Starting Chemo in December 2013

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  • Spoomsister
    Spoomsister Member Posts: 61
    edited December 2013

    I have crazy heartburn nearly constantly!  I thought it was just something weird, as I don't think I have heard of heartburn as a side effect.  I've been taking over the counter Zantac though, and that seems to help quite a bit.  Your English is really good for it not being your first language!  I wouldn't have guessed otherwise had you not mentioned it.  Glad you liked the article.  It has been the best thing I have read out of all the links my family and friends have sent me.  Oh, and today is a mostly SE free day for me!  Whoo hoo!

  • tangandchris
    tangandchris Member Posts: 1,855
    edited December 2013

    spoomister-thanks for the article, I just shared it on my FB feed. There are so many things I wish I had known when I was dx'd. I'm learning all the time things I wish I had known. I literally knew nothing about cancer going into this, cancer had never touched me or anyoneone close to me. I had zero experience dealing with this and had no idea what was happening. I still feel like I'm coming into acceptance even though I've had my mx and corrective skin surgery and was dx'd 10/24/13. Anyway, I'm rambling, thanks for sharing the article :)Smile

  • RobinLK
    RobinLK Member Posts: 840
    edited December 2013

    Got heartburn this round, only have steroids given in IV pre-chemo. Called MO and got a prescription for Prilosec. I know it is over-the-counter, but it is less expensive for me by script. Working wonderfully, as the heartburn was getting worse by the day. Hair is almost entirely gone now. What a relief.... What is left is peach fuzz and baby soft. Pretty sure that will depart soon too. I do think my other hair has stopped growing, but I did have to trim my nails. Thought they would have stopped growing too at this point. 

  • RHGSR
    RHGSR Member Posts: 774
    edited December 2013

    hi everyone. Just wanted to drop in. Starting my first chemo tomorrow. Just looking around for tips or advice. Thank you. :0)

  • Mikesgirl17
    Mikesgirl17 Member Posts: 260
    edited December 2013

    Hi. I chew ice chips while I'm getting the actual chemo, not the pre meds.  I have been lucky as far as not having mouth sores and it might be because I do this.  I also bring a soft blanket and warm slippers.  Oh, and my laptop. You want to be as comfy as possible.  I wish you the best of luck.  Try not to worry too much.  I drove myself crazy with fear and it wasn't as bad as I thought it would be.

  • paloverde
    paloverde Member Posts: 179
    edited December 2013

    Spoomsister, wonderful article! It really changed the direction of my day today!  I had been kicking and screaming in protest over having to change my sense of self.  Great perspective.  

    RHGSR, please feel welcome to also come and join us in our Starting Chemo January 6 2014 forum! 

  • RHGSR
    RHGSR Member Posts: 774
    edited December 2013

    thank you ladies. It seems I'm closer to the 2014 forum date wise...

    Mikesgirl-yes ... I am petrified about tomorrow. Don't know how I'm going to sleep tonight. 

  • DJJ
    DJJ Member Posts: 229
    edited December 2013

    Spoomsister, thanks for the great article.  I loved it!

    I also have terrible heartburn since chemo.  My MO prescribe 40mg of Prilosec, plus I take a few Zantac during the day. 

  • Mikesgirl17
    Mikesgirl17 Member Posts: 260
    edited December 2013

    Fear of the unknown is the worst.  I hope you sleep. 


  • OneTexasDay
    OneTexasDay Member Posts: 162
    edited December 2013

    RHGSR,

    Welcome to the December sisterhood. Sorry you are having to join our little group but we will be happy to share what has and has not worked for us the past few weeks. 

  • RHGSR
    RHGSR Member Posts: 774
    edited December 2013

    so reading past posts on the bone pain , extreme fatigue, and mental fogginess... Any advice on how to go through this with little children? My older 2 (age 9 and 5) I'm not as worried about - they can color or entertain self while I rest... But I also have a 22 month old. I've had someone here with me (alternating someone's) since my DIEP on 11/20 because I couldn't pick him up. But a few weeks compared to 6 months (how long ill do chemo) is a different matter... 

  • tangandchris
    tangandchris Member Posts: 1,855
    edited December 2013

    RHGSR-we are very close in dates...I was dx'd 10/24 and my surgery was on 11/27...however I have no start date for chemo. I don't have any advice for you, just wanted to say hello :)

  • RHGSR
    RHGSR Member Posts: 774
    edited December 2013

    hi tangandchris!! Nice to "meet " you although of course I wish it were under different circumstances. I think when I first came on here someone messaged me with. "Welcome to the club no one wants to join". 

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited December 2013

    RHGSR

    Good luck tomorrow.  I took a full strength zolpidem (ambien) the night before  my first chemo. The premed cocktails really are so much more effective then the past.  Best advice I got was to take your anti nausea drugs regularity the first 24-48 hours easier to prevent the nausea then try to treat it once it starts. 

    Barbara

  • QuirkyGirl
    QuirkyGirl Member Posts: 383
    edited December 2013

    welcome RHGSR!   My second treatment is tomorrow. Truly, the fear of the first treatment is far worse than the experience.  My first was completely uneventful except for a little bit of tearing eyes and runny nose.  I'm in two groups (this and Nov) and find both helpful.  You may find the same thing true for the Dec/Jan groups.  You've found a welcoming wonderful place where you can talk about anything even your bowel movements.  Lol. Seriously!  So don't hesitate to pipe up for support or questions about SE.

    Welcome to you, too, tandandchris!

    Spoomsister - thanks for sharing the article!

  • Spoomsister
    Spoomsister Member Posts: 61
    edited December 2013

    You guys are all welcome!  Glad you liked the article.  I have Chemo #3 tomorrow, so I'm getting close to being halfway done!!!  Whoo hoo!  That just sounds crazy.  Time is flying by!

  • joanmj58
    joanmj58 Member Posts: 68
    edited December 2013

    Good morning all! At center getting treatment 2 of TC. The 1st go around minimal side effects. This time should be around 3 hours. Last time was 5 hours. With the neulasta shot last time was some bone pain. Taking Claritan before, during and after shot. Hoping for minimal side effects this time too. The fatigue last time lasted about a week. Best wishes to all getting treatments this week!

  • OneTexasDay
    OneTexasDay Member Posts: 162
    edited December 2013

    thinking of all of you having a TX round today..... Praying for min to no SEs for you all....

  • Warrior50
    Warrior50 Member Posts: 94
    edited December 2013

    Today is day 5 from my first FAC and I feel like I have turned a little corner.  More energy and no naseau this morning and I haven't had any meds this morning.  Never got the bone pain from the neulasta but took Claritin as many suggested.

    Good luck everyone.  We will be done soon!

  • KLI
    KLI Member Posts: 52
    edited December 2013

    Welcome to the new additions. 

    We have not heard from lorreymom or altbraves in a while hope everything is okay.

    Yesterday was so sore from neulasta it felt like more than bone pain seemed like my skin and muscles hurt everywhere. Thankfully better today, hopefully it wont be back like that. Still taking clariting in case.

    wishing all of you having tx no SE's.

  • jackieak
    jackieak Member Posts: 169
    edited December 2013

    Hi all,

    Very fatigued day yesterday, day 3, I have a constant headache, not a sinus one but just in my neck and temples since chemo last Thursday.   And my appetite is either very big or I can't handle the smell of any food.  Forced a short mile on treadmill yesterday just to get the body moving, the big C this time as well.  I will say the fog head is not here as with the first one, and my back ache is not as bad as the first one.  

    Spent the day in awe with how the hair just falls right out with just a simple touch.  Looking forward to my head shaving tomorrow and my wig fitting.  It's true, been waiting for the hair, thought prepared but still the tears come with it...told my hairdresser of 10 years I have spent thousands of dollars on my hair over the many years I have been seeing her, to only have it all end up on the floor!  Ironic isn't it.  

    Onward bound, gonna be a hat day!  My best to all today and I'm looking forward to 2014 and for all of us to put this ugly cancer crap behind us forever.

    Jackie

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited December 2013

    Welcome newbies!

    day 4 of 2nd tx...very achy yesterday, but feeling a bit better today. Thrush, but no yeast inf this time! Taking probiotics and maybe that is helping.

    I hope you all having treatments this week, do well!


     

  • joanmj58
    joanmj58 Member Posts: 68
    edited December 2013
  • dragonfly45
    dragonfly45 Member Posts: 25
    edited December 2013

    RobinLK, thanks for the tip.  i had my daughter use a beard trimmer on #1and it has made a world of difference. I have been putting oil on my scalp at night, which also helps.  i go Friday for my 3rd infusion only one more after that,(YIPPEE!) before rads start.   i have missed so much work that i am now into next years (ours begins in July) vacation time.  Everyone has been great at work and i can work from home on some stuff but not enough to make up the nausea days.  Just taking one day at a time.  Wishing everyone a Very Happy and Healthy New Year!

    .

  • charusa
    charusa Member Posts: 107
    edited December 2013

    Hi Everyone!One of my daughters just graduated from cosmetology school and she has been taking care of my hair since my first tx on 12/12. She washed it Christmas eve and there was more hair than usual in the comb. I have long curly hair past my shoulders. The day after Christmas it was forming itself into natural dread-locs....it was dying and it was hurting my scalp. One of my other daughters came over and we went to a wig shop since I was frustrating myself trying to learn how to tie a scarf on youtube. I absolutly fell in love with a wig and she bought it for me! Yesterday I had my hair cut very short and it feels so much better and I am able to sleep better. It is falling out here and there and I am gearing up for phase 2 where she will use the clippers and make it shorter but I feel good about. I let the tears flow yesterday and now ready to wear my wig and embrace the new me!!! Go for round 2 of AC on Thursday. Hope everyone is doing ok with their second rounds!

  • tangandchris
    tangandchris Member Posts: 1,855
    edited December 2013

    Question....what does claritin do to help with SE's?

  • RobinLK
    RobinLK Member Posts: 840
    edited December 2013

    Joan, love the picture! I think we have the same hairdresser! 

    Dragonfly, you are welcome!

    Charusa, good luck with round two. I have round 3 on Thursday. 

    Tangandchris, Claritin helps some people avoid the bone pain that can come with the Neulasta shot. 

  • Carol99
    Carol99 Member Posts: 116
    edited December 2013

    just got back from Dr., no chemo today, they think I have  the start of infection at my incision site on my left breast.  Going on antibiotics - pushed infusion to next Monday.  Frustrating to say the least!

    Well, at least I'll feel well for NYE!  

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited December 2013

    NEskir99

    Sorry to hear about an infection. Just think of it as a small bump in the road. Much better to treat it when your WBC is higher then after chemo dose. 

    Sounds like a lot if us are scheduled for this Thurs.  Round 2 for me.

    Day 13 and more energy then any day so far. 

    Barbara

  • RHGSR
    RHGSR Member Posts: 774
    edited December 2013

    I'm okay!! Well ... For the most part. Chemo started at 9 this morning. I'm at home now but just woke up. Fighting nausea, grogginess, and weakness - and still a little fear. I can't stand to be nauseated - it feels like car sickness.

    Tomorrow I go back for Neulasta. Ive heard the side effect is severe bone pain :0( so we will see how tomorrow goes. Thank you all for thinking of me.

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