Beating myself up

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Anonymous
Anonymous Member Posts: 1,376
edited June 2014 in Just Diagnosed

I was recently diagnosed at the age of 28. I haven't had my BRCA test yet, but I don't have much relevant family history--only a grandmother who had it in her 60s and an uncle who was just diagnosed with prostate cancer in his 50s. I keep blaming myself. Being that so few women in their 20s get breast cancer, I feel like I must have done something wrong. I was getting over it but I found out yesterday that my cancer is ER/PR+ which makes me wonder what I did to mess up my estrogen levels. I lived a fairly healthy life. Never smoked, light-moderate drinker, liked my veggies, former athlete who walks everywhere. But there are still things I keep thinking I did wrong.

*For the past six years, I've been on a pretty dramatic gain-lose cycle with my weight. I wonder if that make my estrogen levels go haywire. Plus there's all these studies that say that you have basically sealed your fate by gaining weight as an adult--even if you lose it.

*I went on and off BCPs for about two years recently. I also took those that I brought OTC in a developing country. They probably weren't safe.

*About a year before I found the lump, I wasn't living a very healthy life. I was job-searching while living with my parents. They drink wine every night and have enormous steaks every weekend so I was participating too. I also wasn't exercising during that time and it did lead to one of my "gain" cycles.

*I have a major sweet tooth and have ate some sort of chocolate practically every night for as long as I can remember. I knew I was eating too much sugar but I figured that I would clean up my act after turning 30/having kids. 

*I ate a crap diet while I was a teen and young adult. I didn't eat ANY vegetables until I was nearly 22. Since cancers can start 8-10 years prior to symptoms, I wonder if I ruined my health by being a dumb teenager.

*I didn't pay ANY attention to environmental toxins. I reheated food in plastic and didn't read ingredient labels on shampoos, lotions, etc. I didn't buy organic. I just tried to buy the cheapest things possible.

I have made some changes already--more veggies, less sugar, turning down wine and red meat at dinner. Plan to exercise when my incision from the port placement heals. But I feel like I ruined my life.

Comments

  • ladyboss1997
    ladyboss1997 Member Posts: 202
    edited January 2014

    Wow!  You've got to stop that. It is what it is. Time to fight like a girl! 

    I did not think I had risk in my family. I got my BC at 48, had the BRCA test, and was POSITIVE. It came down from my dad's side, and I had to go pretty far back in his geneology to find breast cancer - but I found it.

    I also had the ups and downs like you. But now it is time to move on and fight this beast. These boards are a lifesaver. Stick with them.

    Diana 

  • pupmom
    pupmom Member Posts: 5,068
    edited January 2014

    Diane is correct. Aside from genetics, there's just no way to predict who will get bc. So many women here were vegetarians, never drank or smoked and BAM. I was in my 60's when diagnosed, which is more common than your situation, but there are lots of women in their 20's and 30's here. I had been (still am) a vegetarian/pescatarian for years, never smoked, drank socially. I did have some family history however was not BRCA positive. Crap shoot. All we can do is pick ourselves up, dust off and soldier on. You have not given us your stats, but hopefully you are early stage. There's lots of life after bc, ask me anything! Best wishes!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    Please refer to Young Survival Coalition website:

    http://www.youngsurvival.org/

    There are threads, comments on other breast cancer websites, but the Young Survival Coalition is the BEST place for you to get information. So sorry you are dealing with this, but YOU ARE NOT ALONE.  Sadly, you will learn from YSC there are MANY MANY women your age who have breast cancer.

    All good wishes.

  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited January 2014

    First of all, your estrogen levels are probably not messed up; they are probably entirely normal and healthy for you.  The issue is that your type of breast cancer has found a way to feed off the estrogen available in your body.  It happens to both pre-menopausal as well as post menopausal women.  My mother was 25 years post-menopause (due to a complete hysterectomy/oophrectomy for a pelvic abscess) when she developed a strongly hormone-positive breast cancer.  She, likely, had normal levels of estrogen in her body due to her age and menopausal status, but the cancer found a way to use what was there.

    The changes you've made to your lifestyle will help your health overall, but I'm not sure that they have been the major risk factors in your developing breast cancer.  Many, many women in your position living a similar lifestyle never develop breast cancer.  That's not to say that you should NOT look after your health; it just means that many, healthy and active women also develop breast cancer through no fault of their own.  Cancer just happens sometimes.

    I would urge you to have the BRCA test, given your young age.  It may be that you don't have a genetic predisposition for breast cancer (roughly 10% of breast cancers are due to BRCA), but it may be that you do and that knowledge will be an important factor of your treatment plan and how you move forward with your health management.

    BREAST CANCER IS NOT YOUR FAULT.  Please don't blame yourself.  It was out of your hands.  But, certainly, pay very good attention to your health moving forward; being healthy overall will aid in your treatment and recovery.

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2014

    Bad,

    Your fellow members are right -- there is no sense in beating yourself up -- you'll probably never know the cause of your diagnosis, and the best thing you can focus on now is getting treatment and healing!

    As Sunflowers pointed out, YSC is a great resource -- however, our Breastcancer.org discussion boards also have a very helpful forum full of women like you, diagnosed at a young age. We're sure you'll find some supportive members there, too, chock full of information! You can access that forum here: Young with Breast Cancer.

    We hope this helps and please keep us posted with how you're doing!

    --The Mods

  • ruthbru
    ruthbru Member Posts: 57,235
    edited January 2014

    Almost everyone in their 20s eats too much junk food, drinks a little too much, takes BCP, nukes their food in plastic containers, and buys whatever is cheapest. That is just part of being young; if it caused BC, then 90% of ladies in their 20s would have it. Get the BCRA test, check out the young survivors link that Sunflower posted, do the recommended treatments, try to live a healthier lifestyle (but don't obsess over it, you still need to have fun).

    The other thing about beating yourself up; it is a waste of time and energy.....it doesn't change anything. You are where you are, and you can only adjust the future, not the past. Best of luck!

  • 208sandy
    208sandy Member Posts: 2,610
    edited January 2014

    IT IS NOT YOUR FAULT!!!!!  Sending hugs, S.

  • BikerLee
    BikerLee Member Posts: 355
    edited January 2014

    Hey BAU - love the handle, by the way… pretty darn funny!

    So, I'm a long time vegetarian hippy kind of an athlete… and I got cancer. I eat right, I exercise a ton, I drink a little too much beer (few a week)…  But I got cancer. Why?  People around me eat terribly, drink a ton, never exercise, and they don't get cancer. Why? Wouldn't it be nice if we could say this thing or that thing caused the cancer… Then we could tell everyone exactly what causes cancer and prevent a whole heck of a lot of disease.

    Bottom line is that some of the things we are exposed to, whether through our control or not, may contribute to developing cancer…  or may NOT…  We honestly don't know enough.  

    I used to heat my tea water in a carbonate plastic container - bpa city!  I grew up eating highly processed foods… There are things our grandmothers may have been exposed to that are known endocrine disruptors… and evidence shows effects in our grandmothers' granddaughters. How crazy is that????

    What's my point?  There's no way to know WHY you got cancer. Even people who have tested positive for various cancer genes may never go on to develop cancer... while others do…  

    So, put that energy into facing FORWARD. You say you were an athlete? Why "WERE"? What did you love to do? Being active during chemo (which I assume is part of your treatment plan since you now have a port) is critical to reducing side effects and suffering.  I heard that time and time again. As a bike racer, my obvious exercise of choice is riding bikes. So, I did that every single day during chemotherapy….  Except for a couple of days of business travel (no access to a bike).  Some days were short and slow… but most days were just fine.  Was I racing? No… but I was active and moving and it really did make things better. I also worked and stayed socially active (except for a total of about two weeks, during which my counts were super low and the health care providers told me to avoid unnecessary exposures to people).

    As for the weight-gain-loss cycling…  This is a common struggle for former athletes… You are not alone in this. So… get active and stay active! Learn something new!  I learned how to skate ski and ice skate so that I have fun winter sports even though I still commute everywhere by bike… Turn your transportation into active transportation…  Do whatever it takes to return to that love of sport / action / movement.  And don't wait - do it now…  

    As for the port incision - I was exercising the next day. I kept the effort aerobic… but I was riding the next day. Ask your health care team about how long you need to wait before safely exercising…. It might be sooner than you think.

    I'm so sorry you're dealing with this in your 20s.  It sucks - no two ways about it.

    Hugs.

    Lee

  • encyclias
    encyclias Member Posts: 302
    edited January 2014

    It is my understanding that in the ER/PR+, the R stands for 'Receptors.'  It is not a measurement of the estrogen or progesterone in your body but rather whether or not your cancer cells have the ability to use these two hormones to promote their cell growth.  The majority of women with breast cancer are ER/PR+.  I am ER/PR-, which means my cancer cells don't have Receptors to use either of them; it has nothing to do with my body's estrogen or progesterone levels.

    There is a big learning curve with breast cancer, and the more you learn, the less you will blame yourself.  You are NOT responsible for your cancer!

    Carol


  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited January 2014

    Yeah, don't blame yourself.  It seems to pretty much be a crap shoot who gets bc and who doesn't.  You have nothing to gain from blaming yourself.  My advice would be try to move past the blame game as quickly as possible.  There are so many people who live unhealthy, stressful lives who abuse their bodies in many ways, men and women alike, who don't get cancer, don't get breast cancer.  Others do all the 'right things' and still get the dreaded diagnosis.  Look, if it were a friend or family member, would you be chastising them saying, oh, you shouldn't have eaten so much cake and drank so much wine?  No, you'd be compassionate and caring. My other advice is:  be good to yourself.  Be very good to yourself, kind and loving as you would be to someone else whom you love.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    image

    Expect you're blaming yourself too because of your age.  PLEASE PLEASE PLEASE go to the Young Survival Coalition.  You are NOT alone.  Most major cancer centers now have specialty oncologists dealing with women your age - that's sadly how often YOUNG WOMEN like yourself are being diagnosed with cancer.

    http://www.youngsurvival.org/

  • JennaJMU
    JennaJMU Member Posts: 97
    edited January 2014

    girlfriend I could have written this post myself. I was diagnosed at age 33 (I'm 34 now). And I really do know health nuts that have been diagnosed and people much less healthy than me who are perfectly cancer free. It's a complete mind f*#%. The only thing you can do is kick that cancers ass and then move forward doing everything as "right" as you can! 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    Thanks ladies.

    I'm certainly not going to skip the BRCA test. I'm not ruling out that I do have the gene--my father's family and mother's father's family are both so heavily male that it's possible that there's something going on genetically that simply hasn't had a chance to play out. And with the link between breast and prostate/pancreatic cancer, my male relatives need to know if it's a factor so they can monitor their risk.

    BikerLee, by "former" I mean that I haven't done competitive sports since I was 21. I'm an on-and-off runner and swimmer, I walk everywhere and I played quite a bit of basketball with my teenage nephew earlier in the week, but I don't do marathons or triatholons or anything like that. The port wound hurts a bit and I'm worried about tearing the stitches but I do have a several mile walk planned for today and tomorrow.

    As far as my stats, I don't have staging yet. My tumor is large but the docs seem confident that it has remained localized. I had scans done yesterday and just found out that my cancer is Triple Positive. At this point, they are recommending chemo-lupectomy-radiation-hormone treatment, although that could change as we find out more.

  • Srh242
    Srh242 Member Posts: 328
    edited January 2014

    don't blame yourself please! . What is the link between prostate and breast?

  • Fallleaves
    Fallleaves Member Posts: 806
    edited January 2014

    Hi Bad, well I hope after all these comments you've put that "blaming yourself" thing to rest!  I can only imagine the shock at getting cancer so young. I'm not not so young and it was a shock to me, too. Of course it leads to the obvious question of "why?" Personally I think it's the 80,000 chemicals humans have introduced to our environment (which we can't really avoid even if we're doing all the right things). So as an older person I apologize for letting the world get so mucked up for you! It sure as hell isn't your fault.

    At any rate, it sounds like you are doing all the right things now, for which you deserve a lot of credit. Keep taking care of yourself, and remember, we're all in your corner! 

    (BTW, I love your username!)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    breast prostate

    (I have more links but I couldn't get them to insert.)

    Anyway, it's something to be aware of if you have few female relatives but male relatives who have been diagnosed with prostate cancer, especially young. Wouldn't have made any difference for me because no doctor is going to aggressively screen a 20something for breast cancer just because of two second-degree relatives, but it might for someone else.

  • Srh242
    Srh242 Member Posts: 328
    edited January 2014

    my dad died of prostate cancer:(

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2014

    Bad_At_Usernames,

    I'll second what ruthbru and some of the others have said.  You sound like a perfectly normal young woman in her 20s.  None of the things that you "did wrong" are unusual or abnormal behavior.  So if those are the things that cause the development of breast cancer in someone who is in her 20s, most women in their 20s would have breast cancer!

    You didn't do this to yourself.  You didn't do anything wrong.  You didn't ruin your life.  You lived your life.  Perfectly normally.

    Get the BRCA test.  That might tell you the reason why you developed breast cancer at such a young age.  And if you test negative, then you will be in the same boat as most of us, who will never know why we developed breast cancer.  So the best thing to do is move ahead.  Deal with the diagnosis and treatment and then go back to living your life as best you can and in the way that makes you as fulfilled and happy as possible.

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2014

    Srh242 here are some other links from the main Breastcancer.org site about the possible link between breast and prostate cancers:

    Hope this helps!

    --The Mods

  • pipers_dream
    pipers_dream Member Posts: 618
    edited January 2014

    Hun, if you need someone to blame, watch this:  Map of Nuclear Explosions from 1945-1998 I watched this shortly after receiving my dx and my first thought was no wonder I have BC!  Then think of all the 10,000 toxic chemicals in our environment and even polar bears are full of them.  You'll realize the problem is a lot bigger than you are--you sound pretty normal to me--actually you sound like you try harder than the average woman your age.  The truth is, before any of us get cancer, not many of us spend a lot of time trying to figure out how not to get cancer.  I wish I had more now but that's hindsight.  A good book I just read was Anticancer:  A New Way of Life by David Servan-Schreiber.  

  • lightandwind
    lightandwind Member Posts: 754
    edited January 2014

    I did this to myself too. I felt so guilty. I remember just getting out of surgery apologizing repeatedly to my mother for getting cancer. It's just something in us that does that, especially seeing our relatives in pain because of our diagnosis. Somehow it feels like we're responsible. Only now are there some studies out which can help us start to make heads or tails about what might be best to put into our bodies to help us ward off the disease.  Generally, eating less sugars/carbs, more organics (w/o hormones and pesticides), and exercising regularly seem to be mainstays for overall health, and assisting us with most every disease or ailment. As you learn from your docs, do you own research, you can make a plan that feels right, and true, and healthy to you so you don't beat yourself up for what you think are unhealthy habits anymore. Right now is the time to nurture yourself unlike ever before. Being hit with a breast cancer diagnosis can no doubt be traumatic, so be kind to you.  

  • belleb
    belleb Member Posts: 170
    edited January 2014

    Hi Bad, today is my first day here on the boards and I just wanted to let you know that I am feeling the same way - guilty! What did I do wrong? What should I have done better? I know it's not rational to think that we somehow gave ourselves cancer, but that seems to be a common response early on in the diagnosis.

  • georgie1112
    georgie1112 Member Posts: 282
    edited January 2014

    bad,

    Glad you are getting support. Take a deep breath. You are smart, strong and you can get through this. I hope your test shows the cancer is localized. I was very very healthy, did most of the right things but still got cancer. Please don't blame yourself!!!

    I was told sometimes a breast cancer gene  if it runs in families might also be related to ovarian, prostate and colon cancer. So good you are getting tested for BRCA. 

    Try focusing on taking good care of yourself now. You can't change the past. It is normal to wonder what we did to cause our cancer. Instead build a support team of family and friends and take time to find a medical team you trust. 

    Hugs

  • Dtowles
    Dtowles Member Posts: 4
    edited January 2014

    What most of us R clueless about is the fact we all walk around with the vulnerability of nearly every disease within us and it just depends on what triggers one or the other...more and more the triggers are environmental, but some critical ones are genetic. I was diagnosed with breast cancer in my right breast with involvement of nodes  in late May of 2013.  My care journey included 12 weeks of Chemo once a week, a decision to have a lumpectomy...and the pathology report from that surgery that showed me to be cancer free in Late November 2013...extraordinary outcome...had little side effects from chemo except fatigue and loss of hair:)) What made me different from many is I never felt panic or fear with the diagnosis, only a lets do this attitude and I picked an all female team who are bringing me through this experience beautifully. I start radiation next week for six weeks every day. I am taking the biologic Herceptin every three weeks for nine months and a hormone therapy pill...all to ensure cancer stays away.  Don't fear...be brave believe in yourself and your future . Get busy living and surviving this experience:))

  • Dtowles
    Dtowles Member Posts: 4
    edited January 2014

    I think because we have heard so much about cancer and know someone personally,or know of so many women who have had cancer, we think we should have gleaned enough info to avoid getting it ourselves. So when we are diagnosed, too often our first reaction is that we missed something we should have gotten that would have allowed us to avoid cancer! It's no one's fault...

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