DIEP 2013

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  • MartyJ
    MartyJ Member Posts: 1,859
    edited December 2013


    okay, I just gotta say this. SBE is the most articulate druggie in the bunch. Wow!

  • Janet_M
    Janet_M Member Posts: 1,068
    edited December 2013


    MartyJ - I was thinking exactly the same thing! And those that aren't articulate druggies ore often very very funny. If we ever have a drug party, sbe is driving.

  • christina0001
    christina0001 Member Posts: 1,491
    edited December 2013

    lol @ marty and janet! :)

    sbel, hope the pain is less for you today, and that you are healing well.

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited December 2013


    Shoot......NOW I find out that even on DRUGS, I am not very articulate!!!!! .........who knew?


    First I lose the Ugly Sweater contest, and now, this........I am taking my painkillers and going back to bed....wake me when it's over, okay?



  • goldie4040
    goldie4040 Member Posts: 2,280
    edited December 2013


    Aw, Movie...don't get your feelings hurt. Just a few days ago Janet said I was the most articulate druggie, but SBE stole the title away....sigh.


    SBE, glad you got most of your stuff done. Hang in there with the pain. You can join me, and Movie in the party room...lol. We are stoned, but still not that happy.


    The only giggles I have gotten over the last few days are watching people on the news try to drive on this ice...lmaooooo. In case you don't know, a lot of Texas got hit by an ice storm, and most Texans haven't a clue what to do about it. Having grown up back east I always find these days very amusing. But, when they are outside gardening when it's 90 degrees like it's nothing they are laughing at me taking a dead faint.

  • LucyV
    LucyV Member Posts: 177
    edited December 2013


    Sbe- glad everything went well and happy they are being proactive on the wound healing front. Hope the chamber has some good TV on this weekend for you.


    Goldie- my DD wanted to drive back to school last night and there was some ice in the forecast. She was sure she could handle it. Ummmm no matter what kind of car you have it doesn't drive on ice. So I got another night with her here and she left this morning!


    Wishing a pain free weekend to you all.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited December 2013


    So true, Lucy. But, people keep trying.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited December 2013


    You guys are cracking me up! Wilbur just doesn't have that effect on me, I guess, &ntsp blurp blurp sigh....


    The hyperbaric treatments are designed to put the patient into a compression chamber and pressurize it to a certain depth of "sea water," although there's no water involved. With the patient breathing 100% oxygen, it super-saturates the tissues of the body with oxygen, which is helpful for a number of conditions. Specifically for me, it helps the radiation-damaged tissues on my back to heal quickly and safely. Hyperbaric treatments are also used for patients with carbon monoxide poisoning, infections resulting from bacteria that thrive in an anaerobic environment, non-healing wounds, people with "the bends," and air embolisms.


    There are many kinds of hyperbaric chambers. Years ago, when I worked with patients getting treatments, I worked in a large chamber that could comfortably fit several people and was big enough to stand up in. The one in which I'm being treated is a "monoplace" chamber, big enough for one patient to lie down in. It's made of transparent plexiglass, so the claustrophobia factor is minimized. And with a couple of pain pills on board, it's like "slide me in, let's watch a movie!"


    Speaking of movies, Movie, I hope you're feeling better!


    Have a lovely Saturday, dear friends.


    image


    image

  • RHGSR
    RHGSR Member Posts: 774
    edited December 2013


    Nihahi - I'm just frustrated. Before this I had too good of an appetite :0). Now liquids fill me up. I know I need the protein especially with this infection. Never thought I'd be frustrated with a lack of appetite ... Ha ha :0)

  • mammalou
    mammalou Member Posts: 823
    edited December 2013


    rhgsr... Do you find it hard to eat because of diep? I feel uncomfortable after eating all the time now. It's like my stomach can't stretch and I feel bloated and uncomfortable. It doesn't make much sense to me because my stomach hasn't changed.

  • LucyV
    LucyV Member Posts: 177
    edited December 2013


    RHGSR- I am six weeks out and I am just getting my appetite back. I have an ab wound infection ( so so close to being healed now) and I basically ate every three hours small portions of food. One or two hard boiled eggs, an ounce of cheese, six ounce of Greek yogurt, a KIND bar with 7gm protein and I would try to have some chicken or beef for dinner. I had a hard time drinking more than four 8oz glasses of water a day and would just sip throughout the day. Good luck and just take it slow.

  • LucyV
    LucyV Member Posts: 177
    edited December 2013


    looking good Sbe!

  • Sharon1942
    Sharon1942 Member Posts: 272
    edited December 2013


    Goldie, your smoothie recipe is delicious! I put my kale on a cookie sheet in the freezer yesterday & it still isn't frozen. With our temps in Arlington, maybe I should put it outside. No, the squirrels would get it!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2013

    Hey friends, just wanted to post that I had a clean scan yesterday. SO the incidentaloma from two months ago is now less distinct and "essentially unremarkable" YIPPEEE I am days and days and days behind on reading here, but will catch up eventually. Love to all.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited December 2013


    Sharon, glad you like the recipe. I just throw the kale in the freezer in the bag it comes in. It has always frozen nicely for me. I use a chip clip to keep the bag closed. You have gone to too much trouble to freeze that stuff, I promise.


    BTW....I really don't use chip clips, I discovered that these really cute plastic clothes pins at Target that I use for chip clips and they have a stronger hold then the chip clips too, and much less expensive for a larger quantity. I use them to hold all kind of things together.

  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited December 2013

    Sbe, nice hamster cage! Hope it helps!

    Dyvgrl, it it truly a personal decision best made with your oncologist. I had my healthy breast removed and then lost my flap after a 12 hour surgery. I had a hard time making the decision because I dearly would have loved to keep at least one breast with normal sensation for sex! I know that sounds awful. But I don't know if I'll ever get over having a numb chest area. I hate it. But there is something to be said for less risk too. It's all about compromise and what you feel is right for you.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited December 2013


    Bailey, what a relief!!!! Merry Christmas, Honey!!!! That is such good news. On with the business of living.


    Bluebird, how are you these days. Are you done with rads? How's the skin doing?

  • MartyJ
    MartyJ Member Posts: 1,859
    edited December 2013


    Bluebird - this is all so new to you right now. After many, many years of a numb chest one really does notice it less and less. And then, it is not there. There is a loss, I am absolutely not denying it. An entire erogenous zone is gone. How I wish they could figure out how to make the nerves and nips work. Hmmmm, bionic nipples anyone?

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited December 2013


    thanks everyone for your replies. I will be discussing with my doc. Bluebird, I have the same fear, how do I enjoy sex after all of this?? No feeling in my chest anywhere, vaginal dryness, and zero libido. I'm 44. Too damn young for that. We've just been married a year so all of this taking away from my sex life is seriously pissin me off!! I do want to make the choice that keeps me here the longest, but I'm already morning the loss... Sigh.

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited December 2013


    Since I'm high.....I will chime in here.....def. a loss of sensation, but I have been pleasantly surprised by my body's ability to compensate for the loss of my breasts.......I am past menopause, so I have to rely on lubrication (sorry if TMI), but the big "O" is achievable , and I weirdly notice a tingling in the breast area when that occurs....

  • christina0001
    christina0001 Member Posts: 1,491
    edited December 2013

    bailey - *happy dance* at having your scan results come back good. What great news!

  • Cherrie
    Cherrie Member Posts: 1,423
    edited December 2013


    I am so happy the subject of sex has come up. No feeling in chest, vaginal dryness and pain, NO libido. I am 59 and it is so sad for me. I don't even want my breasts touched. I don't know what to do. My dear hubby doesn't complain, but I know this affects him too. It makes me feel so old. There, I said it!!! I have not shared this to anyone. Breast Cancer has taken away a lot.

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited December 2013


    I def. think it is worth the reminder that we, as women, are "thinkers" about how do we achieve sexual satisfaction? Men are "doers"........ Remember the book "Men are from Mars".....? Even before my dance with BC, I was having trouble w/satisfaction....and that led me to visit a Dr. That specializes in Natural Hormone Replacement therapy, which was WONDERFUL for the 3 years I was on it....unfortunately, it is also very possible that the same hormones that were making my sex life "young" again, were also wreaking havoc with my BC hormone receptors......getting the BC DX and cutting the hormones off cold turkey was anything but pleasant.....and it stinks...just when the kids are gone, and we should be looking forward to getting our lives (not to mention some privacy) back, we get smacked by the BC bitch......


    I will not deny that sex is different, that it is forever changed, but I maintain that it IS possible to have an enjoyable sex life post BMX/recon.......but is does take work and perseverance to overcome the deficit, and we, as older women, are not always comfortable addressing it, let alone admitting it.....look at how hard it was for Cherrie to put it out there.....it can be really tough to do. I DO think it helps to talk about it, and this is the perfect place to do it.......

  • bdavis
    bdavis Member Posts: 6,201
    edited December 2013


    For me... I do have some sensation in my breasts, on the periphery and in some random areas. Nothing with the nipple though. Libido is still there... albeit perhaps reduced. And dryness is also not a problem but lubrication is always an option. I agree with Marty. I am just 2.5 years post MX and I am very used to the new me. For me, I would rather have a little less sensation if the trade off is a lot more life ahead of me with less worry.

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited December 2013


    In other news....I FINALLY had a BM (no ride to the hospital for ME, Jeannie!) ....AND......a shower!!!!!


    I feel almost human again........

  • RHGSR
    RHGSR Member Posts: 774
    edited December 2013


    movie - congrats on the BM and shower. It's amazing how they both make you feel so much better.


    I'm glad sex was brought up too. I'm 37. When is it safe to have sex after the DIEP (not that I feel like it less than 3 weeks out), but I'm curious. What about during chemo and radiation? I hope it's okay to ask these questions. It's easier to ask here then asking the doc.


    I have heard that the cold pressed organic coconut oil is a good lubricant. Never tried it but it seems like I've read about it in a lot of places recently.

  • Cherrie
    Cherrie Member Posts: 1,423
    edited December 2013


    I understand that the trade off is a longer life. However, it is very sad for me. A real loss!! I guess I am still adjusting to the new me.

  • nihahi
    nihahi Member Posts: 3,841
    edited December 2013


    WELL.......coming on the thread tonight, and expecting the norm of Wilbur talk, uncooperative incisions and the rest......and instead it's sex talk. Can I just say I think this thread has the most amazingly deep and honest women on the bco site! We are here for each other FOR EVERYTHING!


    There is no reason in my mind, not to have to go through the "stages of grief" for the change in our normal pattern of sexual satisfaction, as we have for every other crappy part of this journey. Why wouldn't we be depressed, angry, "lost"...yadayadayada. But, I also agree with marty.....the passage of time changes the "dependency" on the way things used to be, and like movie said....a satisfying sexual life can be rebuilt. It is the mindset that "it isn't like it used to be" that is the first and hardest stage to get past. The need to "rethink" (probably not the best word but can't think of the right one) happens naturally as we age, but being FORCED to do this, because of the consequences of breast cancer, can take such a toll on our emotional femininity, that it seems an impossible goal. Talking to our partners, probably reveals they are often as much grief ridden, and "unhopeful" as we are....but, I found, the talking was the beginning of things becoming better, for both of us. You find a "new normal", but it doesn't necessarily have to be a less satisfying experience. Having to relearn how to relate to each other, physically, was probably something that strengthened our relationship into a more "honest and connected" one.

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited December 2013


    Cherrie, I totally understand your feelings.....I think most of us have similar fears of a loss of something that has up until now been a familiar part of our old lives......and how do we adjust to our "New" lives? Are we forced to settle for no sex, little sex, even painful sex? I don't have any answers, but DO believe talking about it at least brings it out of the shadows, where we may be able to figure some things out. Please don't resign yourself to concede in a loss! I am suggesting that we need to find other ways (to replace the feeling in our breasts) to help us have satisfactory sex lives.....I know we are all different, so every solution would be different, but surely there IS a solution???? I hate to think there is no hope.....

  • Pattysmiles
    Pattysmiles Member Posts: 954
    edited December 2013


    here is a link to that topic on these boards.


    I haven't ordered it yet, so can't speak personally, but it IS in my plan.


    http://community.breastcancer.org/topic_post?forum_id=8&id=776318&page=1


    Pat


    Oh, the thread is "the solution to painful intercourse"

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