Started out with DCIS now Microinvasion

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lesliecusana
lesliecusana Member Posts: 97


Well my journey started with mom getting diagnosed Sept 2013 with stage4 IDC! My 1st mamo in Oct 2013 microcal cluster led to sterobiopsy with high grade DCIS! Then Lumpectomy to find microinvasion of 1.1mm! So then SNB and now waiting results for that! I am freaking out to hear results! I peaked at my chart before SNB and looks like microinvasion was ER- PR- Her2+! Worried there is micromets somewhere in me! Have appt MO next week! Not sure what treatment to expect! Age 44

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  • lesliecusana
    lesliecusana Member Posts: 97
    edited December 2013


    Oh also had breast MRI and ultrasound prior to lumpectomy and no microinvasion seen on either! Also it did no show on sterobiopsy! Just amazes me how fast this progresses!

  • Beesie
    Beesie Member Posts: 12,240
    edited December 2013


    Microinvasions are microscopic - they won't show in any screening. I had one too. Microinvasions show up in the final pathology of about 15% of women whose stereotactic biopsies show only DCIS.


    If your nodes are negative - and there is a 90% chance of that - the microinvasion won't end up impacting your treatment plan and it barely impacts your prognosis - I think there is only about a 1% difference in long- term prognosis between pure DCIS and DCIS- Mi.


    The main difference a microinvasion makes for most of us is just that we are Stage I instead of Stage 0.


    Good luck with the SNB results!

  • lesliecusana
    lesliecusana Member Posts: 97
    edited December 2013


    ok last post! Just feel numb from 2 surgeys on rt side! SNB worst of 2!

  • lesliecusana
    lesliecusana Member Posts: 97
    edited December 2013


    Thanks Beesie! From reading all over these threads you seem to be an expert! Just seems like so far I'm falling in the odds category! I'm hoping for good news soon!

  • CTMOM1234
    CTMOM1234 Member Posts: 633
    edited December 2013


    Leslie - You are at a very stressful point in the process, the worrying and uncertainties and the waiting are difficult, so hang in there, it really does get easier. Don't play the odds game, the only numbers that matter are your own, and you do not have all of the information yet.


    I was the same age as you when diagnosed after a routine mammo. lead to a stereo. biopsy, also initially with dcis (in my case, grade 2) and no reason to believe it'd be more than stage 0 based on the mri, ultrasound, and additional mammogram. Like you, I had a lumpectomy which only in its final pathology report revealed 1.75 mm of grade 2 idc. So exactly 14 days after my lumpectomy, I went under general again (never had general before lumpectomy, never even had any surgery before) for the snb biopsy.


    Completely agree that the snb was the more painful surgery from which to recover. Wishing you favorable results from the snb, and in all likelihood (yes, now I'll call upon statistics) the existence of the micro amounts of idc will not change you treatment plan in the end (I had rads only, no chemo, and I was given the option to take or pass on tamoxifen - I passed, personal choice).

  • lesliecusana
    lesliecusana Member Posts: 97
    edited December 2013


    Thanks CTMOM! I really helps to hear from others who have or are going thru it too!


    Leslie

  • CTMOM1234
    CTMOM1234 Member Posts: 633
    edited December 2013


    You are welcome, Leslie, just paying it forward. I'm just over four years out from diagnosis (and 3.5 years from treatment) and what got me mentally through all of this -- and continues to -- are these boards, so please come here as much as you need. None of us has a crystal ball to see into the future and most of us knew little about any of this before we got diagnosed, we just do the best that we can to make decisions based on the information available to us at the time. I compartmentalize my life and share very little about bc outside of these boards, I prefer to only address with others who have/are going through it, as they understand.


    It's tough geting a good night's sleep at your point in this; if I could change one thing, I'd have been open to taking something to help my over-thinking brain get a break at 3 AM and getting much needed sleep.

  • lesliecusana
    lesliecusana Member Posts: 97
    edited December 2013


    Yay!!! Nodes negative!!!! What relief!

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