In so much pain and treatment hasn't even started
Hi ladies, I was diagnosed officially on dec 2nd saw breast surgeon the following week and had mri yesterday . Bs says she recommends chemo first because tumor too big. I asked her about all the pain I'm in and she said that its most likely because the cancer has spread. I don't see oncologist until next Tuesday and then have bone ct scan the following day. When they made my appt with oncologist i made a comment that i guess my situation is not urgent because it was scheduled a week out. I'm trying to stay positive but being in so much pain I'm starting to think that i may be dying as the minutes go by and I not know it. My whole upper body hurts my back my chest and i get cramps in my calves. i don't mean to offend anyone with the talk of death but with the pain it makes me scared and I'm afraid something may happen before I even get a chance to start treatment and fight this disease.
Comments
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Hey Garlikbread - You are not offending anyone and I am so sorry that you are in so much pain on top of this diagnosis. There is a thread for women who are not stage IV but who have questions. The women there are wonderful and if (IF) your cancer has spread, they might be the best able to answer any questions that you have while you're trying to get through this waiting period. I am sending you just a ton of hugs. Also - has your doc prescribed anti-anxiety meds and pain meds. It doesn't seem to make any sense that you would not have these things. -
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hi tect thanks for responding. yes I've had the pain for about 6 or so weeks . the pain was what initially got me to the dr then i asked her to feel my breast where mass is. When my blood work came back they suggested that I may have an auto immune disease and my liver enzymes were elevated, low vitD, low iron. I must admit that it has gotten worse since finding out. Before diagnosed pain was at a 7/8 now it's like 10. Some days I feel like I need to go to er. -
hi ziggy yes they gave me Xanax and lortab but the lortab works for like an hour. All this is just so surreal. I went from a person who never takes any meds including over the counter, I counted my blessing throughout the years because I never got sick and now I'm depending on meds just to physically get out of bed or sleep a few hours. It's like a dream. Thanks for allowing me to express my fears. -
garlik, I am sorry your surgeon said to you that there was a possibility that cancer had spread...you have enough to stress over without thinking the worse from the get go. After my biopsy, I was in a very weird state of pain, anxiety & distress. Some days it felt like my legs did not work...your symptoms are real but until you have surgery, they do not know the extent of the cancer & cannot stage you..
Good luck, join a thread for Jan. chemo women, or whatever your situation becomes. It is so helpful to converse with women that are going through the exact same tx or surgery. Post away, you can rant, whine & be honest with with your feelings. Family & friends are wondeful but they are not living it. -
thanks holeinone. Yes bs is the one that told me I'm 3b. Says she based it on mass size and positive auxillary nodes. I will look for jan group. Bs says i should do. 3 rounds of chemo then surgery... -
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thanks tect that makes me feel better mentally. I pray that throughout this process I become as educated about bc as you gals are -
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lovely story tect, thanks! -
Garlikbread...let me echo the others about anxiety and the fear factor. That is one thing we all have in common other than the BC Dx. Even though we are all different stages and grades we all still have the C word. You are, believe it or not, in the worst part of the process - the unknown. Once you go through the surgeries/treatment plans you will at least know what you are dealing with. This forum was and is my lifeline and it will be yours too. Holeinone nailed it when she said support is great and you will need it but they aren't living it. There is a wealth of information on this website and all kinds of links to specific questions. Your doctors will inundate you with information so if you can take someone with you to your appts to take notes and moral support. Remember BC is not the death sentence it used to be. Keep the faith and keep us posted. Diane
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Garlikbread...just saying hi and welcome. Sorry for all the fear and such harsh words from your BS. Our minds go on over load and having such a comment made would be overwhelming on top of it all. We're all here for you so please let us know how your ct scan goes...hoping all is clear!! -
So, so sorry you are experiencing this, and because you are so young, if you haven't yet contacted them, the Young Survival Coalition may be a good resource for you.
There are probably women in your geographic area who are active with YSC too.
Good luck.
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Hey, just so you know, I had a lot of unusual pain before starting treatment. My breasts just hurt for no real reason, and my biopsy site remained sore.
A non- onc physician said to me, well cancer hurts and I freaked out.
It was really the sore biopsy, stress, and an abrupt hormonal shift, but it sucked at a scary time.
So yes it could in theory be mets, but is could also have other triggers.
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In the few months before my diagnosis I had noticed I was in a lot of pain.... everywhere. My legs were weak and in pain, my back, neck, arms, shoulder. I was wondering if it was because I was just getting older as I had just turned 58. Then when I was diagnosed, I thought, how can I go through this treatment. I will never be strong enough to fight this. I think when that cancer is in you, your body knows and reacts to the inflamation of the cancer, and you hurt all over. I did notice that after the surgeries and treatment that pain went away. Now it's new kind of pains from arthritis, and residual bone pain from chemo and hormonals. I do feel healthier than I did before diagnosis. Treatment was not as bad as I feared it would be either. I was given anti nausea meds to prevent nausea, and just took over the counter analgesics for aches and bone pain from the chemo and rads. I was also given an infusion of Ativan along with the chemo infusions and that relaxed me too. So it is all doable and you will get thru this, and your team will address your pain issues as you go along.
Oceana
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garlikbread, I am so sorry, I saw that you posted on the stage 4 forum...heartbreaking for anyone & you are so young...I have nothing inspirational....I am just so sorry...
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I agree with Tshift. I had a similiar situation as yours and as soon as I knew it was BC...every pain, ache and twinge was cancer spreading...it wasn't. I felt the sameway, they are putting off seeing me and I'm dying in the mean time. Let us know how things go and I'm sorry you've had to join us here. Sending you hugs sweetie.
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I agree with the other ladies. I am hypersensitive to every new ache and pain now and don't know what's normal anymore! Once you get some scans you'll have a better idea of what you're dealing with and you'll feel more in control. The waiting part is the worst. Once you get a course of action you'll feel more empowered.
Keep us posted!
Sharon
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