September 2013 Chemo Group

Options
18889919394143

Comments

  • kjsimpson
    kjsimpson Member Posts: 445
    edited December 2013

    So, I'm having an increased interest in making some really big pink targets, purchasing a gun, and blowing the scrap out of the targets!!! I really want to send this cancer a KILL, KILL, KILL message!!

    Is this abnormal?  ;-)  Do I need psychological counseling???  Headphones    <--wearing my hearing protection for the firing range.


  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited December 2013

    Sounds good to me! My son keeps telling me to grab his paint ball gun & blast some trees out in our woods.

  • mercedes60
    mercedes60 Member Posts: 171
    edited December 2013

    HAPPY NEW YEAR to all.  May 2014 bring us happiness once more, kick cancers ass into another galaxy. Get our taste buds back, our skin tone back, our hair, our strength and keep our will to live on, to see this journey as a challenge that we conquered mentally and physically and help others thru it. Let us be grateful that this legal poison called chemo saved our lives. 

    As we say in french, bonne et heureuse annee et surtout la sante!  Happy and healthy new year my friends

    Xoxo. Cheryl 

  • alfranco
    alfranco Member Posts: 200
    edited December 2013

    Thank you Mercedes. Happy New year to all, wishing you all feel better.

  • kjsimpson
    kjsimpson Member Posts: 445
    edited December 2013

    Well said, Cheryl. 

    Happy New Year to all.  This is our year. Let's KCA!!

  • hockeymommy
    hockeymommy Member Posts: 77
    edited December 2013

    Happy New Year September sisters!! Cheers!Winking

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited December 2013

    HAPPY NEW YEAR to all of you Lovely Ladies!

    I know that 2014 will be a better year for all of us!

    I spent today at a chemo cocktail party LOL All went well & I feel fine.

    Here's hoping we all have a healthy, happy 2014 & kick the cancer to the curb!

  • josgirl
    josgirl Member Posts: 231
    edited December 2013

    Have a lot of catching up to do but KJ - loved your post - kicked me in the butt a little and I needed it! 

    Vintage Gal - one more down!

    Ladies, wishing everyone a healthy new year and many blessings.

  • josgirl
    josgirl Member Posts: 231
    edited December 2013

    Also concerning radiation - I am 25/33 appointments and the side effects are here.  Even though mine are definitely worse than average it is still nothing compared to chemo.  My armpit area and under the breast in the crease, it is practically black and starting to peel.  It isn't like a sunburn more like a really bad chafe.  So the majority of the time if I am focused on something else (like now) it is barely more than a soft itch.  But at night or when I do a weird movement and rub it's not fun. And between that and the hot flashes, I can no longer blame my poor sleep on my 2 yr old.  :)   I started wearing the tank top under my bra but I am so large chested it didn't help prevent the rubbing.  My doc taped a sterile pad into my crease and over my armpit and while slightly uncomfortable - the areas feel so much better.  The pad stays and doesn't move when I do.  The reason I bring this up is I never saw this tip.  When I asked the nurse for additional supplies she seemed to disparage the technique (because it uses tape I think) but I am just very careful to tape only on my good (non-radiated) skin. My rad onc did warn me of this since I am at least a DD and so required a higher dose of radiation to fully penetrate my breast - and therefore my skin gets a stronger dose.  And the lotions - didn't work for me - but they didn't hurt either.

    I still maintain that the worst part of radiation is the daily appointment.  My rad onc also said that the side effects will actually get worse for about a week after completion before starting to heal. But I can see the light at the end of this tunnel and I am coming!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2013

    jos. This us my second go around and my experience re radiation being a ddd was exactly as yours and even with those aids it ultimately got worse. BUT several months later other than discoloration the symptoms had receded. Best, V

  • positivenegative
    positivenegative Member Posts: 106
    edited January 2014

    i do kj have ibc and idc

  • kjsimpson
    kjsimpson Member Posts: 445
    edited January 2014

    JOS,
    Thanks for sharing your experiences about radiation.  It is making me feel better, though I'm still very intimidated. 


    PositiveNegative,
    I came across a great Facebook group for IBC'ers.  They are a closed group that only allow those diagnosed with IBC in the group.  You can do a search in FB for "Inflammatory Breast Cancer (IBC) Support"  or try the link below and ask to join.  They will message you back to confirm that you are diagnosed with IBC...

    https://www.facebook.com/groups/155583871626/


    Vintage,
    I hope they put a little happy spike in the chemo bar for New Year's Eve.  ;-)

  • lighthouselady
    lighthouselady Member Posts: 752
    edited January 2014

    Happy New Year ladies!!!

    I soooooooooo couldn't have made it through the last half of 2013 without you guys. Thank you for the friendship and support and laughter. 

    Hubby and I are leaving tomorrow for a casino date, then Thurs is pre-op testing and Fri is surgery. Probably won't post much over the next few days but I'll try to update if I can. 

    Let's continue to kick ass in 2014!!!

  • alfranco
    alfranco Member Posts: 200
    edited January 2014

    Best of luck LHL.

  • kjsimpson
    kjsimpson Member Posts: 445
    edited January 2014

    Good Luck, LHL!  We will be praying for you and thinking about you!

  • KBeee
    KBeee Member Posts: 5,109
    edited January 2014

    LHL, Best of luck with the surgery! Walk little bits when you can, set your phone alarm for the first couple days to remind you to take your pain meds (and record when you take them since they will make you a little loopy), and remember that pain meds cause constipation.  Fruit and oatmeal are your friends!  You got this!  You'll be in my thoughts and prayers on Friday!

    I was so very grateful to put up a new wall calendar this morning.  I have bought the same wall calendar for 7 years...as long as we've lived in this house.  Same brand, same everything...fits perfectly in the space.  Around March last year, I noticed, that the 2013 version I grabbed was the "breast cancer awareness version", so there was a big huge faint pink ribbon on each month.  Damn thing jinxed me.  I was glad to tear it off the wall, and I used the last month of the calendar to start a fire this morning.  2014 is here!  Yahoo!  Happy New Year.  Thank you to each and every one of you for being such a valuable part of my 2013.  I would not have made it through with my sanity intact without you!

    Oh, and I am taking a selfie each week.  I officially have 1/4 inch of peach fuzz on my head...very thin and chia pet-like, but progress is progress.  If only the gray ones would have stayed away.

  • lighthouselady
    lighthouselady Member Posts: 752
    edited January 2014

    Kbeee..... I laughed at your post about the calendar. Too funny!  2014 is going to be so much better for all of us!  Your hair sounds like mine... About 1/4 inch of peach fuzz. It's all white... Yuck. But it's hair!

    Thanks for all the prayers and well wishes. I'm trying not to think about surgery too much. It really freaks me out. Tonight's casino date should be a good distraction. :-)

  • hockeymommy
    hockeymommy Member Posts: 77
    edited January 2014

    Lhl- you got this!!! Will be praying for you !!

    kbeee- lol about the calendar!! I am like you with the 1/4 inch white fuzz!! Hair is hair but this plucked chicken look is a little much! Lol...

    Cheers to all of us, may 2014 be OUR year!!

  • kjsimpson
    kjsimpson Member Posts: 445
    edited January 2014

    KBee,
    How far past chemo are you?

    I thought someone said that real hair wouldn't start coming in until about 4 weeks after the last chemo?  I was planning to shave my head one last time next weekend (3 weeks out) and get rid of the fuzzy chemo hair.  Good idea?  Bad idea??

  • KBeee
    KBeee Member Posts: 5,109
    edited January 2014

    KJ, On Friday, I will be 6 weeks PFC.  If I had done 6 rounds, which they'd scheduled me for before knowing I was node negative, I would just be finishing this Friday!  Seems weird.  I did shave my head about 3 weeks out so it would be somewhat one length, and it was that next week or so that all of a sudden my smooth head got to feeling a little fuzzy!  My hair is very, very thin.  It was thin before, but it is coming in even thinner...not even sure how it'll cover...we'll see!  In the past few days, the white peach fuzz is having some darker hair below it; it's almost like a shadow on my head!  It's like someone's science experiment gone wrong!

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited January 2014

    All the best to you LightHouseLady!!!!! We'll miss you & be looking for your next post!

  • kjsimpson
    kjsimpson Member Posts: 445
    edited January 2014

    Thanks, KBee.  Sounds like we have similar plans.  Could it be possible that we could have crew cuts by April???


  • KBeee
    KBeee Member Posts: 5,109
    edited January 2014

    I would looooove to have a crew cut by April!  My hair cannot grow fast enough!  I am not taking any supplements (other than calcium and vitamin D)...kind of tired of taking everything.  Is anyone else taking Biotin, or anything else?

  • PeacockGirl
    PeacockGirl Member Posts: 162
    edited January 2014

    hoping the best for you Michelle...will be thinking about you tomorrow for your surgery. You got this! 

    Anybody break out in weird tiny bumps on their skin? They are all over my back, I, thinking its ingrown hairs from the peach fuzz coming back. My arm hair is finally gone, so weird feeling being 100% hairless everywhere. I asked RO about it Monday he had no clue, or he didn't want to address it. I will see MO on Friday....which irks me. After being in ER on Saturday can you believe nobody from onco has called to follow up with me? I find that terribly bad on their part. 

    Got 3 tiny dot tattoos on Monday at rads...and CT to find my clips so they can get started. I found the position with my arms overhead not too uncomfortable. They don't do any gated breathing or breath holding at my center. I will have a sim soon and start rads after January 13th.

  • batcatlady19
    batcatlady19 Member Posts: 138
    edited January 2014

    Happy new year!!! I had to post bec., damn, it's great to be done with that year full of cancer :) Only finishing treatment in the future, nothing else, knock on wood. I had a great realization at a NYE party about how, in the midst of chemo, I felt so awful that I wondered if I'd ever feel normal again, if I could move around the house without pain, if I could think or read without forgetting so fast. And by Xmas, yes, I could, & I even had hair growing on my head. My normal life didn't all come back at once, but things have definitely come back, & most days I feel 100% like my old self. Just with a "shaved" head.

  • kjsimpson
    kjsimpson Member Posts: 445
    edited January 2014

    KBee,

    I just started taking a generic multivitamin gummy.  Doing double dose each day, actually. 

    Peacock,

    Did they put the markers in during surgery?  I know I have markers on the nodes they biopsied, but those will come out during surgery.

  • Srmill
    Srmill Member Posts: 10
    edited January 2014

    Happy New Year to all the strong ladies on here.  

    I haven't been on here for about a month. I see where some of you finished chemo.  That is so awesome.  Congrats to you ladies. 

    It seems that since I have been on the last half of this trip instead of being happy I am getting closer to being done I have been more irritated, frustrated and angry.  Taxol sucks.  I dread it more than I ever did the A/C.  It has been harder for me to stay positive.  I recently found out that my dad still does not support my decision to go through w/ chemo.  He told my husband while I was not around that all the physical and mental stuff that comes with chemo was my choice and that I should not have done it.  My genetic score was in the high risk bracket for recurrence.  When you are told you have 1 in 5 chance of recurrence in the next 5 years w/out chemo what would you do?  I am in my late 30's and healthy, I figure chemo would be better now than later.  

    I want to say thank you to a few ladies for the helpful info on your experiences with taxol and neulasta.

    Lighthouselady  I had the restless leg really bad with my 1st taxol during treatment and for a couple of days.  They said the Benadryl they give me causes it and lowered the dose on my next one.  I still have it during the treatment but not at home.

    Mamastewart   The L-glutamine definitely helps with the neuropathy.  I can tell it is helping.

    Kbeee    You were right about taxol causing the bone pain even without neulasta.  I had such a difficult time with my 1st taxol.  I went for my 2nd one and told my onc how bad it was and he said to skip my neulasta to see if it went better.  I still had a lot of bone and joint pain but it was not as bad as the first one.  So I know it is taxol causing the pain even though they say it is not.  I skipped my shot after my 3rd taxol and it went the same as last time.  But now my WBC is borderline from not doing the neulasta.  My nurse was pretty concerned and talked to my onc and he said to continue without shot.  I have done ok so far considering everyone at work has had the flu or stomach bug that is going around.  My little girl just got over the flu and my son has just recovered from the stomach bug as well.  It is crazy that at the time when I can NOT get sick it is all around me.  I just keep knocking on wood and disinfecting everything.  

    It is hard to believe that my last taxol is Monday.  The only part of all of this that I will miss is my nurse.  I have had her from the beginning and she has been so helpful.  I call my PS tomorrow to schedule the 2nd part of my reconstruction ( implants ).   Excited to get this done.  To be able to sleep on my stomach again will be wonderful.

    Thank you to everyone on here.  You have all been so helpful with your posts. Kept me from thinking I was crazy at times.  

    Hope that this is going to be a wonderful new year for all of you wonderful ladies.

  • josgirl
    josgirl Member Posts: 231
    edited January 2014

    srmill, I find that family members are the hardest to talk to about medical decisions and that most (but not all) of the men in my family just want to gloss over it - I think denial! That might be what your dad is doing although I don't know your personal situation at all.  You know what you did was right for you - and YAY FOR LAST TAXOL!!

    LHL - wil be thinking of you over the next few days - hoping for a pCR and an easy recovery (and some large winnings at the casino as a distant third!)

    My hair has started to grow back ever so slowly - maybe 1/4 of an inch if I am being generous but it is dark.   Agree KJ - would so appreciate a crew cut at this point!

  • warrior70
    warrior70 Member Posts: 144
    edited January 2014

    Happy New year everyone.  I woke up yesterday to a new year...and the realization that I will be DONE WITH CHEMO BY THE END OF THIS MONTH!!! HAPPY NEW YEAR TO ME!!!!!!

    So I go in to #8 of 12 Taxols today, with really good lab numbers.  I had a good week, except for New Year's Eve, when I felt really tired and had a little diarrhea, which thankfully resolved itself quickly.

    Josgirl, you are really getting through this fast; sorry to hear about your rads challenges.  I have that up next and it scares the bejabbers out of me....but hey, I've made it this far, I can get the rest of the way.

    Hope this finds everyone happy and feeling good.  Keep enjoying your New Year, ladies.

  • PeacockGirl
    PeacockGirl Member Posts: 162
    edited January 2014

    Re: Hair. I love this video, and I love the song. A great anthem for all of us. We will RECOVER! And our hair will come back. And we will be healthy again!

    http://www.youtube.com/watch?v=jPljZN3tAds

Categories