Starting Chemo, November 2013 Group

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  • sloyd66
    sloyd66 Member Posts: 202
    edited December 2013


    Thanks Veronica, I guess also it's left up to your company working with you. You pay into short/long term disability and all that and they don't care all they want is you back to work. I really don't want to go back until I know my body has adjusted to this poison in my body

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  • NorthwindsGS
    NorthwindsGS Member Posts: 128
    edited December 2013


    I am working through this battle. Took the day after off for my Lumpoctomy, went back the next day after my port placement and so far have not missed a day of work due to chemo. I have chemo on Wednesday morning and when finished I head to work for the rest of the day, work Thursday and Friday, off for the weekend and then back on Monday. For me the worst day was Saturday, spent it in bed and spent Sunday on the couch. It is hard and some days I just make it through and all I want to do is go home and hibernate till this is all over with however I am insured through work and have to pay my ins premium which is high so I keep getting up and trudging forward every work day.


    I am just loosing my hair now. Friday after work I had it cut super short, everyone at worked liked it though hubby thinks I look like a guy. Now that it is coming out I will wear hats and scarves to work as I am a CNA and work with the disabled in a group home and I don't want to alarm or scare them with my b,adding head,lol. So far my eyebrows are hanging in there so not sure what I will do when they go. I can't even draw a straight line! I can just imagine trying to pencil then on/in and having them crooked and uneven.

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  • smrlvr
    smrlvr Member Posts: 422
    edited December 2013


    Lisa - that is funny about the foods you crave! I am craving tomato anything. (Sauce, soup) and chocolate! In fact after my last round the only thing I could keep down was a chocolate milk shake.


    Today was AC #2. They slowed the cytoxin drip because of the headache I got last time, but MO and nurses aren't sure if headache was caused by cytoxin or the premeds. Zofran also causes headaches so they gave me Ativan instead. So now I am planted on couch waiting for DH to bring dinner back. I have that fuzzy feeling but mot much else.


    Also had a bad morning this morning, very teary and anxious about today's treatment. It all went ok, but just the thought of going there made me nauseus. I was just thinking about all the things I have lost, boobs, work time, innocence and soon hair.


    I hope everyone who has chemo this week does well with minimal SE s. Hang in there, we can do this.

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  • wrenn
    wrenn Member Posts: 2,707
    edited December 2013


    northwinds. I am so impressed that you and others are able to work during chemo. I can't imagine pulling that off. You are some of the strongest women i have ever met.

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  • ellenkc
    ellenkc Member Posts: 173
    edited December 2013

    Decades ago, when the AIDS epidemic has just started and the AIDS diagnosis was pretty much a death sentence, I read an article by a guy who had the virus. He had decided that instead of hating the virus invading his body, he would be gentle with it, and love it, so that it didn't have to fight back so much. No idea whether that made any difference physically, but what a great attitude!

    I've been trying to think of a counterpart attitude for all the miserable side effects we are experiencing, and I'm concluding we are all damn LUCKY to have these side effects & be able to talk about them here! They mean that:

    • We all managed to get mammograms or other procedures that diagnosed the cancer before it was too late
    • We have the resources to secure care (Just imagine the people out there who know there is a treatment but can't get it!)
    • We live in places where care is available -- probably not true in much of the world
    • We are part of the 40% of the world's population that have Internet access
    • Sounds like most of us have the luxury of not working while we get treatment. I am so impressed with the strong women who are continuing to work!
    • Whether it is a few months or a year or so, there is an end in sight for these treatments and side effects, unlike folks with life-long chronic diseases (e.g. my husband's extensive arthritis that landed him in a wheelchair the last 10 years).


    No doubt there could be more on the list, but you get the idea. I sure feel better when I can look at it this way.

    Ellen

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  • lisa137
    lisa137 Member Posts: 569
    edited December 2013


    Oh, smrlvr, I hate it that you are feeling this sadness and anxiety and I honestly wish there was something I could do to fix it for you! I really would, because I honestly like you, and feel a great deal of empathy towards you, for some reason. Maybe because we are a little alike in certain ways. :)


    This is a hard hard thing to go through and it really IS difficult to find the positives in it,, sometimes impossible.


    I know that for me, while I mourn the fact that I don't have breasts anymore, I at least haven't had to wear a miserable bra since mid-October now. It's a little thing, but it makes me smile, because I always hated them.


    I haven't lost my hair yet, but I AM planning for it to grow back, so I'm hoping I can keep it in perspective and enjoy trying out "new" looks during my hat & scarf period.


    I'd rather have not had cancer, but I DO have to admit that this experience has made my husband and I closer, and more understanding of one another, so that's a positive thing I can bring out of it.


    I've learned to say "I love you" to people I didn't use to actually SAY it to. That's GOT to be a good thing. I'm closer to my family and friends all the way around, actually, because I guess now I realize that they really DO care....maybe I never beleived it before, I don't know, but I do know I never FELT it before now. So that's something gained.


    I've examined my own spirituality a lot more closely and reached a place that I'm absolutely comfortable with and comforted by, and that's a new thing for me, and a REALLY positive thing.


    The loss of innocence.... I know what you mean with that one, but I think I'm okay with it now; it was part of the whole spirituality thing, and facing my own mortality and all that.


    Keep in mind that you have NOT simply been dumped into a new reality and that this reality will ALWAYS be. Not at all. You have simply been sent walking down an unexpected road, but you ARE walking the road, one foot in front of the other, and one day soon, you will finish walking that road and you will have a new road to walk. Your reality NOW is difficult, and it's impossible to really see past it---because we can't see the future---but know, and believe---sit and THINK ON THIS---that you still have other realities to experience in your life, and MOST of them will be MUCH MUCH better than this one.


    And believe me...trust me...when I tell you that *eventually* it's all going to be okay. Even right now...look for them, those "okay" moments are THERE. Look for them and smile at them and maybe write them down so that when you're feeling sad and anxious you can go back and read about the "okay" moments, and remind your tired spirit that it's not ALL bad, not ALL the time. Reach out for the joy, and it really will reach back AT you. It does. I promise you, it really does.

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  • lisa137
    lisa137 Member Posts: 569
    edited December 2013


    @ellenkc you make a wonderful point: We ARE lucky to be experiencing these side effects! It's awful that we got cancer, but hey, we got cancer NOW, when there are treatments BEYOND cutting it off barbarically and sending a woman home to hope for the best.


    I saw something on TV earlier today about how in 1964, almost every child who got leukemia died, but how NOW they cure something like 90% of it. My first cousin got leukemia---she was 6 or 7 years old--- around 1969 or 1970, and of course, she died. If she got it NOW she'd probably have to go thru all these awful treatments like we are for BC....but she would LIVE!


    That awful "red devil" adriamycin..... when they get ready to pump me full of that stuff next Monday I believe that I am going to take a moment to think of you, and be THANKFUL that that wicked mean stuff exists. I think I'm even going to smile at the orange pee. :)

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  • wallymama
    wallymama Member Posts: 146
    edited December 2013


    Oh Smrlvr, here I was about to woo-hoo that my blood counts are doing good and you are feeling so down. Hopefully you are better now. We will all go through those moments. We've been tossed into something that we couldn't have imagined a year ago, we have poison pumped into us regularly, our tastes, smells, and looks are changing drastically. It has to cause problems at some point. We can try to put some positive spin on it, find something small that makes us smile each day. The fact that tea still tastes good, or a lone flower hangs on in the yard, or our hubby still smells good. Or we can lose ourselves in the dark tunnel and not see that there is a way out. We will walk out one day. We will reach the end of this dark tunnel, step into the sunshine, and scream "DAMN. I MADE IT. AND I'M A BETTER PERSON BECAUSE OF IT." I know words from someone you have never even met probably don't have a lot of impact, but try to remember that we are all in this together, even if we don't know each other. We know exactly how you feel. I felt like I'd go crazy, thinking that I still had nearly a year of treatments this and treatments that, so I started planning an 'I made it party'. And baby, so far it's gonna be one hell of a party.


    Veronica- I went on short term disability partly because I wasn't sure how I'd do and partly because I'm in retail and the boss needs to know there's someone to open the store reliably. Wasn't sure when I might need to be off and it is the Silly Season. Plus, I couldn't see burning any more of the vacation I've saved all these years when I could just go on disability. I plan to stay off until the first of the year when things calm down some.

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  • Bec65
    Bec65 Member Posts: 312
    edited December 2013


    Ellen, Lisa, Wallymama...you are good for the soul! I will be a better person for having gone through this. It is sometimes hard to remember to be grateful for this treatment when it makes us feel so terrible (read: me whining on the couch the past three days), but I am truly grateful.


    I am in awe of people who work through this. Until my third treatment, I had fleeting thoughts that I could have been at work this or that day. But, now, see my couch reference above! Seriously, though, I am a teaching assistant in adult education and work with 40+ students each day tutoring them in math, one-on-one. Germs would have done me in. I used up all my vacation and am on disability now. But I'll be back at the pre-service in August, hopefully with decent hair!

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  • audra67
    audra67 Member Posts: 521
    edited December 2013


    You are all amazing and I also commend you that are working with all of this! I had a boutique and I actually closed it and am glad I did. Each day I woke up to some new pain or weakness and have mostly been on the couch recliner...thank God for my husband and this site! I also like HGTV but have gotten tired of the same old thing too...trying to find comedy and funny things as I get agitated with action or scary things now ...Seems my emotions are just out of control and change by the minute.


    I actually was feeling almost back to normal until today...does it really take 2 weeks to get back to normal??? Or was that just my super low wbc ? I am wondering if I will feel more normal with the neulasta?


    I got port put in today and omg! It is in my neck! CREEPY! We had mix up on times and when I got there they said I was scheduled for Wednesday so we went and ate breakfast, where we got a call asking why we weren't there at hospital?? Whatttt?? So we went back and they could still do it but no sedation...so I was awake, which turned out ok since I'm nosey and wanted to know all anyway...but now that the analgesic wore off it is super stiff and sore...and CREEPY!!!


    LOVE the rants! It has so much of what I feel, and what we must all feel at times.


    I am LOVING my shaved head! Never thought I would say that! But so fast to shower and not needed to dry and then out and done...it is amazing..I do feel like a boy or man though, and I can't seem to figure out how to do the scarves ....I look like a gypsy...


    The wig I wore out yesterday when I took it off made my hair hurt...today wore a hat but took it off at hospital as they all don't care and then went home and have been just bare...it is almost exhilarating and I feel like I'm incognito or something...so I'm very surprised at how OK I am without the hair...so far...


    LOVE reading everyones journeys and thoughts...it is probably the best thing mentally we could do and I appreciate you all so much!

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  • wrenn
    wrenn Member Posts: 2,707
    edited December 2013


    i am getting so comfortable going bare back that i have to remind myself that others might not be so comfortable with my lack of boobs. I just whip my shirt off for the home care nurses and with nurses at hospital. I am like a man now and just take off my shirt with no modesty. I also like being bald.

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  • FairyDogMother
    FairyDogMother Member Posts: 253
    edited December 2013


    Today was my first day back after chemo. We were closed all last week. I worked a 12 hour day, but the one thing I noticed was I did not drink enough fluids. I feel exhausted. I have to clean up dog poo and vomit on some days, but MO told me I can’t do that now. MO told me to stay away from the dogs, but my business is dogs and dealing with the public. I carry hand sanitizer and gloves. The major worry is infection I was told especially since it is cold/flu season I didn’t get the shot and I am asthmatic. I’m doing partial work weeks Monday-Wednesday, Chemo Wednesday and the bloody Neulasta shot on Thursday. It is hard to get use to the half week, but my SE from Chemo increase each day, so I’m thankful now for those Thursdays/Fridays. I found the last chemo Friday Day 2 post chemo I was in bed, but I got up and did a 1.5 mile walk.


    For those who have lost lots of things to cancer. When I get really sad and want to go in my dark hole..this is what I type and write: Cancer might have taken my part of my boob or all of it, my ovaries, my good cells, my hair, my time, my clients, and whatever else I will be losing in the short time, but IT WILL NOT TAKE MY FREEDOM! I grind my teeth and get up and just do something.

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  • lisa137
    lisa137 Member Posts: 569
    edited December 2013


    What I love is how many of us are annoyed at HGTV. Someone should let them know.

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  • Palameda
    Palameda Member Posts: 259
    edited December 2013


    Lisa and Bec, onward with the rants! They make me feel like I'm not alone in getting angry and afraid at times. Yesterday was a bad in-bed day for me: today was pretty glorious. I felt like had some energy, yay! Ellen, thanks for being such a calming and positive presence in our lives. Audra, yes the port is creepy: that's the right word for it. After a few days it will settle down and it won't bug you. Hang in there.


    I went to the Look Good, Feel Better program today. It was fun, there were only 4 of us. Yes, we got some good makeup. Boo, hiss, they ignored my skin tone which they asked for when I registered, so now I have some lovely Estée Lauder foundation which is much too dark for me. I don't know why they ask for our skin tone, we were one Hispanic, one East Asian, and two fair skinned women. We all received medium skin toned kits. Huh? In other words, not one of us got the right colors! Other than that quibble, we got some great swag.


    I've still got hair...just not presentable!


    Wednesday is #2. Ugh, just as I'm feeling almost human. Sigh.

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  • Paulette23
    Paulette23 Member Posts: 499
    edited December 2013


    hello my BEAUTIFUL LADIES!!! GOTTA do some catch up to see how yall are! on stupid phone so can't write till on computer. ...am praying and reading EVERYONES posts! Have ROUND TWO CHEMO tomorrow. eeeeekkkssss!!!..after MO appt AND a checkup for port pbm....will share when at computer....and phone doesnt make me need to multiple post and edit. ..I don't dare create a new paragraph. ....sorry for the endless post w/o break. ...lol!!....I am thinking of each of u! plz forgive me for not posting sooner! U are ALL on my heart!!! I've grown to love each of u and delight to see new faces!!!!! we are all going thru a wacky state of mind...and what I LOVE about our HOLIDAY LADIES is that we have LINKED ARM AND ARM!!!!!! HUGGING and supporting one another! We are from all walks of life......from differant states..countries....and continenents!! YET we connect with a common thread! Though the thread is a sucky one...it gives us a Unighted sense of heart..!! NO ONE ....should ever feel alone enduring what we all are OVERCOMING!!!!! ISNT the internet GREAT!!!!!.........WELL....wont go on and ramble in ONE HORRID PARAGRAPH because my phone..wont allow me to break it up! want to see how you ALL are doing!!! For me its gonna be a long nite..on the decadron (steroid) yahoooooo dose...lol....was exhausted today after OVERDOING yesterday! ....now have begun steroid induced rebounding. ....plz forgive my rambles tonite! At least I am in company who understands!!! LOVE and PRAYERS to each of u! hugggsssss

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  • VirginiaNJ
    VirginiaNJ Member Posts: 634
    edited December 2013


    Lisa, your comment RE HGTV made me laugh out loud. I have taken time off work and find myself watching WAY too much daytime tv....find that the guests are the same for every show.....


    Pat, I did that program one week ago and got the medium but that was right for me.... That really stinks they didn't give you your correct choice... :(. I had a lot more energy today too (and way less blues). Put up one of my Christmas trees and managed a 3 mile walk :)


    Good luck tomorrow Paulette.....

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  • smrlvr
    smrlvr Member Posts: 422
    edited December 2013


    Lisa, Ellen and Wallymama, thank you for you inspirational words. I have also found my relationship with my husband is getting better through this. I also cherish the people in my life more. Also, I now know who my real friends are and how I am valued in their lives. You are right about that.


    That slowed down the cytoxin drip today and my headache is not as bad as last time. I am not falling asleep but I am tired so must be the steroids.

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  • smrlvr
    smrlvr Member Posts: 422
    edited December 2013


    Bec, I am a math teacher ,too!

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  • lisa137
    lisa137 Member Posts: 569
    edited December 2013


    So tonight I'm grumpy because I have heartburn again. Probably my own fault: Did I mention that I had spaghetti for lunch?


    My husband came into "my" room tonight to hang out with me---and I LOVE that he does that---but he stole my remote and put on "Full Metal Jacket." Partly because he loves that movie, partly because he loves to annoy me sometimes. Truly he does; he's not just being mean, he thinks I'm hilarious when I'm annoyed and bitchy. Of course he can tell when I've really had enough and he lets up, but tonight I was doing some shopping online anyway, and not really paying THAT much attention to his movie---other than to occasionally grumble something like "MUST they really scream ALL the time?"--plus I was preoccupied with the heartburn.


    The end result was that I spent 41 dollars on artwork to hang on our walls, and it's HIS fault because he stole my remote and I was *bored.* Yay! I can't wait to receive them. (8 poster/prints for 41 dollars -- zazzle.com is having a 60% off sale on posters and prints; goes until midnight Pacific time, so hurry lol.) Posters/prints are my one real addiction/weakness when it comes to spending money -- I'm an art nouveau and art deco addict, so I order stuff from them about once ever six months. Husband wants to know when I'm gonna stop that. Answer: When there is not one square inch left bare on any of our walls, and not a moment before. :)


    I won't even pretend that I could WORK through this. I can't even imagine it. I mean, in a way I *am*, because I work from home anyway (designing on that same website that's having the sale,) and I'm a housewife and the house hasn't fallen completely apart and I am making Christmas sales right and left....so I guess you could say I'm still "working," but in all honesty, I haven't done much of anything since my BMX. Those of you who HAVE to work through this.... I don't even know what to say to you. It's just wrong. No one should have to work through chemo unless they (for whatever reason) just WANTED to do so.


    @FairyDogMother: Yes! Fluids! What has turned out to be true for me is that if I just drink drink drink until my eyeballs are floating, I will NOT be so tired and exhausted. If I do not drink enough, ALL I want to do is sleep. It's just that simple. Drink! Then drink some more! Then drink something else! Keep drinking.


    @Wrenn you made me laugh! I can see myself headed down that same road and am afraid that sometime this summer I'll be out in the yard and get hot and just whip my shirt off and toss it onto the shrubbery like my husband does. To be honest, I would LOVE to see the neighbors' reaction to that! I also think I might enjoy being bald, since it's going to be temporary. As thick as my hair is, washing it has always been a PITA because it takes SO LONG to dry. Even now that it's short it still takes forever to dry. And even though I'm only 49, I'm harboring a secret hope that when it grows back it comes back snow white so that I can tint it all kinds of crazy colors without using "dangerous" dyes to do so. And by crazy colors, I mean....think Easter eggs. No kidding. I asked my husband if he'd mind if I had lavender and pale green hair and he said nope, it was fine with him. I will totally do it, too, so everyone please cross your fingers for me that my hair comes back in blindingly white!


    @Bec: Yes, you will be a better person for having gone through this, but I have it on pretty good authority that to become a Truly Great Person, you MUST spend a certain amount of time on the couch whining and feeling sorry for yourself. I know, I know, it sounds crazy, but it's in the Official Rule Book, so it must be true. So yeah, even though your natural inclination is to be "brave" (I'm starting to hate that word) and "keep a positive attitude" (not a real fan of that one, either,) at all times, you really MUST make sure to spend at least SOME time whining on the couch, or you will never be a Truly Great Person. You can do it! I have faith in you! We're ALL going to become Truly Great People all at the same time, we just have to be *vigilant* about keeping up with our whining, ranting, complaining, bitching, bellyaching, and generally being discontent and sometimes hard to get along with. It's the only way! Bahahaha! We can do it!


    @Audra That's exactly why I watched HGTV til I started to hate them (lol.) I just can't *handle* drama and violence or even much of the news right now. It's hard to find television that isn't distressing, and I can really only get just so distressed over someone's disappointment that the bathroom only has one sink, so HGTV it was. Some other good options though: If you get TvLand they show lots of old sitcoms, and plenty of them are "marathon" style.... I can spend the entirety of Saturday (or is it Sunday? Or both?) watching nothing but Brady Bunch and Cosby Show reruns. Good for the soul lol. I've also found that Disney, Pixar, and Dreamworks movies are good choices for me. And right now, all the old Christmas cartoons and claymation specials.


    Tell you what else: That damn port is about to drive me bonkers! It's not sore anymore, it's not that, it's just sometimes I feel like I'm going to stretch the wrong way and the port is going to pop out of my chest and go flying across the room. .... God my dogs would LOVE that, wouldn't they? Yikes. But yeah, when it was first put in, that was one of the most sore things I've ever experienced. I wasn't in agony or anything, but I was definitely highly uncomfortable for several days because of it. It gets better though---except when it's being annoying.


    @wallymamma I think I want to come to your party! It sounds like my kind of thing :)


    I considered checking into the Look Good, Feel Better thing, since so many are doing it, but I don't think that THAT is my sort of thing. I haven't worn makeup in years anyway, and unless they can cure heartburn, I don't think they can do much for me in the "feel better" area. I'm not sure why, but I'm just not feeling too "down" about the whole body image thing at this point. God knows why: I have no boobs, and while I'm not really obese, I'm certainly not skinny, so my tummy is now the first part of me to enter a room (and my butt is the last part to leave, haha,) my hair is about to disappear, I have been trying to keep my partial dentures out of my mouth as much as possible to avoid any sort of irritation on THAT front, and I've always had lousy skin to begin with. So I suppose in theory I should be feeling pretty blah about "me" right now, but honestly, I'm not. I suspect it MIGHT be because my husband is just as interested in sex with me as he ever was (he's such a shameless hussy lol.) I have those moments in the bathroom occasionally if I happen to present myself in front of the mirror naked, but I've solved THAT problem by timing my showers directly after my husbands so that the mirror is all foggy anyway and I can't see a thing.


    @smrlvr I'm glad the headache was better (lesser) this time. You're a step farther down this road than you were a day ago. Just keep going. It's all going to be okay. Seriously. It is. :)

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  • lisa137
    lisa137 Member Posts: 569
    edited December 2013


    @Paulette -- I forgot to say: I know you are having problems with your phone and that it kind of forces you to post in a certain way, but I have to say, I LOVE IT. It's like you're a happy little ray of sunshine that bursts into the "room" here and shines a little bit on everyone, and then rushes out again because there are things to do and places to go and people to see. I find it really cheering and kind of energizing. :)

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  • Paulette23
    Paulette23 Member Posts: 499
    edited December 2013


    lisa.....thanks and OMG....ALL DO NOT READ IF U GET YUCKED OUT!!!!! LOL..... I think my body has gone WACKO!!!!!! I was trying to finish cleaning my dirty old house before chemo tomorrow. ...was "backed up" ...like my normal gastrperesis....aka....bodys intestines are paralyzed it stays clogged up! All growing up i thought it was NORMAL TO "go" once a month when I got my" friend"!! when I got married and saw guys went like clockwork. ...I realized something was wrong! anywho....OMG....ALL of a sudden tonite I "painted" my floor.....all the way and jumped in the tub!!!!! Dunno if it was stress...decadron...and lax's.....I felt like a garden hose!!!! sorry TMI!!!! IT was actually funny!!! bizarre from someone who NEVER "goes"....oh my......my...my! gotta laugh!

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  • Paulette23
    Paulette23 Member Posts: 499
    edited December 2013


    gotta add....while dragging around an IV pole through the whole horrid incident!!!! goodness....gotta have a sense of humor! still trying to sit and read how all my friends are doing!!! gotta clean up first. thankfully it want chemo-crap! that's tomorrow! !!! lol!!!

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  • lisa137
    lisa137 Member Posts: 569
    edited December 2013


    lol Paulette....that happened to my mom once. She was supposed to go to the doc for some procedure the next morning and had to drink some stuff that night. I had spent the night with her cuz I was driving her to the doc the next morning. She woke up in the middle of the night and left what I referred to as "the trail of tears" all the way from her bedroom to the bathroom. Sad and hilarious all at the same time. Once she was out of the bathroom we sat down and had a serious conversation about whether it was easier to clean the carpet or just sell the house :P

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  • Paulette23
    Paulette23 Member Posts: 499
    edited December 2013


    gotta add....while dragging around an IV pole through the whole horrid incident!!!! goodness....gotta have a sense of humor! still trying to sit and read how all my friends are doing!!! gotta clean up first. thankfully it want chemo-crap! that's tomorrow! !!! lol!!!

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  • Paulette23
    Paulette23 Member Posts: 499
    edited December 2013


    thanks I have tiled floors!!!!!THANK GOD!!!! I JUMPED into the tub QUICKLY! !!!lol!!!!!! HUBBY...wants me to go to appt at 10am...and I feel like a two year old saying...NOOO!!!! But I know the best is to finish the course! so that many others will be encouraged by the miracles in my life!!!!!!! Doesn't mean the path is easy!!! I must stay the course and the outcomes will be sooooo BEAUTIFUL! !!! Even though sometimes life SUCKS we must stay the course and walk it out! ....bummer....Someone watching will be given hope for LIFE because we press on through the poopoo of life!!!!

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  • Paulette23
    Paulette23 Member Posts: 499
    edited December 2013


    hello all my BEAUTIFUL CHEMO LADIES! lol.....making it thru the wield, wacky, chemo, nite and admitting it!!!! Hopefully my honesty will give yall the laughs and giggiggles to overcome the crap-o-la we all must endure!!!!!!! hugggs to everyone! chemo round two today for me!!!!!! chuckle aat my bizzare nite!!!!!! if I can survive the 74 day hospital stay frim hell we ALL CAN and WILL get thru this blip in time!!!!!...gotta laugh!!!!!!....life canbe a real wacko ride!!! we have MANY who live us and need us for the long ride!!!! JUMP ON THE SUCKY COASTER....for a minute and give HOPE to OTHERS!!!!

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  • wallymama
    wallymama Member Posts: 146
    edited December 2013


    I am seriously glad to see that everyone seems to be in such a better place. It so good. Maybe some funny stories will keep us that way for a couple of days. Once, I was washing dishes as my toddler daughter was eating a bowl of dry cereal. Chatting to herself as usual, I noticed she seemed to sound funny. When I turned around, both sides of her nose were so distended, she looked like our hamster. None of the rice crispies made it to her mouth. I had to take her to the doc to get them removed. When I asked her why she did such a thing, she replied "I was saving them for later". Thirty years later, she still isn't allowed to have rice crispies.

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  • Lissy2304
    Lissy2304 Member Posts: 60
    edited December 2013


    Thanks for the hat/scarves tips! I actually got two cute ones at Walmart for .6.97 each. Not too bad!


    My taste buds haven't suffered at all and I hate to say I have actually gained weight. I believe it's the steroids, or at least I want to believe that's what it is.

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  • audra67
    audra67 Member Posts: 521
    edited December 2013


    lisa 137-


    You truly crack me up! LOVE the 'rule book' ideas, and agree totally. Full Metal Jacket - really? He sounds like my husband...funny!


    Good luck today Paulette! You are killing those microscopic cells that might have snuck in there somewhere and destroying them forever! Put on your warrior 'armor of God' and stand strong! You can do it!


    My port is still stiff and sore but not killing me, thank Goodness! Weird feeling having the catheter up in your neck and I feel it when I swallow, must be swelling and hopefully it will go away...I was hoping I wouldn't grab it and pull it out in my sleep last night by accident/


    It's 70s today and I am going to try to go for a walk later today...woohoo....I used to work out 3-4 times/week until all of these surgeries and recovering thing started...so we'll see how I do..


    I have to say, I actually liked the positive/nice attention at the hospital yesterday from the nurses. Some had sisters that had breast cancer, and they told me their stories, and others commented on my shaved head and told me how good it looked(not sure if just being nice) but I felt actually loved and appreciated as a true fighter in this cancer thing! And I felt like it was a 'safe' place to just have my head showing without a cap or something hiding it as I feel I must do in 'public' - it was refreshing and nice...


    Some of your infusion rooms sound like the Four Seasons compared to mine! Wow private rooms overlooking outside???!!! I wish...mine has about 4 chairs facing each other in one row and then 3 or 4 more rows like that...they are recliners too and have a little space in between but amazing how full the room is...and the ear buds are definitely a MUST! Whoever said they talked about irritable bowel for hours was funny! People are so annoying and rude...at least no one was blathering on their cell phone..THAT would've probably made me say something, especially in my relaxed state with iv Ativan!!


    Praying for you chemo girls today that all will go well...


    Mine is in 2 days...darn.

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  • Lissy2304
    Lissy2304 Member Posts: 60
    edited December 2013


    I have gone back to work after both infusions on day 5 or 6, then continue until the day of the next infusion. I get tired, but I manage to pull a full day on my feet.

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