Husband Issue - Request for Advice

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I recently passed my third anniversary post treatment (mastectomy, chemo, chemo, radiation, second mastectomy). Maybe I'm the only once facing this problem, but my husband (of 34 years) is still unable to accept the change in my body. He can say hurtful things, i.e., referring to my chest as "deformed," and I don't know what to say or do. I'm not going to get reconstruction. I went through such rough treatment that I am happy to be alive and relatively healthy. Does anyone have any advice?


Patsy

Comments

  • wrenn
    wrenn Member Posts: 2,707
    edited December 2013


    i would talk to a counsellor. Well truthfully i would toss him but after that many years there must be things about him you like so counselling might help you deal with his poor treatment of you. So sorry you are having to deal with this. I hope you have other supportive people around.

  • Racy
    Racy Member Posts: 2,651
    edited December 2013

    I agree,if you want to save the marriage, a counsellor can help you work out how to respond to those insensitive, hurtful comments.

  • Ariom
    Ariom Member Posts: 6,197
    edited December 2013


    Wow Patsy, that's a pretty mean way for your husband to speak to you, but I really admire you for not bending to reconstruct, to make HIM feel better.


    I can't imagine what makes someone think that a comment like that will be anything but hurtful to the recipient. When it is your Husband, it is just inexcusable. Was he supportive through your Dx and treatment?


    I don't know about you, but if it were me, I would be so turned off him after that, that he'd be feeling the chill. Big time! I'd have a hard time communicating with him at all.


    I'm sorry, I don't have any advice for you. I do feel for you, after what you have been through, having to deal with the person who should be your rock, reacting that way to you, must be awful.


    As Wrenn said, I too, hope you have other supportive people around you.


    Sending you hugs across the ocean!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2013


    When I was 20 my mom had her first mastectomy. Just a few days post surgery she was emptying a drain. I heard my dad say, "Put a shirt on. I can't stand looking at you like that."


    That has stayed with me for nearly 30 years and was in my mind and on my heart when I chose to have a BMX. Thankfully my husband did not react that way and has been supportive.


    My heart breaks for you. Please do not believe him and please do not tolerate it. It IS a difficult adjustment for you AND for him and I think the right counselor could make a big difference. But what he said to you is disrespectful. Be sure that he knows how his words make you feel. If he continues after that....purposely hurting you...then you'll need to figure out what's next. So the question is...is he just clueless, or is he deliberately hurting you?


    Sending you a virtual ((((hug!)))))

  • Momine
    Momine Member Posts: 7,859
    edited December 2013


    He needs to shape up. That is not OK. I think you need to tell him how hurtful it is. Perhaps you could ask him to imagine that due to illness, he lost an arm or his testicles (it happens). Then ask him to try to imagine how it would feel if you made hurtful and disparaging remarks about his new configuration.


    It IS a big change, and it is weird to have to get used to, but he needs to man up here, in my humble opinion. He married you, not your boobs.

  • edwards750
    edwards750 Member Posts: 3,761
    edited December 2013

    OMG Dulcigirl what an insensitive and cruel thing to say to your mother. Just wondering did you ever say anything about it to your father? My parents are no longer living but I cant imagine my father ever saying anything so disrespectful to my mother. What he might have said, and by the way she had BC and a MX, was for we kids to not cry therefore he could stay in denial about how serious the situation was. It was somehow giving in to the DX.

    peverson - Insensitive and cruel doesn't begin to describe your husband's remarks. At the very least, whether it does any good or not, I would tell him just that. I am sickened by the people who think we somehow asked for this disease and like its a picnic for us dealing with surgeries and pain and treatments. Its almost like we have leprosy. I have distanced myself from people I felt like I had to almost apologize for my fear or anxiety. Since I was dx the only people I shared my innermost fears with were a friend who went through the same thing and my sister and even with my sister I held back sometimes. I think we all understand no one wants to hear about our ailments non-stop anymore than maybe we want to hear about theirs but what we do expect and deserve is sensitivity and understanding. You have enough to deal with peverson and you have every right to expect support from the people who claim they love you. Good luck. diane


  • peverson
    peverson Member Posts: 55
    edited December 2013


    Thank all of you for your encouragement. The surprising thing is that my husband was EXTREMELY supportive when I went through treatment. I truly couldn't have gone through it all without him. I've tried talking to him, but he's withdrawn, as he always does when I say something that he doesn't like. I suggested that he get some counseling to learn how to accept my body, as the old one isn't coming back. At least I know that my feelings are OK.

  • msphil
    msphil Member Posts: 1,536
    edited December 2013

    I,m sorry for your husband cruel comments, my hubby was very supportive, and was even the one to look at my chest before I did, I would also suggest counseling for you two, it may be he doesn,t know what to do with his feelings. msphil(idc,stage2,0/3 nodes, L mast chemo and rads and 5 yrs on tamoxifen) 

  • eric95us
    eric95us Member Posts: 2,845
    edited December 2013


    From a husband....


    Tell hubby the comments aren't helping...perhaps he thought (thinks) the comments will give you a laugh and doesn't realize it's doing the opposite. Also, he may be emotionally worn out and not sure what to do next... It is very emotionally draining to be "the rock".


    When fiancee was sick/in hospice we had very little emotional support from the outside...long story.


    So, we had to do it alone and draw strength from each other. Her hand touching mine, a hug, a kiss, genuine how are you doing question, a smile, a thank you, a shared tear or two and even just my feeling that my being around allowed her to relax a bit....all of this would give me strength. I couldn't have been the rock without her help.


    And now, my wife of 25 years with stage 3, grade 3, lots of nodes, etc. BC, I couldn't be the rock without her help.

  • badger
    badger Member Posts: 34,614
    edited December 2013

    Patsy, sorry your husband is saying hurtful things.  Perhaps a visit to the Scar Project website would change his perspective.  Here's the URL, click into "images".  http://www.thescarproject.org/   Breast Cancer is not a pink ribbon.  Reality is powerful. 

    My DH heard a story this week about the Scar Project on NPR's To the Best of our Knowledge and called me, all choked up, to say how proud he is of me and how much he loves me.  I wish everyone had that kind of support.

    Dulcigirl, that comment and the thinking behind it must've caused your mom a lot of heartache.  My mom was 50 when she was dx with BC and had a radical L mx w/implant.  (I was also 50 at dx.  She had a new primary 16 yrs later and had a R mx with removal of implant.  Her experience is one reason I had a BMX without recon.)  I found out later that she'd offered my dad a divorce after the first mx and obviously he said no because was still around but IDK how their relationship changed.  I do know that that thought never entered my mind.  We have a strong relationship and enjoy all the benefits of marriage.  Guys who spurn their wives lose out on some of the great joys of life and that's a shame. 

    Wishing you all the best.  ♥

  • ziggypop
    ziggypop Member Posts: 1,071
    edited December 2013


    Hi peverson,


    I glad that your husband was supportive during treatment - it says something about him that I think has to add perspective to what is going on now. For me, I know that my emotions were all over the place while treatment was ongoing - fear, anger, everything in a big jumbled mass of 'stuff'. I think sometimes the people who love us the most 'set aside' all those feelings - hide them away so that they can 'be there' for the person who's sick. But they too are going through a lot of pain and anguish and maybe don't have the same kind of support system. Then there's the fact that some men just often don't 'talk' things out. It may be that when he looks at you and you are physically different it brings the fear back. I know that sometimes when I look at myself in the mirror, I am reminded of the cancer (because my hair is curly now - and when I get out of the shower, my breast are different). It may be that when he says your chest is 'deformed' (which is a terrible word to use) that he's actually trying to talk to you about his own fear & just doesn't know how to get there. Obviously, I don't know that that is the case, and it may be a too generous idea of what is going on. But since it sounds like you want to stay with him & he doesn't want counseling, maybe you have to find a way to get him to talk.



    It could be that if you start with - 'Having to get used to my new body was difficult for me, and I'd guess that it's difficult for you too' - it might open the conversation.

  • crystalphm
    crystalphm Member Posts: 1,138
    edited December 2013


    I am so sorry he is hurting your feelings like this. I hope you are communicating and letting him know these words hurt. And from there you talk about it, and be sure he understands you didn't choose this, cancer did.


    Seeing a good counselor is also a way to go, but no matter what, he has to be told his comments hurt you.


    I do think posting here as you did, helps all of us. You get your feelings validated, and we can all reflect on the changes in our lives, to make things better. I go around flat all the time and sometimes I really do wonder if this is unattractive, I really don't know because no one in my life is going around flat all the time. I have never been very focused on my looks, so I am never sure.

  • Rakovina
    Rakovina Member Posts: 132
    edited December 2013


    Patsy, that must have been heartbreaking to hear. Is he depressed or stressed at the moment? Being the rock can be very hard, my husband often says he feels utterly useless as he cant do anything to help me (I'm stage IV). Men like to fix things. If I was a car he could get out the toolbox, buy a few spare parts and tinker around Winking


    Perhaps your husband has unrealistic expectations of how a reconstruction actually looks, no offence to anyone who has had one. Maybe he's thinking, you get a new boob and everything goes back to "normal", like it was before BC and we can forget this all ever happened. Let him know it is unacceptable to speak to you like that, regardless of why. Can you ask a brother, father, friend ect to talk to him. I wish you well sorting this out.

  • KANSAS65
    KANSAS65 Member Posts: 17
    edited December 2013

    Another husbands view: I would NEVER make a negative comment about my wife's looks after the BMX. She has a hard enough time dealing with the change day to day. Neither one of us liked what had to be done, but if it saved her life we will deal with it. I told her when we started this journey that I signed a contract with her 19 years ago when we were married "sickness and in health rich or poorer". I'm the husband, support, rock if you will. Her looks don't bother me in the least. I was proud of her strength  through all that she went through. All I did was play nurse and chauffer. And to close I would never ask her to do recon for me  because I don't want to see her go through any more surgeries unless SHE wants it. Patsy I wish you the best, and wished I had some good advise to pass a long to you. Keep your head up!

  • lahela
    lahela Member Posts: 515
    edited December 2013


    Patsy, I'm so sorry you are suffering this emotional pain. I don't have any words of wisdom, but please don't go down the path my sister has chosen - she had a uni MX and no recon and 3 years later, her DH has never seen her without a bra and prosthesis because he gets freaked out by the idea. It means that her every thought in relation to him is hiding and that is tearing her to pieces. Maybe your DH is just saying these things as a way of letting off steam or he just doesn't know what else to say, but I don't want to see you go down the path my sister has so please, get yourselves to a counsellor. *much love*

  • wenweb
    wenweb Member Posts: 1,107
    edited December 2013


    Hi Patsy, I want to make a comment, and I hope you take it with a grain of salt. There is no insinuation, rather, I'm passing along information that was imparted to me from my therapist in regard to husband issues and unkind words. "Someone who says they love you wouldn't speak to you using those words".


    Best Wishes

  • Fiaranch1
    Fiaranch1 Member Posts: 328
    edited December 2013


    Your post was amazing your wife is blessed !!!

  • chele
    chele Member Posts: 1,465
    edited January 2014

    So, I asked my husband.  My husband says: " you married your wife, not her boobs.  Just because some parts are missing - she's still there - you just have to suck it up."

  • eric95us
    eric95us Member Posts: 2,845
    edited January 2014

    My wife has shown her inner strength...and that is the most beautiful thing of all.

    Eric

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