Can we talk about hysterectomies once more?

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  • peacestrength
    peacestrength Member Posts: 690
    edited December 2013

    TectonicShift - Glad you started this thread - I don't have experience regarding this and would like to hear from others too.  I'm scheduled for an ooph in three weeks.


  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2013


    TectonicShift Thank you for starting this topic. I often feel that for all we've gone thru with treatment, I have experienced chemical hysterectomy. Sexual function is a biggy for me. Especially because my husband and I have always had an excellent and satisfying sexual relationship even after raising our 5 children, it has always been good for the both of us. Uhmmm, at least until breast cancer Lot's of issues to deal with now.


    Also, Hysterectomy is something I'd like to learn about, too, because my oldest daughter is suffering from fibroids and endometriosis and infertility. She faces this possiblity at age 34, and I worry so much about her.



    Oceana


    marvelous-nicole-rodriguez.jpg (180×119)

  • Holeinone
    Holeinone Member Posts: 2,478
    edited December 2013


    My hyster had nothing to do with bc, I struggled with fibroid tumors & severe anemia. They took out the cervix, uterus & one ovary. Best health decision I ever made. Quality of life improved so much. I had no problems at all.

  • karody
    karody Member Posts: 89
    edited January 2014

    This is my biggest regret about my cancer treatment.  I wish I had not done the prophylactic hyst/ooph as it has ruined my sex life.  I am young, fit, and married.  I used to be always ready for some: no have no sex drive and it is painful no matter what we do. 

  • Lily55
    Lily55 Member Posts: 3,534
    edited January 2014

    I had a hyster a few years ago, due to huge fibroids, I was very unhappy about losing my cervix but have to say I feel better for it, less pressure in the area and after I recovered fully, for me a couple of years as I had complications post surgery, I feel better.........

    For lubrication try YES YES Yes water based lubricants - google them, all natural and work well and no leakage afterwards

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited January 2014

    TectonicShift - I realize this is a Stage III thread, so I hope I'm not trespassing...

    In 1998, I was suffering greatly from HUGE fibroid tumors in my uterus. Every OB/GYN had wanted to do a hysterectomy, I always refused. But periods that lasted three weeks, the need for tampons AND pads, and ridiculous pain all made me change my mind. Plus, I'd started perimenopause already, and was already dealing well with the effects.

    I was fortunate to be able to have an LAVH - a Laparoscopically Assisted Vaginal Hysterectomy. The entire procedure was done vaginally with the aid of three scopes. I had three tiny incisions - one in my belly button, and two down lower, where the ovaries were. I knew I wanted them to take the ovaries, so I would never have to deal with ovarian cancer. (One of my best friends was dealing with that at the time.)

    I was in the hospital less than 24 hours. My recovery was so rapid, I found myself doing things I shouldn't... like running down the hall to answer the phone.

    Initially, I had some bladder irritation, because it got bumped a lot as the surgeon was moving things out of the way to snip the ligaments that hold the uterus in place. (It really isn't much of an invasive surgery when it's done vaginally.) But that resolved, and I never had any bladder issues after that.

    Even with everything removed, it didn't change my sexual activity at all. For a while, I did take hormone replacement therapy (looking back... NOT a good idea) but then stopped altogether because the menopause symptoms went away.

    Even without the hormones, I still functioned normally, and sex was still pleasurable. 

    It was only after my BC dx, and a year on Arimidex, that I found I was having issues. But my MO has helped me with solutions for that, too, and things are good again.

    So in answer to your question "Anyone have a total hx and not have any problems?" Yes. I did. 

    (In fact, it was the best decision I ever made. Of course, this was way before BC, but it was a huge relief for me to have it done, especially since I'd had a bout with early cervical cancer in situ.) 

  • DCMom
    DCMom Member Posts: 624
    edited January 2014

    had a complete hysterectomy, oomph rectory, and cervix out. No change in sex life and hot flashes had subsided until I switched to anastrazole after 5years on tamoxifen.   Do I sometimes wonder if I needed it?  Of course, but then I am reassured that I would be far more distraught if I was wondering what if after a recurrence.  

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited March 2014

    Ladies - thank you for this thread. Can you tell me what the recover time is for a complete laparoscopic hysterectomy/ oopherectomy? How long until you were able to drive? 

  • Momine
    Momine Member Posts: 7,859
    edited March 2014

    Farmerlucy, I was back to exercising etc after a week. The worst pain I had was from trapped air (very common and very annoying) and from constipation. Both resolved within the first week. The belly remained somewhat swollen for several weeks, which scared me silly (for aesthetic reasons). Also, I was more tired than normal for several weeks. I do not drive, so I can't address that.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited March 2014

    Thanks Momine!

  • lemon68
    lemon68 Member Posts: 684
    edited March 2014

    Hi

    I am not Stage III but hope its okay to respond.

    I was to have my ovaries removed laparoscopic in Sept. Once in they saw 2 large cysts and 1 had burst so they did give me a 7 inch incision on my bikini line and take everything including my cervix. The pain after was not from the incision it was from the laparoscopic tools that go though the muscle. I was in the hospital for 2 days. I was on pain meds for a few days upon coming home but was allowed to drive as soon as not on any pain meds. I don't think I drove for about 10 days. The first few days at home were painful.

    My SE are hot flashes that I am managing with Reminfemin which is the only thing my oncologist will allow. They seem to help. I also have some night sweats but not too often and when I do I have a "Chillow" that really helps. I didn't have sex for about 8 weeks and didn't want to, I think it was more fear. I felt like it might not work! I know that sounds crazy but I was worried. I tried KY once it did help. It has now been 6 months and sex is normal again HappyI am enjoying it and so is the hubby. Someone on the boards once told me the best erogenous zone is your mind, and that works! Other SEs I notice are my skin is drier, I have 2 nails peeling which I have never had, a bit more sensitive to soaps down there but nothing bad. I was 44 at time of surgery, highly estrogen + and no where near menopause. I had a uterine ablation in 2011 so I already didn't have periods so that was a joy I already experienced. I hope I have been helpful. Best to you.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited March 2014

     I sort of hijacked this thread  because I found it in a search.  Sorry . . .    

    Thanks lemon - good to know about the driving. I don't expect much impact from the loss of ovaries since I am 53. (If I have to have it done.) I have a complex cyst on the right side the doc is watching.

  • peacestrength
    peacestrength Member Posts: 690
    edited April 2015

    I had my ovaries removed and it took about 1 week to feel ok.  I was driving within a few days.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited March 2014

    Thank you peacestrength. That is good to know.


  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    I only took pain meds the first couple of days home from the hospital. I think I was driving & working (part-time) within a week.

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