In shock

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  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2013


    Edi, did you see my link to our chorus video on Facebook?


    It is much better quality than the YouTube ones, and shows the whole package, not just the songs. I seem to remember ordering a DVD some weeks before the contest, so that, and the official photograph, will be a lovely keepsake.


    I must confess to being really down in the dumps the last week or so. I think I had Hawaii in my sights as my target for recovery for so long, and I'm so proud that I made it, but now that's passed I feel like I am literally adrift. Now what??


    Funnily enough I dreamed the other night that I got into this ferry boat, to get back to my family, but found it abandoned. The waves were rising and the boat was getting swamped. Then I realised it had come adrift from the shore and I was being swept away by the tide. Alone in this boat, no oars, motor or any way to steer the thing. Literally up shit creek without a paddle!


    I saw my GP about my twitches and he is investigating my thyroid function. So now I'm convinced I have thyroid cancer or, worse still, mets! Oy Veh!!!


    I know. Tell me I'm being ridiculous.

  • momof2doxies
    momof2doxies Member Posts: 342
    edited December 2013


    Morwenna....sweetie, I am rubbing your agate ATM, you have come so far and done so well. WOW...you are my inspiration. I have read some of your posts about TNBC and you are very knowledgable about the current treatments. Remember, those drugs mess with our healthy body parts. You do not have thyroid cancer...that is silly talk. Our songbird needs to ask her dr for Ativan or something that will turn off those negative thoughts. Gosh, I wish I was closer...


    I have been having icky dreams too, but I wake up...and I am okay I am sending you a cyber bath Fizzie...they are so relaxing, provided there is enough hot water Watch for those northern lights, remember...I have a passport now and I want to watch them with you, next winter.


    Your feelings are normal, but not reality based...how's that?


    Now go turn on a funny movie or show, and have a comfortable day at work tomorrow, as my DH keeps telling me, "you are going to be fine, really, you are."


    Love and ((HUGS)) to all,


    Jenifer

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2013


    Thanks but not convinced :)


    Best case is BFS (benign fasciculation syndrome), or some equally innocuous thing completely unrelated to cancer, eg simple stress.


    Or if it IS the thyroid, maybe its just coincidental (I know a few people with "thyroid issues"), or maybe the thyroid took a thwack of radiation and got some damage. All very treatable.


    Thyroid cancer has an association with bc, but in itself, usually has a high cure rate. Mets would be worst case, imho.


    Just writing this here because I cannot go there with dh or anyone close to me and give them my dread. Sorry. I'll go and have a bath with that cyber bath bomb. Thanks Jenifer! xxx

  • nihahi
    nihahi Member Posts: 3,841
    edited December 2013


    Back from the GWA.....girls weekend away. I'll catch up tomorrow....just wanted to say hello to all....hugs to everyone.

  • msmaples516
    msmaples516 Member Posts: 54
    edited December 2013

    I feel your pain.  I was in shock too.  I will be 52 tomorrow.  I was just diagnosed over a month ago. Had a lumpectomy oct. 30th. Hopefully no chemo.  Just radiation. I am stage 1 took out 4 lymph nodes.  The tumor was 1.72  You are in the the right place.. This web site is VERY helpful, very reassuring. It has a lot of information for all your  questions. I became little over whelmed. BUT, I am fine. I am positive I will be fine.  I will do what ever it takes. Tuesday I get the reults from my octontype dx test. It took two weeks to get. This test will tell weather the BC can reoccur and what grade level will depend on chemo or no chemo. You hang in there, KEEP positive. We are all here for you. Good luck!!!!

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited December 2013


    hi all.....thought I had better post tonight....tomorrow will probably be crazy......I have 5th(and hopefully, LAST) surgery associated with BC/recon on Tuesday at noon......getting lipo'd around sides and flanks (due to dog-ears from DIEP), dog-ear elimination(skin to become areoles thru transplants), and skate flaps on my DIEP flaps to make nipples......Santa is being good to me this year....... :). Will either be crazy-bored with forced down time, and will inhabit the boards like a nutty Yank troll.....or I will be in enough pain to require outside assistance....which will render me senseless, and STILL a nutty Yank troll.... :P


    Love you all! XO

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2013


    Hope it all goes wonderfully tomorrow Movie. Sure it will, and we will all be in your pockets making sure your PS does a great job ....... Then all done! YAY!!!! xxx

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2013


    msmaple, welcome to the nutters thread!


    Sorry you find yourself in this situation, but you may have realised this thread is full of all sorts of wonderful and wacky ladies at all different stages of this game, from newly diagnosed to second primaries, recon, chemo, rads, all done .... Whatever!


    Topics range widely, not just about bc at all, but whatever you want to say, you'll find somebody to relate to! We're just a bunch of bc sisters :)

  • adagio
    adagio Member Posts: 982
    edited December 2013


    Morwenna - try not to think the worst! I know it is very hard - but it is something which we have to keep working on continuously. I find I have to keep myself really busy in order for my mind not to run riot. I am sure your thyroid will be just fine. Do you feel more tired than usual? Your dream from the other night sounds more like a nightmare!! Hugs to you! What Facebook page is your choir on - I would love to have a listen.


    Edi - since I am not on a breast cancer face book page, I didn't know it was your birthday - sounds like you had a good day. Happy birthday - you are still young! Glad to hear that your Christmas bazaar went well. Hope your Chinese dinner was good - I used to love Chinese food, but have gone off it recently.


    Momof2 - keep on resting up - you will be fine! Thanks for your cheerful spirit.


    Jackpot - welcome!


    Nihahi - bet you had a blast with your girl friends.


    Movie - will be in your pocket for your upcoming surgery on Tuesday - hope all goes well.

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2013


    Thanks for the kind words everyone.


    Adagio, Rhythm of the Rockies has its own Facebook page if you want to check us out. :)

  • adagio
    adagio Member Posts: 982
    edited December 2013


    Morwenna - just checked out the Facebook page and I listened to the YouTube clips. Very impressive - I think I can pick out - are you in the back row on the left hand side (looking towards the stage )? Your chorus sounds great !!!

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2013


    yep, I'm in the back row just left of centre as you look at the stage. Glad you enjoyed it! :D It's becoming my passion! :) xxx

  • scouser47
    scouser47 Member Posts: 963
    edited December 2013

    Hi Nerdy

    Morwenna, Love and ((( HUGS ))) by the bucketful. Gosh we come on here and think " its just me with all these fears, aches and pains " then realise that even the busy, happy sisters are wading through the same sxxt.
    As for the nightmares " got the Tee shirt " with knobs on !! You will never be cast adrift, we are here and don't you EVER forget that.
    I rant on about DH because have no one else to talk to but BC is our main enemy and together we will throw you a gorgeous life belt reeking of chanel no 5. Put it on, jump in, and we will tow you to a desert island
    . There we will all lie in the sunshine and sip healthy cocktails.Happy
    You are not being ridiculous either because if you are then we ALL are and that's not possible Loopy
    Will check out f/b link. X

    Movie, ((( HUG ))) in those pockets. Sure you will fly through procedure as you are incredible Winking Superwoman has nothing on you. X

    MsMaple, Welcome Loopy defo nutters thread and that is what makes it special. Some threads can be a little scarey but here that never happens. Stick with us X

    Adagio, X

    Up since really early, Scared gotta chill a bit today and maybe excercise ? Hectic weekends take their toll.

    Will catch up later, LOVE to ALL X

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2013


    Was going to the gym this morning but we have a blizzard going on! Started in the night and its carrying on til Tuesday morning, with plummeting temperatures and high winds! (Shudder) I think I'll give circuit training a miss this morning!


    I'm booked on a mandatory basic life support course today, at a hospital which is nearly an hour's drive away in "light traffic"! It's from 1-5pm, so I'm planning on leaving home about 10 am and hope I get home safely before midnight!!!


    Oh feck! Well it'll give me something new to focus on! :D

  • nihahi
    nihahi Member Posts: 3,841
    edited December 2013


    HAPPY BIRTHDAY, HAPPY BIRTHDAY, HAPPY BIRTHDAY DEAR EDI!!!!!! Gosh, sorry I missed your "day"!!!!! You can always rant about hubby here....gotta get that junk OUT, or your pretty head would explode! Sounds like you new stove is working out wonderfully!!!! Not good news about shedman, though.....so sorry to hear that update.


    Morwenna....holy crap batman, what a day to have to go out!!!! Hubby is working from home today. We've got a windchill of -23, and the snow is going sideways. Can barely see across the street. Don't you just love it when you are supposed to go out for something.....and all the news reports are telling you to stay off the roads unless absolutely necessary! Please......drive safely. Any chance you could call in and reschedule???? The mind is such a "teenager" at times.....absolutely positively "knows better" than to go hang out on the dark side.....takes us there anyways. I agree with your theory that now that Hawaii is done...."now what".....and off goes the imagination, to the thoughts that you were too "pre-occupied with positive" to have before your trip. Maybe start making some shorter, less "big-event" goals, that can help you feel more focussed and healthy??? You know, set some health/physical goals, plan some little fun things with family and friends.... The first year of "medical abandonment" after such intense treatment is the toughest.


    msmaples....welcome....this is a positive, supportive, informative thread. There IS life other than cancer, even when in the midst of the fight....that is what I love about these ladies....!


    momof2.....hope this is a better week for you....tell your docs about the se's most definitely....love your hubby's attitude...thinking of you lots, everytime I look north at night.


    movie...gigantic hugs, girl!!! You know everyone on the diep thread is also hopping in those pockets....it's going to be interesting....compression garment with pockets!!!! You got through the "big one" this is going to be different, but very doable!!!!!!! Can't wait to hear how hubby is pampering you.


    It was a wonderful GWA.....lots of chat, cups of coffee, good food (even tried to make it healthier this time for all of us), dips in the hot tub, wood fire crackling in the room. beautiful elk with HUGE racks of antlers roaming around...... One of the gals and I went for our first cross country ski of the season, before the others got up to Banff on Friday. So lovely...but, yet another trail compromised by the floods. Anyway....time to catch up on things around here and watch the snow come. Have good days ladies. Love to all.

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2013


    Benny, I know you are lurking m'dear. Please drop us a line on here/pm/phone whatever. Let us try to help you!


    Rose xxx

  • scouser47
    scouser47 Member Posts: 963
    edited December 2013

    Nihahi, WELCOME BACK Happy missed you so much. Sounds like you had an amazing time.Keep safe in that weather !!
    Morwenna, you too.

    Dinner time so off to make some extra creamy mash potato using my new potato ricer.DH is glad he bought the new stove as meals have improved ha ha.
    Tonight chicken, mash and spinach with a mushroom gravy. Then steamed sponge pud and custard. LOVE winter food sod salads !!

    Laters x

  • adagio
    adagio Member Posts: 982
    edited December 2013


    Edi - may I please come for dinner? Sounds delicious!


    Morwenna - just cannot imagine driving in that weather - here in Vancouver, everything stands still if there is any white stuff! Be safe !

  • nihahi
    nihahi Member Posts: 3,841
    edited December 2013


    mo.....the weather is getting worse here......are you sure you can't reschedule that course today?????


    edi.....set another place at the dinner table for me too please....but....I'll pass on the dessert. Haven't made it down to the gym today.

  • adagio
    adagio Member Posts: 982
    edited December 2013


    nihahi - how can you be so disciplined about desert? Wish I had that discipline - I love deserts of all kinds and always have them. LOL

  • nihahi
    nihahi Member Posts: 3,841
    edited December 2013


    adagio.....I'm no saint, but not having a real "sweet tooth" helps. I've just gotten used to recognizing the " sugar high/lows then sluggy, yucko" feeling I seem to get after eating refined carbs and empty (nutrition wise) foods. I am usually too active to feel good eating that stuff, as it doesn't leave room for the protein and "better" carbs that I seem to need. It might help that I wasn't raised with dessert being the norm either, except on Sunday or special occasions. We couldn't afford it, really, so Mom didn't make things like that often. I do have to be disciplined with "salty" things though....that is what I crave....I'm definitely getting much better, but I wouldn't advise anyone getting between me and a bag of Miss Vickies Original Potato chips if I'm having one of "those" days !!!!Nerdy


    morwenna....I have sent emails to benny, that she hasn't responded to, but hopefully is reading. I am reluctant to call her, as I don't want to risk waking her up if she is sleeping. If the roads improve mid-week, so that I could get into Calgary, and I haven't heard from her, I will call, however. I don't think she has been on the boards, though I could be wrong about that. I'm serious about you trying to reschedule that course...it is horrible out our way!!!!!

  • scouser47
    scouser47 Member Posts: 963
    edited December 2013

    You can ALL come for dinner Happy Nihahi, pud just for DH I have fabulous sugar free yoghurt which is full of fruit, tonights was gooseberries.
    We were raised with pud after evening meal, Mum was the best cook ever. No wonder I have diabetes !! Know what you mean about the heaviness from sugar, I read content in EVERYTHING I am obsessed. Doctor says my control is excellent so at least something going right.
    Hope dear Benny is ok and you can get to see her soon.Will check her page on F/B later. She has many friends who love her, so hope they are looking in on her.
    Think we will all be glad to see the back of this year. Hopefully 2014 will bring happiness and joy for those who have had a bad year.
    Shops here are starting to get that frantic atmosphere they aquire this time of yearScared Supermarket nuts today. Trollies overflowing .

    Lovely story on the news just now, divers looking for bodies on a sunken boat found the ships cook ALIVE three days after the boat sank.SingingHe had found an air pocket and was stood there in pitch black room, no food ,nothing to drink or keep him warm. The diver nearly had a heart attack. He is out and well, and on his way home to Nigeria to see his family.Smile shows you miracles do happen.

    Dishes need doing Sadcheck you all in the morning X

     

     

     

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2013


    Got here safe. Didn't you know AHS is one of those famous immovable objects? Well I plan on being the equally famous irresistible force! ;)


    Getting home tonight might be interesting though ...

  • Jackpot
    Jackpot Member Posts: 167
    edited December 2013


    hi all


    Edi....34 years since you moved to the dark side...lol...I've from toxteth, Born and bred, love it hear regardless of the reputation it has, I've got some wonderful supportive friends here,


    You still never quite feel they've understood though unless they've been through it, that's why threads like this and girls like you are invaluable in getting though this,


    You'll have to save me some of that dinner, I'm the only one close enough to enjoy it after all lol, your cakes are amazing by the way....


    I know most of you have finished treatment and its good to see life goes on as normal it's just hard to see an end right now, chemo has been so hard....can't wait for life to return to normal again and put all this behind me


    Take care


    Jackpot

  • caitlin61
    caitlin61 Member Posts: 214
    edited December 2013


    Sounds like you Alberta women are having some wild weather - again! Pray that you are all safe and sound.


    Morwenna and Edi, I can relate to you both on the fears, aches and pains front. I liked Nihahi's advice to focus on shorter term, less big event goals. That's my problem - I'm a planner and I like to have short, medium and long-term goals, but right now it feels like it would be foolhardy to look more than a few months out - at least every time I find myself thinking on the scale of years out, this little voice inside my head yanks me back saying "Remember, you have cancer - it's just a coin toss as to whether you'll even be alive". It's all because of those damn nodes - think I might have been able to be more optimistic with a different pathology. Anyway, guess this is another life lesson - that I should use a candle rather than a lantern to light my path and take each day as it comes.


    Morwenna, I went out and watched your video on YouTube too - beautiful singing and it just looked like you were all having so much fun!


    Edi, did you say your first concert is this week? Did your DH relent and decide to go with you? In any case, hope you will have a joyful time!


    Nihahi, glad to hear your GWA went well - miss you on the boards when you're not here!


    I too am hoping that Benny is doing okay and will soon be back with us.


    Movie, in your pockets tomorrow - hope it will be a pain free event for you.


    Momof2, hope your SEs are diminishing and that you'll have some very good days before the next round.


    We're just having a brief break at DH's place outside Louisville before packing up our feline cargo and continuing on our journey back to Indy. Not looking forward to going back to work tomorrow!


    Hope everybody else is fit and happy and that the week has started well for each of you.

  • adagio
    adagio Member Posts: 982
    edited December 2013


    Morwenna - sure hope you are OK driving in those conditions - thinking of you! May I ask what AHS is - I am guessing Albera Health System or something like that?

  • nihahi
    nihahi Member Posts: 3,841
    edited December 2013


    mo....checking in to see if you made it home ok. Please let us know....it's not fit for man or beast out there.


    websister...sure hope you're not driving home from BC in this....if you are...TURN AROUND!!!! Shocked.


    adagio....Yep...almost got it... AHS = Alberta Health Services. The beast that "organizes and runs" (hahaha) our medical system in Alberta.


    Caitlin....I firmly believe in our ability to teach ourselves to be able to recognize that we do have positive reasons to look to the future, and and with acknowledging the "small" successes of time and/or accomplishment...we can learn to have hope. I will never accept the mindset that it is wrong to have hope, and I believe it is easier to truly be "hopeful", in small doses!


    jackpot...welcome....I'm thinking I'm going to need a translation dictionary once you and edi get going!!!!


    momof2....hope it was a good day????


    movie....thinking of you BIGTIME...!

  • Morwenna
    Morwenna Member Posts: 1,063
    edited December 2013


    Sorry ladies for the delay checking in ......


    Journey home wasn't too bad at all .... just a bit slow in the middle part. I kept making myself relax and remember I had 4-wheel drive and snow tires. Visibility was ok for most of the way, just a few gusty bits of road with serious blowing snow.


    It was a bit of a challenge, but definitely an improvement on sitting at home keeping company with Mr Google!!! :D

  • nihahi
    nihahi Member Posts: 3,841
    edited December 2013


    good to hear from you, mo.....Hmmmm......not sure what route you were on, but very glad to hear it wasn't too bad. What the heck..Okotoks is still like Antartica!

  • websister
    websister Member Posts: 1,092
    edited December 2013


    Hi, everyone


    Sorry for not checking in sooner, It was a fun, busy but tiring weekend with the grandkids - lots of wonderful memories made. Hard on poor DIL when the kids asked why they were back so soon yesterday! We drove home last afternoon/evening. We had a more than an hour delay where they were cleaning up an accident by Fernie - not good for a family from Alberta - the roads were quite icy/slushy on that stretch and they were trying to pass someone, they lost control of their vehicle and ended up upside down in the Elk River - Mom was killed, two children in serious condition now here in our children's hospital and Dad and another child with minor injuries.


    To make up for lost time my DH was driving quite fast the rest of the way home, not fun for me but we made it. Today I was lucky to be able to work from home, just feeling a little tired and a little blue. A cousin's husband was diagnosed with malignant brain tumor and is having radiation followed by chemo, a co-worker's husband was just diagnosed with metastatic lung cancer on Thursday, their family is reeling - she has two teenagers and their financial situation is not the best. One of the ladies from another thread I post on frequently passed away early last week - she was a wonderful person, we used to private message - she was diagnosed and had treatment about the same time period that I did, they found mets during the summer and it was widespread.


    Weather here not helping - it was really nasty out today. I need to try to contact Benny tomorrow - my husband was telling me of a customer of his who also had her horse die from colic recently - she was very surprised to have someone give her another young horse - Benny was sad that she could not afford another horse but it appears there are people out there who give horses away - wouldn't that be something for our Benny?


    Edi - as others said, the cake was beautiful, and you looked beautiful in the picture with your GD's, glad your birthday was a good one.


    Nihahi - so glad to hear that you had a wonderful GWA and made it home before this storm hit.


    Jackpot - so lucky to be on the same sides if the ocean as Edi - with her cakes and cooking and wonderful sense of humor


    Morwenna - hope you continue to keep away from Dr. Google, not good. I like Nihahi's advice.


    I know that I have not even come close to addressing all of you, know that I have read and enjoyed hearing from all of you - hugs to those that need them, welcome to the new people who have posted. Take good care everyone.

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