5 weeks post chemo and still feeling bad
Hi, I am new to this forum, so please bear with me...Looking for some answers and I think I have found the right place to come for them...I just finished chemo 5 weeks ago...I was on 4 cycles of Adriamycin and cytoxan, then on Taxol, but could not tolerate it so my doctor put me on taxotere, 12 weeks in all....I figured at 5 weeks post chemo I should be feeling a tiny bit better, not expecting miracles, but the fact is, is that I feel worse....I have a lot of side effects, including nails turning black and ready to fall off, every bone in my body aches, my taste is gone so I don't eat much...I will force down a protein drink everyday and I do take vitamins..and my eyes have been watery for 2 months...finally going to my eye doctor this week...But the thing that annoys me the most is this feeling of always feeling dizzy, outside of myself, almost like I have a constant inner ear infection, which I don't...I have had this feeling for at least 4 months, and it hasn't gone away...I was hoping that one or several of you out there will have any advice for me, or do you know someone who is experiencing the same as me...I tell my doctors and they don't seem to know much about my feeling dizzy all the time...Also is there anything I can do to get my taste back, to help it along..I have tried just about everything...I know it will come back some day, but as you know it is very frustrating, especially when some foods smell so good...I really appreciate and thank anyone who took the time to read this...Hopefully you will have some answers for me...God Bless all of you out there...
Comments
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Hi Gubbyann, sorry you are not feeling well. I remember that five weeks out, I was still feeling pretty rough. I had a lot of the same side effects - black nails (my onc thought I would lose a bunch of them, but they stayed on and grew out over time), my taste buds were still messed up, had bone aches... not fun.That's the result of the cumulative side effects of multiple doses of chemo. Fortunately, I think you will start to see improvement soon. The bone achiness hung around for a LONG TIME... I finished chemo a year and a half ago and I think the bone achiness turned into more like stiffness over time, and only really went away in the last few months!
The best advice I can give (for what my opinion is worth) is to make sure your oncologist and maybe a dietician have looked at your labs, and counseled you on what you can do to help yourself feel better, and see if there is anything going on that could be contributing to the dizziness (you may even want to see your primary care physician about this, just for a second opinion and a fresh set of eyes on the problem). If you need protein then the protein drinks are great! For me, I tended to run low on potassium so I needed to take a potassium supplement. Absolutely make sure you are staying hydrated. Towards the end of chemo I absolutely could not stand the taste of water; fortunately tangy drinks were more agreeable so I stayed relatively hydrated with them. Keep moving... try to keep active, that is good for your health and will help your system do what it needs to do to clean itself out, so to speak. The watery eyes are a common side effect too.
There is light at the end of the tunnel... just based on my experience and what I have read here, I think you will start to see improvement over the next few weeks. Just do your best to take care of yourself right now. Oh and how are you sleeping? Chemo kind of goofed with my sleep cycle and it's hard to feel well if you are tired. So if you are not sleeping well, you might need to think about what will help with that as well.
Best of luck to you!
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Hi Gubbyanne,
Sorry that you are going through this. Many chemo therapies are cumulative, and the effects are at their peak a few weeks after the treatment & then begin to fade afterward. That dizzy feeling is the worst. Your nails will take awhile (about 6 to 8 months) - remember that what you see is growing out from deep in the bed of the nails - so it is what was affected many weeks ago.
Stay hydrated - drinks with electrolytes are good. Try to eat small meals - fruits and veggies but also protein - peanut butter is a great way to get some protein in. If food is smelling good, then your taste should return fairly soon thereafter. Have your onc go over your blood work with you - your red and white blood cell counts should be coming up & when they get back to normal the dizziness should begin to go away. In the meantime, when you change position (i.e. go from laying down to sitting up, do it very slowly). Try to walk a little bit each day & if you need to, use a walker.
Your body has been put through hell - it is going to take awhile for it to return to it's normal self. -
Thank you so much Christina for getting back to me. It means a lot that you did...Sorry you had to go through this, and hope you are now doing well...You do sound wonderful...To answer your question about sleeping, fortunatly I sleep well, so no problem there...I forgot to mention that when I first complained about the dizziness the doctor sent me for an MRI of the head, and that came back good...You are right to say to get another pair of eyes sort to speak...I will go to my primary and see what she has to say...Besides, I have not seen her in a very long time and she may have some advice as to what to do...Thanks again and God Bless
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Thanks Ziggypop for getting back to me with all your advice...I will surely use it...I did go to the doctor the other day and my blood was drawn...Almost back to normal...I know it will take time, but needed the reinsurance...Thanks again, sorry you had to go through all of this too...And hope you are doing well...God Bless you
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God Bless you too, Gubbyanne and many ((hugs)).
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just continue to keep your faith in God and all of your doctors!!!!!!
Rememer to trust them with your feelings, and report any and/or all sideeffects you may be experiencing, always!!!!
You willl get through these most horrible and difficult times in due time.
God Bless: Hilarious
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Thank you for the advice, and bless you too...Happy New Year
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Gubbyann, I'm so sorry you are going through all of these difficulties. I am 6 weeks post chemo and have intense leg pain and I have not started Tomaxifen yet. I too am wondering how long it will last.
I was put on Elavil for anxiety and depression. Its taken at night. The side effects of dry mouth, involuntary muscle movement, etc. did not help me sleep. I switched to Trazodone and the pain is worse. I'm going to beg my doctor to put me on Effexor and hope that it helps.
I see my oncologist in 2 weeks and hope he has some answers about my pain.
Btw, my father had chemo for lung cancer and his dizziness was attributed to a vestibular imbalance caused by chemo.
Also, I kept getting recurring cellulitis during chemo and was only able to complete 3 of 4 ACs and 3 of 4 Taxols. I fear I didn't do enough chemo to kill all the cancer but am now living with side effects of what I did do. A double edged sword.
I hope you get some relief.
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Hi Jnprsn, I am so sorry to hear of all your troubles...I also have leg pain, but also throughout my body...It's annoying but tolerable, I'm lucky because Advil controls it...To be on the safe side I will be having a bone scan on Tuesday after my radiation...I wish I had answers for you and your pain but unfortunately I don't...The only advice I can give you is that I use biotien mouth wash for my dry mouth...It helps me, and I still use it...The toothpaste is good also...Try them if you already haven't...I want to thank you for taking the time for responding to my post...I will mention this vestibular imbalance to my doctor next time I see her...Even though I got the full regimen of my chemo, I didn't tolerate it so well...It seemed like every side effect you could get, I did, and then some...In spite of it all I am starting to feel better...Now if only I could get my taste back and make my eyes stop running I would be soooo happy...Gets frustrating when it's been this way for months...I guess I don't need to tell you this...We all have to hang in there, and hope relief will come soon...What choice do we all have??? Please let me know how you are doing....You take care, and God Bless you...
PS...My name is Stephanie,,Are you from New Jersey??
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Hi Stephanie. Yes. I'm in Monmouth County. You? Being forced into menopause at 45, the frequent hot flashes are enough to deal with without the added pain.
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Hi
I am 5 months post chemo and although I still don't feel 100% , every month gets better! Not sure how old you are but for me being forced into menopause at 42, still having kids that I need to be 'normal' for and working full time at a job that requires me to drive all day has not helped. I plan to do more for myself this year. More massages, more yoga to relax and to take more time to rest. I hope you can do the same as it will get better.
Hugs.
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Hi Jnprsn...Not from Jersey, but used to be from Brooklyn...I live in Florida now...Moved here in 1992, moved back to NY in 2002, then back here in 2010. I'm 62...I give all of you young girls credit...I wonder all the time and can't for the life of me know how you do it all...Get chemo, get rad, go to work, raise your children etc...I'm retired and have been for a while...All my children are grown...Although I did raise my grandson who is now off on his own...I really have no responsabilities...I consider myself lucky...Sorry about the hot flashes...I remember them well...You take care and let me know from time to time how you are doing...God Bless
Shoppygirl...Thanks for responding to my post...No hot flashes are no fun at all...Go ahead a get all the massages you want...You deserve them...We should all spoil ourselves once in a while...And we all need time for ourselves...I do feel better...I started radiation and hope it doesn't tire me out to much...I would like to get back to my exercising and walking like I used to...Keep in touch, take care and God Bless
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I'm 4 weeks post chemo and wondering when I'll feel better myself. After suffering with blurry vision for months I was diagnosed with an eye infection. You can have more than one reason for symptoms. I also had vertigo that was cured by a maneuver that we all thought was caused by a virus. Now I'm concerned about the edema in my feet, legs and hands. I had a little during chemo but now it's painful to walk. Lasix is not helping at all. I guess I'll just have to wait it out but gaining 15 pounds in a week puts a hurt on the body. I just wish chemo SEs had an expiration date. I've lost half of my nails and the others will follow soon. Getting ready for my SMX on Wed. and wonder if I'm ready for it. We have a new massage therapist in town and hope to visit her soon. She's almost done with her training for lymphatic massage. Sounds good to me. My taste buds have started coming back but still no appetite. My husband thinks I'm anorexic. Just can't eat more than a little bit.
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