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ducky113
ducky113 Member Posts: 18
edited June 2014 in Comments, Suggestions, Feature Requests


With all the statistics we provide on diagnosis, mets, etc...maybe you can start coming up with some site statistics on members' conditions, ages, treatments, etc.?

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  • Moderators
    Moderators Member Posts: 25,912
    edited December 2013


    Thank you for your suggestion, ducky113. We'll be interested to see member replies on the thread to know what information members want.


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  • gonegirl
    gonegirl Member Posts: 1,871
    edited December 2013


    that could be done with a survey and would take a large sample size. You'd need a sample size of 200 for each segment. Stage iv HER2+, stage I triple negative, etc. If you're looking for survival stats, what I would want to know, that also involves following people over time. One challenge is that finding stats for those living with stage iv is a real challenge. NCI's SEER goes up to 2010 only and from what I understand, if a patient is DX at stage I and then goes stage iv, they are not reclassified as stage iv.

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