Any triple neg's getting Taxotere & Cytoxan only?

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  • Laurie_R
    Laurie_R Member Posts: 262
    edited May 2010

    Just a thought for all you triple negs.  On myb intail report I to was a triple neg but in reading my addium report I found that

    er is now 1%-5%positive due to the spirail shape of the cancer cells.  So please remeber to check your adniums.

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  • kittycat
    kittycat Member Posts: 2,144
    edited May 2010

    My onco said he will probably give me T/C.  However, I learned that Taxotere has a 6.3% chance of permanent hair loss.  There's a whole thread on this here at BSO.  Since I haven't been good with odds (I'm the < 1% that had a recurrence after a bmx with DCIS), I don't want to chance my odds.  I'm getting a 2nd opinion on the treatment plan and also looking into consulting with onco's at major university hospitals around the country. 

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited May 2010

    Kittycat - I had TC and finished on Feb. 8th.  My hair has come in just fine and I ditched my wig last Friday at 12 weeks. Please feel free to send me a PM anytime if you have any questions about TC.

    Sherri 

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  • cc4npg
    cc4npg Member Posts: 764
    edited October 2010
    Well, I'm either going to be on this thread or the one regarding triple neg's getting Taxotere/Carboplatin.  Haven't decided entirely on my treatment and think I'm going to get one more opinion.  My cancer was found incidentally.. mammo.  Biopsy revealed invasive ductal, but no clue how large due to fragmented sections.  Bilat MX final pathology only found .8 x .9 cm DCIS, no invasive component, no lymph nodes.  So I'm a gray area.  I had looked up info pointing me originally to 4 DD A/C and 12 weekly DD Taxane... BUT that was before I was in the gray area.  Onc doesn't think I need Adraimycin for this, or DD.  I'm kinda like kittycat because I feel I'm already a minority (BRCA2+, triple negative, no known size of invasive component) but I'll probably do the taxotere as it seems the absolute majority of people get their hair back... still scary... but cancer in general is terrifying.
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  • TifJ
    TifJ Member Posts: 1,568
    edited October 2010

    cc4npg- I will be starting chemo either late next week or the following week. My onc. originally chose 4tx of TC and Caboplatin- then consulted another Dr. in the center (like an in house second opinion) and they decided to take the carboplatin out. Thought it would be overkill. I had a BMX because I had a 1cm IDC and a .7cm DCIS and extensive just beginning DCIS in lower area of breast. Because of Stage 1 status and no nodes-He thinks TC will be plenty. Haven't had my BRCA testing yet? I wonder if that is positive-would it change treatment??

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  • cc4npg
    cc4npg Member Posts: 764
    edited October 2010

    I doubt it... I'm BRCA2+.  That testing is just a marker to alert you to the fact that A) The reason you got breast cancer was genetic, B) you have more chance of getting breast and ovarian cancer, and C) you must think about what else you might want to do in terms of prophylactic surgeries.

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  • Lovelyface
    Lovelyface Member Posts: 674
    edited November 2010

    Hi ddlatt

    I think your last post is from June 2009 so am not sure if you are still coming here and reading.  But I was wondering how you are doing these days?  It seems like we have sort of similar diagnosis and similar treatments, AC, Taxol, same number of rounds.  Yours was in 2008, mine is July 2010.  Please respond, thanks much!

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  • sassygirl012
    sassygirl012 Member Posts: 8
    edited December 2013


    Just wondering how the ladies who had taxotere/cytoxin chemo regime are doing? I had this chemo this year but only difference I see in dx is I had 1 node positive. Nervous about that but my oncologist said this is the regime she would do if she had my dx.

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  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited December 2013


    Sassy, that was the state of the art when I did it and 5 years later I'm fine. My oncologist said he'd offer the same to his mother, sister or daughter. I was Stage IIb and had 4/14 bad lymph nodes. It's not a lot of fun, but it's highly effective for a lot of triple negative folks.


    For our sisters who worry, I have hair, eyebrows, eyelashes and sadly have to shave my legs every day again now.

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  • lintrollerderby
    lintrollerderby Member Posts: 483
    edited December 2013


    I'm 2 years out and so far, I'm ok. A couple scares though, and an unsure finding right now. My hair is past my bra strap in the back and still curly. My eyebrows never fully recovered, though. :(

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited December 2013


    Hi, I'm four years out. Finished TC in Feburary 2010.

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  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited December 2013


    The eyebrows leave much later and the eyelashes too. They do come back. Be patient. Be healthy, and then worry about those things, and by then they will be on their way back. Trust me on this one thing. Being beautiful has nothing to do with having the right hair.

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  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited December 2013


    Congrats to you!

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  • sassygirl012
    sassygirl012 Member Posts: 8
    edited December 2013


    Yellowdoglady, were you triple negative? And how many rounds of Taxotere and cytoxin did you do?


    Some TC regimes I see are with carboplatin or something like that, I wonder what that is? Was your cytoxin, yellowdoglady?


    Why do many triple negatives early stage bc get a combination with an anthromycin drug I wonder?

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  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited December 2013

    I was triple negative. I had taxotare and cytoxin only.  Six rounds, three weeks apart.  Then 7 weeks of daily radiation.  TNBC patients get everything they can tolerate because the window for treatment is more narrow and so are the options available.  The andriomycin (sp) option was off the table for me because it is highly toxic to heart tissue and I had a family history of heart issues.  No worries; that would just give a 1% boost to what else I had planned.  It all went well, and I am well five years out.

    I think that different terms/drug names may be used in different countries, but the best treatment is still very much the same. 

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  • anamerty
    anamerty Member Posts: 195
    edited December 2013

    I had the tc also. I was to have the standard 4 but due to taxotere causing pneumonia ehich put in in hospital for 2 weeks last dec it was stopped

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  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited December 2013

    lintrollerderby,

    At two years, your focus is on the Three Year milestone, when it all begins to look a whole lot better.  Good luck to you! 

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  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited December 2013

    Sugar77,

    Congratulations!  Have a celebration.  You should be feeling like your normal self by now.

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