How many of you got your ovaries out?

I am not sure about doing that if you tested negative for BRCA mutations. As triple negatives, our cancers are not fueled by estrogen, so estrogen from the ovaries is not a problem for us. Moreover, the estrogen has a lot of positives for our health. 

The recommendation now is for all TNs diagnosed before age 61 to have the BRCA test since TNs are more likely to have a BRCA mutation that would mean a considerably greater risk for ovarian cancer. But without a BRCA mutation, I'm not aware of a particular reason for prophylactic removal of your ovaries. 

The recommendation for all TNs diagnosed before age 61 to be tested for BRCA (regardless of family history) came after I had completed treatment. However. I am going to talk to my MO about it at my appointment next month. It was not deemed necessary when I was diagnosed as I have no family history of BC and I am not an Ashkenazi Jew. However, with the changed guideline, I may seek testing now. If I turn out to be BRCA positive, I would definitely have my ovaries removed.  But, if I am BRCA negative I would not. I do watch carefully for ovarian cancer of course -- seeing my PCP regularly and having the CA125 blood test and transvaginal sonogram regularly (which are not foolproof but at least help to keep an eye on worrisome developments). 

Triple positive here. Diagnosed Sept 2010 and finished chemo March 2011. Chemo took my period away and even though they told me since I was 47 it wouldn't come back, I knew my body better than that and it did. About a year later. I had the mother of all periods that lasted a month. I had a CT Scan which said I had an unusual thickening of the uterine lining. The GYN said I could have a D&C and they would also put an IUD in me and that would help...probably short term.  

It was ME who said, "How much would it lessen my chances to just have a total hysterectomy. The GYN Dr told me that breast cancer loves to go to the ovaries and if I have removed with my uterus it would most definitely up the ante on my side. 

That's all I needed to hear and I scheduled to have it done.

I am BRCA 1 positive and had my ovaries and fallopian tubes removed this summer.  I am 40.  If you have any questions about the procedure and recovery please feel free to ask!

this is of great interest to me as well. I have an apt with gyno on the 15th to discuss removing my ovaries. I am adopted so I don't know of family history-got triple neg a year ago at age 54. In Canada, they would not test me for brca as there isn't family background (as far as genetics is concerned, as far as I'm concerned, there could be) and I would have to be under 40,or develop another cancer to qualify for genetic testing. I'm totally frustrated and because ovarian cancer is so hard to detect, I want them out for peace of mind. I know I'm going to have a fight, so any stats I can gather prior to my apt. Is greatly appreciated. Chemo has put me in menopause and I've faired well with SE. I just don't see the need for ovaries if this is a potential cancer site and is hard to detect.