First Time here

steph-nz
steph-nz Member Posts: 2


Hi


I am a first time poster to this site. I had ILC 5 years ago. I am 49. My mother had the same thing at the same age. This year has been quite bad with my health and now I need some advice.


I was sick earlier this year. I had pain - an intense pain in my lower right side in the back. I went to hospital and they said it was probably just a kidney infection and go and see my doc. I went to see my doc who ordered a US on my gallbladder. They found a hemangioma on my liver as a side issue and so ordered a a CT scan which also found a tumour on my lung. Following that, again earlier this year, I had some intense pain in my right shoulder blade at the back. It comes and goes and it is still there. I saw the doctor again and they sent me for a blood test in case it was an embolism. That came back with elevated d-dimer so I went to hospital. I had another cat scan which showed a lung lesion hadn't grown over the past 4 weeks and no evidence of embolism. As an aside, they mentioned some ovarian cysts. My original breast cancer surgeon got involved and asked for trans US of ovaries. One was almost fully cystic. They thought it was dermoid but decided to do a bilateral salpongo oophrectomy. Ugh and ouch. The right hand ovary and tube was prophylactic. I still don't really know what they took out but there were two cysts, not dermoid, one 3cm and one 6cm. That could have been the reason for the pain. I also had nausea.


I have spent the year not really keeping up and not ok. Now I can feel two very hard lumps on my liver. So I asked the doc to send me for an xray and abdominal US. just in case. I am waiting for the results but the nurse said they are now recommending ANOTHER CT scan. They found a tumour in my gallbladder.


No one I talk to seems to know much about whether or not some of this could be our old friend in hiding - lobular. I would like to have some advice from those who might have had experiences of this nature. Please. Thanks.


Surgery 11/08/2008 Lumpectomy (Right); Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Hormonal Therapy 01/01/2009 TamoxifenRadiation Therapy 01/10/2009 ExternalSurgery 06/03/2013 Prophylactic Ovary Removal (Both)

Comments

  • Robyn_S
    Robyn_S Member Posts: 197
    edited November 2013


    hello Steph and welcome to the forums. I hope that you get some answers from the doctors looking after you .


    I do not have mets but suspect a recurrence on my chest wall ( post BMX). I will get the biopsy results next week. Funny but I am the healthiest I have ever been!


    We are the same age - it is wrong that we are going through this, but I am planning to go kicking and fighting! I am too busy for this!!!


    I hope you find the support of all the lovely ladies here a help!

  • camillegal
    camillegal Member Posts: 16,882
    edited November 2013

    Hi Steph--whoa what a year. I'm sorry and I'm sorry I have no knowledge to share with you I never di, I know this sounds silly, but I don't pay attention (it works for me) I don't recommend it, but since u'r Onc is involved they know doubt will be able to give u what u need to know. I hope it's just a crazy thing, u'r at the age where u'r body changes so much. Let us know what all the results are.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2013


    Hi, can you ask for a PET scan right away? Nothing seems to be 100% accurate, but that was the first scan I had after dx and my oncologist was very, very relieved when it came back negative. It can show mets. Since my oncologist seemed so relieved, I think they are pretty reliable. Finally, you didn't say what "doc" you are going to, but I'd get myself to a breast cancer oncologist right away--a specialist, if possible. I hope it's nothing, but even if it is, there are drugs that can stop this crap in its tracks right away if you begin tx asap (if you need it).

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