Quandary about recon after BMX: TE/implant, Lat Flap, or both

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paloverde
paloverde Member Posts: 179
edited September 2015 in Breast Reconstruction


BRCA2 positive, so BMX is really the only option - at least THAT's not a decision that has to be made.


I was terribly disappointed to hear yesterday that I don't have enough abdominal fat for a double DIEP flap. I'm a size 6-8, down from an 18 a year and half ago, so how's that for irony. Naturally I know that being in better shape is an advantage overall, except I was really hoping for a good autologous option and I didn't realize how much I was counting on that one until the PS - who is one of the well-known DIEP flap practitioners here in our city - said no.


Even knowing that TE/implant is the most common approach by far, I arrived at the PS appointment pretty much scared off by the disadvantages and risks: infection that could require removal, discomfort (perhaps major) and inconvenience with the fill process and the wait of 5-6 months or longer for the exchange, maybe much longer, then future maintenance of the implant and risk for leaks or capsule contracture, rad damage if that were to enter the picture (which there is a low probability, but I won't know until AFTER surgery!), and less natural feel.


The "TE trouble" thread here, while very helpful, was enough to curl my hair. Is the rate of complications and discomfort correlated with the size of the TE/implant at all? I would be going pretty small - 200 cc or so.


The PS then recommended the Lat Flap as an option if I was very committed to autologous. He was clear that I would be very limited in breast volume without an added implant - I was actually okay with that, since I'm only a small B anyway, my husband is not a "big boob" type of guy, and there are so many nice padded bras you can buy. But then I start reading more - including, you guessed it, the Lat Flap thread here - and it sounded like when a lat flap goes wrong, it goes really wrong. I also am not sure I can live with a risk of extensive loss of upper body strength - the PS claims the other muscles will compensate nearly 100%, but who knows. 47 y/o and I have really come to value the weight lifting regimen and its results. Chronic pain, underarm boob, constriction around the ribs - I don't know what the incidence is for those, but some folks on the thread here were using words like "nightmare," "worst decision I ever made," and that the procedure should be outlawed. Just seems that if this option was so advantageous, it would be done more often. And you can't undo it.


Could combine the lat flap with a small implant, I guess - on one hand that could mean taking on the complications and risks of both, but on the other hand I wouldn't have all my eggs in one basket, especially if the TE/implant failed.


Lastly, I'm very limited in time available for more consults or PS shopping. By the time I get into surgery even if scheduled today, with my breast surgeon of choice, I will already be about 6 weeks post-biopsy (1.6 cm at the time) and I'm worried about delays due to that Grade 3 finding. Also been missing a lot of work already, and the holiday timing is not helpful re: physician availability.


Any input would be great. Post or PM would be fine. Many thanks in advance!

Comments

  • warmsmartcookie
    warmsmartcookie Member Posts: 40
    edited November 2013


    Paloverde:


    Here are my two cents -- I have definitely seen the worst of flaps and TEs.


    Reconstruction takes time away from work. No way to avoid that. You can take it all at once with the lat d flaps, or over time with the TEs. I preferred the TEs. Bottom line is any reconstruction will impact your work in a big way, and any complication can arise from either surgery, taking even more time! I say that as an executive who has had to put my job on the back burner for reconstruction.


    Free flap is MAJOR surgery. I had two failed flaps which sent me into acute renal failure. You are healthy though/great BMI, but be glad you escaped this surgery and that your PS thought about how the risk/reward was not there for you. He/she is a keeper.


    Lat D is very reliable with less recovery time than free flaps. I totally get why the PS would discuss implants. Gummy bears are out there now for us TE gals. They are awesome and provide a much better cosmetic result, even the smaller ones could be beneficial in providing symmetry and feel. In the end, symmetry and feel trumps weight lifting for me. Think about it.


    About TEs--I have had TEs. I am almost at 1000 ccs on my TEs. You can take it. If you are a weight lifting lady you will not be bothered by the TE. You don't have far to go at all! If you are complication-free, you will be happy with the process. Infections for TEs--ask to take prophylactic antibiotics, do a decolonization protocol before surgery, perhaps colloidal silver pre op to avoid hospital acquired infections and be FANATICAL about keeping your drain tubes clean and get them out ASAP. I was told activity causes drain fluid and to absolutely reduce my activity to get them out. It worked. There are some weird things about TEs, like they are rock hard to make the breast implant pocket, but it is a transitional thing.


    About the weights--I don't want to be a downer but believe me when I say nobody gets out of these surgeries with 100% upper body strength. Just commit to rehab your body, find other ways to develop and compensate upper body strength, and avoid any chest wall development in the future. You can develop your shoulders, biceps, triceps, but stay away from the chest wall. As for your lats, I'm not sure if I'll be able to do lat weight exercises in the future but I would ask your PS. With the implants/TEs, you will notice when your pecs flex that your breasts move--however, a good PS can use the lat flap, alloderm, and other fat to soften the look.


    If it were me, with as little expansion as you'll need, I'd do the TEs, maybe with a lat d for a more natural ptosis. However, it really comes down to whether you can stand to avoid pec strength training--maybe lat training too--in the future. It will definitely be more cosmetically natural looking and symmetrical with the implants. Your PS might be able to do TEs/implants without the lat D--and this was my original plan too until I decided I wanted a more natural hang to my implants.


    Good luck. You are super smart to think this through.

  • Ridley
    Ridley Member Posts: 634
    edited November 2013

    Hi Paloverde -- just wondering if you considered doing a lumpectomy now to give yourself more time to figure out your recon choice.  I had the option of lump or mast, and now will have a double mast with diep recon in December (because of complicated path and DCIS found on the other side), but had a lumpectomy in August to give myself more time.  For me the lump was an easy surgery to recover from and I don't regret the decision.

    Also -- wondering if your surgeon considered other areas for flaps -- e.g. hip/butt or inner thigh.  At a size 6-8, you may not have enough tissue there either.  Also what about DIEP + small implant vs. lat + small implant?

    I'm in Canada, so did not really investigate surgical options in the US, but there seem to be lots of good news stories on these boards about the Centre for Restorative Breast Surgery (NOLA) and PRMA in Texas -- might be worth checking out to validate what you have been told.

    And finally -- congratulations on your weight loss -- that is awesome!!! 

    Good luck with your decision -- I've been there -- not an easy one to make.

    Ridley

  • kareenie
    kareenie Member Posts: 339
    edited November 2013

    third option autologous fat grafting... do a search for fat grafting and brava threads. or check out fatgraftpatients.com

  • paloverde
    paloverde Member Posts: 179
    edited November 2013


    Thank you warmsmartcookie, Ridley, and kareenie!


    I spoke with the plastic surgeon's medical assistant Wednesday morning. She was very generous with her time and reduced my fears about TE's and implants to a manageable level. Since I still couldn't get myself comfortable with the Lat D flap, the choice was very easy for me at that point.


    I went ahead and scheduled for Dec 12 to have the TE's placed during the BMX, and my gut hasn't bothered me about it since (yet). Thanks warmsmartcookie in particular for the post-op recommendations! I plan to be as close to the perfect patient as possible!


    My husband and I are fortunate to have one of those beds where you can raise the head and/or feet. He is supposed to sleep with his head 6 inches elevated due to reflux. Trying to do this with pillows was just making him wake up in pain, and we were shopping for a new mattress anyway, so we've had this bed for 3 years now. I too enjoy sleeping with my head a little elevated, and I'm thinking it will really be a help during the post-op if we crank it a little higher (and to a sitting position during the day).


    Thanks again, I am moving over to the December 2013 Surgeries forum now. Best wishes for the holidays.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2013

    paloverde - since you are interested in going small have you pursued the option of direct to implant?  That allows you to skip the TE and hopefully just have one surgery.

  • rozem
    rozem Member Posts: 1,375
    edited November 2013


    hi there


    im one of the nightmare stories that you were reading about!


    the truth is that you will lose upper body strength by having the implants - they go under your pecs as you know so those muscles will be compromised -but lots of women get past it and modify workouts accordingly


    no need to do the lat flap especially if you are not having radiation - I cannot fathom why anybody would do this for "a natural look" - I have one lat and one just implant and in no way does the lat one look more natural


    yes those with issues come back to these boards but why not learn from us and make better decisions

  • Solen
    Solen Member Posts: 146
    edited December 2013

    I, too am BRCA2 positive.  I had  cancer in my left breast 13 years ago.  it was not an aggressive cancer and so I was treated w lumpectomy and radiation.  I already had implants, under my muscle.  I went through radiation w implant and over I had capsular contraction, so the implants were replaced.  Mastectomy was not suggested to me, I think that long ago, it was less common to go straight to mastectomy because of the gene. I was warned that my risk was cancer in other breast and was monitored closely.  I had a hysterectomy, removing my ovaries and so my estrogen levels dropped.  Doing great until this summer when DCIS showed up in other breast, so at this point mastectomy is what I chose to do.  (at this point, doctors still seemed to think I had choices, but I was DONE!)

    Anyway, I see the general surgeon who does the mastectomy part, and she thinks it can be done with exchanging implants.  Back to life in 3 to 4 weeks.

    THEN, I go see this PS who is so slick and shiny......."oh, no honey, you are at huge risk of infection, you r only option is lat flap.......has his nurse "cue the slide show" of the beautiful symmetrical boobs that can be mine. (note, mine were pretty asymmetrical at the time due to lumpectomy and rads.  My non rad side was going south faster than rad side!)  Asked him about missing the muscle, he told me it really didn't do much, it was "no big deal"  ....told him I had child w autism, he goes "well you are going to need lots of help"  he told me there were no other options for me. He was doing quite the hard sell.  Turns out it is his "pet" surgery. 

    Well. logically I KNOW the latissimus muscle is important for posture and it seemed to ME to be an irreversible thing to do to my body.  I am 53, but very active.  I love pilates, and what muscle do we work a lot there?  oh yea, that USELESS muscle on my back.  yea, the one that has my posture so improved after doing pilates.

    So, I started coming on boards like this one.  One WHIFF of hearing about the iron bra.......um, no thank you.


    So I went to another plastic surgeon.  She offered tissue expanders, esp since I didn't have any problem w radiation and it was 13 years ago.  I told her I was fine being smaller. So she said she may be able to go straight to implants.

    Two weeks ago, I had my surgery, straight to implants, off pain killers in a day and a half, and right now I am a little more tired than usual and cannot lift anything heavy.  I know I am out of the woods yet, but I feel awesome. 

     AND I for one, am very grateful that people like Rozem who stay on these boards and are honest about the negative consequences.  If all I heard was sunshine and roses about lat flap surgery, I may have done it not knowing how hard it can be to recover from.  I have almost full range of motion and love my new smaller boobs.  It has inspired me to lose some weight to match them, and eating healthier smaller portions  is part of why I am feeling so good.

    I know other people have other priorities, so I don't judge what choices someone makes.  But is important to hear all the options and opinions as it is a big surgery any way you choose to do it.  I wish you the best of luck, whatever choice you make!

  • paloverde
    paloverde Member Posts: 179
    edited December 2013


    Thanks Solen and SpecialK for bringing up the direct-to-implant option.


    While I did ultimately run, not walk, away from the Lat D flap option when I scheduled my surgeries for the 12th, I had kind of glossed over the direct-to-implant because it seemed to be a) much more infrequently used and b) more prone to complications with fewer options for fixing them.


    I'm thinking of bringing it up with my PS's surgical assistant tomorrow morning, to see how many of these he does, how the complication profile may change, and whether I'm a candidate from a size standpoint. When I said 200cc on this thread earlier, I kind of pulled that number out of the air (and a "Pyrex 1-cup glass measure" estimate), I don't know how a layperson guesses implant size with any accuracy.


    Do you know, in general, how much smaller than your natural breast you have to go, if at all, when the direct-to-implant option is used? Again, I'm a small to average B. I wouldn't mind going a little smaller, but not too much.


    Thanks!

  • Solen
    Solen Member Posts: 146
    edited December 2013

    Paloverde,  I am not sure how much smaller than my "natural" breast I am because I have had implants since I was 29.  I was extremely flat chested, can't even guess how I got breast cancer! (just kidding!)

    My PS exchanged my implants for smaller ones, so I think I am still a tiny bit bigger than I would be naturally, but smaller than before.  I really think it is up to you what makes you feel good.  Have your PS show you some implant sizes, I am visual so all the cc# mean nothing without the visual difference.  I had left it up to the PS when I went into surgery, if my radiated muscle and skin could handle a smaller implant that is what we would do.  If not, I was going to have tissue expanders.  Happy with the result.  I already had a "pocket" under the muscle by already having implants so I think that is why it was ok for me. But I know I still have to be careful as it can fail with rad skin.  She seemed to think I was fine all these years, so I would be ok.  funny I have lots of allergic reactions to lotions, Tylenol, have to use hypoallergenic makeup, allergic to surgical tape, yet I have never had issues with my implants.  The first time I got implants, the doctor brought out a bunch and let me look at them, feel them etc so I had an idea of what I wanted.

    Just a little side note, I live in southern CA, used to live in Newport Beach, land of the giant artificial boobies (mine never looked fake as they were not that big)  I have a friend who works in the ladies dept at Neiman Marcus there.  She said the new trend is smaller boobs, so a lot of her clients are "downsizing" their boobs.  Guess I am trendy, LOL!  Don't know if that will change your outlook at all, but it is food for thought.  I think my first PS wanted to do the lat flap to give me the giant SO CAL boobs.  I just keep thinking how happy I am to have sought more options.

    Follow your gut feeling, my experience and other's experiences are information, but ultimately it is your body and you know what is most important to you and your lifestyle.

  • BigT16
    BigT16 Member Posts: 100
    edited December 2013


    Paloverde


    I have UMX Sept 30th and TE. I've had not problems with infections. I have one last filling this week. I didn't qualify for other procedures. The best news I received during the whole process was I didn't have enough fat to have any other procedure. I'm 43 yr old avid weight lifter since my twenties. I decided the Lat was not for me.


    Good luck with your surgery.

  • georgie1112
    georgie1112 Member Posts: 282
    edited December 2013


    Another option is to have the mastectomy first and return later to have reconstruction, especially if you are not sure. I understand the stress and need to get the surgery behind you! Scheduling a surgery with one doctor is easier.


    There are so many choices in reconstruction, and it is a big decision and you want to be comfortable with. If all goes well, you won't regret moving forward, but if you have complications, you might regret your decision.


    I chose not to reconstruct as my understanding is that the pectoral muscle is shaped to create a ledge to hold the implant. I talked with women who never got their strength back. My BS said my pecs will return to normal without implants. It is a crap shoot. Some people have problems and others don't. But good that you are doing your homework.


    Good luck moving forward! Hope whatever you decide goes smoothly.


    hugs,


    georgie

  • LAstar
    LAstar Member Posts: 1,574
    edited December 2013


    paloverde, I had my BMX and immediate reconstruction at the Center for Restorative Breast Surgery in New Orleans. Lots of women who were told they were too thin for DIEP or hip flaps by other surgeons were able to have them done there. If you start the paperwork, they will ask for photos and can contact your insurance company within a couple of days to let you know what your cost would be. The recovery is 4-6 weeks for the first stage, but there is no muscle involvement with these procedures and the results when you have your reconstruction done concurrently with BMX are very natural-looking. Plus, since you have lost so much weight (congratulations!!!), these excellent plastic surgeons can also tighten things up. I will tell you that I am one of the few that had a complication (scar tissue necrosis on one side, the other side is perfect and gorgeous), but I have no qualms about going back to have it corrected. The facilities there are wonderful, and they make travelling for surgery very easy with a car service and referrals to the free local cancer hospital. Check out some of the photos on their web site. Several women in my town have gone there, and I can assure you that their photos are very representative of their results. I wish you the best in your decision, surgery, and recovery! http://www.breastcenter.com/

  • shiane2
    shiane2 Member Posts: 12
    edited September 2015

    Anyone have knowledge regarding if implants are a necessity for reconstruction, which method is preferable, DIEP or latissimus dorsi flap? And with lat flap do they take the entire muscle or just a part? If you only want small breasts after recon, can smaller amount of muscle be used or is the entire muscle always used with lat flap regardless of desired outcome regarding size.

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