September 2013 Chemo Group

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  • Cougarlicious
    Cougarlicious Member Posts: 114
    edited December 2013


    just jumping in to cheer everyone on! I love all the wonderful pics!!

  • simplelife4real
    simplelife4real Member Posts: 563
    edited December 2013


    Hockeymom, I love the picture of your family. You are beautiful.


    I feel like I've been sleeping pretty much non-stop since I got my first AC infusion two days ago. I didn't expect it to hit this hard, this fast. I'm not in any pain, just feel like I've been run over by a truck! Good thing I only have to do this four times.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited December 2013


    Yes that was what my MO said, I think some one else here was wondering.

  • BabyRuth
    BabyRuth Member Posts: 264
    edited December 2013


    LHL and Hockeymommy- I am so happy for you too! So glad that you all are now chemo graduates!! Love, Love, Love your all's pictures! It is so great to have the love and support of your family.


    I hope all of you in the path of this cold front stay warm and safe.

  • hockeymommy
    hockeymommy Member Posts: 77
    edited December 2013


    Thank you everyone for the beautiful comments!! I am over the moon right now! I had an appointment with the head radiologist and he and his colleagues decided I am not a good candidate for rads, clean margins at surgery, tumour size, lymph involvement and my age (32)....I was really excited about that!! My port removal will be Thursday December 12!!! I am seeing the light coming up at the end of the tunnel!! I still have two more surgeries to go , but I know I can do it! I really want to thank all of you wonderful ladies, you have no idea how much you have helped me through this journey!! You are the best!!!!


    Peacock- you got this girlfriend!!! God luck and kick cancers butt!!!!!!

  • mercedes60
    mercedes60 Member Posts: 171
    edited December 2013


    hockeymom, wow beautiful picture! Congrats

  • KBeee
    KBeee Member Posts: 5,109
    edited December 2013


    hockeymom, great family picture, and hooray for no rads!

  • knightzoo
    knightzoo Member Posts: 171
    edited December 2013

    Congrats to you hockeymommy and LHL!!  Love the family pics.  One more round of side effects and bye bye chemo!

    I got my MRI results yesterday and am over the moon happy - taxol did more than it's fair share of the cancer killing.  I was hoping for 60-75% reduction, but MO said more likely above 90%!  It's like if the tumor was a fist on the screen in the first MRI, its 3 little pinky fingernail dots now - and he's not even positive it's tumor cells and not scar tissue or calcification.  Woohoo!  Headed for AC in an hour - I can do anything 4 times right?!  He wouldn't lower my steroid dose for the first one, so I may be awake until tomorrow, but the nausea meds should help?

    Question - as I was breaking my great MRI news to my 15 year old, he asks, "So when will it be gone? Why do some people have it come back?"  The forever nagging question.  How do I answer this to a kid (with 11 year old ears listening too)?

  • kjsimpson
    kjsimpson Member Posts: 445
    edited December 2013

    Knightzoo,

    Congrats!!

    When/if my kids ask that tough question, "When will it come back?", my answer will be simply the truth... "I don't know that it will come back, but whether it does or doesn't, I'll be living happily with every bonus minute I get to enjoy being your mom. I won't be living in fear that it might come back because I'll be too busy enjoying life with you."   ;-)

    Our kids are going to worry.  They also feed off of our tempo and attitude.  My attitude is that the great game of life is good and none of us know how much playing time we will get.  So play large until our Heavenly Coach pulls you out!

  • audra67
    audra67 Member Posts: 521
    edited December 2013


    Thanks positiveneg- snowed here so can 't get the shot til Monday now...it will be day 4 after chemo...wondering what that will do..??


    I will get a heating pad, I don't have one...thanks for tips.

  • lighthouselady
    lighthouselady Member Posts: 752
    edited December 2013


    Audra - I can't get my shot until Monday either. The chemo nurse yesterday said it was fine.

  • BabyRuth
    BabyRuth Member Posts: 264
    edited December 2013


    KNightzoo-great news from your MRI. So happy that taxol shrank your tumor! Sending you good thoughts as you start on your AC journey! Keep warm! What is the temp in South Dakota?

  • KBeee
    KBeee Member Posts: 5,109
    edited December 2013


    As for the "when will it be gone and when will it come back" question...


    I was actually very excited and happy for my surgery, because I knew it would rid me of the cancer, and I presented it to the kids that way too...I didn't fear the surgery, so they didn't either...we all counted down to cancer free day and were happy. When my surgery was finished, I told my kids that I was officially cancer free, and the other treatments were extra insurance on top. I told them nothing is ever 100% sure, but if it comes back, we will do the same thing we do this time... treat it. From the beginning, I never presented it as something horrific. I simply said that there's cancer in my breast. They will take it out. They will give me chemo (medicines) which will make my hair fall out since it kills lots of fast growing cells. That medicine will make me feel crummy sometimes, but it is the medicine, not the cancer making me feel that way. Once the medicine is done, I will feel better. Even when I was in the hospital, we explained that it was the medicine that did that to my blood counts, not the cancer. I was laid back about it, and therefore, they have been too. We have tried to have fun where we can...throwing a party for head shaving, etc. They are helping to plan the "we kicked cancer's ass" bash this spring as well (which you are all welcome to road trip out for, by the way).


    Those getting chemo first, then I'd just say that chemo is killing all of the cancer cells, and the surgery is to make sure that all of them are gone, with some extra good cells taken out just to be sure. Give them small tasks they can do to help you afterwards, because it does empower them to know they are helping you to heal (otherwise it is easy for them to feel helpless when you are in pain, etc).


    Knightzoo, hope the first AC goes well with minimal side effects. Great, great news on the MRI!!!!!

  • 70charger
    70charger Member Posts: 963
    edited December 2013


    Baby Ruth as for your temp question... This morning here in Alberta the windchill is a balmy -42C which ='s -43.6F !! I am wearing a wool toque in my house this morning, along with several layers of clothing. I am thinking of a wool scarf next as I am finding my exposed neck to be a little chilly. Wishing I had a giant fireplace, but then I would have a draft coming in from the chimney. I think it is a hot soup kinda day. Will be making Saskatoon crisp this morning yum. Saskatoons are kinda like Blueberries.

  • audra67
    audra67 Member Posts: 521
    edited December 2013


    OH mY! I am freezing at 30s here in Texas and have turned up the heat! Have my trusty blankey on now...and sweats and almost bald head...:)


    Was going to try to not use Zofran and see but stomach is starting the - I don't want water in my or anything trick...and I know I HAVE to drink...You would think the Ativan, Phenergan and Amend and all in my IV would help???


    Just feel a little dizzy and off today at day 2..enjoying that is it!


    Did I mention it SNOWED!!! Freezing and pretty out~ especially to look outside from warm and toasty inside!


    happy day sisters!

  • BabyRuth
    BabyRuth Member Posts: 264
    edited December 2013


    70charger-OMGosh that is really cold! I do not know how you manage to stay warm! I hope that it warms up a little for you!


    I forgot to tell everyone that I went to a follow up with my PS earlier this week and I now have my appointment for my nipple tattoo's. I am really intrigued by this and looking forward to seeing what the "micropigmentation specialist" has to say! Yes, that is the fancy name for tattoo artist! I wonder if I can add a little bedazzle to them! My PS also said that when I am done I can get a CD of my journey(they have taken pictures of my process) if I would like and even set it to music. That made me start laughing so hard!

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited December 2013


    HockeyMommy


    congrats! you give the rest of us hope, we know there is light at the end of this long tunnel! And your light is shining brightly!


    VintageGal

  • audra67
    audra67 Member Posts: 521
    edited December 2013


    Knightzoo- your MRI results are AWESOME! HOOORAY for you!


    Babe ruth- the blingy nipple tattoos sound funny! I kept mine ( nipple sparing) and so wish I wouldn't have, they show through shirts as I don't EVER need a bra now..and are annoying when rubbing on shirts, wish I would have flat tattoos...so good for you!


    LOving this cozy, relaxing day with snow outside! fun fun fun!

  • josgirl
    josgirl Member Posts: 231
    edited December 2013


    knight zoo - congrats on the MRI exceeding your expectations. Always something to celebrate! And no rads. We need to take all celebrations we can. While rads isn't anything compared to chemo it is still a daily apt for 7 weeks and some less than fun side effects so hurray!


    Baby ruth - that video idea would be awesome!!! where do they get these ideas? You never know you could be the very next video to go viral. Lol! Good luck with the tattoos. A friend of mine is super happy with hers.

  • kjsimpson
    kjsimpson Member Posts: 445
    edited December 2013

    Had an appointment with the PA at the oncologist's office.  I really appreciated her taking the time to walk through several questions, in depth, about the upcoming surgery and radiation treatments.  I feel SO much better about the road ahead.  She deserves a medal!

  • audra67
    audra67 Member Posts: 521
    edited December 2013


    Well this is day 2 after # 2 chemo. slept til 1000!!! Up at 4 to bathroom and I took a Phenergan and Ativan to prevent nausea...I feel quite good, I remember not feeling truly weak or ill til day 5-7, getting neulasta on Monday so maybe that will help the dip that should come next week.


    Maybe learning to manage the side effects better? Hoping that is the case...

  • Art123
    Art123 Member Posts: 115
    edited December 2013


    very encouraging what I am reading on these boards, great work & positive vibes to all the ladies on this board.


    Natalie had her 1st ac on Tuesday and is doing well other thsn some nausea hete and there which is alleviatef by meds.

  • lighthouselady
    lighthouselady Member Posts: 752
    edited December 2013


    Hope everyone is having a good weekend. We've been "iced" in for two days.... got a lot of sleet and freezing rain Thursday night and Friday and the temperature has been hovering in the teens, so everything is frozen. No school for the kids yesterday, no Neulasta shot for me either. I'll have to go Monday to get it. I'm assuming it's the combination of Neulasta & Taxol that causes me the pain, because usually I'm feeling it by now. So far I feel ok, which means starting Monday night or Tuesday I'll probably be miserable.



    We decorated our Christmas tree today. It looks so pretty, but I was winded by the time we finished. It's crazy how little stamina I have, even when I'm feeling good! We braved the roads in Hubby's 4WD truck today to get something to eat - we were all suffering from a little cabin fever. Now I'm on the couch under a blanket getting ready to do some more online Christmas shopping. :-)

  • simplelife4real
    simplelife4real Member Posts: 563
    edited December 2013


    Hi All, It's day 4 post my first AC treatment. So far, no problems other than the need to sleep non-stop the first two days. Hubby and I are actually going to a ball room dance tonight. It really lifts my spirits. We usually dance almost every dance. This time, I'll be resting a bit more, but it will still be fun.


    BTW, My MO got back to me on the Claritin question, she did want me to take the 24 hour Claritin twice a day. I've been doing that, and haven't had any pain from the Neulasta shot.


    Kay

  • audra67
    audra67 Member Posts: 521
    edited December 2013


    Good to know on Claritin bid!!! I started it chemo day hoping to get neulasta the next day...and like Lighthouse...we are iced in!


    Hoping they are open Monday to get the shot...and hoping it does miracles for my wbcounts...and helps me function during week 2


    I will still take it daily til shot day!


    Glad you are all feeling well!

  • alfranco
    alfranco Member Posts: 200
    edited December 2013

    My stomach still doesn't feel good. I don't even feel like eating, and its almost time for the next round.

  • raynaj
    raynaj Member Posts: 236
    edited December 2013


    Hello Ladies: Thought I would check up on how you are managing with your chemo, from the pages I read you ladies sound really good, managing SE's and sound upbeat. That's awesome.


    Couraglicious: Saw you had your baby back in October, congratulations.


    I am two weeks post op for BMX with TE's and am healing well. My hair is about 1/4 " long and very grey. Another thing that happened after chemo ended was my nails fell off, 8 of them in total but it wasn't too bad they grew out as the new nail grew underneath, I would clip the dead part off and bandage them up so I wouldn't snag them on something and rip them off. While on chemo my nail bed turned pink and was sore, I think that was the sign that they would eventually fall off.


    I also wanted to thank those of you who know me, for the support while I was going through this with all of you, although I am mostly on Recovery Threads now, I do check in once and a while. You were a very important part of a very big and scary part of my life and I will forever be grateful to each of you.


    For those of you I know and those I didn't have the pleasure of meeting:


    Keep fighting like Girls and kick this cancers Ass!!!!

  • Miss_Mama_Bear
    Miss_Mama_Bear Member Posts: 252
    edited December 2013


    Congrats LHL and HockeyMommy! I am so very happy for you!!!


    Can you get Emla cream like in a to-go thing? I always hear the nurses say that they have patches you can get there but it takes 30 minutes for them to work so you have to wait to start your infusion. I was also thinking that it would be nice if I needed to go into the ER. I have been lucky, my port site has been completely numb since I got it until recently. When I was in the ER last week and they gave me fluids...OMG it hurt so bad. I know she got it first poke too, but I am not looking forward to another 9 months of this! And are those your weekly blood draws that you get through your port, Peacock? They never draw mine through my port. I still have to get stuck in the arm =/


    Sorry to everyone who is snowed/iced in. We haven't gotten anything here but it is sooooo cold! I just want to stay inside until spring.


    So, I have had like the BEST week ever! I am actually feeling pretty good-not much muscle pain or anything,and I wonder if it has to do with my lifted spirits?! This week I finally got my son's wheelchair ramp after 2 years of lifting him up and down the steep stairs everyday. My daughter's teacher signed us up for the Angel tree and I guess one of the local big businesses here selects one family a year to really treat and they selected us! They had us there for lunch and the kids got quite a few great gifts, we met the Colonels of the Salvation Army and they are going to help buy my oldest's car seat (it is going to cost $1400!). I had another instance of stranger, or near stranger, helping us out this week, which is a huge blessing and I am so very thankful for that! I found out that the plastic surgeon my breast surgeon recommended (she said he does the best nipples ever lol) accepts my insurance when I was sure he didn't. After looking at the photo galleries of the ones who do accept it...no thank you, I will just not have reconstruction! I am so excited that I am going to be able to see a good doctor and have a chance at decent looking foobs! Also this week, when I went to take huge test number 2/4 I got the results of #1 back: 99%!! I didn't think I did very well on the test that night because I actually ended up having to pull over and be sick on the way home from class ..but I just got my score back for that one: 105%! She always throws in a few bonus questions to help us out so I guess I got those right too lol. My poor kids are going to hate me; they are never going to have a good excuse for not getting their homework done lol. Now I just have two more tests next week and I am done, and I don't even have to get over a 90% to keep my grade above a 92% and keep my scholarships. I am over the moon! Anyway all that plus some other small things happened just this week and it has had me feeling really good. Maybe I have finally paid off all those years of walking under ladders and breaking mirrors as a kid lol. It is nice to have good things happen instead of the constant barrage of bad things and tragedy that I have become so used to and it gives me hope for the future. I hope all of you have an equally wonderful week to come!

  • Viji
    Viji Member Posts: 195
    edited December 2013


    Mamastewart, You deserve every single bit of all the wonderful things that have happened to you. Take care and enjoy it with your family. Wonderful test scores-I really don't know how you achieved that with the process of chemo, but it looks like nothing can get in your way ever again. Well done!!!

  • lighthouselady
    lighthouselady Member Posts: 752
    edited December 2013


    mamastewart - It warms my heart to read about all of the good tidings coming your way! :-) So happy for you.


    Rayna - Thanks for checking in. How was your surgery? You said you're two weeks out.... has it been awful or not as bad as you thought? That's what is up for me next.

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