Need advice (also posted on newly diagnosed)
Hi,
Four months ago, my best friend passed away from breast cancer at the age of 43. It was a long rough road, and I'm still having a hard time believing she is gone. Just a few days ago, my mother had a biopsy on her right breast after a suspicious mammogram showed spots on both the right and left breast. She has now been diagnosed with breast cancer. Here is what I could get from her pathology report:
"Less than 25% of the cores contain an infiltrating ductal carcinoma. It is at least a grade II with an estimated SBR score of 7."
"ER, PR and HER-2/neu will be determined on a different report."
Here is where I need advice because I'm not sure that I'm able to be completely rational at this point. The doctor said they would do a lumpectomy on the right breast and get "clean margins". They will also check her lymph nodes and if there is any spread to the lymph nodes they would remove those too. They have not biopsied the spots on the left breast, but said they would wait 6 months and keep an eye on it.
In my mind, they are being very very conservative. My mom hasn't gotten any other information besides what is listed above. She has an appointment with the surgeon tomorrow and I would love to know what questions she should ask. I would like to know how they determined the lumpectomy (vs. mastectomy) as the course of action. I would also like to know how they can determine that course without information on what is in the left breast and lymph node involvement.
What questions should she ask the surgeon so that she can be her own advocate for her treatment? She is not opposed to a double mastectomy just to be extra aggressive if that's a possible option. What questions should she ask the oncology team? What information does she need to understand exactly what she's dealing with.
Any thoughts on important questions to ask would be really helpful.
Thanks,
Steph
Comments
-
Because it is at least Grade 2, I would suggest a more aggressive treatment. And I absolutely think they need to biopsy the other breast ASAP. -
You need to know the ret of the pathology - estrogen receptor positive or negative? Progesterone receptor positive or negative? Her2 positive or negative? That can affect whether they need to do chemo,and what kind. Also it may affect whether they do chemo before or after surgery. If triple-negtive/high-grade/fast growing, they may want to do chemo first. -
sorry, I may be late, but wanted to chime in. The decision for a lumpectomy vs. mastectomy should ultimately be left to the patient instead of the doctor. I would also push for a biopsy of the other side as well now instead of waiting 6 months--this could also play a role in the decision for the type of surgery. If you haven't gotten it already, ask the doctor for the latest pathology report--it should have the hormone receptor info, which will play a big part of what's next as well as decisions about the type of surgery and treatment plan. -
I agree with Cuetang about the decision to do a lumpectomy vs a MX...I was wondering the same thing. How have they already decided that? It is after all your mother's decision. Also, definitely check out the other breast...none of us believe in the wait and see. diane
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team