You and Jackpot are beautiful, and I'm sure you had a lovely time together.

    Benny, so sorry to hear about the pneumonitis, and hope it will be a thing of the past soon. We really, really miss you here - how are the chickens? And that orange fluffball?

  • scouser47
    scouser47 Member Posts: 963
    edited January 2014


    Liefie, was 40 minutes late skyping you sorry. Was hospital viisiting and couldnt get away. Did message you, tried again just now if you see this will try again in 45 mins. 14.30 your time xx

  • Morwenna
    Morwenna Member Posts: 1,063
    edited January 2014

    Hi everyone, old and new!

    I, like Nihahi, am currently trying to reduce the impact of CANCER on my life, and in an attempt to cut it down to size, I have taken bc.org off my favourites list.

    Not to say I won't pop in from time to time, but no longer as a daily habit! 

    That said, along with Nihahi and Websister, I am currently having a run of medical appts that tend to bring it to the fore.... MUGA heart scan Monday, bruised to bits as they took 7 pokes to get a vein!! Today follow up with MO .... I'm surprised I didn't bump into Websister, as we were there at the same time! They tell me there is no sign of cancer in my remaining breast. I tell them I am not convinced, and planning a prophylactic Mx anyway. Weekly blood draws at present as my INR is like a bloody rollercoaster.

    Jan 20th, I see a plastic surgeon for initial consult. Feb 9th I see the lymphedema girls. I'm having to wear my sleeve and glove on a daily basis at present, which is a pain.

    On a happier note, next Tuesday I have an interview for a possible career change! And Feb 3, I have an introduction to the world of the Sistership Dragon Boat Race team!! Also next Tuesday evening we have our Open House at chorus, so do join us *nudges Websister*

    OK, that's my news for now. Onward and Upward!!! xxx

  • liefie
    liefie Member Posts: 2,440
    edited January 2014

    Edi, I was here, and busy with other things, but Skype was not connecting. Maybe we can try again 14.30 my time tomorrow? Gim in the morning, but will be home later. Hope it works.

  • scouser47
    scouser47 Member Posts: 963
    edited January 2014

    Hi Nerdy

    Sun is shining here a bit so makes you feel cheerful.

    Like the others I am going to move on using GIANT steps but will also pop in and out.

    Liefie, that time is good for me at the moment. Hope Skype connects X

    Morwenna, good luck with all those appointments. X

    Nihahi, thanks for update on dear Benny, had a pm from her on f/b but was still concerned. Hope her spirits lift soon. onwards and upwards X

    Love to all X

  • ETHAN26
    ETHAN26 Member Posts: 1
    edited January 2014

    I would like to say I am also new and in total shock I was diagnosed with grade 3 aggressive and 1 of 3 lymph nodes positive starting chemo on Monday 13th . I feel like getting in my car and driving as far away as possible.

  • websister
    websister Member Posts: 1,092
    edited January 2014

    hugs to the new members, that initial period of time after diagnosis is one of the hardest parts 

    Morwenna - wow, we must have just missed each other, no one in waiting area as I sat there patiently waiting for my appointment yesterday. I do not feel listened to by my MO or her nurse, very nice people but they brushed off every concern I wanted to discuss and I am told that if this mammogram today (in waiting area as I write) is OK then I will be bumped to every 12 months for MO visits. When I look at the surveillance some others from the US are receiving it makes me wonder - also makes me realize I have to be ever vigilant myself while still trying to move on with my life. Feeling the usual apprehension as I sit here and wait re: mammogram, lots of only memories stirring but hopefully as time goes on this process also will become easier

    Take care everyone

  • scouser47
    scouser47 Member Posts: 963
    edited January 2014

    Websister, ((( HUG ))). How awful for you. Here you are cosseted completely by the hospital and everyone in it. Know they have to do it but it really helps.
    Even so I am really vigilant think we know our own body better than anyone.
    Hope mammo not too uncomfortable. X

    Ethan, sorry you have to be on here, any questions/problems with chemo please ask, we will help if we can.

  • adagio
    adagio Member Posts: 982
    edited January 2014

    Ethan - can certainly identify with wanting to run away! Have felt like it many many times myself. Do you know which chemo drugs you are going to get?  Are you triple negative? Perhaps you can post your stats from your lab report so that we can be of more help. Good luck with chemo - all the ladies her will be helpful since we have all been there - it is not pleasant, but it is manageable most of the time. Look after yourself and rest when you need to - take short walks outside every day and drink lots of fluids. I drank a lot of lemon ginger tea with honey in it.

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