Starting Chemo January 6, 2014
I am starting my chemo January 6, 2014 - I am very nervous about it. I will be doing the following:
4 cycles (1 every 3 weeks) of Doxorubicin and Cyclophosphamide
4 cycles ( 1 every week for 12 weeks) Paclitaxel
then radiation (I don't know for how long)
then Tamoxifen for 5 years maybe longer.
Has anyone had this protocol before?
The doctor said I have a very good prognosis and I know I can beat it!!
Thanks
Comments
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Hi! I'm brand new here, and will be starting chemo in January as well! Sounds similar to you. AC for 4 treatments every other week, and then 12 weekly treatments of taxol. I'm very nervous as well!!
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Its a fairly common TX plan.
I did 4 A/C (Adriamycin=Doxorubicin and Cytoxan=Cyclophosphamide) every 2 weeks neoadjuvant and 12 weekly Taxol (Paclitaxel) adjuvant. For me, the A/C was not bad at all - Taxol was a whole 'nuther' story. But made it through and as nasty as it was I'd do it again in a heartbeat if I needed to. 4 yrs ago now I was close to being 1/3rd of the way through Taxol and here I am today - still NED (No Evidence of Disease) for IBC - that's great! For many though, its the reverse - Taxol not bad and A/C bad. We're each very different.
Write a list of all the questions you come up with in a little note pad with room for answers (I like using a steno pad) to take with you to Dr appts and to your Chemo Education Class. I don't know how all Centers work but at mine the Chemo Education Class is a 1 on 1 with one of the Chemo RNs and basically 'everything' is gone over and you will get printed info about the drugs being used and other general chemo info. Mine took an hour and was immediately before the first infusion. You will be give oral meds to take before and after infusions. These are to prevent nausea and allergic reactions. You will be given meds before each infusion also. I always had a blood draw before each infusion. I saw Dr T. before each A/C infusion and every 3rd Taxol. I had Neulasta injection the day after each A/C (but not with Taxol). This is to encourage white cell production. Brief time line for me - 2 weeks, 5 days after DX started A/C, 2 weeks after last A/C had a UMX, 3 weeks later started 12 weekly Taxol, a week after last Taxol started 25 rads, a week into rads started Femara/letrozole (estrogen blocker) which I will be on forever as it stands now.
Did your Dr talk about having a port (portacath) implanted for your infusions? If he/she didn't, ask. You will be doing 16 infusions and they are very hard on the veins. As you've had your surgery, they can only use the veins in your non surgery arm for IV. I don't know what sort of veins you have - many women have ones that are not easy to access so that can be a big issue with infusions. If you are one who has problems with blood draws etc - a port can easily be accessed for them. On the other hand, I have great veins, easy to access and I wanted to keep them that way so if Dr T hadn't insisted on a port - I would have. So Dr G. (my surgeon) implanted my port the day before first infusion. A PICC line is another option. Only you can know what is 'right' for you but ask, ask, ASK, educate yourself. You are your best advocate!
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Hi - I have been scheduled for a bone scan and an ultra sound next week. My oncologist does not think that there will be anything, but I am kinda freaking out. Are these tests routinely given? I would think if my oncologist suspected anything he would of a discussed this at our appointment? -
Sounds like those are routine baselines, desimone. I had similar baselines and I'm the healthiest person alive with cancer. ;-) The doctors want to be sure that the drugs they are giving you to fight your cancer aren't also taking out your vital body components (organs, muscles, and bones).
The bone scan is likely a baseline because your regime will be hard on your bones (osteoporosis (sp?)).
The ultrasound... is that an ECHO for your heart? If so, that is also likely a baseline because certain chemo drugs are also hard on the heart. They want to make sure you don't have any complications.
Once you start chemo, you will also likely get a complete blood work-up a few days before each treatment. That lets them know that your body is tolerating the treatments. If your counts are too low (or too high in some tests), they may postpone or adjust your treatment/dosage plan accordingly.
I always ask for a copy of my blood results each time I go in for chemo. They print a copy for me and it occupies some of my time in the chemo chair while I "dr. google" with my ipad to see what it all means. ;-)
Somewhere in the last three months I've become more patient with all the testing and poking and prodding that comes along with treatment. But it never stops me from asking questions. It is my body and my future. My doctors, PAs, and nurses, have come to know that I feel better about it when I understand it. Everyone has their own knowledge comfort zone. Mine is to know as much as I can, pray a lot, and realize that faith is seeing the next step but sometimes not the whole staircase.
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You do start feeling like a pin cushion with all the prodding and pinching. All those tests are normal, just setting up baselines. I exercised prior to the initial treatment, but I always exercised. I felt that being Active really helped. Plus once I was in treatment I seeked out groups, any help I could get that would help me get through this. The unknown is the scariest. This is the eye of the storm, you will get through this. -
So can we make this the January 2014 Chemo Sisters forum?
I'll probably start the week of Jan 13. Sequential AC-T for me also, I don't know if my onc has dose-dense plans for the AC or not. Will see her on the 2nd and know more.
Biggest worries right now are equally 1) physical side effects, particularly those that may become permanent, and 2) career impact. I work for a large company with good resources, and have a strong track record and supportive bosses, but also a very competitive workplace and a male-dominated function. It's hard for me to take the long view right now regarding either (1) or (2).
On the plus side, I have a great husband (although his job is demanding), daughter old enough to (mostly) take care of herself and also pitch in, and no local family but lots of local networks. So we shall see. 2 weeks ago I was scared to death about possible complications with the BMX and TE placement, but that's actually been pretty smooth - SO FAR! I probably shouldn't tempt the gods.
Looking forward to getting to know you all. Have a great holiday week.
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I'm an almost January starter: my first chemo is 12/27. I have Stage IIIB, IBC, am triple positive, and, luckily, only one lymph node is involved. I'll be receiving Herceptin, Perjeta, and Taxone. Like everyone else, I'm wondering what this trip will be like.
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I am beginning chemo January 3 with the exact same plan. I am a little nervous but I went through it with my mom 3 years ago so I know a little of what to expect. I am preparing for the hair loss, I will cut off my ponytail next week and then take it from there, I want it to be gradual and not all at once. I am also buying tons of cute hats and comfy clothing so I will feel good.
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I am starting Chemo on January 3rd. I am doing two rounds of AC with the possibility of something added at the end for 12 weeks. My husband and son were with me and none of us can remember. We were all overwhelmed. We had gotten the PET scan back that showed no further cancer. There is just so much to take in we are all still reeling. I was diagnosed on the 6th of December. It will be good to share the chemo journey.
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tekwriter, I can so relate to the "reeling."
My dx goes back a month earlier than yours, but everything was looking so good for a Stage I or II, and the Stage III+ finding was a surprise that's only a week old (Dec 19). In fact, the 11 positive nodes were so unexpected that they rushed me in for scans to make sure it hadn't gone to Stage IV.
Fortunately, it appears to be a pretty "clean" Stage III if there is such a thing - no malignant nodes still in place and no mets that they could see. And we found that out on the 23rd, in time for Christmas.
I'm sure it was a similar relief that your PET was clean; good news!
I've never had a serious illness before and had no idea how many degrees of "good" and "bad" news there are, and how it's all relative. It's been a crash course for sure!
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January Chemo sisters...
I just want to come by and say "good luck" and to let you know, as scary as this is, you can do it! I am not suggesting it will all be ice cream and lollipops, but you can do it. Some of you will be able to work right through it, some will not. Some will feel pretty good, others, not so much.
But all of this is temporary--- I went through chemo in January 2009. I wore the same clothes (in my least favorite colors) to each treatment (then trashed them when I was finished). I got a fabulous human hair wig to wear to work and tried hard to rock that--(not sure I did, but at the time I FELT that I did, and that was all that mattered).
I had 4 tx of AC-- treated on Friday, usually did not feel great on Sunday/Monday-then Tuesday was a low day, then I bounced back on Wednesday most times. I was out of work for 2-3 days per cycle--my cycle was every 2 weeks so I was done in8 weeks-- still felt like a long time as I was going through it.
My recommendations: Take all the nausea drugs they recommend--I tend towards nausea, so I was religious with those--drink lots of water/gatorade, etc. I found "white foods" helpful for nausea--pasta, oatmeal, etc.
Some people can exercise--I am a regular exerciser, but I gave myself the 8 weeks off during chemo--when I was not at work, I slept--only went out if it was a kids' school thing..... really tried to turn down the noise in my life...... it was winter and cold and snowy, so I often just lit a fire in the living room and sat..... As for hair, I shaved it in February and started going wigless (with very short hair) in late June (I know I always wanted a timeline so hopefully this helps you).
GOOD LUCK!!! YOU CAN DO THIS!!!
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Awesome, momand2kids! Thanks so much! That is the second time I've heard the advice about never wearing your chemo clothes again, to cut down on painful post-chemo associations down the road. Makes sense!
I wanted to ask
those of you with BMX and TE's if your PS seems to be rushing to do as much fill as
possible before your treatment started. I will ask more when I'm there
Monday, but his PA made a comment this past Monday sounding like that
was the plan. She said they like to get as much filling out of the way
up front as they can so they don't add complications to the chemo
logistics, although someone else in the same practice said they WILL
continue your fills during chemo as needed, they will just want to check
your blood counts first and try to schedule for when they're not at
their lowest.This sounds rational, but I'm worried about
unnecessary pain from filling too much at a time, particularly just 2-3
weeks out from the BMX, and if it coincides with sutures being removed. I was too
tight for any fill on sx day, and had 60 cc per side 11 days later (4
days ago). Whole area just feels bad, with the combination of
everything. Tylenol 1000 mg is keeping up with it (I stopped the
Percocet/Valium a week ago), but don't want to ask for trouble esp.
since I'm trying to go back to work in a week.Thoughts? Thanks in advance and enjoy the rest of your Christmas week.
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Hello January 2014 Chemo Sisters! So happy to meet you all and complain together, problem solve, share helpful hints, etc. I am 37 and have 3 little ones, 2,5,8yrs. I just signed the baby up for daycare because even with the community support after the mastectomy it was pretty rough.
My husband works a lot and I have been working on our nonprofit for 2 yrs now as executive director in my spare time. I have some help from our board but we dont pay anyone at this point, lol. Anyways, I suppose the Big Guy thought I could carry this too. I do a bone scan, port, expansion, and chemo the week of Jan 6th...first ac infusion on friday the 10th.
My PET was clear but a thorasic mri showed something in my 7th vertebrae that the bone scan will pick up if mets. Anyways, cheers to your cocktails and drink your wheatgrass, kefer water, and smoothies to stay strong! Xo, Steph
Can we rename this topic by any chance and make it official?:))
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Hi! Sisters! I am another new one. I just done with lumpectomy and lymph biopsy. Those came back all negative margin, not even in lymph nodes!! My doc called me before he took off for his holiday vacation. That was a wonderful christmas gift! Still, of course, my Chemotherapy has been scheduled on Jan 9th. I am triple negative so, A/C and taxol is the way. I already got port before my lumpectomy. So, I am just waiting for the day. Honestly, I am scared and worried. I am telling people, I will be fine and I am not afraid of chemo at all! I am just trying to be positive and trying to kill those busters!! My friend find this website and discussion board so here I am, I find you sisters! Let's fight!
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Hi guys,
Something I noticed on all the threads is that everyone seems to be getting ports. My doctor said it was only if the nurses had trouble with my veins and they took a look and said 50/50 but I chose to start without the port and see how it goes. Are there advantages to the port??
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As much as I would LOVE to avoid another surgical procedure while preparing for chemo and still healing from my BMX, I'm very motivated to have the port. I have only one arm available now due to the node removal, and I have teeny tiny veins. It took 3 different IV sites to get me through a day and a half in the hospital for my BMX.
These chemo drugs are apparently very irritating to the veins, plus there will be so many blood draws taken for different reasons. My friend the oncology nurse says people who don't have a port wish they did.
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Stephaniegee,
I got a port even before my lumpectomy. My oncologist told me I have to have one. The advantage of the port is it will be easier for not only Chemo but also other IVs, regular blood draws and transfusions if I need during or after the Chemo. They told me the port can be stay as long as I feel comfortable to have it, like years. One nurse told me some people keep it like 5 years. Also, it helps to avoid delay. When nurses have hard time to find a good vein for anything, blood draw or infusion or anything, they can use the port. So they don't have to give you lots of puncture on your arm. Also, this could be the one of major reason to have port that it will lower the risk of "extravasation." When an IV is used, medications are more likely to leak (extravasate) into the tissues surrounding your hand or arm. Since many chemotherapy medications are caustic to tissue, a port can reduce the risk of inflammation related to leakage of these medications. Additional advantage can be you can take bath or swim. Since a port is completely under the skin, you can usually bathe and even swim without being concerned about the risk of infection.
Of course, there are risks to have port too. But, those are often very minor. Like, the port may stop working caused by clots as example. Also, infection can be risk but it seems much less than you get IV. Even though you can bathe and swim, but your upper limb activities will be limited. Dr will discourage you to do lifts heavy weight. Once you get used to have port, you can lift groceries and some weight in my opinion and experiences. I got my port on my left which usually people get on the right. I got on my left because my surgery on my right breast was scheduled just 4 days after the port surgery. So, after my lumpectomy, I needed use my left arm. And, it has been much better than I thought. I still have to be careful though. Since I was working as a Nursing Assistant at nursing home and it require physical heavy lifting, I had to take long leave (FMLA). It is sucks because everything else I feel fine and have lots of energy after the surgery. I may have to change my career that I don't have to use my upper limb because I am not sure how long I have to keep the port.
So, there are lots of advantage if you get strong chemo like ddAC and taxol. You should ask your doctor about it. There are many people get Chemo without port too. And there are reason for that.
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Adding my name to the list of January 2014 chemo sisters... I start on 1/9 with 4xddAC followed by 4xddTaxol. Diagnosed on 12/6 at age 37, and have at least one positive node (possibly at least three or more based on MRI), so I'm starting with neoadjuvant chemo, and will figure out surgery later. I'm going to try the Penguin cold caps too. Hopefully keeping my hair will allow me to keep a little bit of the old me during this crazy time. (The old me -- I am going to miss her!)
I'm also getting a port, which goes in on 1/2. The thought of it is freaking me out a bit, but it should be better than constantly getting stuck with needles.
Anyone else doing neoadjuvant starting in January? I'm curious to see how much my tumor and nodes will decrease in size over 16 weeks and wondering what the doctors will ultimately recommend for surgery. Hoping to avoid a full axial dissection if possible, though am pretty freaked out by the cancerous nodes.
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I have had no surgery as yet other than the portal implant. I am still having difficulty with all of the terminology. I am still trying to figure out what an MO and a DMX is. I have heard of the cold caps but no one has said anything at the hospital do you do those on your own? I had my port put in a couple of weeks ago and it has not been used yet. It does take a little getting used to. I go on Tuesday for some more testing and I will let you know how it goes.
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Hi everyone! I'll be starting my chemo journey 7 January, sorry that you all have found yourselves in the same boat, but really glad for understanding company. I'm 40, active duty Army, stage IIb triple negative. I'll be doing 4xdd AC and 4 x dd Taxol. I already had a left side mastectomy ( 4 December). My tumor grew so fast it caused an abcess. When the surgeon went in to drain it he took biopsies "just in case". Good thing because 2 days later (Nov 20) we found out it was cancer. Married to a great guy, have great family support. I know it sounds weird, but I'm really anxious to start chemo! This cancer stuff is the scariest thing I've ever faced and if chemo kills it I want it! Nice to "meet" you all!
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Ladies I just popped in to welcome you all to the forum. You will find great support here, as well as tips, love, and laughter.
I started chemo a year ago this month. I had a mastectomy (left), 4 Adria/cytoxan (every 3 weeks), 12 weekly Taxol, and 30 radiation treatments. I finished treatment in August.
Stephanie please ask for a port, especially if you're getting Adriamiacin. It can leak from the vein and cause dire consequences. My infusion nurse told me it happens much more often than they like to admit. Besides getting your chemo through the port, they can also do all your blood draws, and if you need dye for scans they can use the port to administer that too.
Here's a link for all the abbreviations you will see on the threads.
http://community.breastcancer.org/forum/131/topic/...
Put on your Fighting Boots and Slay This Monster!!!
FIGHT LIKE A WARRIOR
Paula
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I'm not sure why they wouldn't give you a port, it's really easy from what I hear and have seen from other women/friends who recently when through it. What is your regime and dx maybe they are thinking it won't be as frequent or long? The port is nothing like a mx...its done under sedation like for a colonoscopy and takes a total of 30 mins on the table.
If you can I would, but it sounds like they might have reasoning behind that, call and ask. Do you have an advocate? I have someone join me for every appt to think of questions I dont and take notes, preferably someone who has been through it.
Also, I looked into the cold caps and there is some controversial topic of the chemo actually staying in the hair follicles even after treatment. I had the thickest hair I have or any sylist has seen, long and beautiful but cut it off two weeks ago because I can't take care of it with one arm, lol! I don't miss it, and I don't care about my "frankenboob"...this crazy aggressive cancer blindsided me and my family at 37yrs and at this point all I can say it so be it. I don't have control over this...God has a bigger and better plan than I could ever imagine and if this is how I get to it then I'm game!;)
Lots of love, Steph
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Fantastic attitude, myra104! I have 11 positive nodes as well, which was not expected.
So you had multiple tumors, with differing hormone receptor statuses?
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Tekwriter. There is a Cold cap forum that can answer a lot of your questions. Cold caps have been used in Europe for some time but only now are getting traction in the US. There is a clinical trial right now in NY and CA for a product called dignicaps. Many of us used the penguin cold caps. You can google it and get a lot of info. I am 7 weeks past chemo (taxotere-cytoxan) and have a full head of hair. The drs and nurses are slow to encourage it right now. It's expensive and as my MO said. "Quite arduous". But worth it for me. Good luck with your treatment!
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Looks like I am joining the ladies starting chemo in Jan 2014.
Port on Jan 7 and first treatment Jan 16.
Sorry we have to be here but glad for the support!
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Yes, I believe my grandmother had bc that moved to her head but she never went to the dr and wasngone from it at 73. I will be doing the brac testing next week.
Also a bone scan...a thorasic ct for an old horse accident a year ago november just showed a growth in my 7th vertebrae so really really praying not mets.
This was fast and furious, my largest node was 3.2 cm with and extention outside of the capsule almost completely replaced with metastic cancer.
I wonder what next November will bring, lol!! It's been such a crazy emotional ride but mostly my attitude is that I have to keep living my life, yeah it sucks sometimes and I could clean up a couple bottles of vino pretty well everyday but thats not how I want to do this:) ya have to put your big girl panties on eventually and make it the new normal.
Xo, Steph
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Saw my BS this morning. We're scheduling port placement for this Thursday afternoon. I'm nervous about doing it on short notice, but probably best to get it out of the way before returning to work on the 6th. Otherwise, it could have knocked out a whole work day next week.
He stated 95% of the time it drops right in on the side they choose, 5% of the time it doesn't and they have to try the other side, and 1% risk of a collapsed lung (pneumothorax from an accidental puncture, I presume). Sounds like low odds, but I'd rather get any complications out of the way this week.
And, this Thursday morning is my MO appointment, so should find out more about the overall treatment plan at that time. I have LOTS of questions for her.
Happy New Year to all!
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I went for my MUGA and bloodwork today. I go back to start Chemo on the 2nd. they had told me the 3rd to begin with. Found out they are having trouble with insurance paying for Neulasta shot. I am going to have my husband try to call I guess. I don't know what to do. We can absolutely not afford it.
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tekwriter~~If your insurance absolutely won't cover Neulasta, ask your oncologist to let you get your Adria/cytoxan every 3 weeks instead of every 2. You won't need Neulasta, because you have an extra week to bounce back before your next treatment.
There's another good reason to get it every 3 weeks as opposed to dose dense. It's less likely to cause weakened heart muscle, and pre-leukemia down the road.
Many of you may have heard that Robin Roberts of Good Morning America had a bone marrow transplant earlier this year for pre-leukemia. It was caused by the dose dense Adria/cytoxan she received in 2007 when she had breast cancer.
My onc gives it to all her patients every 3 weeks rather than dose dense.
Best wishes
Paula
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Oh my that is some news. I will be seeing him first. I have no relatives except my sons, so I don't know what the heck I would do if I were in that boat. I just know I cannot allow the bills to run up too much. I have double insurance and I know that we will have to pay out of pocked but I cannot start the year with a 24k bill I have no way to pay. Thank you so much for your answer.
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