Calling all TNs

Hi All,

I'm going to my first breast cancer support group meeting today. We don't have one in the town where I live, but there is a monthly meeting in the town that is 30 minutes away. I wonder what it will be like. I hope I like it. I could use some in person breast cancer buddies. We just moved to Tennessee a month before I got diagnosed. I've been a bit of a hermit while I'm doing neoadjuvant therapy, so it will be nice to get out.

Kay

ALhusband, shoulder pain can be caused by many things. I had cording in both arms/shoulders, which was very painful and frustrating. It felt like there was a band around my torso, tightening more and more every day. Can she lift her arms up? Sometimes you can see the actual rope like structures in the armpit.

Also, like the song says, "the arm bone's connected to the shoulder bone". If she is favoring a particular part of the body, it throws the rest of the body out of line. I used both a lymphedema therapist for cording, and a massage therapist who specializes wtih bc patients. I didn't think I could lay on my stomach, but they have special cut out cushions that allowed me too, although I have to admit getting on and off the table for the first visit was tough. But it was sure worth it!!! When she gets clearance from her Dr, She should definitely look into it.

I am on Metropolol (Lopressor) for high blood pressure and heart palpitations. Since I've been on it, I have noticed some fatigue, but its manageable. I am also on Lipitor for high cholesterol. When I was first dx, I said to my MO that I had always thought that heart disease would kill me. He said it still probably would!!!! I guess it's good that he thought the cancer wouldn't take my life!!

Well, I'm starting to feel very nervous about my surgery coming up on Monday. It may be a glass of red wine kind of night.

SloLoris, I love what your oncologist said about heart disease. Personally, I would be delighted to die from something other than TNBC or SE's of treatment.

Happy Thanksgiving to everyone here that lives in the USA. I'm really looking forward to our family get together. It will mean a lot to me this year. It will be the first time that I will have seen most of my family members since I was diagnosed. We all live pretty far apart from each other.

Hi everybody, chemo done yesterday. This time I feel much better day 1 and now. The only difference is I took marinol after I returned home yesterday. Emend was given through IV as my first chemo. My onc priscribed 2 oral Emend for day 2 and 3. Like many of you said, it is expensive. I paid $58 somethimg and my insurance company paid $250. Just for 2 pills, crazy!

thank you Tiffany. I hope so as well!

tazzy - the pharmaceutical companies are making tons of money from cancer - something not quite right about that!!

Happy Thanksgiving to all you beautiful women and one guy! May you have a day filled with family, food and joy!

I have just read that this year, the first day of Hanukkah falls on Thanksgiving, a coincidence that last happened in 1888 and will not occur again for 79043 years.

My dear Karen, Cocker posted that you are not doing well. I want to tell you what a dear person you are and that I have been lucky to know you. This has been a tremendous thread and has helped me and so many others face our diagnoses and side effects. You are in my heart. Jan

OBXK, love to you and your family, may your journey be gentle from here on out.

my thoughts and prayers go out to Karen and her family. My heart is saddened by this news. We know that God has the final say!

Hi,

I was diagnosed right before my 39th birthday. First mammogram. Had it done because my mother was just diagnosed a month before at the age of 62. She had Stage 3c borderline TNS. I was diagnosed with Stage 2 TNS. She passed in August with Stage 4. I had a double mastectomy followed by chemo then rads. Three months later I asked for a PET scan and they found 2 less than 1mm spots in the same area. Had an ultrasound done and they could not find anything. Just had a MRI. Hope to get results next week so I can get my surgery scheduled and get these things cut out. It has been 2 months since they found the spots and I don't do want them in there any longer. I will be happy to have it done Xmas day if necessary. Oncologist is going to put me on Xeloda even though there has been no spreading detected to hopefully get ahead of this stubborn crap after I recover from my surgery. Radiation doctor said no more radiation since it didn't work the first time. I will do anything I need to do to get rid of this crap. I just need this ball to be rolling faster.

second chemo is nasty. Feel nauseous, headache, no appetite... This is so sad ...

Just found out that hubby is getting laid off, they are closing the doors. He has been there for 20 years. Of course I always worry about the cancer coming back, and I have had bad hip/back pain for awhile, but now I am terrified. We had great insurance and felt I could get the best of care available here. Now I will be going on medicare as I am on disability. I know nothing about it but I guess I better find out. Hubby doesn't think he will be able to get a job with as good of benefits, he was union. My disability won't even cover the mortgage. Ugh. Why is life so tough? I really do appreciate much, but why does it seem like more bad comes my way than good? I am so thankful for my husband, family and animals, but why does it always seem like we are struggling? Sorry-my vent for the night.

bak94 - sorry about your husband's job. Why is life so hard!? Sending good luck to your way.

Simplelife4real - sorry that I judged too soon. This second chemo is not better. I do not think Emend did anything for me. I have no appetite and slept through 5 days. I lost 1.5kg just this week. Crazy. I am so looking forward to the day that AC is done.