August 2013 Chemo Sisters

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited December 2013


    I am as bald as can be, 3 days post LAST chemo...but my SIL went through this 9 years ago. Her hair was thin to begin with, never really grew back well on the top of her head . She has a cute, short cut. The hair kinda curls around on the top. My suggestion would be to consult a beautician that has a good rep for stylish, short cuts. It seems like you should start having new growth soon. Being bald has not bothered me as much as I thought it might, being without eyelashes is almost worse. Good luck, lets us know, cause most of us are behind you...

  • TanyaF
    TanyaF Member Posts: 54
    edited December 2013


    My hair is growing back, but not as much on the crown. It has been over a month since last chemo and I am still losing eyebrows. There's still enough that it is easy to draw in what is missing. Eyelashes are hanging in there :)


    I had my first radiation treatment today. It took awhile because they took more x-rays, but after that it was quick and painless.

  • Togetherness
    Togetherness Member Posts: 202
    edited December 2013


    Praying that everyone is doing well. I am getting my hair back finally after 60 days post chemo. It has alot of gray. Omg I never new I was so gray since I keep it colored all the time. Went in to the hair dresser thinking I had enough to color and she says if you would like your scalp colored I can do that..... Lol. I guess I was a little over anxious.... Lol. I am still dealing with issues with my implants. Have been on antibiotics for four weeks since the surgery. Fluid gets drained off once a week or either it starts draining on its own by bursting a stitch.... Ugh!! So hope we can save these implants. Enjoying feeling a little better and hope everyone else is close to ending of treatment or finished and going on with their life. Hope everyone has a wonderful holiday season!! We all have a lot to be celebrating!!

  • aef
    aef Member Posts: 13
    edited December 2013


    thanks for all your suggestions and encouragement. i am trying various hair arrangements-- (they are nor really styles....). i will look into the other hair treatments-- joico, toppic fibers have been recommended. i'll report in when i think the shedding is noticeably lighter. it is so nice to have the holidays to distract us! peace and courage to all!

  • LeanneF
    LeanneF Member Posts: 60
    edited December 2013

    Finished chemo December 2nd!!! Praise God, I am so thankful to be done with this phase. Now, preparing for surgery and trying to get emotionally prepared for this. 

    Aef, I read somewhere on the internet that topical melatonin helps with hair regrowth. Sorry I don't remember the site. Anyone else have experience with this? My hair never completely came out. When it started thinning, we buzzed it and what was left behind started growing between treatments, but what came out before the cut hasn't grown. So, I look like a baby chick - except grey. I hope it all comes back soon.

  • RhodyMMM
    RhodyMMM Member Posts: 455
    edited December 2013


    Leanne, congratulations on being finished with chemo! Do you have a surgery date? I have not heard anything about melatonin, will have to do some research.

  • candi07
    candi07 Member Posts: 188
    edited December 2013


    anyone have their port removed? How is the recovery?

  • ForMyGranddaughter
    ForMyGranddaughter Member Posts: 294
    edited December 2013


    TanyaF, I'm with you. For me its about 7 weeks PFC and my eyebrows are all but gone. My bottom lashes are sparse but my top lashes are hanging in there?


    I find it interesting that my hair is starting to grow back but my eyebrows are still falling out!>!>!>>


    Congratulations to all who have finished chemo!!!!!


    Togetherness, you and I are having issues with tissue expanders. I'm on antibiotics for the third week. I saw a specialist about the bacterial infection she said Amoxicillan for 2 more weeks. The plastic surgeon doesn't know what to do with me . . . he's not thinking about touching the expander.

  • Holeinone
    Holeinone Member Posts: 2,478
    edited December 2013


    LeAnne....YEEHA ! I finished a few days before you....still in a daze over the whole bc nightmare, but now the toxic chemo is behind us..I am hoping for some hair also, but it is going to be slow...good luck with your surgery...keep us posted..


    Candi, I know some of the Aug. grouped have had there port removed, my surgeon wanted me to keep mine, which scared the heck out of me, why would I keep it, unless they think I am going to need it again, soon...I told the oncologist a month ago that I had to get it removed...can't live with it clanking around in my chest...now, I am willing to wait awhile..how was your last treatment ? Mine was the easiest out of them...no Neulasta, fatigue & bone pain, but milder.


    Together & ForMygrandd ....sending positive thoughts for healing...you are still in the waiting game, which is so difficult & stressful...

  • LeanneF
    LeanneF Member Posts: 60
    edited December 2013

    Yes, my surgery date is Jan. 6. 

    Thank you all and congrats to everyone finishing chemo. 

  • mankatostate
    mankatostate Member Posts: 231
    edited December 2013


    Fmg- It's interesting how different all our bodies are. I have a few bald circle spots on my head that are yet to really start growing hair, yet my eye brows are growing back...and those few "fun" unwanted facial hairs. Hoping your eyebrows and lashes start to grow back soon!


    Candi07-i just had my port removed. They did a cat scan first to make sure all looked good. The port was hurting and it turned out for some reason they didn't put a power port in so it was only good for chemo...nothing else. It's still healing right now.

  • candi07
    candi07 Member Posts: 188
    edited December 2013


    Thanks for the info on port removal. I can't wait to get mine removed...waiting on hospital to call with date. Holeinone my last Taxol was fine, I had some mild bone pain that's it. I am so happy to be done, what a journey that was. Hoping rads won't be bad, my MO said I will get rads conventional (33 treatments). Hopefully, I'll be done the first week of February.

  • Togetherness
    Togetherness Member Posts: 202
    edited December 2013


    Formygrandd I have my implants in not tissue expanders. I had cellulitis infection with the TE so having an infection with implants. Not good! Hope we can save the implants. We just keep draining fluid off the breast around them. It is getting very frustrating. It has been a month since the exchange and still dealing with these issues. I hope they figure out something for you. Wishing you the best.

  • babs6287
    babs6287 Member Posts: 2,021
    edited December 2013


    Formygrandd and togetherness


    I had my TE placed on 8/29 and did great. On November 10th I developed a cellulitis infection and wound up in the hospital for 1 week on IV anti-biotics. Was doing fine and then this past Saturday the infection came back-my left breast and arm became red, warm to touch and blotchy. Tomorrow I am having my left TE taken out. The infectious disease Dr feels it will keep coming back. I am bummed!!!


    Babs

  • Togetherness
    Togetherness Member Posts: 202
    edited December 2013


    Babs - I just finished my antibiotics recently and I noticed today my face is red ad flushed warm to the touch as well today!! Ugh I wonder when this will end!!! Not good to hear that it can pop up months later. Did they give you an alternative as what they can do for you!! Wishing you well!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2013


    Hello,


    I just had my 11th taxol after 4 ACs! Just one more taxol to go then rest briefly before surgery. I've created a January 2014 surgery sisters group if you'd like to join us. Also for those of you who had surgery before chemo please do drop in and provide advice that you wish you'd had about surgery. We would greatly appreciate it. Thanks for your support on this thread. Taste issues are pretty terrible now that taxol is nearly done; hair is definitely growing back though white! Good news is nurses say that coloring hair is no problem. Never colored hair before so nervous. Happy holidays to all celebrating. V

  • babs6287
    babs6287 Member Posts: 2,021
    edited December 2013


    TogethernessI had the TE taken out. I never had any fluid anywhere and all my blood tests were always normal. The infectious disease Dr said that to play it safe he suggested taking the TE out. PS could NOT find signs of infection when he did the removal so he took lots of cultures. This is very weird but I keep remembering that I need to be happy that I no longer have BC so I should not complain.


    Babs

  • Togetherness
    Togetherness Member Posts: 202
    edited December 2013


    Babs I go in Monday for surgery to have the drains put back in. The cellulitis has cleared up but I keep draining fluid from around the implants. The stitches just pop open from the fluid build up and the fluid drains. I do not like the drains but will try anything to save the implants and not have to start from scratch!! I am happy not to have BC but just want boobs as well!! Santa that isn't too much to ask for...... Lol Hope you are doing better!!

  • babs6287
    babs6287 Member Posts: 2,021
    edited December 2013


    togetherness. Sorry you have to go back into the hospital for the drains but if it saves the implants it's worth it!!! I had my drain removed yesterday. Ouch!!! I thought I didn't care about having two boobs but I do. The PS and I discussed a small implant with fat grafting yesterday. But all depends upon my test results. Hoping it all works out for you and that Santa heard you!


    Babs

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2013


    Hello All,



    Thank you for all your support through this difficult time. I completed my 12th Taxol on Wednesday and now am dealing with all the usual side effects. I will have surgery in mid January and so am heading over to the January surgery group. I received the news that the ACT with taxol weekly x 12 effectively RESOLVED all known areas of concern. I am still going forward with surgery and will gladly join the flat and fabulous group. Be strong; you can do this. I worked throughout which was tough but doable. I hope that all of you will get through this difficult time and love long happy and healthy lives. I'll drop by just not as often. I will always remember Naan/Julie who we started this journey with. It broke my heart that she left us so soon. Bye, V

  • babs6287
    babs6287 Member Posts: 2,021
    edited December 2013


    HVV-great for you!!!! So happy the ACT worked so well. I had my surgery before my chemo-so you can always ask me any questions you have-PM me any time!


    Babs

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2013
    Thank you Babs. I will
  • gavinsgrandma
    gavinsgrandma Member Posts: 407
    edited December 2013


    Just wanted to stop by to my home chemo group and say hi and wish everyone a Happy and blessed Holiday season. I hope everyone is doing well, I am done with A/C and 4 treatments into Taxotere but next week they are switching me to Taxol in hopes of decreased SE'S.


    Shary

  • BellaMomma
    BellaMomma Member Posts: 77
    edited December 2013


    Merry Christmas!


    We are making it through this challenge!


    I took Taxol first and now will be through with Combo. Chemo. In January. Hurray!


    Surgery in February at Mayo's 2014.


    Stay well!


    Wishing you and your family a wonderful holiday!

  • ForMyGranddaughter
    ForMyGranddaughter Member Posts: 294
    edited December 2013

    Babs + Togetherness, on Friday I had the right TE removed.  I immediately felt better, the swelling of both foobs when down.  Once the area heals completely, maybe 6 weeks or so, we will try again.  I spoke to my PS and the cultures he took at the time he removed the TE came back negative, which means the bacterial infection is gone.  This also made me happy.

    I hope all are doing well on their journey of recovery.

  • ForMyGranddaughter
    ForMyGranddaughter Member Posts: 294
    edited December 2013

    The hair on my head is growing back nicely; I see little hairs peaking through my scalp . . . I am happy with the progress.  95% of both brows, both bottom lashes and half of the right top lashes fell out.  Whats interesting is that they all seem to be falling out + growing back at the same time.

    It seems like all the old hair falls out at some point after chem + all hair grows new.  My brows started falling out 6 weeks AFTER my last infusion; I think my lashes started falling out about 8 weeks AFTER my last infusion.

    I tried drawing brows, this turned out to be a disaster so I trimmed my wig to have a thin bang.  Now I don't worry about brows.

    Like everything else with treatment . . . the hair is a mystery, too.

  • mankatostate
    mankatostate Member Posts: 231
    edited December 2013

    fmg- my eyebrows and lashes really started falling out last week. I had last chemo Oct 22nd so up until last week I thought I had gotten lucky and was going to be able to keep them. I do have some eyebrow hairs growing in though. It's funny how this happens so much after being done with chemo!

  • LisaSp
    LisaSp Member Posts: 253
    edited December 2013

    Hello everyone and I hope your holidays are going smoothly. I finished active treatment Dec. 12 with my last rad tx that day; will start tamoxifen soon.

    Funny my brows and lashes held on til about two weeks after my last chemo (which was Oct. 5). Now they're all grown back.

    My hair is returning too. This is me, prechemo on the right. Lower left, two weeks after chemo, with drawn-in eyebrows. Upper left, my hair growth as of yesterday. (Sorry for the repeat Mankatostate!) Hope you are all well, FMG glad the TE is out and no more infection!

    image

  • beeve
    beeve Member Posts: 71
    edited December 2013

    As are most of us, my hair is also sprouting.  It's only been a month since my last infusion, so only a week since I wasn't regularly assaulted with chemo.  I can't see it in the mirror unless there's a high contrast background but I can definitely feel it, even in the breeze.  To my overly critical eye, there's more scalp than hair but my husband and others always remark on it.  Either they're being really nice or it's true; what can I say, I have trust issues (see "How to forgive..." under the daily living section).  I get on my exercise bike every day and can go further every time, so I guess it's getting better.  I have good energy until, like a puppy, it's like someone pulls the plug and it's back to shuffling and moaning til bedtime, if not outright bedtime.

    I don't have to report for radiation til 2014, so even though there's herceptin and another labs draw, I more or less have a Christmas vacation.  May all of y'all have the best holiday season ever, and no matter what, 2014 has got to be better than 2013, right?

  • RhodyMMM
    RhodyMMM Member Posts: 455
    edited December 2013

    Was scheduled for my 4th Taxol infusion today but once again neutropenia reared her (his?) ugly head. I thought this would not be a problem with the Taxol but I guess no one told my bone marrow. So instead I got a Neupogen shot and will get another on Monday. Then Taxol next Friday. Discouraged once again. I know it's only temporary but this keeps happening to me....


    Martha

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