Fall 2013 Rads

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Comments

  • sloyd66
    sloyd66 Member Posts: 202
    edited January 2014

    No Sandymomto3 it's not,

  • Sandymomto3
    Sandymomto3 Member Posts: 37
    edited January 2014

    no swelling is a good thing.  I have had some swelling, very minor.  My PT encourages me to stretch my arm above my head several times a day using a door frame for support. Not sure when your surgery was, you want to be well healed before stretching too much.  

  • joannaraku
    joannaraku Member Posts: 30
    edited January 2014

    sloyd66, I have that pain, they say it is nerve pain.

  • angelanature
    angelanature Member Posts: 179
    edited January 2014

    Hi All,thanks for all the wonderful advice,I insisted on Silvadene cream for under my breasts,not only is it oozing,soaking the bed ,but now smells awful.Hopefully now they have switched me to the boosts I'll get better, my upper chest and neck are already looking and feeling better,but the boosts to my scar are hiiting underboob and lower breast.. slyod66 I had a hematoma at my sentinel node excision and developed axillary web syndrome,I agree with Sandymom,that might be what you are getting.You'll need PT.Don't worry though it has nothing to do with lymphedema(that's what scared me about it).Hugs All,you're awsome!!Angela

  • sloyd66
    sloyd66 Member Posts: 202
    edited January 2014

    Sandymomto3 my surgery was 11/11/13 , I've been stretching it out.. I think so joannaraka that it is a nerve..

  • hobbesla4
    hobbesla4 Member Posts: 72
    edited January 2014

    Finished all of my rads treatment today.  I wanted to write and wish everyone well.  Thank you all for your encouragement and support.

  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited January 2014

    Hooray hobbesla4!!  Time for happy dancing!

  • sloyd66
    sloyd66 Member Posts: 202
    edited January 2014

    I couldn't make it to my treatment today, due to weather smh.. I got up to attempt it but no luck. I so want to not push this further into another month. =/ Lucky to you all who have finished...But my question is how many of you ladies had a problem changing your diet, or are you still eating the same just being modest about it? I'm having a hard time with the healthy eating thing. I don't eat entirely bad, but I know I can change some things.

  • MsPharoah
    MsPharoah Member Posts: 1,034
    edited January 2014

    Hobbesla4....you radiant lady, you!!!   Now the healing can begin and maintain.  It gets better every day, hon.

    sloyd66...I lost so much weight on chemo because nothing tasted good that as soon as I got my taste buds back I went CRAZY.  I have gained the weight back and am trying to maintain or lose a little now.  It is really hard to give up all the goodies.  I think we have to keep trying even when we are bad.  (But I refuse to eat kale, or quinoa or buy a juicer and call that dinner or a snack.) 

    Love, MsP

  • sloyd66
    sloyd66 Member Posts: 202
    edited January 2014

    Right MsPharoah!  I said I don't want to feel like I'm starving myself. I know I have to do better, but I'm like you hear diet is a big thing, but is that really a guaranteed? Which the answer is no, just like everything in life there's no guarantees. We putting this poison of chemo, and rads in our body yet you telling us not to eat a lot of certain foods.

  • MsPharoah
    MsPharoah Member Posts: 1,034
    edited January 2014

    Sloyd66, I don't think we should deprive ourselves of treats or favorite foods.  When I lost my taste buds during chemo and everything tasted so crappy, I realized how much of a joy there is in eating.  Losing my taste buds was one of the worst chemo side effects, in my opinion.  So I am going to try to eat less, but still enjoy my favorites.  

    MsP

  • wyo
    wyo Member Posts: 541
    edited January 2014

    congrats hobbesla4- crossed the finish line glowing LOL. 

    The appetite thing is really a challenge some days I am not hungry at all and others twice as hungry to make up for it.  I am working on 2 things- more healthy meaning more home-cooked food, better choices when eating at work events (hard to do) and adding whole grains, fiber and not eating genetically modified things when I can. I have cut way back on sugar but my sweet tooth will be my ongoing challenge. Kale tastes bitter and I really hate brussel sprouts- i don't care how you cook them its lipstick on a pig to me

  • TeamKim
    TeamKim Member Posts: 568
    edited January 2014

    Some thoughts on kale... I don't like it either, but it works well in soups or a little bit added to spaghetti sauce.  What I do like is Swiss chard and rainbow chard -- I roast the chopped stalks along with onions and cubed potatoes (shake em in a bag with fresh rosemary and olive oil, then spread on a foil-lined cookie sheet, roast at 375*).  About 5 minutes before serving, I sprinkle with a little Parmesan and add the chard leaves, shredded and shaken in the olive oil bag, then return it to the oven.  The shreds crisp up, and it is yummy.  Baby carrots can be added too.  At my job they have a subscription service to an organic farm where they deliver a box of seasonal produce once every 2 weeks -- it sometimes contains things that I have to look up on the internet to identify, lol!  But I have learned to make a few different things out of necessity as I try to use the stuff.

    I agree about brussel sprouts -- lipstick on a pig, haha!  I hate cauliflower too, and I will never be a juicer -- green juice is just not me.  But I do like fruit smoothies, and they are plenty sweet without sugar added.  My downfall is my morning mocha at SBs (usually with a morning bun) -- I will have to make some tea at home and fill my mug.... Better for my budget anyway.

  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited January 2014

    Oooh...that recipe sounds good! I'll be trying that soon. 

    I usually make kale smoothies. Add a leaf or two to a fruit smoothie with crushed ice and blend to oblivion. 

    I read that Japanese green sensa tea is supposed to be very good for you, so hoping to pick some up soon.

  • TanyaF
    TanyaF Member Posts: 54
    edited January 2014

    I feel as if I am in the home stretch. Three more regular treatments and then five boosts. Skin is holding up. I think having the days off for Christmas and New Years helped a little. I keep waiting for the fatigue to hit, but it hasn't! I do Zumba or power walk almost every day so maybe that helps. I am going back to work a week after treatment is over so I don't want it to hit then!

    I have been a juicer for over 2 years and have found that you can mask the kale/spinach/healthy stuff with a good balance of other veggies and fruits. I am just not into cooked veggies so this has been the main way for me to get the nutrients from them. Juices and salads along with my go-to cooked veggies-broccoli and asparagus. 

    Hope us remaining Fall rads gals make it out OK!!

  • Bounce
    Bounce Member Posts: 574
    edited January 2014

    Hi TanyaF

    Congrats on holding up well during rads.

    What type of veggies do you juice?

    I do (not often but occasionally) Beetroot, Celery leaves, Coriander, Parsley, Cucumber, Carrot, Ginger and Pears for some sweetness.

  • kmurphy
    kmurphy Member Posts: 55
    edited January 2014

    Well, I finished rads on the 30th and then had a hysterectomy the same day.  2014 is going to be all about the healing!!  I was pretty lucky throughout this process.  That doesn't mean it was easy but, I know for some of you it has been a bigger struggle to get through it.  I real feel for some of you that are having skin issues.  Hang in there girls!!!  Here's to 2014 being a year of healing and trying to be a little more health conscious. 

  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited January 2014

    Amen to that!

    And congratulations on being finished. Gentle healing from surgery.

  • joannaraku
    joannaraku Member Posts: 30
    edited January 2014

    well I should find out this week if the hospital near me is going to pay what medicare does not. Hoping they do because it really is the only choice I have.

  • TanyaF
    TanyaF Member Posts: 54
    edited January 2014

    Bounce-when I had my juicer I used a lot of beets, celery, carrots, ginger, apple, and cucumbers. We have a vitamix now and I make more "smoothie" type drinks now. One type of green like spinach or kale, then I put in some fruits (banana, strawberries, blueberries, apple or a cucumber) and then either almond milk or yogurt. Lastly topping it off with ice. I would like to try the veggies as well, but haven't yet.

    I am starting to feel the burn in my armpit area. OH well--only 8 more treatments to go.

  • Bounce
    Bounce Member Posts: 574
    edited January 2014

    I don't actually have a juicer!  Occassionally I buy a fresh made juice as a real treat - and I bring along my own parsley and coriander for them to add.  In general I think eating the veggies must be healthier than just drinking the juice but I think sometimes juicing can be a real help to a sick or recovering body.

    Just before finishing rads at night my arm pit felt as though the skin was splitting apart!  But it looked fine.

    The day after rads it started to form a scab so I guess the skin did actually split.  It lasted for about 4 days and then healed over the next week but it has left a bit of a scar behind so ask your RO if there is anything you should be doing.

    On my last day I asked my RO if he had any advice for me (I meant about my skin, my fatigue, my pain etc.) and he said:  "Stay away from doctors."

    I still day dream about blowing his car up.

  • Rainyday2013
    Rainyday2013 Member Posts: 20
    edited January 2014
    Bounce- you are so funny! But seriously, if the doctor's answer was supposed to have been funny, it was a Big FAIL! Who does that, and to a cancer patient?! I guess ROs aren't known for their people skills. Some sensitvity training certainly would be in order. I think when something like this happens, we are so taken back that words fail us. Don't you wish you would have ripped him a new one??
  • Bounce
    Bounce Member Posts: 574
    edited January 2014

    Rainday2013 - It is so heartwarming that you understand.  I was really thrown by the RO's comment.  I realized he was probably just being friendly or something but I was thrown into utter confusion by his remark.

    I realized I was maybe being over sensitive but really - I had just finished 25 rads.  That's five weeks of sore booby, tiredness and total life disruption!  And I had it easy compared to what some people go through.

    I do wish I had said something then.  I wish even more that when my MO told me there was no reason to wait another week to recover from my rads fatigue to start Tamoxifen and that I could manage the side effects from both quite well - I wish then that instead of feeling like a weakling and just wanting to cry - I wish then that I had opened my mouth and told her that she is supposed to be helping and healing me - not the opposite!

    Its nice to hear from you again.  There are a lot of ladies who I have been thinking about and hoping are doing well now that they have finished (or almost finished hopefully).  So come on all you lurkers - check in and say a quick hello.

    I hope the weather is being kind to everyone too!

  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited January 2014

    It's freezing here! Below freezing!  I'm so cold my boob fell off! Ok, poor humor. But I am seriously having nerve pain from this cold weather. 

    I stopped taking gabopentin after chemo, but might need to start it again. I am also still sleeping a ridiculous amount of time. One month out tomorrow, and I'm still ms. Rip vanwinckle.

  • 70charger
    70charger Member Posts: 963
    edited January 2014

    lurker here checking in.  After all my xmas company left I had 2 whole days of peace & quiet.  One of my twins called & wanted to take off for a last minute vaca, so I've been dog sitting.  Busy busy, we don't have a fenced yard on our acreage & live right on main highway, so walk the dog, walk the dog, poops a person out! She is coming back tonight, just checked, her flight is now coming in at 1:30 am, 3 hours late.  Horrible what this cold weather is doing to the flights. Poor hubby has to pick her up & work tomorrow. He's not going to be happy.

    I finished active treatment on Jan 3rd.  My girl is doing well, heat is subsiding today but still red.  Itchyness is gone today as well. I did catch a cold on the weekend, so very tired, lazy, but have to walk the dog lol. The coyotes were here Sunday night, so the dog kept barking at 2 am.  Fun. For all of the above reasons I have been lurking & not posting.

  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited January 2014

    Poor 70charger, try to get some rest! Hope your daughter brings you a nice souvenir for watching her dog!

  • sloyd66
    sloyd66 Member Posts: 202
    edited January 2014

    Have anyone had radiation, then had a mastectomy with reconstruction? I heard that radiation can mess up the breast for future reconstruction. My braca test is back, I don't know the results, they said they never tell results over the phone. I'm afraid if it's positive  I will be faced with doing the mastectomy and ovary removal. Right when I felt fine, Im not feeling so good now.

  • LisaSp
    LisaSp Member Posts: 253
    edited January 2014

    sloyd: I have not had reconstruction and had a lumpectomy but I have visited a plastic surgeon if that's any help. He told me that any reconstructive work should not be done until a year after rads to give the breast proper time to heal. My RO agreed with this.

    Bounce: Good to see you. I'm feeling less tired which is great and now I'm almost a month post-rads. I've started tamoxifen and don't seem to notice any side effects yet, outside of hot flashes but that happened before I started tam.

    My hair is about 3/4 inch and seems to be filling in gradually. It's weird to have this Jamie Lee Curtis hair but so preferable to bald. My husband, daughter and close friends love touching my hair, it's funny! 

    My skin had a dark patch where I had the boosts but that has all peeled. No more soreness or pain -- yay!

    Hope everyone is well and will check in as they can.

  • sloyd66
    sloyd66 Member Posts: 202
    edited January 2014

    thanks lisa... I just thought you could never but good there is hope.

  • lindacam
    lindacam Member Posts: 161
    edited January 2014

    I finished rads Dec 30th and am having DMX in 4 weeks with Alloderm and implants.  My RO is board.

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