Starting Chemo, November 2013 Group
Comments
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Phebes - Love your kitty - I use to have a red and with white one with similar markings, - He ran our neighborhood.FYI - I also have problems swallowing. I think it’s because the saliva is thick from lack of hydration.
Stomesmama - It looks like your cat is in full purr mode - I love that sound.
BigT - Mushu is sweet. My boy also will not leave my side, before I was diagnosed he use to sniff my chest isa strange way - I am pretty sure he knew I had cancer too. He almost panics when I leave the house without him.
Wallymama - love your beagles -My neighhour use to have a beagle mix and he would howl out the window every night. It was too funny. They have such personality. Your family picture is also very nice. You'll look back at that with pride in yourself and them when this is all over
Paulette - My boy is a Sheba Inu.It is an uncommon breed. I don’t recommend it unless you have had lots of dog experience as they are very alpha.
Amazon - love the scarf action -You must be your husband’s favorite wife?...LOL
Pompom - I too have seen apositive change in my relationship with my husband and family for allowing them to help (I don’t accept help easily...).
Ellen - The loss of a love one is so hard. It takes part of your sole and you never seem quite the same. I was so emotionally empty when I had a recent loss - I don't know how you are handling cancer so close on the heels of your husband’s death, but I am in awe. It is so true that cancer is a physical inconvenience - It might take some body parts but it cannot and does not take what or who that really matter.
Take Care Ladies. The New Year will be better for us all!
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pompom=
yep my last one is 16 also, cannot wait, this 3rd one has been awful for me...neulasta kicked in a couple of hours ago so I'm up...been trying to sleep it off last few days..
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I haven't posted in a long time, but I have been lurking...I have read most of the posts and they have made me realize that my symptoms are not only real, but pretty normal. Round 3 on Dec 19th kicked my butt. I worked through round 1 and 2, but just couldn't after 3. I am so tired emotionally and physically... My job is demanding and I have to do a patient every 20 minutes, so I knew I couldn't keep up with their demands. I did the bare minimal decorating for Christmas and felt guilty about it, but you know what, it was fine! I was putting to much pressure on myself for wanting things to be like they were, but things are not like they were. I needed to let go and take it one day at a time. I have managed to make things as normal as I can for my 13 1/2 yr old. Took her and some friends to the mall and I just sat with a book and let them walk around and shop for a couple of hours, also another day took them to the movies and I was ok too. I figure I could do sit down activities and get out of the house for a few hours. I really don't want her to see me sick and in bed all day. So not that I will do this every day, but at least her Christmas vacation wasn't a total bore.
On another note, not looking forward to chemo #4, dreading the side effects, but happy it's the last one.
Hang in there ladies! We are doing this!
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got another homemade quilt blankie over Christmas!! Had an awesome awesome nurse - she found a vein in my arm rather than the back of my hand which was bruised! Here I am bald head an all...not sure why it's posting upside down - hope it fixes itself lol
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VirginiaNJ, yeah for Piglet going the distance!
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Going to see a doctor, got thrush and diarrihea. I feel dizzy so sleeping it off later.
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my port is on my upper arm and it's staying in place. It's not hurting no more. I like it where it is.
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Pat, yes, Piglet is on for the long haul
oh, and I gave my brother and sister Eeyore and a Tigger for Christmas so we ALL went to chemo today!!!! I am exhausted now. Did some post chemo shopping but feel like I could go to sleep lol
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We are still having crazy weather in NB. Another storm last night, and another on Friday. There is still many without power. That said, the woodlands are beautiful with all the snow and ice. Here I am on a winter walk in my favorate park.
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Hi everyone,
I've been staying caught up with all of you, I've just not been able to contribute...yucky few days, I must say! DH keeps saying, "I thought Taxol was supposed to be better. WTF????"
In reality, I think it has been easier overall, it's just that everyone is home to see me feeling crappy! The good: no nausea. None whatsoever. The bad: aches, pains, flu-ish feeling, pond scum taste in mouth. I've been experiencing all that since day 3 when the Decadron wore off. (edited: ...and Neulasta really kicked in.) Actually, it's similar to what I experienced days 5-9 on AC. The big difference is my hands, and that's a leftover SE from the AC. Today is the first day I can make my fingers bend to touch my palms, so I think (hope!) it might be getting better. The combo of the SEs was enough to send me over the edge Saturday night. I had a good boo hoo, and then some Norco. I just want to have some good days so that this isn't my kids' memory of winter break.
I'm wishing for a minimal SE day for all of us.
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Virginia- LOVE piglet in the photo with you!
Bec- Wishing you feel better soon I am feeling the same as my daughter is home every day now, she was thrilled I was feeling better today and said something about thinking I was dying the other day....great. I want to be normal again!!!
Jab- That looks beautiful!!! Must be nice to have a real winter..
Patalameda- How are you doing?
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hi All, I'm hugging the couch and my bed. I'm woozy, weak, and fatigued. Doing absolutely nothing, so sorry others are having some rotten SE, mine are just nausea and the usual. I'm too weak to think or do anything. Hope the rest of you who had tx last week are rallying better than I am.
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sorry it's been so rough, Pat! Is it worse this time around? Hope tomorrow is a much better day for you. Such a mighty and great profile photo. You inspired me to be bold and bald!
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Still on the "feelin' crappy" train with a few of you others. Biggest problem tonight is a screaming headache... probably partly my own fault because I too got to feeling a little too sorry for myself and overwhelmed by my SEs and had a good boo-hoo earlier. Always guaranteed to give me a headache. Bleh.
One more AC after this one and onward to the next thing. I think I can. I think I can. I think I can. I think I can. Yes, yes I can. And I will. But not without grumbling!
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All my baldie buddies! I know this if the off week for yall! Its 3am and im sitting outside w my pup. trains rumbling in the distance with the sweet sound of crickets and critters singing their night night songs! I pray restful sleep to each of you WITHOUT the wacko dreams which seem to common with a lot of us! I send you a dose of peace and energy for the morning! when I get back to the computer Ill write more sweet nothings while you rest! I know u do the same for me being a week ahead of a lot of you!!!
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Goodmorning everyone! Well...another long nite w/no sleep! I either cant even watch ten minutes of a movie without passing out or I just CANT SLEEP! grrrrr.....My hubby falls alseep SO fast and I get to listen to his BIPAP machine for HOURS! Just a lonely vent....jump to my next post for more happy thoughts!I
WARNING this ramdom venting may be hazardous to your health....seek immediate medical attention if
Oh my....I just typed a whole bunch to myself and hit the delete key! Lucky for yall!
I am having one of those really alone, boohoo mornings. Well, one thing I do know! IT WILL GET BETTER!
Was able to make the hubbys family Christmas...(not my moms) Oh well...people just need to understand...I cant do it all!
What reallly...I CAN"T do it all??????????????
Thats not fair....I CAN...yes I CAN....IM SUPERWOMEN! Right?????????
Well this super woman didnt even get one decoration on the tree! Only lights!!!! hahahahahahahahaha
Overall....with the exception of the neulasta pain, STOMACH PAIN and fatigue. So far...the third time has been better than the 2nd when the "NN" pushed my infusion in less than 2 hours! BOO HISSS....She is OFF my case and they slowed it ALL down! No headache, minimal nausea, no appitite, hand/foot plus nail pain. Of course FATIGUE hit and miss. Last cycle I did not have any good days. So I can't complain. The worst was the abdominal pain....BAD. The gastropersis (cant poop-sorry) almost sent me to the ER. We had IV toradol to assist.....but still....I was a little ball of a person on the floor whinning like a puppy!
I have had a few good days...but in my classic style...over did it and knocked me down for the count! When will I EVER LEARN! I have had up and down cycles with lupus for years. At least with chemo you KNOW somewhat when and what will hit. WIth my other med pbms it is soooo random!
I have come to the realization that FLUIDS are the key! Plus taking meds on time! Add in slowing down the infusion....this all equals better sailing.
Well so I don't risk talking too much about me and having to delete again....I want to talk with yall! Next post is on the way!
Love,
T're!
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So here we go.....Look mom...I can walk backwards and read! I can even ....or at least I have an illusion that I am typing in some coherant fashion! If not....RUN!!!...RUNNNN ..RUNNNNNNNN! AhhhhhhhHHHHH!
Lisa-seems to be a boo hooie day. Its ok! We have earned the right to have a blue funk day or two!I am down to my last round too!1!!!! Three down...one to go...then onto the next antihormone phase....poooo
Quirky- I agree w/you I LOVE pats pic! I too have grown for the most part in actually enjoying to hair...no products...and what is the oddest thing. I would not let people take pics of me for years. I think I have more photos of me since DX and being bald....It is strange! Chemo is changing me a a person...I really don't care what others think anymore! I was one of the fradie cats growing up! Now...pfffffft! Hope you are doing well!
Pat- it just seems like others are doing well....Im a week out and can watch yall. Everyone seems to be taking this one a bit harder. Don't be so hard on yourself....REST...FLUIDS....MEDS......WALK...REST....FLUIDS...need I say more! Huggs! at least I am not a couch!
Audra...did you do the neulasta? I too get the palp...and hear my hear beating all over my body because it tis soooo strong! Only lasts a few days or so. Glad to hear you are well! It made me smile toi hear you were able to get out and about! I WISH my daughter could home!How old is she again?}|
Just be real careful during Nadir if you did not get the shot!!!!! I WISH my daughter....or SOMEONE could come see me. Except my hubby...there is no one anymore....I think I know the Hallmark characters in the movie more that people these days! lol! My hubby said HOW MANY CHRISTMAS MOVIES can one person watch! Well when you can't do your own....well I'll live vicariously thru others! Until.....
I agree w/u...are real winter would be nice for a change! It just doesnt do it tropical vegitation for winter! Though we have had some cool nights lately. Our Christmas was NICE AND CHILLY!
Ok...time for Puppy break! It is now 7 15 am....no sleep but Ellie needs to potty! Will continue to say HI to yall when I get back. just dont want to loose what I wrote so far! Huggs!!!
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Virginia...LOVE the PIC!!! and your trusty PIGLET was right along side of you!!!!! How are you today?You have a beautiful head!Sucks they didnt offer a port. I don't have veins left....I KNOW I would have sunk w/o one! If they can get you by for a bit more.....it really isn't a thing!
Bec- How are you today!? Praying for a better time as you wake up! I can relate to the hand pbms....OUCH! Not like I already didnt have to deal with the Raynauds. I wonder if that made us more susceptable to the Hand/foot thing? Low circulation and all. I have to take cardiac meds to keep mine open. Thankfully they have meds....otherwise ....my oh my....Are your nails hurting too? The throbbing finally stopped. Crazy how many SE all these meds have. I will be on some antihormone when I finish with my next dose....hmmmm...Hoping for the best for us all!
And yess....it must be the moon causing the boo hoos for us all!
Jab-love your pup and the winterwonderland pic! Who of us DOES accept help anyways...WE ARE SUPERHUMAN.....NOT! lol....congrats on letting your guard down!
Pheobe....glad the port is a bit better! and not causing pbms. I wonder why they put it in your arm...thats an odd place! Hubby never seen any there but I suppose the doc had a reason. The thrush can also cause the big D. Have them put you on intermittant DIFULCAN...it has helped me immensely! I am prone to yeast pbms with almost anything. I have a standing order and keep it up! It reduces the mouth, female and internal pbms!
Lissy....NO GUILT allowed here! I have a tree with ONLY lights! lol!!! Such is life...who are we trying to impress anyway! We get a HALL PASS! Im heading toward number 4 too! I guess we are running neck and neck!!Congrats on TAKING TIME TO SAY NO! Just say NO should be our slogan. I wish I had friends I could do that with. Mine are sooooo far away. I only had one visitor this whole time. I have my hubby...who can talk more than 10 ladies every night!! lol!!
Amazon...glad your having fun w the scarfs and head! I'm gonna put some temp tattoos on mine! YAHOOOOOO.....I LOVE having a clean canvas! Oh what fun it is to play with a bald headed lady today
PomPom...nice to hear from you!
Ellen...you are ALWAYS on my heart! You will have so much love to give others as you overcome this! People will marval at the size of your heart! Though NO ONE can replace your hubby....There will be many more who will LOVE YOU!
Amazon...love the look! DOnt worry about the date. Your blood counts will give em what they need to know! But you know this!!Sure sounds like hot flashes to me! They are the craziest things.....Why dont guys go thru this!!!!!!!!!!! I do agree people just wonder? Not in a malicious way....just curious but afraid to ask. I jump right up and tell them...MAKE SURE YOU DO YOUR SELF EXAMS!
Gayle ..welcome home! How are you today? I know it has been a long haul for you! We are all thinking of you!
Im not sure of my Jan date yet...but it should be around the 13th if all stays on schedule. At least I get the neulasta at home now. No more 45 min ride for a shot! Just trying to get the co-pay picked up now!
EllieC-so glad you have support at work! That is nice....I had to leave working world at 35 due to lupus...and I miss it so much...I miss my patients...I miss just getting kudos and knowing others know your alive or dead! It delights me that your coworkers are not being catty! LOVE the shaved head thing!
We had a shaveathon w/ my RN hubby, grandson and I on skype! SOOOOOO much fun! I am not sure I will EVER grwo my hair back! Tis soooooo easy! I jealous of the guys now!
Melrose!!!! How are you! Thanks for all your kind words!
Tonilee.....I run sub temps too....makes it hard to know whats happening. That s why I ve been on antibiotics almost the whole time. I hit 99.....and IM SICK> I also have a history of septocemia...BAD...never ran a temp!
Rest and FLUIDS!!!! I am starting to feel like the FLUID FAIRY!!!! They make SUCH a difference!The IV ones at home....I wouldnt let ANYONE take them away!
Northwinds! So nice to hear your cheery voice! How are you today!
inks!!! How are you!!!?
Pheobe love all the pics!
Wally....we have the same MIX....beagle/dox....WONDERFUL blender puppy! Ill send a pic! We call our a beagle dressed in a doxin suit! BIZARRE...the breed is called a Doxle...but my hubby and I prefer our name....Dogle! Such a happy mix of creature!. We also have cats too! I think one has cancer. I need to get her in to be checked. My pup....alerted me to the cancer too! she kept smelling me funny...then I found the lump!
I am sure I am leaving someone out....forgive....MY hands hurt and my brain is FRIED!
Happy new years to everyone! Enjoy!
T're!
forgive the typos.....Im NOT gonna go back and edit this! Nope...NOT ME!
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Ellen - Congats on your last infusion today! Hoping your SE are minimal and you will have a great new year!
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Ellen-
YeS! WOOOOOOHOOOOOOOOOOO for you! Last infusion day!!! finally! Wishing you quick recovery and HOPE!!! New beginnings!
I am feeling dizzy and weak today, felt better yesterday. Was eating like a Viking the first few days and able to drink enough...so hard with this awful taste in my mouth...I DREAD the water bottles, and I am bad at drinking other things with sugar...I am total health food freak and as such am annoyed I got this...thought I was in control and my health was secure...HA!
Had some odd dreams this am - up at 0500 as usual to go to bathroom then hard time to go back to sleep but I did, and the weirdness came, woke up with odd feeling and dizziness...my sinus' are super stuffy and congested too. I'm still on antibiotics for UTI so hoping that will clear...my MO seems to not prefer antibiotics as they cause yeast inf..??? WEll duh, but I'd rather have them than a HUGE infection, while on chemotherapy...not sure if I love him.
Paulette- My youngest daughter is 15, she is still living here and my biggest supporter/encourager...she is a doll...My oldest is 23 and pregnant, she is due in JUne with her first baby, she calls or stops by every day or so, she is a doll too...we have a 21 year old daughter as well, that has caused SOOO much stress the last few years...she is doing everything we do not stand for or agree with...and she has been on her own since 17 when she ran away from home...LOTS of stress with her...we saw her last a week before Christmas...she comes and goes...very sad. I am learning to deal with that stress at the counselors office, I took too much on myself and wanted her change and was SO very disappointed and sad at the things she has chosen and the life she is living...I am trying to give it all to God and not stress myself out so much...hoping that will help my future...
PatAlameda- I DO LOVE your photo too! You look regal and confident! Hoping you start feeling better soon.
I am annoyed by the every day is different thing. Yesterday I felt better than I do today??? Just tiresome, hoping to be back to 'normal' soon.
Wondering to all of you that are 'done' out there....how fast does the hair on the head come back? What will it be like in say, 2 months time??? We have a trip in April and I'm wanting to have some hair....!!!
Also what are the tips/rules after chemotherapy??? Do you avoid sunlight for awhile? What about coloring hair, I read not supposed to for 6 months?? When to take vitamins or supplements again? Does the MO tell you all of this at last visit??
Curious as to the 'life after'...and SOOOO looking forward to this new healthy happy year!
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Hi Everyone, thanks for liking my pic. In real life I'm feeling like Phebe did, like a fat round pink baby with my diminishing eyebrows and eyelashes, who just rolls around all day. Today the intestinal cramps hit. Sigh.
Audra, I have 3 kids too. Relax and realize that the middle child has to stake out their ground, and it will be different from the high-achiever and the peacemaker....which leaves shit-disturber. Give it time and you will start to see her take form: lots of time. And there's not a thing you can do at this point, except hold love in your heart.
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Jab, your snow and ice does look pretty. Ours is old now and frozen over. So I am done with winter. We are expecting temps,close to 0later this week, so,it is probably good that my SEs will keep me housebound.
Lisa and Audra, imchad that sinus headache too! Nothing helps to make it better either. My Onc says I am the only one he knows who complains about a headache. Maybe no one tells him? Imhopemthat goes away when I start the taxol.
By the way, B6 suplements have been recommended to help ease the SEs of taxol and I asked my onc about this. He did not recommend taking them the day of treatment because they are antioxidants and will help protect the cancer cells from the chemo. So now I am wondering if they shouldn't be taken the day before and the day after as well. Because how long will they be in the body?
My daughters went skiing in Canada with my sister and her family for the long New Years weekend. I am glad they will not be here when my SEs are at their worst. It is so much quieter when they are not here and I can rest more. But I do miss them.
Audra, I have the same questions for my Onc for post chemo as well as post rads. I am going to write them down as I think of them because I feel like chemo brain is making me forget everything lately. Also, as far as hair growth is concerned, I think everyone is different. I know someone whose hair started regrow 7 weeks into dose dense taxol. So me says it starts after the last taxol. I know someone in the same schedule as us and she said she stopped wearing the wig the following November. I guess we are all different I. That way, too.
Paulette, itmismgood to hear from you, as always.
Lisa, I had the boo hoos yesterday before I went for chemo. I know it's not bad once you get there, I was just anticipating the feeling crappy and how tired I am of all this.
I hope you all have a very Happy New Year. I will not be sorry to say goodbye to 2013. Hoping for a oGreat 2014 for all of us!
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Pat-
OMG!!! Shit disturber is perfect!!! Makes me feel better...and I have always wanted to 'fix' her and help her and control her outcome...so yes, I am learning the hard way, she will come around some day on her own...and we love her and pray for her and want the best for her daily...but she really likes being the shit disturber as you say...I'm sure she does!
smrlvr-
I wish my daughter could have gone somewhere over break...I suggested my husband and her go skiing and he wouldn't leave me...(so nice) times like these I wish I had family...that would be such a help...I cannot even imagine.
I get weepy the days before chemo too...literally ruins the 'good feeling' days for me as I am already dreading the next round and feeling like crap...I think it's normal...if we knew we were getting ran over by a train we would cry too...and it does feel like that, doesn't it? Just the knowing is such a HUGE mental drain...
I am going to make a list too...I do have tons of questions and I am also going to see a 'oncologist gynecologist''....to ask about ovaries making estrogen and uterine cancer with tamoxifen and ---- do we get our periods back again after chemo??? Or does the Tamoxifen keep them away>?? and how long do these hot flashes continue??? I don't know what I will do in the Texas heat with these!!!
Happy New year to us all! May God give us another year of life and health!
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Audra67 -- have you seen the Karen Stack photos of her hair growth after chemo? She took pictures of her hair growth progression once a week. The link to her story is:
http://www.karinstack.com/artwork/index-hair.html
The link to just the photos is:
http://www.karinstack.com/images/hair/HS_grid.jpg
Everyone is different -- as we know so well from these discussion boards! -- so who knows what your hair will be like in April, but the photos will give you an idea of what to expect.
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Bluegrass, hanks for those links!
Also, I forgot to mention that the supplement Biotin is supposed to aid in hair growth. So e of the October chemo ladies are using it now because they are done with chemo. I checked it out with a friend who is a hairdresser and she does believe it works.
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For those who don't know or have forgotten, there is a whole discussion thread devoted to hair questions at:
http://community.breastcancer.org/forum/69/topic/7...
You can search the site by going to the search function link, enter your key words and then narrow the search to "Chemotherapy - Before, During and After."
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Hi~
Lissy, we've missed you! Don't be hard on yourself for not being able to work the whole time or Christmas not being the same. You're right -- nothing is the same, and I think we all get daily reminders to accept that. But, boy, is it hard! My youngest son is 13 1/2 and is a homebody. It's been hard to be "real" about this (we received a lot of advice about not shielding our kids from reality) but not unnecessarily real. Know what I mean? Go you for your mall outing! I'm going to try that on Friday.
Virginia, love your pic at your infusion....you look like you cheered up the room! How are you feeling?
Phebe, how are you feeling?
JAB, I'm green with envy and want to be outside! Your park looks like a great place to go walking. As terrible as it's been everywhere else in the country, it's been almost spring-like for a few weeks here in CA.
Pat, any better?
Paulette, you are such a delightful, shining light that makes me smile and laugh and be grateful! (And I just got up and got my water bottle!) How are your hands? Mine are getting better, very gradually. DS said they looked like they should be on a figure in a wax museum. He was right.
Ellen, woo hoo, you're done!
Gayle, how are you doing?
Audra, I'm so sorry about your middle daughter. That must be so hard. I hope your counselor is helping you. I too am annoyed by every day being a surprise. I could relate to you about health food and control. I wasn't really a health food freak, but I definitely watched what I ate and took care of myself well. At the beginning I was so resentful! I kept thinking, everyday I walked 4-5 miles, ate raw almonds and blueberries and only whole wheat, ate no processed foods, drank lots of water...I even ate a (bleeping) apple a day! All that and I get breast cancer! It isn't fair. Also, I like the idea of an oncologist gynecologist....that specialty would be so useful right now! I'd love to find out asap if chemopause has become menopause. I'd skip Tamoxifen then, right?
Smrlvr, my MO started me on 50mg of B6 twice a day as soon as she met me b/c she said latest studies show it can help prevent neuropathy from Taxol. I'd hate to think it interferes with chemo working. My DD left Saturday. She got to see a bad few days after my last AC, but I'm glad she wasn't here for the past few days.
Bluegrass, thanks for the links!
I'm feeling better very gradually, btw. I have to go out today b/c DS has an ortho appointment. I'm looking forward to it and dreading it all at the same time. At least I can grip the steering wheel on the car now.
Sending vibes for a good New Year's Eve for all of us and a better year in 2014 than we just had!
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Paulette - Yes no more guilty feelings! I can only do so much! I can"t to the dome look, OMG you are awesome!
Bec - Tonight I am taking my 13 1/2 yr old daughter to an all night New Years eve skating party. I want her to have fun in spite of what's going on with me. So.....I will be sitting with other moms listening to probably loud music and watching a ton of teenagers have a blast! I have to make an effort to get out after 3rd infusion, but I do it gladly for her.
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My baby and her puppy Bella!
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Audra - where in Texas are you? Where are you getting your treatment?
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- 50 Immunotherapy - Before, During, and After
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