INSOMNIACS place to talk in the wee hours

Options
11981992012032041503

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2013

    Nicky, I was diagnosed with LE over 15 years, they want to minimize the current side. I say I still go for pain, but it's actually limited ROM. Have a bunch of scar tissue causing so much pain and discomfort. Just found a solution for me last week: heating pad to the affected area, gentle massage, immediate stretching. Told them today I wish we would have started with heat a while back. Plus, can't forget a full body massage to help the muscles compensating for the mx/recon probs.

    Yup, 80*+ outside! it's so pretty. Just can't talk myself into raking leaves or mowing the lawn - especially after feeling good after PT

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2013

    kathinec, please don't think of yourself as a coward, you were smart to prevent future possible problems. I wish I had that option. You can't beat yourself up for waiting too long that bc could have been worse.

    It amazes me how much bc f*cks with our minds as well as our bodies, 

    Enerva, hope you're feeling better and that the pain is decreasing or manageable, even if only a little bit. Hopefully you can get longer periods of rest soon 

    Sassy, 850's you say? WOW! Did you consult with Whippetmom for suggestions?

    Blessings, how's the weather there? Like the freeway analogy!

    Chevy, was once on a 100+ miles trip from LA area to San Diego on the back of a bike. It was cold and started to rain, got bronchitis and walking pneumonia after. (Plus, stopped dating that guy) have stayed away from bikes ever since. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2013

    PS - thanks to all my fellow Owlettes! Was bummed out coming home (especially on such a pretty day) and finding DH met with Jim (Beam) earlier, so I felt totally alone. There's always friendship and good thoughts on this iPad! Thanks!

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2013

    BTW anyone praying for Di's dad, he is okay now. It was a drug reaction. Remember I said if he said, he couldn't function, it was brain, heart, oxygen, BP, glucose or electrolytes until proven otherwise. Well, The only thing that was okay was his blood sugar. Everything else was seriously affected. The technical explanation would take forever. They won't know for awhile if his brain is okay. He's not right b/c of low oxygen from the hypotension-low bp- for too long. He was dehydrated and his electrolytes were way off. It took 2500cc to correct is fluid balance in ER.

     Di didn't call the squad from her car. She waited till she got to the house. How much delay time there was I don't know. I won't say anything to her b/c her quilt would be too much for her to deal with. In the situation minutes do/did  count. The ending thought is if unsure call the squad. "Displace the responsibility" to a higher authority to make an evaluation. Regretfully, this is a classic example of what I was trying to explain earlier. Bummer, but perhaps if any of you get into a "what do I do" situation, you may remember this and think 911.

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2013

    That is very good advice Sassy.... Geez, I'm glad you are on this thread.... Just makes us all feel safer somehow....!  Interesting about Di's Dad.... It's like Dominoes, when one thing goes wrong, and we don't fix it, everything else goes down...   WATER is so important to us.... Okay, I have to take my own advice now.....Loopy

    2ndTime...Oh man, I HATE Bronchitis.... plus pneumonia!  I did that once...  It's like your brain just quits working...  It comes in waves....  And you feel like you HAVE to get better, before you can die.....   It's just awful! 

    No.... no long trips....  We have to watch over Minerva...or Everready....which is it?   I think it is Everready, and she will GO when she gets the all-clear sign...Ha!   

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2013

    Maddy, as I said I didn't know about Whippetmom, I was registered on BCO , but hadn't spent much time here. The PS's practice was predominately breast work. Besides I had clearly stated what I wanted. The last discussion going into sx was 550cc. Then I come out with 850cc. My pain was immense b/c the expanders were only filled to 500cc. So the stretch on the pectorals was huge. Looking back I don't know how I survived it. That's why I suggest that the amount be written on the CONSENT. There would be no wiggle room for the doc to say he understood what I wanted. I probably could have / should have sued. Plus, have him do something to correct his screw up. But Dh was in the middle of chemo for Lymphoma and declining. Taking time to think of myself wasn't an option. Retrospectively, I should have made things happen for myself, but with all that was happening then my mind wasn't clicking. Dh's needs were so great, I just put mine out of the way. That's why I always spend so much time telling my story, in hopes it helps someone else.

    Sorry Dh met with Beam.

  • grammaB
    grammaB Member Posts: 1,172
    edited December 2013

    Hi Pawprint, it is mild here right now, just a tad above freezing.  We had a string of sub zero weather a few weeks back, don't want to see any more of those, though I would like more snow!!

    I used to live in CA,  moved here in 2004.  I lived up in the Sierras in the forest though so not so much sunny CA weather.  The snow in Winter was worse than here!

    I'm with the poke myself in the eye rather than go day after Christmas shopping crowd!!  I don't do Black Friday either!!  Not a crowd person at all.  In fact, I do a lot of shopping online for just that reason.

    Hugs

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2013

    Chevy, thanks you always make me feel so good. Love you for that XOXO sheila

  • grammaB
    grammaB Member Posts: 1,172
    edited December 2013

    Holy cow!!  I stepped away after I posted and when I come back, there is another whole page!!!  You gals are busy!

    Waving hi to cammi, Teka, Spookiesmom, and 2nd_time_around.  Nice to see you here too.  It will take me some time, but I'll get to know the rest of you too!

    I watch American Pickers and Hoarders too!!  Don't think there would be much of value in some of those hoarders homes!

    Chevy, my cat is Baby Boo.  Mostly call him Boo.  He is a rescue, I've had him 7 years and he still is traumatized from his first life.  Jumpy and afraid of any one that comes to the door. He goes into hiding for several hours whenever I get a delivery.

    Cammi, green pea soup with a ham bone cooked in it is delish!!  All the meat falls off into the soup!  And it is nice and thick.  I used to love it.  Can't eat peas any more since diabetes dx last year.

    Teka, I read a couple articles about that.  UPS is pointing the finger at all the online last minute shopping with promises of Christmas. I got zinged on some orders from zulily.  Promised Christmas delivery got one the day after, still waiting on another.  I see UPS's side, but they should have beefed up staff even more.  I won't trust those promises next year.

    My kids are grown too so not much to buy for them, but the grands I have to shop for. Not only do I have to get the gift to me, I have to put it back in the mail to them in CA!

    Sorry about the lymphedema & scar tissue!

    kathindc, I did a lot of reading here before sx, and a lot of thinking too.  I already have arthritis badly in both thumbs, bad discs in my back so I didn't want to add to those problems with se from meds.  My Mom died of bc so in a way I have been kind of expecting it for many years.  She had a damaged heart and the chemo basically killed her.  

    At first it was lumpectomy and rads; in a day or so I settled in to UMX, then though how would I deal with that; by about day 5 after dx, I knew BMX/no recon was exactly right for me.  I didn't want to be worried all the time about bc in the other breast and I really didn't want rads or hormones.  Chemo was never on the table. 

    I'm 64, widowed and not looking for another relationship so boobs really weren't something I felt the need for.  I have not regretted my decision for a minute.  It is so freeing not to have to wear a bra any more!  I go every where flat and fabulous!! :) I have several bras and 2 sets of foobs, but they feel so uncomfortable, I'd be self conscious in them in public.

    There is nothing cowardly about the plan we chose, in fact many may think we are extremely brave when that drastic a sx could have been avoided. I just wanted it to be done with in one surgery and no treatments after!

    Hi sas! Sorry you didn't get what you wanted size wise.  You would hope to think the dr is listening to what you say....guess not always true. Another reason I chose flat!  Love the fill in the scrotum idea!! 

    2nd_time, you might want to check out the Hermit thread too.  Great group of ladies there too.  I even went so far as to work grave yard shift at a local hotel after DH passed.  It was perfect.  Everyone said I'd fall asleep at work, that everyone did.  Never did!  I have a lot of good cyber-friends on my diabetes forum too.  I'm out in the boonies so not a whole lot of chance for in person socialization.

    Sorry DH has a problem with Jim Beam.  My dad was an alcoholic and life was hard growing up.  

    Hugs!

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2013

    grammab, yes, I would have love to have seen the Ps waddle around with 850cc in his scrotum. What a payback it would have been.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2013

    sassy, thanks for the update on Di's dad. How is she doing with all this? Sorry I didn't remember the Whippetmom thing, I can't keep my own life in mind any more. 

    GrammaB, a "tad above freezing" is mild? Yikes! I'd never get thru that! Give Boo some time, he may come around. I got an abused white Siamese (flame point) in 2001, when we would raise our hand to pet her, she would cower. She spent the first several years out of sight, hiding, would come out for food, water, litter box only when she thought we weren't around. Gradually, she would stay out of hiding (in the house) and would let me pet her. She's gotten way better over the years, she'd wait till I was asleep and climb on my chest (nose to nose with me) to sleep. With my DX last year, even got her sitting on my lap. With my favorite cat's passing earlier this year, she's become very social and talkative. Took 12 years! Thanks for the support, am fairly new to alcoholism, my DD is having a difficult time and as a result, she's doing a good job trying to make me "pay" for her hurt. Have checked out Hermit thread, I just can't keep up with two fast threads right now. 

    Think I'll go out for a couple hours, really appreciate you all, just need to be in physical proximity of people right now. Planning to be back in a couple hours 

    So grateful my PS was so concerned about my desires and followed thru as humanly possible as she could. She just wanted me to happy and for "the girls" to be as perfect as possible.

    BTW, would love to see that payback too! There's got to be some cartoon out there in cyberspace!

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited December 2013

    Hi second time around- I did do a bit of shopping yesterday in some of the small businesses in my city. I did a bit of on line shopping too. But the bigger stores and malls are not a place I will go until after the new year. I think the better sales come in January!

    Hi Gramma B- couple of folks here from the Hermits thread but a whole new group of ladies to get to know.

    I slept so well last night I OVERSLEPT and was late for work today. One extreme to another it seems!

    Wishing everyone here a peaceful evening.

  • chabba
    chabba Member Posts: 5,065
    edited December 2013

    Last week I saw a couple of UPS employees in our neighborhood making deliveries from a U Haul truck!

  • Teka
    Teka Member Posts: 10,052
    edited January 2014

    I've never as an adult felt stress free during X-mas!  

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2013

    Teka it,s over now friend.    Have a warm beverage and put your feet up :) sas sy. Kindle is doing autocorrect

  • Teka
    Teka Member Posts: 10,052
    edited January 2014

    Sweet Dreams!!

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited December 2013

    Pawprint – have you tried ThermaCare heat wraps? It’s like
    wearing a heating pad 24/7 – only there’s no cord to tether you to the couch!
    You get them at any drug store (or if you’re like me, Costco) unwrap them and the
    little buttons start to heat up, then wrap it where you need the heat the most. Velcro keeps it where you want it. It can get REALLY hot, and if so, you can wear it over your underwear. It stays
    hot for more than 8 hours!!! Been a lifesaver for me!! Hope your back pain goes away soon!

    image

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited December 2013

    Nicky – wait – you were awake all night on this thread
    then got up at 6:30 a.m. to start your day? Whoa! I’d be sawing logs for hours….
    Maybe til noon!

    Enerva – hoping every day gets better for you.
    Unfortunately, your New Girls can still be changing shape months from now.
    However, like Maddy said, you want to make sure your PS understands your
    concerns about pain and the appearance of your skin.

    Maddy – glad you had a good visit with Mom & Dad, but
    happy they have gone back home so you can get some rest, Darlin’!!! Too bad DH didn’t meet up with Bill instead of
    Jim. It was 70 degrees here on Christmas Day. We had to open the windows to
    turn the fireplace on!

    grammaB – there’s no rating scale here as to who has it
    worse. What you went through was as important to you as any procedure or any dx any woman had. BC
    tends to do that.

    Chevyboy – my DH is a drummer. Actually, he put himself
    through college playing drums in a band, then after graduation, when he started
    teaching, he kept on playing gigs with the band for 25 years. Then he stopped,
    but started up again a few years ago, for church, and some other small bands. What’s
    cool is when he plays in a Big Band trio for the nursing home residents – him on
    drums, his 92 year old dad on horns, and a 90 year old piano player. It ain't pretty, but it's fun!!!

    Camillegal – I always plan some exotic soup with my
    hambones, then end up making plain vegetable soup. That’s the kind we like the
    best, so why mess with perfection, right?

    Hi, IllinoisLady, kathindc

    Teka – good score for your daughter! As for the UPS &
    FedEx drivers, I feel sorry for them.
    But I get pretty cranky at the customers they interview on TV who whine and
    moan about not getting their packages in time for Christmas. Yeah, that’s
    irritating, and disappointing for little kids,  but is it a matter of life and death? Do they not know what else is
    going on in the rest of the world? Sorry, I saw some real crybabies on the
    news. SPOILED crybabies.

    Sassy – glad you got your pain party under control. It
    often does involve a drug smorgasboard, doesn’t it! Did you stay at 850cc implants? I got 700s, and I think MINE are heavy
    sometimes. 

    I think an 850cc scrotum as payback is a brilliant idea. Bwahahahahahaha!!!!

    image

    ~ ~ ~ 

    Last night I was on Pinterest instead of here… not as
    funny, but I did get some good ideas for organizing. Is anyone else a Pinterest
    addict?

    Still fighting the last vestiges of the flu, and kicking
    myself for rescheduling a hair appt for 9:30 am tomorrow! DH is fully recovered
    from his digestive bug, so he was all chipper and active today. I, on the other
    hand, took a 3 hour nap. Will try to go to bed early, so I can – GASP! – set my
    alarm tomorrow morning. I HATE doing that.

    Nighty-night, all!!!

  • Smaarty
    Smaarty Member Posts: 2,951
    edited December 2013

    oh SAS, love the scrotum idea. So funny. Sometimes after a fill and he says it just a little pinch, I'd like to stick a needle in his balls and say it's just a little pinch!  He keeps saying its a good thing that I have feeling there, apparently most are numb from the BMX.  Yippee, not me! 

    Whippetmom has recommend 600-650 for me. I'm sending her new pics next week at 500 and see what she thinks. I pretty sure I'm going to 550 but that's it. She's made a comment that the implants are larger than the TEs so I'm a little concerned about that. I asked my PS and he says he puts in what I'm expanded to. I still don't know what kind yet of implants yet. More talking to do and suggesting what WM says.

    GrammaB- I remember when they first started saying that lumpectomy was as good as a MX, that I'd do that if BC came my way. Now, I'm not sorry I chose BMX, my age (63) had a lot to do with my decision. Plus it was located next to my heart at the back of the breast. I didn't want to take the chance of having to go thru it all again.  The breast would have been badly deformed. I'd rather be flat and was comfortable with that for 5 months. If anything goes wrong after the exchange than I know I'll be fine being flat again.

  • Holeinone
    Holeinone Member Posts: 2,478
    edited December 2013

    Holy Batsleep ! I have tried to keep up, stay with the party...you guys are moving too fast for me. Last time I was able to visit, we were in  Ireland singing fight songs, when the pub closed....

    So...so..happy Xmas is over..I got a throat infection, was in Dr. Office early Monday morning, finally got a Zpak on Thursday, only because the oncology nurse went to battle for me, it's a never ending F;&@ing battle huh? Weird holiday, I bought nothing, watched my kids & hubby, cook & clean. I did start rads this week, 4 zaps down....

    To all in our sleepy group...good weekend...

  • Enerva
    Enerva Member Posts: 3,162
    edited December 2013

    Well 1am here, i thought i could endure the night with not meds. oh no no, pain woke me up lol  , boy it is hard to keep up with this tread, lol Thanks all for been here :) 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2013

    Blessings, the look in that nurse's eyes, get 'em good! Was really into Pinterest after surgery before I got into BCO, loved the food porn! Tried to look you up, too many Blessings out there, wouldn't know which is you! Lol! 

    Smaarty, almost wet my pants laughing so hard! Really appreciated the laugh today. 

    Holeinone, wishing you're feeling better really soon! 

    Enerva, only 10:25 here, will be awake for a while 

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2013

    H-I-1, glad your glad, and the throat/ chest bug this year is nasty nasty. Hope you don't get to worn down with rads. Zpak as you know is 2 the first day then 1 a day for 4 more days. This particular antib has the unique ability of maintaining blood level for two weeks if taken  in the 2/1then1 for 4 day pattern. If it's not taken that way it won't reach therapeutic blood level. What's neat is if after a 5 day lapse and symptom haven't improved you can do another Zpak and it will bump the level. So, let them know what your symptoms are as you go along.

    Blessings , glad you both are feeling better. I hate the "rumbly tumblies".

    Blessings and Smarrty Yes, I would have loved to inject the scrotum. Not sure how long after sx I found out what he'd done. I think it was when I found the paperwork and the product card. He may have told me in the hospital postop, but the versed was still working so I only remember snipets. I stayed wth the 850cc implants simply b/c I'd gotten through 4 sx's without infection. Didn't want to risk it. They basically just feel heavy now and fall in my armpits when I lay on my back. They're a bother, but not enough yet to risk sx. As I said before, I just don't want someone else being surprised. So, they are big and saggy. Instead of right and perky. When I see myself in a window, it's always an oh shit reaction. POOP on the PS's head.

    Off to sleep I hope. All have a good night If not see you here later.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2013

    nighty night, Sassy! Sweet dreams, we'll be here tomorrow (or later for you)

  • Holeinone
    Holeinone Member Posts: 2,478
    edited December 2013

    Enerva, I have enjoyed the lesson on motorbikes & photos...your surgery sounds so painful. I worry constantly that my lumpectomy was not enough, but that was the choice I made, hopefully a good one, certainly a lot easier than what you are dealing with..I had no idea, does anybody?, that I had so many nodes or nodal extension when I chose the lumpectomy. I am rambling, I hope your pain gets easier...pain sucks....

    2nd, I have Pinterest, but I just lurk....I do not know how to post, my DD & niece are on it, so I watch them & others...pretty cool...great ideas...

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2013

    Hi1, it's really easy! I went crazy with recipes (especially sweets, literally saved me thousands of calories!), there's so many others. I love the household and organizing tips, plus hobbies  (crocheting and fabrics), funnies, inspiration, pretty much anything. You say you have an account?

  • Holeinone
    Holeinone Member Posts: 2,478
    edited December 2013

    yes, my DD set it up for me when I was in surgery...funny thing, I just got this IPAD, & she asked me, while I was in recovery what I wanted my " name" to be for words with friends...I told her " head down", a week later, when I was ready to play words with friends, I was surprised or shocked it was on my IPad. No memory what's so ever, that I had chose that...going with the golf theme...as in hole in one...it's all seems silly now, stressful summer...

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2013

    Hi1,

    BC has a way of playing with our minds, not always in a good way. PM me if you want Pinterest help (it's actually as easy as BCO, but different)

  • mercedes24
    mercedes24 Member Posts: 14
    edited December 2013

    I think I will join  the club is 4.32  am Toronto time , and I am not sleeping ......... hot flushes are keeping me up for about a months now  around 3 in the morning I wake up   I am tiered,  I will be a zombie again tomorrow at work  I am pissed .My doctor prescribe me same gabapentin  I think I have to try that. Anyone any luck with this medication ?

  • waterbabytish
    waterbabytish Member Posts: 3
    edited December 2013

    SOMETIMES I WAKE UP IN THE MIDDLE OF THE NIGHT.  TONIGHT'S THE NIGHT  TONIGHT IS THE DARKEST NIGHT IN 500 years. Anyone else awake?

    waterbabytish


Categories