DIEP 2014

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  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    You got it covered then, Maggie. 

    Happy New Year everybody!!!!!!

  • beck0806
    beck0806 Member Posts: 7
    edited January 2014

    I'm scheduled for a left diep flap on Jan.20. I'm getting a little nervous because my dr. told me he may have to take a small amount of muscle and also might have to take out a small piece of rib. I've been reading these posts and haven't seen anyone mention this. I read about something called a diep II where they don't take any muscle at all. I am wondering if I should get a second opinion. I'm having a ct scan of the abdomen on Jan. 6. I don't have an appointment to see him again before the surgery. He did not even discuss size or show me any pics.  I am wondering if I should get a second opinion.

  • MartyJ
    MartyJ Member Posts: 1,859
    edited January 2014

    Beck - muscle is usually not taken with DIEP, but a tiny bit of rib is shaved away to allow access to the vein to reconnect.  The abdominal CT will show where the best perforator veins are so the doctor can harvest the best veins from the ab to reconnect.  Everything about Stage 1 is getting a healthy flap to get a good blood flow.  If your doctor did not show you any pictures or discuss size, you definitely need to call and get on his schedule so you can get answers to your questions.  You should also ask how many DIEP he preforms every week - if he does it rarely (like 1 x a month) you might want to shop for a PS that has more experience.  There are several gals who have gone to Cleveland Clinic and been pleased with their results.  A second opinion is never a bad idea particularly if you didn't connect with your PS or don't feel comfortable.

  • bdavis
    bdavis Member Posts: 6,201
    edited January 2014

    Beck... DIEP II is just a different way of doing DIEP, but both DIEP and DIEP II do not take muscle. If muscle is taken its called a TRAM or free TRAM. I agree that you need another opinion. Not discussing size or showing pictures would concern me. And as Marty said experience is very very important. This is a very technical operation in microsurgery, and your PS should be performing at least a few per month. Like a minimum of ten I would say.

  • jmb5
    jmb5 Member Posts: 532
    edited January 2014

    Beck,  If you are feeling uneasy about your PS, ask to meet with him again to get questions about size, etc. answered, and then ask for a second opinion. The first PS I met with at the Cleveland Clinic was Dr. Isakov. He told me I was too thin for a DIEP, and I left very discouraged. (Of course he doesn't do DIEPs, so he didn't really encourage me to get one.) When I saw my BS the next week, I told her I wanted a second opinion. She immediately texted Dr. Moreira and asked her to squeeze me in right away. She had surgery scheduled, but met with me briefly, and said she could do the DIEP. I didn't want to take up a lot of time since she had surgery to get to, so I didn't ask to see pictures. I plan to call tomorrow and set up another appointment with her though. I will have more peace of mind if I see pictures, and ask her more questions. I don't know how many DIEPs she's done, but she said she hasn't had one fail yet. Maybe you could request her for your second opinion?

  • Donna2012
    Donna2012 Member Posts: 201
    edited January 2014

    I researched my ps thoroughly.  When I asked the # of dieps she does - she said about 150 per year.  I am happy with that amount.  It also took me 3 mos to get on her surgery schedule.  Hopefully she will be good! 

  • Donna2012
    Donna2012 Member Posts: 201
    edited January 2014

    as far as failure rate - I think she said about 1%

  • Curlylocks
    Curlylocks Member Posts: 1,060
    edited January 2014

    Taking the small section of rib on either side is very common, I had this done. 

    A failure rate of 1-2% is common.  A flap can fail up to 2 weeks after surgery.  You are closely monitored in the hospital post op to ensure good blood flow.

    You have to trust your PS and have them answer any and all questions that you may have.    I definitely discussed size with mine as I wanted mine reduced, having had large clunky breasts all my life...this was my opportunity to get something in return.

    Ask your PS about how they handle revisions if you need them.  To fix dog ears if they happen and any other adjustments you may want done.  I was extremely lucky that I didnt end up with dog ears (they are an extra flap of skin that sometimes appear at the ends of the ab incision on either side or the sides of your breasts).

    Michele

  • nihahi
    nihahi Member Posts: 3,841
    edited January 2014

    beck...the other ladies have answered your question about the rib. I am someone who ended up with a small piece of muscle taken, so I am a Tram free flap. My PS is very experienced in microvascular surgery and PS, and does both Diep and Tram free. The decision of what procedure to do is made by him during the surgery, based on the size and "pattern of perforation" of the blood vessels. These ladies are a wonderful source of info about Dieps. If you would like any feedback from someone who has actually had a Tram free....please pm me. 

    The other ladies are 100% correct, in that you need a surgeon who has a lot....LOTS and LOTS... of microvascular experience, as that is the biggest factor in how well the vascular connections are performed. Of course, you want a surgeon who has ongoing experience doing breast recon using flaps, to get the best "cosmetic" result you can get too. It is important to ask the questions of "what happens" after the initial surgery, as far as "refinement" and revisions are concerned. You need to know what/how much your PS will do, and he/she needs to know what your wishes are for the "total package". 

    Have you asked the questions of post-op protocol such as "yes or no" about things like compression garments, special bras, etc???? In these areas....all docs seem to vary, so you should find out what your doc wants you to do. It sounds like another discussion with your surgeon, and/or a second opinion would be a good idea.

  • KaseyAnne
    KaseyAnne Member Posts: 23
    edited January 2014

    Maggie--I had Dr. Trahan!!  He did my stage 1 diep on Nov. 12th.  I really loved him! Very compassionate.  He really knows what he is doing.  If you are on the picture board, I posted my before and afters--same username :)

    ALSO--can I be added for stage 2 on Feb. 10th at NOLA? Thanks!

  • jmb5
    jmb5 Member Posts: 532
    edited January 2014

    For those of you who have already had your DIEP surgery, did you need to get a size larger pants because of swelling, or will just loose fitting in my normal size be fine?

  • beck0806
    beck0806 Member Posts: 7
    edited January 2014

    Thanks to all of you ladies for all the info about this surgery. You have answered my questions and given me more things to think about. I will call my ps's office tomorrow.  I definitely need to meet with him again before my surgery. Then decide if I need a second op

  • nihahi
    nihahi Member Posts: 3,841
    edited January 2014

    jmb....I bought some a size larger....didn't really need them. If you have some loose fitting adjustable waisted soft pants, like yoga pants or even jammie bottoms...I think you'd be fine! 

    edited to add: I assumed your question was for immediately post-op. I managed with the most adjustable pants I had to get dressed for the drive home from hospital, but I had a lot of swelling, and they "just" worked to get me home, and then back into the surgeon's office 3 days later to get the last of my drains out. After another week or so, my swelling decreased and I could make do with any pants I already had except jeans. The stiffer waistband was not at all comfortable. Once you no longer need the soft, adjustable waists, goldie's suggestion of maternity jeans is a good one.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    Kasey, you look awesome.  Congrats!!!!  I know you must be very happy with your results.  How are you feeling?  And, how was your recovery?

    jmb, a few woman came up with the idea of maternity pants (you can get them cheap at Target.  They have the soft panel that comes over your scar and they come up to your waist and then you just wear a cute long top and you are good to go. I think I am going to try that.  I forgot to ask my daughter in law if she had any left.  she had some really cute maternity jeans!!!  Also, soft yoga pants and sweats work well I hear.

    I am having guilt about leaving my original surgeon.  Being half Jewish and half Italian,  this is a common phenomenon. I just have to keep reminded myself of all the mistakes he made, and that I am doing the right thing.  Even thought I like him as a person doesn't mean he is the right person to do my surgery.  I have a problem with thinking I might have hurt anybody's feelings. 

    Yesterday was a very full day.  Did more than I have in one day in a long time.  I helped my BFF with her critically ill mom, (she is very demanding and needy), spent the evening the with the grandkids, and then stayed up way to late.  Today I slept in.  Took a long hot shower, actually did a full blow out and style on my hair, the I went back to bed for a nap...lol.  Oh, I did clean on bathroom. 

    I hope you all had a great New Year.

    Nihani, I will probably end up with the tram free one side.  I am not worried about it because you have given previous encouragement about that scenario. I have a friend who had one of the first tram flaps ever.  It was over 15 years ago.  She has no abdominal muscles, and then her flaps failed.  The whole thing was barbaric, but they had to start somewhere, unfortunately she was a guinea pig. She lived in LA at the time and it all happened at UCLA.  She now has no tummy muscles, but she did end up with saline implants and has lived with iron bra all these years.  She is the best.  So upbeat and optimistic all the time.  I am going to have her see my PS and see if she might consider GAP flap. It's time for her to replace the old implants, and how great would it be for her to get rid of iron bra after 15 years?!!!!!!!!!

  • KaseyAnne
    KaseyAnne Member Posts: 23
    edited January 2014

    Thanks Goldie!  Recovery has been really easy--thank God!  I don't know if it makes a difference that it was a delayed reconstruction.  The only trouble I have now is just a cramping, sort of like braxton hicks in my stomach if I sit bended over too long (like in my computer chair). I am looking forward to stage 2 in a little over a month. 

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    I am having delayed, and the only reason it might be easier is the we will (did) not have our bmx's at the same time.  I think that cuts down on the upper body pain.  We had the pain already.  I had it to do all over again, and know what I know now, I probably would have opted to get it all over at one time, but since it is this way, I do think we are a bit of an advantage as far as not having upper body movement problems, and excessive pain.

  • nihahi
    nihahi Member Posts: 3,841
    edited January 2014

    goldie.....I hope your friend has success with another type of recon. A pedicled Tram or Lat Flap were the only options available to me, other than implants 20+ years ago, hence my implant journey. I can certainly identify with her desire to find happiness after many, many years of struggle. I agree, the recons of 20 years ago seem barbaric to us now. I wonder how our versions of recon today, will be viewed, in another 20 years. Wouldn't it be wonderful if breast recons are not even necessary in the next few decades!!!!!

    Today's Tram free is a fully detached flap, identical in process and final appearance to a Diep flap, and takes only a very small piece of muscle, surrounding all or some of the blood vessels used in the vascular connections. The two Tram procedures are very, very different in almost every possible way. I hope that if you do end up with a Tram free, that my recovery might help ease your fears.

  • Rachlmarch
    Rachlmarch Member Posts: 9
    edited January 2014

    Beck I would definitely get a second opinion.  You are so close to Cleveland Clinic.  Dr Djohan is well known for DIEP surgery.  He performs surgery at the main campus but would probably be able to see you at the Cleveland Clinic in Avon for appts.  I've heard nothing but good about their team at Cleveland Clinic which I'm sure jmb's surgeon is part of. Every doctor is going to be different but since you are so close I wouldn't go to any other hospital besides there or somewhere like NOLA where they are doing them everyday. I'm tentatively scheduled for a DIEP on the 29th of January at Cleveland Clinic.

  • maggie85
    maggie85 Member Posts: 53
    edited January 2014

    I leave for New Orleans on Monday.  Today, I'm a little freaked out.  I don't know why, really.  I've been on the phone with one of the surgeons today, Dr Fuhrman.  He won't see me until the morning of surgery, so he just wanted to talk to me by phone first.  Very nice man ... I think I'm just feeling overwhelmed today.  The magnitude of the surgery and the catastrophic cost (mine is $8000 out of pocket) is just really getting to me today.  I'm not married, so its all on me and I worry about my financial life.  I just bought a house, too, back in March.   I've been thinking about being away from home for two weeks, the drains, not being able to lift my arms ...  ugh.  I'm normally not a worrier, but I guess today I am.   

    I keep reading how everyone is completely satisfied with their DIEP choice ... is there anyone here that would have done something different?  

  • bdavis
    bdavis Member Posts: 6,201
    edited January 2014

    Hi Maggie... It is completely normal to be nervous. You will feel very pampered in NOLA.. and I have heard great things about Dr Fuhrman. In the last year they have brought in (hand picked) breast surgeons from the local area. You will not be disappointed. It is also understandable to feel nervous about the after care. Who is going down with you? They insist you have someone with you for discharge. But once you come home, I think you will be self sufficient. I was doing everything for myself when I got home. Just plan now by moving things to a reachable location. Plan to have meals delivered or pre-cooked. Plan to have your home cleaned once a week... and don't be overly concerned about lifting arms. I could lift mine enough to get clothes on. Just didn't want to reach to top shelves for things. Have you checked out the NOLA in September thread?

  • maggie85
    maggie85 Member Posts: 53
    edited January 2014

    Hi bdavis :)  Yes, I've read quite a bit of that thread ... I feel very comfortable with NOLA, I really do - I'm very glad I decided on them.  Just having a bad day, that's all.  My sister will be with me the first week and then a friend of mine flies in for the last week the same day my sister flies out.  She couldn't stay the full two weeks with me.   I'm extremely independent ... I don't normally worry about things unless its time to worry about them.  I read these boards a lot before I first posted.  There is so much good information on them, and some of the threads are enormous!  Thanks for the reassurance, I appreciate it. 

  • bdavis
    bdavis Member Posts: 6,201
    edited January 2014

    Having two weeks in NOLA will be great. By the time you get home, you can drive yourself places and do most things short of lifting stuff... I will say plan to take your time with things. It used to take me an hour to shower. First, I got exhausted. So I would put a sock on and sit and rest. LOL... But seriously, showering was the hardest part of my day. It would take an hour with compression girdles and padding and drains... But it was fine. Where are you staying in NOLA?

  • maggie85
    maggie85 Member Posts: 53
    edited January 2014

    The doctor's office set me up with Hope Lodge.  I hear its very nice!  

  • bdavis
    bdavis Member Posts: 6,201
    edited January 2014

    They have re-done it since I was there... Be sure to request a hospital bed. They don't have them in every room.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    Betsy, you are a real trooper.  You have been through so much, but you make us feel like it's all so easy.  Thank you. I want to be as brave as you.

    Maggie, you sound like a strong, independent, smart lady, and you are going to get through this just fine.  We are here for you.

    I have my diep in a few months, and I am scared also.  You success is going to help me too, and the other's that follow.  We already have quite a list for 2014.  I think more and more women are choosing this option.  I can tell you why, because these freaking implants are the most uncomfortable things I have ever felt.

  • 4acure
    4acure Member Posts: 5
    edited January 2014

    goldie4040,

    I weigh 150lbs. and I am 5'6". I am having both breasts done.I really am nervous about the DIEP surgery and the recovery process. I have TMJ in my jaw and I'm not sure how badly that will be affected by a 12 hour surgery. Never gave it a thought for the first surgery. That was about 4 hours. I didn't understand why my jaw hurt so bad the next couple of days, then it dawned on me about the TMJ! I don't want to have the "rocks" either. I still have the expanders and I really don't like how they feel either. I meet with my PS in February. I want to finish the school year before doing any other surgery anyway. I am on the schedule for surgery July 7th. The procedure itself has yet to be decided. I think I am leaning toward the DIEP though.

  • bdavis
    bdavis Member Posts: 6,201
    edited January 2014

    4acure. Since you have already had your MX, 12 hours seems really long for Diep. Ask your surgeon if he team operates. It cuts down tremendously on time. For just Diep it should be more like 5 hours. 

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    Acure, like Betsy said, 12 hours is more like a mx and diep at the same time, but just the diep should be around 5 to 6 hours tops if your doc works as a team, which most do.  

    Don't worry too much about your TMJ.  I had a bronchscopy a  few months ago and my jaw hurt for weeks, but nothing permanent.  Just temporary soreness from them prying my mouth open for a period of time.  This too shall pass.  I get more worried about my shoulder from having my arm over my head for so long.  I am going to ask them to move it around once in a while this time.  

    I feel you about the expanders.  You are a trooper to wait till summer, but sometimes we have to do what we have to do.  We are here for you anytime.  Just stop in.  BTW....I don't know how your weight is distrisbuted, so I can't speak to if you have enough belly at 150 pounds and 5'6", or not.  You need to go over that with your doc.  Also, what are your expectations for the size of your new breasts vs how much belly do you have, etc. 

  • lahela
    lahela Member Posts: 515
    edited January 2014

    4acure - I'm 5'7", was a D cup and weighed 136lbs, pretty evenly distributed over belly and hips, and I got 2 generous C cup sized noobs. Before surgery, the PS didn't think she could get them that big, but she managed. I was pulled incredibly tight from a good 2" above my belly button down to the public line, but I could stand straight after about 12 weeks. It's amazing what a good surgeon can do!

  • Donna2012
    Donna2012 Member Posts: 201
    edited January 2014

    4acure -

    I am 5' 8 1/2" and about 148.  I am a C cup in my natural breast.  My ps said that she can give me a B cup, not a C.  I do not have enough fat for a C.  I think some of it has to do with how much was taken with the mastectomy.  My bs was pretty aggressive and took a lot out with the mx, since my cancer was aggressive.  

    So, she will reduce and lift the natural side - making it a B cup to match.  I am happy with that - not a big deal for me in the scheme of things.  

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