Starting Chemo, November 2013 Group
Comments
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On the head shaving - I recommend clippers, if you don't have them, any salon will probably do this for free. If you go to a salon you don't normally go to you won't know anyone, so no need to feel weird! Cut off the long hair and then buzz. Don't drag the clippers across the scalp - put a guard on and buzz the head down to about 1/2". Melrose left bangs and did not clip hers as short as I did - but do whatever makes you comfortable. Some of this hair may fall out, some may not - a number of people use those sticky tape rollers to get those little ones after the buzz. Most of mine did not fall out, and what I lost mostly came off in the shower. Some use a satin pillowcase because the stubbly hairs don't seem to catch on it. I slept in a lightweight polarfleece cap, so did not need the pillowcase.
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Please bare with me as I am new to the forum and this is my first post. I want to thank you ladies so much. I have been reading your oh so helpful posts all day. Even though I have good friends and family to support me, I still feel like they don't quite get it but you ladies have no idea how much you have helped me. I had my first round of taxotere and cytoxan on 11/7/2013 and my second treatment on 11/27/2013. I guess I'll get another in approximately 3 weeks and then I'll have two more to go. The first round was not too bad but the second round has me really tired (I have lupus, too) with heartburn. The heartburn usually hits in the middle of the night and feels like a weight on my chest. The worst of it for me is this horrible taste in my mouth which distorts just about everything. Thanksgiving with the family was still fun. Oh yeah, the hair loss. I lost all my hair shortly after the first treatment. I asked my stylist "buzz" it all off and she cried. I have no problems wearing wigs but it was strange not having anything to hold the wig to -- oh well.
You guys covered everything I have been experiencing (and kind of kept to myself): dry skin, nasty mouth, hair loss, heartburn, and unusual breast pains (unusual in the sense that I never had them before). I know we can beat this but you all just gave me a bit more encouragement and I really wanted to thank each of you. THANK YOU!!!
God bless everyone and I pray for minimal side effects for all. We can do this!! -
Bless you too, Tammibaby, and no, you are not alone. We do get it.
Re: the heartburn, if you haven't tried this already, give a try to what my chemo nurse advised: Go back to basics and try plain old maalox or tums or even pepto bismol. Maalox saved my sanity and maybe even my life, lol.
Grab ahold of us and hang on tight: we're all in it together and we'll all hang in there together and get thru this, one aggravating complaint at the time.
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Tammibaby-
Welcome to the warrior club There is a great discussion group of TC Cytoxan Taxotere Chemo Ladies- February/March 2013. I have the boob pains too which my MO said she never heard of before. You are half way through yippee -
I have boob pains, but no boobs....not quite the same thing, I'm guessing. :P
Quick question: Has anyone else just decided to buy scarves and hats or whatever from ....well, just where ever? Like Target or Belks or someplace? I'm just not sure I want to order stuff to wear on my head that I haven't FELT. And I mean really, a 36x36 scarf ought to be pretty much the same thing---a square piece of cloth--no matter where we get it, right? -
Lisa! I bought some scarves at head covers.com. They were not too espensive.. Then after I got them a friend told me that when she was being treated for BC she just went to the fabric store and bought square pieces. I think she sewed a hem on them. She said they worked fine.
It is day 12 after my first AC and my hair is still there. Just a few strands that come out when I comb it. I guess I am on borrowed time. I feel like the hair is the last part of the old me left.
I also had boob pain for. The chemo, and I don't have them either! -
Hi my name is Phebe38(given name) lol. My first time here. My first chemo was on Nov. 12/13; second chemo coming up on Dec. 3/`3. I'm shedding so I cut my hair short. I cried when I first notice that my hair is shedding. I had a port implant on Nov. 19/13. No side effects except the second day I was dizzy and nauseated. I had my left breast removed on Aug.28/13.Radical Modified mastectomy. I drink lots of fluids and eat healthy, go for 1/2 hour walks. I'm just taking little steps each day. Sometimes I fear for the unknown, if it wasn't for God to help me through I wouldn't be able to go on. Thanks for listening. -
Welcome to the group Phebe
I think that is what I'm gonna do, smrlvr. I've filled my cart at one of the online shops 3 times now and then abandoned it and finally realized it's because I want to FEEL what I'm buying, and look at it next to my skin to see if it makes me glow or makes me look like a zombie or exactly what... lol.... YES I can be vain even now, why not?
Besides, we have this awesome sewing machine that the in-laws got for us last year at Christmas and I'm embarrassed to say we've done almost NOTHING with it. I think my husband is going to be the sewing-person.... he's meticulous and careful, plus he can SEE. Maybe I will have him make me some scarves and make curtains for our den to match them and then invite people over and see if anyone notices .... It's the little things that keep me entertained. -
lisa137- I bought bandanas from Walmart for 99 cents and hats (wool and straw) and knitted caps from Target, Marshall's, TJMaxx and Ross. I shopped in the women's department and the men's department at these stores since you just never know what kind of hat you can find. I had more fun hunting for something for my head that I could touch and feel. I also bought some Buffs which are a tube of fabric that has UV protection. I got those at a sporting good store and they can be purchased at the REI store and also on line on the Buffs website. I had a favorite wool slouchy hat that I got at the REI store. Check out your favorite department store for hats and scarves. I did feel a little awkward when I first went hat hunting and tried on those hats in the store. But then after a while, I just would take off my baseball cap and try on the hats without caring who may see me with my bald head. Have a great time shopping for some head wear!!!!.
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I'm new here. I had a UMX September and started chemo Nov. 6th. My cancer was very aggressive, so when with an aggressive chemo regimen. It'll continue for a year. No major stomach issues. The day after chemo I get a shot to stimulate red blood cell, that leaves me with tremendous bone pains.
I've been slowly losing my hair over the last 2 days. Today, I decided to have it shaved and purchase a wig. -
Phebe38: Don't worry we ARE listening!
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Hey Everybody:
Amazon, so glad you seem to have turned the corner! Ugh poor you. Wrenn, yeah the stomach/intestinal stuff sucks big time. I've got my panoply of antacids and just throw them willy nilly at the problem. I really should get more of a system. When I see my MO this week I'll ask what my plan of attack should actually be.
I haven't gotten weepy yet (except when I was stuck in hospital) but last week I got a panic attack. The bad thoughts attacked me and mortality issues just crushed me with anxiety and sadness. Horrible. The chemo itself must mess with our hormones and neurotransmitters in miserable ways.
My hair is falling out fast and furious. I am amused to see how many I get when I gently pull on it. It feels like a science experiment. I don't think I'll buzz mine, just see what happens. It isn't upsetting to me at all. As for mess, I've got two newfoundland dogs, and they probably shed more hairs each day than I ever had on my head. I'm used to hair all over everything, and mine is about the same color as the dogs' so....
Lisa137 you help keep ME entertained. Welcome BigT16, Phebe38 and Tammibaby! Welcome to a place you can complain about all the indignities of chemo!
Now to bitch. On Thanksgiving my husband's ditzy cousin said to me "you're obviously having an easy time of it since you look so good." I wanted to shoot her. I looked good because I was wearing my wig, had 10 layers of makeup covering the dark circles under my eyes and sallow complexion, and was on pain pills and muscle relaxers, Imodium and Tagamet. Oh she's always been clueless, but really??? -
Pat: re: looking so good -- Not just once but twice the week of my second infusion I was told I looked so good, I was glowing. That would be spelled s-t-e-r-o-I-d-s, which give me really rosy cheeks. Makes me chuckle. -- Ellen
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Pat Alameda! funny! the 10 layers of makeup to cover dark circles and sallow skin I loved! I wore make up the last few days since feeling so much better and noticed I had to layer the dark circle area and it still didn't seem to work! Too funny!
Some people...idiots...how can anyone have an 'easy time of it'???!!!! REALLY!!! -
hi Lisa thanks for welcoming me. That's what I want to do. Make curtains for our bedrooms. I'm also very active in exercise. I tried to walk 1/2 hour each day. I drink diluted water (3/4 water and 1/4 canned green tea or juice). I watch what I eat. I don't spicy or fried food, I use honey instead of sugar on coffee or tea. I tried to eat fruit and vegetables instead of chunk food. I wasonly nauseated and dizzy on second day of my first chemo. I pray and thank God daily that I don't get no side effects. I only hang out with positive people. I do meditations and think on places I like to be and visualize it. At nights I read books that don't relate to cancer. I'm excited on what I'm experiencing but I do have moments of fear of unknown. Right away I replace it with good thoughts -
shoot! I hate it. I'm shedding like a cat but my color of my hair don't match my cat. Lol. I did cry to my husband when I realize what was happening. So off I go to get a short hair cut. I told the nurse I was going to shave my hair. She said, no. cut it short but don't shave it. Let's see what will happen -
Hi all, I just found this thread and think I belong here, too. I started 6x taxotere/cytoxen treatments at the very end of October, with my last treatment scheduled for mid-February. Radiation and arimidex to follow.
So far, my SEs have been not too bad -- mostly upper body muscle aches/fatigue; a few brief bouts of nausea that were responsive to medication; hair loss; and of course the up-and-down BC emotional roller coaster.
I think the one thing I was most thankful for on Thanksgiving was discovering this website. The collective knowledge, compassion, and almost instant feedback from women all over the country/world about even the weirdest questions is amazing! -
FairyDogMother – no, just as low as the clippers went. No razor, as I didn't want to get cut. I had long hair and this was just easier to wear wigs, scarves, as it was falling out by the handful. LOL Now the stubble is all falling out…there isn’t an easy way to do this I don’t think. In a week, it’ll all be gone.
And weepy….omg…I lost it on Thanksgiving which I rarely do. My mind was just going to bad places and my 4 kids (son and three daughters) decided to have an argument which escalated to rough-housing, and guess what, one of them got hurt! Called it as usual. I usually just have moments alone, periodically, get it out of my system and move on. This was with my husband and kids there. I think knowing I had chemo the next day really affected me. My three girls went with me (ages 17, 16, and 13). My 13 year old has had the hardest time, in many ways, but says she wants to go the next time too. Big progress there!
Time to try to sleep…damn steroids! -
Welcome BIGT16! I too am HER2+ (triple positive, like you), and will do my Herceptin every three weeks for a year (trying to figure out if I need the port for the whole thing). How long will you be doing the other drugs? I had the Neulasta shot and had the horrendous bone pain, in my lower body, last time. I took Claritan, but not until the day of my treatment, and now it sounds like it's preferable to start the day before. I had pain meds from my port which helped tremendously last time and got more for this round. The nurse told me that the pain can be less with each treatment, so that's what I'm hoping!! Everyone just reacts to this all so differently! Big hugs to you!! How many weeks apart are you getting your treatments? If you're three, we will be on almost the same schedule! -
I was doing well regarding hair loss until Thanksgiving morning when I pulled out fistfuls in the shower. My plan was to have it clipped on Dec. 5th by my hairdresser at home but I panicked envisioning people finding big clumps of hair everywhere and asked my sisters if they had some one in town who could do it. On Friday went to one sister's stylist who is very experienced in clipping women. She was very professional and made me feel comfortable throughout the process and wouldn't charge for it. She said "I just can't do that." I had 2 of my sister's, 2 of my nieces and my brother in law there. They were great. Gushed over my wig and then we all went out to lunch.
Has anyone named their wig? I name my cars so why not? She is Serena. I've never looked so stylish in my life!
Chemo #2 of 4 on Thursday. Hoping and praying it goes better than the 1st round.
Take care everyone! -
Had my second AC the day before Thanksgiving, I could not believe I was able to cook the turkey and sides. Trying to keep things normal for my kids. I was so proud of myself. But just like last time the days 3 and 4 were the worst again, the PA said it was the steroids since I have racing thoughts and sensory overload. Feeling way better today. My 2yo seems to be adjusting to my couch laying just fine, when she comes to ask for something I just tell her to go bother daddy or brother. I do think she has some clue of what is going on since she pulls down the neckline of her shirt and babbles and points at my and her own chest. -
Okay then, you all have me feeling better about it: I'll look for hats and square pieces of fabric (lol) at the stores I shop at regularly anyway. And my sweet, sweet, mother in law has already given me a cute little wooly cap that I think will be extra warm for sleeping in...let's just hope it's not really wool, because if I sleep in it, it's definitely going to need washing. I should check that... The shopping will actually be fun, I think, and I'm more likely to try things I wouldn't try if I were just ordering online. More likely to be adventurous, I mean. So that's settled. Thanks y'all!
@PatAlameda: re: Ditzy cousin: Oh! I almost wish someone would say something like that to me .... just so I could give her a cool look, arch one eyebrow (well, really I can't arch one eyebrow, but I like to pretend I can,) look her up and down very slowly, and then reply "Well then honey, by that logic, you must be having a VERY rough time with SOMETHING. Hope it gets better!" and breeze away casually. Bahahaha! Okay, I probably wouldn't really do that if I thought she was *trying* to give a compliment and it just came out incredibly stupid, but I'd have all kinds of fun imagining that I said that.... In fact, I just did have all kinds of fun imagining it.
Also, yeah, panic attacks were what almost took me down in the beginning of this. I don't mind being a little sad sometimes, don't mind crying sometimes, etc., I can handle all that. But not the panic attacks. And mine were before the chemo, etc. Mine started with the first biopsy--which was a pretty traumatic experience for me, to be honest. But, also to be honest, I was sort of primed for something to cause major anxiety issues in my life anyway; they had been there, lurking under the surface for a long time, and the whole diagnosis and then surgery scenario really brought them out.
The worst of it for me was a short period of time after my surgery: I had had 4 out of 5 of my drains taken out and was feeling GREAT, and then spiked a fever that night for no apparent reason (and they never did figure out why.) I panicked--or went into a major depression, or SOMETHING, I don't know what, but the next three days were pretty rough. I cried or actively panicked *constantly,* and then even went so far as to start taking half of a hydrcodone about six hours---enough to keep me calm, because that's all I HAD---and even with that, for three and a half days the only "sleep" I got was in 20 minute intervals--I'd drift off almost to sleep and then wake up panicking again. I don't know what was up with that, or why spiking the fever brought it to a head, but it was ugly and scary and horrible.
I mention that episode now mainly so that those who are new here can realize that even if/when we all SEEM like we are doing great and laughing our way through this crazy nightmare, we actually all DO have our really down times---some more than others obviously, and some more severe than others. You can get really down and have some awful times and then come back from that and be just fine (really, you can!) and that if YOU are having a really rough time, it's still appropriate to tell us about it because chances are, we've been there, and we just might be able to HELP you. That's what we're all here for, really, isn't it? To help and be helped.
@Ellenkc My mom asked me "why are your cheeks so rosy?!" I was like "Umm....steroids, rosacea, the fact that it's 95 degrees in here? Pick one!" :P Seriously, I've had rosacea and therefore "rosy cheeks" for years. I adore my mom, she's the greatest lady in the world, but she makes me laugh sometimes because it's often like she's meeting me for the very first time. She always asks me if I want pickles on my sandwiches or cole slaw with my bbq, (the answer to both is a very emphatic "NO!") so my answer to her is always simply, "Mom. How long have you known me?" She just smiles.
Phebe, all that positive thinking has GOT to be good for you, along with the right foods and drinks. Good job, keep it up. And if you DO get any bad side effects, just hang in there--- "this too shall pass." They do go away. And sometimes I am just like you: sometimes I really AVOID anything that has ANYTHING to do with cancer or treatment or anything to do with it, and just concentrate my mind on good things, fun things, etc. It really does help!
Welcome, Bluegrassharp I have to ask you, does your name refer to bluegrass music, the bluegrass state, or neither? I ask because I come from a family of bluegrass musicians, and I play the upright bass, myself. And you're right: this is an amazing site with an amazing bunch of people. I'm really not a very social person, but I feel like I've found Instant Friends here: add humor and compassion, and stir.
My oncologist told me to go ahead and take the claritin on the day of the chemo the first time, and he may have said take it the day before for subsequent treatments--I'd have to ask my husband to be sure because I cannot remember ANYTHING these days. In any case, either my bone pain just isn't bad yet, or the Claritin is working. I *have* had to supplement it a little bit with Tylenol, but that seemed to do the trick. Yesterday I actually felt quite good and got a LOT done (and believe you me, a whole lot needed doing,) so I'm hopeful that this whole upcoming week will be somewhat okay and productive.... til chemo time again, anyway, lol. -
Oh gosh, inks, I have to give a shout out to you and others who are going through this with small children. When I say I could NOT do it, I really do mean it. I couldn't do it. If I get tired and must have a nap, no one really complains, *especially* my two dogs, who are more than happy to pile onto the bed and nap with me. My husband is capable of getting his own dinner---and mine--when I'm not feeling well, and the cats...well, they are cats. Keep 'em fed and they don't complain.
Basically what I'm saying is that I can pretty much put myself and my needs first if I want/need to. I can't imagine having small children who MUST be attended to first, and trying to get through this, AND trying to maintain some sense of normal life for those kids.
You have my respect, my awe, and a moment of silence. Just wow. You are a hero. -
sorry to all those feeling blue
. I was thinking how lucky I am with minimal SE's and feeling good with lots of energy and happy to be with my family.....
This morning though, my hair started to fall out, and as someone else said, it sucks. So I've been crying all morning --- and I've done this before. Guess I'm just throwing a pity party for myself that I have to do this again....
Stomps her foot and says NOT FAIR! -
VirginiaNJ, NO IT ISNT!!! -
My wigs arrived...very happy! They are cute! However, I have no idea how to care or style them. Any tips or links? They are synthetic (I couldn't afford real hair!).
Also, how was your first public appearance wearing a wig? I am kind of nervous about it. Any words of wisdom?
Thanks!!
Hope everyone is having a good day today!! -
Welcome to all our new ladies. Not that I'm glad you are here, but I am glad you found us. And remember, NOTHING is TMI here. Let it all out. Maybe one of us can help.
I was thinking how hard it must be to go though this with small children. A friend of mine found her's when her youngest was only 3 months old. The amazing woman had the infant, two 6 year olds, a 5 year old, and a 3 year old. Sixteen years later, all but one of them are out of school and she has 2 granddaughters. AND no health issues.
Very rough yesterday. The 'C" nearly had me wanting to go to the hospital. Mirilax or something else finally helping. Prunes, Bran Flakes, and lots of raw veggies on today's shopping list. Do not want to go through that again. So glad most everyone is feeling better (at least physically).
I have devised a plan to help keep me from falling so far when I'm down. I'll give me one hour to be blue. Then I have a notebook, and I'm using it to plan a MAJOR 'I Made It Through' party for next summer. Gonna invite everyone I know to a pool party, serve ALL the food that right now sounds so bad, play music loud enough to be heard 3 blocks away.
I need another notebook though. We were planning a 20 year renewal ceremony for next Aug. I am still definitely going to do that. White dress and all. -
I just LOVE all of you on this site! I read through a bunch of posts, we seem to all be losing hair and sad about it, all have anxiety- issues, and so many positive, good ways of dealing with things. Makes me feel more 'normal' and ok to be having issues and problems - seems my mental state is the biggest issue with this, although chemo #2 might change that to more physical again...but just a rollercoaster of things daily...
This hair...I brushed through it lightly this morning and got a hairbrush full...I just HATE to shave it- what is wrong with me? We cut it short into a bob (my husband did it but its curly so you can't tell done by amateur..:) and I had long hair, don't even miss that just scared to get it ALL out...then I guess I have to deal with being a 'cancer patient' and the full impact of that, not sure what it is but I just want to wait...no hair on my pillow when I wake up just tons in shower and when I touch it...I am being silly and weird about it and I feel O.K> to be that way...
LIsa137- loved your response to cousin...super funny!
phebe- sounds like a good plan...hoping to do that all myself...sometimes get sidetracked..
pompom- we are on same chemo dates...keep me posted how you are feeling... -
Good morning! OMG! Yesterday I had the worst bone/muscle pains ever! So mostly a stay on the couch day, which is totally unusual for me. Hair is still falling (the one inch I still had left), but oh well.. Today I will try, and that is a big TRY, to put up some Christmas decorations so my 13 yr old daughter can have a sense of normalcy. She has been a trooper through all of this.
Here is hoping you all have a good day! I will certainly try! -
audra67 - I felt the same way about the hair. I felt that without the hair, the whole cancer thing is more a reality! My friend said to me, you didn't get this upset over losing your boobs! Your hair will grow back! I said to her, but no one can see my breasts! I totally UNDERSTAND what you are feeling! A big HUG to you!
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