Calling all TNs

bak94

So sorry to hear about your husband losing his job & therefore your insurance. Don't know your age but insurance is difficult to wade through. My husband is still working at age 78. His medical ins at company is primary. Because he has the insurance policy through his company I postponed going on Medicare, had hospital but not the medical part. When he was thinking of retiring a little while ago he said maybe you should kick in the medicare part B I think it is. When part B is activated after 65 you have 90 days to get a GAP policy to cover the 20% without riders on previous illnesses. I am now insured out my ears as he is not going to retire until next year sometime. Is the company offering a COBRA policy? Last I knew it was cheaper & better than most other options. My sister-in-law on disability was on medicare/Medicaid & got assistance in bills with her doctors. They told her of assistance groups that help. She had lung cancer. Maybe they can help.

I wish you the best in wading through the insurance nightmare. Just don't fret too much. It will work out somehow.

Good wishes & prayers coming your way.

Marsha

simplelife4real - wish you all the best for your chemo tomorrow. I am getting a little better today. I will have my gene tested in early Jan. Like you, it will influence my decision on further surgery. Hugs to you!

Hello All,

Just heard from Stupidboob. She is just up to her eyeballs with life.

Her dog has cancer & not doing good. Her brother is having open heart surgery this week & her back is giving her pain.

So all of us need to send her loving & healing prayers.

Cancer SUCKS!!!!!

Marsha

jen, how are you doing? Ore diagnose is quite similar except I haven't done the genetic testing yet. Howare you feeling after chemo and stuff?

It's been a long time since I stopped back here and a lot has gone on. Tomorrow will be my 5 year cancerversary. I guess for most people making it 5 years is a good thing. But I had a local recurrence 1 1/2 years ago, so I don't know if that changes things.

Anyway, this August I had a total mental breakdown and was committed. It was due to me never dealing with my fears about the cancer returning, my addiction to pain pills from the BMX/reconstruction pain that never left me, and the dissolution of my marriage. I can say with certainty that cancer destroyed my marriage. I'm better off without such a selfish person, but cancer changed me in ways he could not deal with.

I'm doing better these days, just taking things one day at a time and trying not to get caught up in the worry and fear. It's been a very long tough 5 years, the worst of my life. Cancer has taken a terrible toll on me. Don't let anyone ever tell you it's no big deal. It is.

I'm hoping the next five make up for it. Fate owes me big time. Best to you all -

Minxie, you are such a brave woman to share that story! My heart goes out to you for all that you've been through. May you find love, peace and happiness in the next 5 plus years.

Minxie, I'm glad you checked in and let us know what's been going on with you. I think cancer's mental toll is really underrated. That's been by far the toughest part of it for me. I can handle the chemo, surgery, rads, but the uncertainty that goes with having TNBC is rough as we all know. You are among friends here and we are here to support you.

I'm at the infusion center right now and getting my first AC treatment. It was interesting to see how they have to manually push the adriamycin. That part is done, now I'm just waiting for the cytoxcin to finish infusing. I was delighted to learn today that they give Emend by IV here first so along with all my other oral antinausea meds, I should be pretty well covered. The IV Emend is supposed to last 5 days, I will also be taking Zofran for three days and phenergan for any breakthrough nausea.

Just checked in with my BS today. All ok. Every 6 months is my schedule now. This month 26th is one year. He was happy that I am clear so far. He told me that in over 35 years of practice I am the only person that is allergic to all meds he has seen. He is fantastic. Very busy but still finds time to complement you. My body goes into severe reaction or in case of the chemo (AC as it is cumulative) tries to shut down. I almost died from the reaction to chemo in March. That is why I had to stop. It would have killed me if I continued. Reason being is no meds I can take to counteract the neutropenic fever. As he explained it would destroy my body. The organs would have shut down. So I take nothing. Not even the non FDA approved B17 was good for me. My body reacted badly to that too. So I pray. Have good family for backup. Do the best I can daily. I still have bad days. I do take some vitamins. B12 is one that has really helped.

My sister-in-law had 12 years of lung cancer remission before it finally took her. I'd be happy for 6 years, but of course pray for more.

It is up to our Lord when my time is up. I guess he still has plans for me. Long range I hope.

I am looking forward to Christmas this year. Spoiling my grandson, being with family.

Love to all,

I am in an up mood today. Last year around this time I was a mess. I figure this year has been a gift.

Marsha

Marsha - good that you have now moved to 6 month appointments. How many chemos did you actually have - just curious? It will be very interesting to see how you do compared with those of us have had chemo - I still have misgivings about the chemo, but it is done now - no going back.

Enjoy your Christmas with your family! This time last year I was going through chemo, so this year should be a better one for me also.

Does anyone know what happened to Inspiredbydolce? She was such a regular, and such a great source of info. Then she just disappeared!

Hi All,

I'm about 20 hours out from my first AC treatment. So far so good. The first day after each Taxol infusion, I felt fine...so I'm not surprised I'm feeling basically okay today. Just tired. My blood pressure was really low after chemo yesterday 78/58. It was low this morning too 80/60, so I think that's why I feel tired. I felt that way immediately after the prechemo Emend IV. I suspect it's something about the Emend, but I'm really happy to be getting it to combate nausea. I'm drinking water and have had some salty foods to try to boost my BP.

I read how so many think Christmas will be great this year. I'm trying to figure out how to make it brighter. We don't have family close by so it will likely be my hubby and me. It will be my off week for AC, but I think I will have just lost what's left of my hair....I'm thinking I have about 14 days until it's gone. I like to watch Heidi with Shirley Temple on Christmas day. Other than that, I can't think of much. I guess I'll be on the phone wishing my family and a couple close friends Merry Christmas. I have some time to think about it.

Inspired hasn't logged on since the end of Oct. I went back to her last post and it didn't give any reason, but there were tension filled posts happening at that time regarding what some think is appropriate (or not) material to post. Maybe she is just taking a break amid that and Michelle's death. We tend to lose some ladies for a while after a sister passes as it is so difficult to deal with.

Inspired (Debra)- if you see this, please let us know you are okay.

Mamogram last week was clean.  Whoop Whoop.  PT/CT Scan tomorrow, please pray that I get a good result.  Please and Thank you.

Great news Guy! Sending good thoughts that PT/CT are clean as well. Are these just check up scans?

Hi All,

Even though I am new here, I can tell this is a very supportive group that cares for each other and I appreciate that.

Guygirl, I'm wishing you the NED on your tests.

My blood pressure has been running on the low side ever since my AC chemo on Tuesday afternoon. I've been sleeping a lot. Don't feel sick, just very low energy. I know I can get through this. Sipping Gatorade, trying to stay hydrated.

Kay