23 years old very scared, pea sized lump in left breast

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Cmejia0408
Cmejia0408 Member Posts: 15


My mom has been tested positive for BRCA1 and I have a family history of cancer. My dads mother passed away from breast cancer at 52 and my Moms mother passed away from stomach cancer at 57. I felt a lump and my mom made me an appointment to see the gynecologist , she also felt the lump and suggested I go get an ultra sound because she said that it didnt feel like a cyst .. I have been crying all day I have my ultra sound on Friday and I have been in bed all day worrying ... I just feel like its something bad and I don't know what to do I am so scared I truly don't know what to do.. The lump is the size of a pea.

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  • Sparklekat
    Sparklekat Member Posts: 155
    edited November 2013


    Cmejia, don't cry yet! It could be nothing, it could be a whole host of benign things! Also, even if it is cancer, you can do this! I was diagnosed in October with Invasive Ductal Carcinoma. I am doing chemo first (six rounds of TC) and then having a double mastectomy in March. Yay, new boobs! (I really needed them, even at age 29, they've been huge forever so I'm like, well I was gonna have to have plastic surgery at some point and now someone ELSE can pay for it!) First round of chemo was totally manageable. I was down for like four days, felt crappy for 6 but didn't stop me from doing anything I want to do). I had chemo on a Friday and worked all five days the next week (but I have a desk job so it's not like it's a lot of physical activity). I go for my second tomorrow. It seems like a huge deal when it first happens but it gets smaller in your mind as life moves on and you realize that you've got a lot of things to look forward to. And don't feel like its a death sentence, there a plenty of women who go on to live long healthy lives! If you want more info for women your age there's a Calling all Ladies in their 20's post that's great. I think it's better for us young'ns because I just believe that my side effects are more likely to be in line with other women my age so I know what to expect! Thinking good thoughts for you!

  • Linda-Ranching-in-the-mTns
    Linda-Ranching-in-the-mTns Member Posts: 319
    edited November 2013


    SparkleKat is right on the money! Could be nothing... and with your family history, it will be good for you to learn this vigilance... a mammogram, ultra-sound, or MRI ... none of them are 'painful' -- just a little "odd/uncomfortable" for a few minutes -- no big deal, and SO much better to know instead of worry.


    These screenings will be a part of your life, with BRACA in your genes... in fact, have you had the test yet yourself? It is nothing at all to fear -- mine was just a swab to get saliva.


    Take a deep breath. It's all OK. Whatever it is... it is still OK.


    Try taking a long walk outside and look up at the tree tops -- listen to the birds, feel the sun on your face.


    Life is great, Darlin'... and you can handle this -- no matter what happens. We are here on this earth to enjoy life... try to stay there -- in JOY.


    Today -- you are FINE. You have a little lump. No big deal. Today you have no decisions to make -- and worry only wastes your time... doesn't change the lump. Worry is (believe it or not -- this is a HUGE thing to learn, and so if you get this now, it will bring more happiness to you FOR THE REST OF YOUR LIFE, even if you live to be 100!):


    "Worry is a choice".


    You can also decide to NOT worry!


    Try it!


    Take a bubble bath. Go to a good (upbeat) movie. Take a walk. Take a nap. Tonight... stand out in the back yard and lose yourself in the stars and this glorious (nearly-full) moon.


    Life is stupendous! There is some C/W song that says something about "I wish you could live like you were dying" -- what it means is that a near-death experience (which this so-far is NOT, because you don't have a clue what the lump is yet) but having that thought that your "time is coming to an end" -- is like a ladder in the game of shoots and ladders... it can ZOOOOM you up to a more intense appreciation for the joy and beauty in life.


    I had a double mastectomy and reconstructive surgery Nov 7 one year ago.


    And you know what I said on New Year's Day last January?


    I said (I was surprised, and very sincere!) that I had just had the BEST year of my life -- EVER!


    Really -- it will be OK.


    Now, try to choose JOY. Go take that walk, or bubble bath, or whatever makes you feel relaxed and HAPPY. Choosing to call friends to commisserate with, or crying in your room, or feeling "worried" are all choices you can make -- but why waste this beautiful afternoon?


    We are pulling for you!


    Linda

  • Cmejia0408
    Cmejia0408 Member Posts: 15
    edited November 2013


    thank you so much for your reply I needed someone to talk to I am just praying for the best and I took a look at the forum I appreciate it so much n I thank u so much for giving me your advice it feel really good to have someone there that is wise to this all.. God bless u really ...

  • Cmejia0408
    Cmejia0408 Member Posts: 15
    edited November 2013


    Linda, I don't know how to thank u for this... Your such a great person for this... I truly was so scared and its still in the back of my mind but tomorrow morning ill have the ultra sound at 7:45am... I can't believe u replied the way u did with so much positivity I just really needed that so much .. I suffer from anxiety and depression and everyone tells me I'm so young still to be so worried all the time I don't know why I am this way but everything u told me I'm just so thankful for it and your right... I am going to the movie later on today with my sister now and I'm going to pray tonight for the best... I will be writing again tomorrow for what they tell me when I gave the ultrasound ... I can't express to u enough how glad I am that u really cared ... Thank u so much

  • Cmejia0408
    Cmejia0408 Member Posts: 15
    edited November 2013


    I hope u saw my reply in not so used to the way this works yet.. I will try my very best to just be positive and hope for the best tomorrow morning .. Bless u so much for the link and for caring about me... I needed it more than anything ..

  • Cmejia0408
    Cmejia0408 Member Posts: 15
    edited November 2013


    Linda, I haven't been tested for brca yet that is the next thing after the ultra sound.. My gynecologist wanted to do it right there and then but she said it was a saliva test and I couldn't do it because I had been drinking water so she wanted me to do it when I hadn't been drinking any fluids for at least an hour so that it would be more effective .

  • laura11103
    laura11103 Member Posts: 87
    edited November 2013

    Good luck and I hope its nothing but even if it is something you will be okay!  Just try to remember that...  that's what I did and I was and am okay... the waiting is the hardest part...

  • DiveCat
    DiveCat Member Posts: 968
    edited November 2013


    Have you had your BRCA test yet? I am assuming not as you mentioned your mother is positive, but nothing about yourself. You probably already know this, but you have a 50% chance of inheriting her mutation. And a 50% chance of NOT inheriting it and being a true negative. I encourage you to speak to a genetic counselor, if you have not.


    As for the lump, at this time BREATHE and do the testing that needs to be done, like the ultrasound. I know it is difficult when you have anxiety to be told to breathe, but that is all you can do at this very moment. Even if it is not a cyst, that does not mean it is not another benign change, like a fibroadenoma. Benign lumps and bumps are quite common in young breast tissue, usually hormonal related (fibrocystic condition). Because of the possibility of a BRCA-mutation you DO of course need to be vigilant and it is good your doctor is sending you for further testing.


    Hoping that it all turns out to be benign!


    Edited to add: see you added you have not been tested. Please, please do see a genetic counselor before AND after you test. This is a very important part of testing that often gets skipped when doctors order the test direct. I wish they would not do this! Genetic counselors are so important for really assessing your particular risk, for reviewing your options, letting you know you DO have options, and so on. I have seen some well-meaning doctors impart some rather bad advice or directions when a negative or positive result returned. They just are not experts in this area. Ask for a referral to a genetic counselor. This is even more important as you DO have a history of anxiety.

  • Cmejia0408
    Cmejia0408 Member Posts: 15
    edited November 2013


    Laura, thank you so much I'm praying and just keeping sting about it.. I will post right after my ultrasound

  • proudtospin
    proudtospin Member Posts: 5,972
    edited November 2013


    Cme...Linda has said it all, she has given you lots of advise, me I go for keeping busy while waiting on tests, I tend not to tell too many folks and wait till I know something


    then again, I end up getting, mani, pedi, facials and massage! If you have that option, it is great for taking your mind off of things


    best of luck tomorrow, and to quote the stats, 80% of these alerts turn into nothing but you are so correct in getting your testing


    Lots of folks will be waiting on your results

  • Cmejia0408
    Cmejia0408 Member Posts: 15
    edited November 2013


    dive cat, yea I know the chances are at 50% and that is what worried me so much ... I am trying as much as I truly can to just be calm I hope and wish that it is not anything bad... And I will be getting tested for BRCA probably tomorrow as well and right after my ultrasound I will post what happens... It's going to be a rough night for me because I just want to get this over with but thank you so much for even replying... I see he support on here is so great I'm so glad to know people care this way

  • Cmejia0408
    Cmejia0408 Member Posts: 15
    edited November 2013


    proudtospin, it's so comforting to know that I have women here who genuinely care to know I promise it is just so comforting..I felt sick to my stomach I couldn't stop crying and I felt this feeling of fear and doom and it had to of just been the worst feeling ever but after all of the feedback I have a feeling of content and relief in a way.... I'm praying for good news tomorrow

  • Cmejia0408
    Cmejia0408 Member Posts: 15
    edited November 2013


    DiveCat, my gynecologist told me she definitely wants me to get tested for brca she even wanted to do it right there on the spot but she asked me if I had been drinking anything in the past hour and I had been drinking water like 15 minutes prior to her asking me that so she told me to come back to test for it when I hadn't been drinking anything for at least an hour so that the test will be more effective so on my next visit she told me she will go over my ultrasound results and have me tested as well. My ultrasound is tomorrow at 7:45am so I will be posting right after if I get anymore information

  • momisstage4
    momisstage4 Member Posts: 6
    edited November 2013


    I just chanced upon this post . Cmejia0408 , You will be just fine ! Rooting for you .

  • momisstage4
    momisstage4 Member Posts: 6
    edited November 2013


    I just chanced upon this and Linda-Ranching-in-the-mTns what a trooper you are . You just made me smile... I am here because of my mothers diagnosis and wanted to see if I can find some advise for her ongoing treatment and the side effects that she is going through . I find myself crying alnow and then even at work and your response was just what I needed to read, even though it was not for me :) Thank you and Cmejia0408; Good luck ! you will be just fine.

  • sabihah
    sabihah Member Posts: 65
    edited November 2013

    Hi Cmejia,

    I just wanted to say, I empathize with you!  My mom is BRCA-1 positive, and she's currently in the middle of treatment for breast cancer (she had a bilateral mastectomy, and she's about to start chemo).  My own genetic testing results are in, and my appointment with the genetic counselor to get the results is TOMORROW.  Plus I have some suspicious areas that were seen in my mammo and MRI, so I have another ultrasound to check on those on Monday.  At least I'll have my genetic info before the next set of ultrasounds!

    As for saying mammograms don't hurt... that's not always true!  Mine hurt, but no more than, say, going to get an annual cleaning at the dentist.  When I got my second set of mammograms, I took some Aleve, and I was fine.  The MRI was boring and loud, but did not bother me (not even the IV).  The ultrasounds are pretty relaxing, really.

    Yes, this makes me very anxious as well, and I'm not normally an anxious person.  It's just a lot to process!  But these ladies are wise... we WILL be OK!

    Hugs,

    Sabihah

  • Linda-Ranching-in-the-mTns
    Linda-Ranching-in-the-mTns Member Posts: 319
    edited November 2013

    cmej... i am sending peaceful energy your way today :)

    momisstage4... how old are you? i was caretaker to my father  3 years ago (before we found out about my own  cancer) for a year through his chmo/radiuation for esophogeal cancer... which he beat! then, later, he was diagnosed with a stage 4 brain tumor, and i lived with him in hospice the lasst month of his life. as strange as it may sound... although parts of the day to day experience were hard to face,  it was an amazing experience to share with my father... and i am changed forever (in a positive way) by it... and in some ways i actually feel closer to my Dad now than i did while he was alive.

    please excuse typos... i  am on vacation, no computer today, just typing  with thumbs on phone.

    anyway, this whole cancer ride is only 'tragic' if we decide to paint it that way.

    many MANY blessings and epiphanies also await us, if we are willing to look for them.

    my best to us all :)

    linda

  • Cmejia0408
    Cmejia0408 Member Posts: 15
    edited November 2013


    Everyone, I had my ultra sound and the doctor told me I don't have anything to worry about because of my age and the size of the ball is about a pea size. She told me the characteristics of it are not cancer, my mom was upset because she wanted to be in the room and listen to my results as well because she told me regardless what the doctor said she wanted me to get a biopsy. The doctor pretty much made it clear that it wasn't necessary until my mom told her that she had tested positive for BRCA1. The doctor didnt know this about my mom so she said just in case we can do the biopsy, regardless the doctor was going to let me do the biopsy because she told me that I should get it done so that I can eliminate the stress even though she said she was 98% sure it was not cancerous but when my mom me ruined she is positive for BRCA1 it prompted her to do the biopsy even more. So I did the biopsy right after I was happy to get it over with I hate needles and the initial prick hurt but after that it all went numb.. The doctor told my mom she didnt want to use a "clip" because she said I was too young for it as if it was something that maybe hurt more? I'm not sure what "clip" means.. So now I wait 3-5 days for results regardless how high percentage she felt that it wasn't cancer it will still eat at me because of my moms positive BRCA... I have some kind of peace in the back of my mind because I know they are experts and the nurse that did my ultrasound told me it would most likely be benign and I asked her what makes her assume this? And she told me that a cancerous lump has different characteristics and that the perimeter of a cancerous lump is more bumpy and rigged as mine is very smooth... I am praying for good news still ... From the bottom of my heart thank you all for wishing me me luck and praying for me it sounds cheesy but I really love u all for this I love u all so much even if I barely just signed on here ... I will continue being on here because I have such high risk I know I'm going to need this support... God bless everybody

  • DiveCat
    DiveCat Member Posts: 968
    edited November 2013


    It is true that a smooth edged round/oval lump generally indicates a benign condition. Again, such benign changes are very common in young women whether or not BRCA+. It is not surprising they did not initially want to do a biopsy if it appeared benign because this can add scar tissue and such making future screening harder to read, and biopsies of all potential lumps that show as benign can lead to MORE biopsies due to this scarring, but it sounds like you wanted the peace of mind which is not unreasonable given your chance of being a BRCA-mutation carrier. The marker is just a little chip they put in so in future screenings they know that area has been biopsied before, etc. Please keep us updated!


    Are you going to still do the BRCA testing? While there is a 50% chance you are BRCA+, there is a 50% chance you are BRCA- which would mean you are not high risk and could reduce a lot of stress and anxiety for you. If you are positive, there is a lot of support out there and screening and prevention options.

  • Cmejia0408
    Cmejia0408 Member Posts: 15
    edited November 2013


    DiiveCat


    yes I truly did want peace of mind and she did feel it was necessary to be sure because of my mom.. I definitely am going to get tested for BRCA I promise to keep updating thank you so much for your knowledge. So a clip is something they place inside ? Wow I never knew that... Maybe that is why the doctor told me to make sure any facility is aware that I have had a biopsy before. I will be posting my results once I get the phone call ... Thank u so much .. Talk to u soon

  • beacon800
    beacon800 Member Posts: 922
    edited November 2013

    Sounds like you have been thru an ordeal but that most likely that lump will be benign.  It is normal to put a very small titanium chi,p also known as a marker, in the area they biopsied so if they ever need to review that area again they know exactly where it is located.  This can come in very handy in the future and it will not hurt you or set off airport metal detector or anything else bad.  It is ok.

    Hope you do get to a genetic counselor who can give you the low down on your risks and get you tested.  This is the best thing as knowledge is total  power and you will overcome your troubles.  Try to have a relaxing weekend!


  • Cmejia0408
    Cmejia0408 Member Posts: 15
    edited November 2013


    beacon800


    Yes I am just trying to relax and think about what the doctor was telling me... I'm definitely not as worried but I still have thoughts in the back of my mind that I am trying to just be positive about and I will definitely look into a genetic councilor. Thank you for the reply

  • sabihah
    sabihah Member Posts: 65
    edited November 2013


    I hated having to wait for the appointments with the genetic counselor, but mine was pretty great. She even looked at my Dad's side of the family and identified a possible mutation that we should test his siblings for, if they're up for it. With the results she also provided screening recommendations for each group of people (the people who actually tested positive for BRCA-1, and the men and women on each side of the family). People on my Dad's side have different screening needs than people on my Mom's side.

  • Cmejia0408
    Cmejia0408 Member Posts: 15
    edited November 2013


    I WANT TO APOLOGIZE FOR THE LATE REPLY I HAVE BEEN SO BUSY TRYING TO KEEP MY MIND BUSY THE PREVIOUS DAYS.. FINALLY YESTERDAY I GOT MY RESULTS AND ANOTHER RADIOLOGIST WAS KIND ENOUGH TO READ THEM TO ME OVERTHE PHONE BECAUSE MY DOCTORS OFFICE WAS CLOSED .. THE DOCTOR STARTED OF WITH "GOOD NEWS CAMILLE , IT IS NOT CANCER IT IS BENIGN AND A COMMON FIBROCYSTIC LUMP" SHE ASSURED ME THAT IT WAS COMMON AND THERE WAS NOTHING TO WIRRY ABOUR.. I THABK GOD AND NOW MOVE ON THE THE NEXT STEP TO TEST FOR BRCA SINCE MY MOM IS POSITIVE FOR IT. I THANK U ALL SO MUCH FOR THE SUPPORT AND I WILL CONTINUE TO UPDATE .. IM SO THANKFUL FOR THIS SIGHT AND I TRULY LOVE ALL THE WOMEN ON HERE I FEEL SO BLESSED TO BE ABLE TO TALK TO YOU AND HAVE ALL OF YOUR SUPPORT..GOD BLESS U ALL AND GOODNIGHT

  • Beesie
    Beesie Member Posts: 12,240
    edited November 2013


    Great news that it's just a benign fibrocystic lump!

  • sabihah
    sabihah Member Posts: 65
    edited November 2013


    That's excellent news! My lump was benign too (a fibroadenoma). Hopefully you can sleep a little better now, knowing that you don't have cancer! Best of luck with your BRCA test. We hope it comes back clear too.

  • Cmejia0408
    Cmejia0408 Member Posts: 15
    edited December 2013


    THAnk you so much Beesie .. This is something that was continuously worrying me .. I have anxiety and panic attacks and I stress really bad.. It was a weight lifted off of my shoulders.

  • Cmejia0408
    Cmejia0408 Member Posts: 15
    edited December 2013


    Sabihah.. So so happy to hear your lump was benign as well. Yes I definitely have the peace of mind that I needed.. It was horrible and a true wake up call.. I am


    Going to watch this very closely and take much better care of myself it is not good that it takes these kinds of things to happen to realize things but sometimes a scare is necessary.

  • Linda-Ranching-in-the-mTns
    Linda-Ranching-in-the-mTns Member Posts: 319
    edited December 2013


    Camille, so glad to hear your news!


    I see that you also sent me a private message a few days ago -- I will answer here, since other "newbies" might get something from it, too...


    First of all, you mentioned that you don't understand exactly how the boards here work -- hopefully you are more comfortable here now, and have figured out that unlike a "chat room" people drop in one day and then maybe not be back for a week or more -- so please don't ever take a delay or non-reply as lack of interest by the people (like me :) you are corresponding with. :)


    I was on vacation for the last 3 weeks, without computer for all but one day! On my computer I can ask the site to email me when new posts come up on my favorites -- but on my phone, I don't seem to have that option. Plus it's hard to type out much from the phone, and slow to load, and in general just kind of a pain!


    Anyway, about the anxiety... there are lots of tricks that you can learn to 'get control' -- but the biggest help is to stay busy and DECIDE TO BE HAPPY. I know that sounds simplistic, but I have learned that so much of life is our reaction to it-- what we "make things mean" -- and sometimes things don't "mean anything" at all. In my understanding of life -- Cancer is usually not a reflection of anything we have or haven't done, it isn't a punishment, it isn't even "scary" -- IF we decide that we will accept whatever life brings us with as much grace and gratitude as we can muster.


    The twelve step programs (and many religions) instruct that we are happiest when we stay calm, change the things about our selves that we would like to, and give the rest up to God. If you aren't spiritual, then just give it up to The Universe... the truth is that we are only small specks in the grand scheme, and the stars and moon and the wild animals and the earth will all go on after we have passed. That's the way it should be, right? And, if we are just a tiny blip in the huge continuity of Life... then our biggest responsibility to to enjoy our time here, to the fullest, in the deepest ways possible.


    If your mind is full of appreciation (for beauty, for love, for family, for all your blessings) then there is little room left for worry and anxiety.


    Whatever makes you truly happy -- try to do that more!


    Meditation helps some people, bio-feedback, and there are educational courses like Landmark Education, which sure changed my perspective of life and brought me MUCH peace and an incredibly broader perspective.


    Chronic severe anxiety can also be treated medically -- talk to your doctor if you find that relaxation techniques and "living in appreciation" just isn't cutting it for you... but I bet you can do this, once you get the hang of it it gets easier and easier!


    All my best :)


    Linda

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