I did not make 5 years/seems to be local reoccurrence
We'll it came back. First time stage 1 /0 nodes estrogen + proges + her2 neg. Less than 1 cm. Radiation lumpectomy clean margins. Ha ! 1 year ago biopsy for two cyst neg.
Oct found new lump in denial thought it to be another cyst but went to primary to confirm.
New lump less than 1 cm estrogen + progesterone less than 5%.
Waiting for rest of pathology report. This time breast needs to be taken off . I'm afraid to get the Lat flap. My options are limited, need a clear time of how long before I can work. Lat flap vs. Mastectomy no recon.
Comments
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I am sorry for your recurrence. I don't have any information to share but wanted you to know I was thinking of you. Someone with similar issues will come along soon and give their input.
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funthing, I'm so sorry to hear about the recurrence.
On the bright side, you won't have to have radiation again. You might check the site breastfree.org for information about living with no reconstruction. There are threads here for it too. Others can help with the recon question.
Mastectomy is one night in the hospital, one week out of work (they don't like you to work with drains in -- you can always disobey). I was on my laptop within three days.
I personally am "lopsided" as my husband says. I have worn a breast prosthesis [on the right side] for five years now.
Good luck with your decision! You do know that you don't have to make it now. You can always go back for reconstruction later.
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funthing - very sorry that you have a recurrence - I'm glad that it is local. Why is the only choice a lat flap? Is there some reason you can't go with an implant (or implants)?
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I was told tram flap a risk for hernia. I had Radiation for the first CA in 2009.
If you know of options I'm all ears. I'm in my 40's leaning towards b/l no reconstruction.
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I don't know the options - just wondering. Personally, I'm going in for an exchange soon (tissue expander to implant) and am at this point over it enough that might retrospectively change my mind & go flat if I had the option. I can't imagine having a recurrence - I'd be throwing things at the walls I am sure. I am, however, glad for you that it's local - although I'd guess that right now that is of little comfort.
Does the rads the first go round prevent implants now ?
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When you can go back to work depends on what kind of work you do. I stayed off 3-4weeks after my bilateral MX. I could have gone back sooner. My BS filled out my paperwork keeping me of that long prior to my surgery. I'm a RN & work 12hr shifts. Some women who work for themselves have to go back sooner, even with drains in(or so my BS tells me).
I did not have recon. That would have delayed my going back to work(?). I've read that PSs are very particular...........No regrets not reconstructing & going flat. Hope your treatment plan comes together soon.
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Hi
I have made a decision not to recon for now. I need to get back to work ASAP.
I'm afraid out of mind. My 1st DX seemed so simple lumpectomy, radiation, arimadex and lupron. Now reoccurrence.
It seems similar. I had no nodes evolved the 1st time. How can they be sure no micro mets has occurred with this biopsy.
Does anyone know of test besides a bone marrow tap to test for mets.
Sorry freaking out! Mind is racing.
Thanks
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Sorry about the walls I think they can take it.
My radiation was 4 years ago. Pectoralis muscle is not pliable. Too stiff . Lat flap to barbaric for me, since my back muscles seem weak . Just predisposed to back pain.
I figure I will diet get back to a manageable weight and give myself breasts later for a gift. It's the best I can do for now.
Still worried about chemo and the rest of the report.
Hang in there.
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Hello everyone
I am so pleased to find this site. I have been going out of my mind after four years clear now multiple bone mets. How do you stay positive? I did feel like it was a fairly quick death sentence, but so encouraged after reading positive stories on here about people who are living with this. I am angry and sad and just keep thinking about my daughters and praying they don't have this gene. Love to anyone who is in a similar position. C
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Help
I was reading to many medical journals and stats. Now totally panicking. So I read that if you where Her 2- and then become Her 2 +
It means you have mets. It doesn't matter I will have chemo either way but it would be nice to know if there is any truth behind this. I was so sure recurring BC was local because it was along scar tissue but if it is Her 2 + now. What the heck
.
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Sorry you have to visit cancer again. I had stage 1 ILC in 2006 and a local recurrence in 2010. I had dose dense chemo for 6 months followed by a double mx with latissimus dorsi muscle procedure and implants on both sides. I was off work 3 weeks after surgery and would have returned sooner if my surgeon would have released me. I just had my check up yesterday and everything is looking good. Try to stay positive.....this too shall pass.
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Thanks for positive feedback
Sometimes it's all we need to push forward.
I'm glad all went well for you.
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Ugh to the negative biopsies and recurrence. The same thing happened to me. I think my doc simply missed the lump on the "negative" biopsy a full year prior to diagnosis of a recurrence. I can't help but think that it would not have spread to the lymph nodes if the core needle biopsy had been correctly aimed. In any event, I made it through another year of chemo and multiple surgeries. While a recurrence absolutely sucks and is so disruptive to your life and family, it certainly does not mean you are headed for mets. Hugs to you. Sending strength your way.
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And ... I had a nipple-sparing mastectomy with silicone implant reconstruction (which now needs to be redone because of radiation). Maybe this type of surgery is an option for you. I've been very pleased with the cosmetic results.
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good morning ladies! I hope you all are doing great! I was JUST, as in yesterday with a recurrence. Another lump. If I had a dbl mast the first time what will they do this time? I am pregnant so I won't get radiation until after delivery. I didn't do it the first time. Will I be lopsided or will they put a tissue expander in? Thank you so much! May God bless you all:)
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Hi everyone
B/l mastectomy 1/14
Awesome recovery. No recon.
Off to chemo land next week.
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funthing - So glad that the recovery went well - you certainly deserve to have the easiest go of things as possible.
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Yahoo! so glad to "see" you back!
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Hi
Just wanted to sign in. My breast Ca came back only 2 months after chemo. Im still doing Herceptin. Still Im told its a local recurrence. Im totally freaked. Still again worried to death. Yuck! No breast !!! No hair !!!!!!
Sorry what a rant,,,,!,,,,,,,!
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Funthing…This is just so unbelievable! Not that I am doubting you but WTH? I am so very sorry to hear this…when the beast came back to my other breast, I said good riddance to them. They were not my friends. I do hope your MO has a treatment plan that will knock the beast completely down.
((HUGS))
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I know me too. I really can not figure out how it keeps chaning receptors. This time its only estrogen + progesterone - Her 2 -
I guess this is good. I am totally in disbelief .
Thanks for commenting sometimes you feel like your talking to yourself
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