DIEP 2014
Comments
-
For the new ladies looking at timelines for surgery - My mascetomy +DIEP was 7 hours as my PS works with a full team of doctors. He was the first DIEP PS to do this surgery in Ontario, originally when he first started out the surgery was at 11 hours.
Goldie - you asked on the other thread, my range of motion is very good now. The odd time my right arm will get sore if it is positioned wrong when I am sleeping.
Did I mention how happy I am to be on the other side of this?
Just not a very "patient" patient....
Kuka - nice to hear that life has gotten back to normal for you:)
Michele
-
Curly
That is great!!! I am glad you are moving around so well. I was thinking about it though. You had a prophylactic bmx, correct? Which probably means they took no nodes? I think that is what really causes issues after mx, or bmx. When nodes are taken it causes more issues. You had your nodes taken when you had your original surgery years ago, I assume, and I bet that was no picnic? I am sure having the breasts removed is also not a fun surgery, but not quite as bad as nodes and breast at once.
Wow, you PS sounds like a seasoned veteran, which is awesome. It's probably why you are having such a nice recovery. There has to be a huge learning curve with these recons, and that is why they tell you to ask how many a PS has done. Experience makes all the difference. I am glad you are so happy, and relieved
-
For those with surgeries upcoming, I just saw a power recliner at Costco. I didn't catch the price, but if you're considering renting one it might be worth it to just purchase it. I didn't use a recliner during my recovery, but there are lots of ladies who do, and like the comfort and ease of the power feature.
I just came home with eggs, avocadoes, and apples. And some underwear for Thing One (mine, not Bailey's!).
-
SBE, I posted about that recliner too. It was only $270. It was brown micro suede. Same one you saw? It is made by Polaski, which is actually a pretty good brand of furniture
-
I absolutely loved the power recliner for the first couple weeks at home. But.....I also know I didn't want it hanging around for years as a reminder of those days, which was a big factor in my choice to rent. It's just another difference, eh!
-
LOL....oh SBEL, can you imagine Thing 1's horror if one of my cyber loon friends bought him underwear? Too funny! (For those that don't know Thing 1 is my 18 year old son and Thing 2 is my 14 year old son - Thing 1 and Thing 2, like in the Cat in the Hat).
I have a small-sized recliner, not a power chair, and I alternated between that and the bed with pillows of all shapes and sizes. Thing 2 told the chiropractor I had a lot of pillows. Chiro asked how many. Thing 2 said, "ALL OF THEM".
I always hesitate to say this because I don't want to freak out anybody who doesn't have time to do it before surgery, but one of the most helpful things I did before my surgery was lots of core, quad and butt strengthening exercises. Because I was strong I was able to use those muscles to lift myself off the chair, bed and toilet. The nurses in the hospital were pretty amazed at how easily I could lift myself off the bed (and how quickly I sat right back down the first few times because it hurt!). If your surgery is next week and you haven't done strengthening exercises you are still going to be JUST FINE, I promise.
-
Am I going to have a problem getting in and out of my regular recliner? I love it, and I can sleep in it all night if I have to. I really don't want to buy, or rent another one. What should I do? Am I going to be able to pull the lever to sit myself up?
-
I never rented, and never needed to...
-
I never needed a recliner either. Done pillows on the bed did just fine!
-
brownie jan 16
-
You know how in old movies when somebody is in the hospital with a badly broken leg, etc. they have these hanging handles over the beds so you can pull yourself up. I want one of those.
Will having one husband home one week with me be enough?
-
Well, hello Brownie. You are a woman of few words. Welcome. Your surgery is right around the corner. Where are you having it done? Have you gone back and read all the info on the DIEP 2013 thread. We are here if you want to talk. Wishing you the best of luck.
-
goldie....it isn't necessarily that you "can't" pull or push, etc. but what you SHOULDN'T do. There are restrictions to what you are allowed to do, in order to protect the vascular connection sites. That is why operating the lever on a recliner might not be recommended. But, you don't HAVE to have a recliner, as many others have found. You have lots of time pre-surgery to try different scenarios. Can you get in/out of your recliner without using your arms? Would you be better off propped on pillows? Practice getting in and out of bed, chairs, etc. without using your arms. Things like that aren't exactly the same scenario, but can give you some ideas of what you might need/want.
-
Goldie, those things they put on overhead bed frames are called triangles, and they still use them. Whenever my dad was in a hospital bed he insisted on having one, and then did pull-ups on the thing. When I was doing hospital nursing I loved it when an orthopedic patient could pull him/herself up and out of my way so I could change the bed. Of course, those were the days when patients stayed IN the hospital, and IN their beds! Now, it's like, "Good, you're awake. Adios." And...even if you had a triangle, you shouldn't use your arms like that after your DIEP. Remember, T-rex arms.
Bailey, I'm with you on the core strengthening. My PS insisted I do abdominal and back exercises before surgery, and he was right--it made a big difference, I think. But for those whose surgeries are like, tomorrow, and don't have time for crunches, no worries. You'll be fine.
No recliner or wedge for me, either. I wanted to sleep with the hubs, so I figured out how to arrange about a million pillows to support my head, arms, hands, and knees, and with an ativan every night, I was able to sleep. You know how cameras and things are packaged carefully in that soft, gray, cut-out foam? I think they should make something like that for DIEP patients. Exactly shaped to your own body's needs and comfort.
Bailey, Aubrey isn't standing yet; she just turned 5 months on December 27. But I watched her pull herself up to a standing position for a nanosecond, and then pop back down on her little diapered bottom. We had her all day yesterday and loved every moment.
Gah. Weekend's over--back to work tomorrow. Have a great week!
-
LOL, Nihani. I have spent the last 10 minutes playing with my recliner, and pretending I couldn't use my arms, or my tummy. I might rent one with a motor for a couple of weeks, and move my beloved chair to the guest room. Sniff.
I have other issues. I need my recliner for my back, and since it's going to be stressed anyway I really wanted to stay in my recliner because it hit's me in all the right spots.
Now that I have been given the green light to go back to a work out routine I will concentrate on squats, like Bailey suggested, and the Yoga bridge I found was a really important one to have perfected before my bmx, and I didn't even realize how often I would use it in the hospital. I will do lots of planks, also. Do you do any upper body work? I am still finding it hard to do any kind of weights with my upper body. My PS said go for it, but my pecs are not agreeing at all. I can't wait to get these implants out from under them, and put them back where they belong.
You said get an idea or what I need, or want. I want a big and strong round the clock assistant that will do anything I ask without complaining, and is good company only when I want it. Fantasy, I know.
-
goldie.......Jose, the cabana boy.......comes with a speedo and a tray of frosty cold cervesa with tortilla chips and guacamole!!! How's that for a bedside attendant fantasy. .
My arms/shoulders are my weakest link (apparently along with my fashion sense). Within just the past couple weeks, I have been able to do the warrior arm positions, or eagle arms without pain. It's been a loooooong time since that has been the case. Can't do resistance above the shoulder level yet, or external/internal rotation against resistance yet. But.....it's a work in progress. I am going to be sooooo ticked off, if Wednesday screws up the progress, AGAIN! I can do front and side plank for short periods, but have to be very careful in positioning just right. I'm not giving up though....to many fun things to do that need arms.
-
Nihani,
I don't think stage 2 will mess with your arms at all. I know it's not exactly the same, but when I had the exchange surgery my arms were not over my head nearly as long as bmx, and I didn't even think about my shoulder when I woke up from anesthesia, because it didn't hurt. My range of motion has not been compromised as far as I can tell. The only thing holding me back is the pec pain. I really think you will be fine. They are doing what, reshaping a bit, and nipple?
BTW. you can have Jose for your recuperation, but then he is mine.!!!!!
-
reshaping and minor dog ear fix. No nip yet......Have a good night...hope tomorrow is a wee bit better for you pain-wise.
I'll make sure Jose knows he has another "booking"....he'll probably like your weather better than mine.
-
Goldie. In the hospital I had a recliner with a lever. All the hospital rooms in Nola have these. I had no problem pulling the lever to recline. If you love your recliner then it is probably fine. When home I actually slept in my bed with a wedge and lots of pillows. I preferred it over the recliner. We have a recliner with a lever here and it was fine but I like beds.
-
hey.....still feeling like carp.......
Nihahi...if PS fiddles with any procedure involving "involving" the pec muscles.....you may be a bit sore for a week or two. My stage 2 involved a lift, rotation, and attaching to pecs.....needless to say my arms were somewhat useless in terms of lifting too high above my head, and I couldn't lift more than 10 lbs....AGAIN....had to start crawling my hand up the door jam, making "it" move a little higher each time..but it didn't last too long, if I remember correctly. (Says the crazy loon who is high on codeine cough syrup-shut this damn cough up so I can sleep......
)
You, on the other hand, will probably be fine............
-
Codeine cough syrup! Also known as never-poop-again-juice! Be sure to eat your prunes or something, Movie. This message has been brought to you by The Constipationator, and no consultant fee will be forthcoming.
Hope you feel better. Did you first catch the flu and it went into pneumonia?
Nihahi, it'll all be over soon. We're all SO in your pockets, girlfriend.
-
lahela, you give me hope! I am 5'8 and 143 lbs. My PS said she thinks I can be about the same size I am now, which is a small B. I was hoping for a larger B or small C. It would be nice to fill out a shirt for once in my life. Haha!
4acure, I have TMJ also, and didn't think about how surgery would affect it. I guess it wouldn't hurt to mention it to the surgeon and anesthesiologist.
-
Except for it's constipating properties, Codeine, to me anyway, is a great drug. It stops what hurts, it makes me a nicer person when I take it, and it quiets a cough, but......
I just got back in from running some errands. It is cold outside!!!! For Texas this is a big deal. I like it, but most people don't even own a good warm coat down here. I was just at the post office and everybody was layered up. But, really...Superman pajama bottoms to the post office? This was a grown woman!!! Hmmm, there it is, my old crotchety side coming out. My husband always tells me to observe, but keep my mouth shut....lol.
jmb, if you have time Google "diep on thin woman." There are so incredible pics of awesome results. You are going to do great.
Betsy, I am going to make due with the recliner I have, and I also have a wedge pillow for the bed. I don't know if I would want to own a lift recliner. It is sooooo slow, and great when you need it, but the rest of the time I would be climbing out of the thing before it was done lifting me up.
-
jmb5, my date for stage 2 is April 23, and it will be at the Royal Jubilee Hospital in Victoria, BC.
-
SBE, So, I will have T-rex arms even though I am having a delayed diep? I was hoping it wouldn't be as bad as bmx when I couldn't even pump soap into my hand.
Well, whatever it's going to be, bring it on!!!!
It does look like my date is going to be pushed back a month, or so. My husband can't get the week off (spring break) that we originally were given for surgery, so now we are figuring out the next best time. I am considering enjoying the two nicest months in Texas (April and May), since I missed them last year, and have the surgery in June when it's too hot out for a human to survive outside. It's our winter in reverse. It all came up today and we are tossing around every scenario. It's nice not be told you need to move right now because you have cancer. Now it's my choice, and on my time. That feels good.
-
Goldie.. I think you'll be fine. I feel the MX is the hardest part IMO.
-
Goldie, do you think you can stand the implant pain until June?
-
Sharon, that is just what my DH and I were talking about before I got on here just now. Can I take it? I have been doing a little better this week, but tonight I did a very little bit of Yoga and it got very tight again. I have to think hard about this because I need to call back tomorrow.
-
I sent back my power recliner and used the plain recliner I had at home. I tried wedges, but it just didn't work for me. I spent 8 weeks in my recliner at night. I was so scared if I used the bed I would roll on my flaps. It is nice you have both so you can do what works for you.
-
Maggie, Kelley and Nihahi how are you doing?
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team