Fall 2013 Rads
Comments
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Wyo and L2 so happy for both!! I know the great felling of being done. Thanksgiving has a whole new meaning to me! So many great people that I have met this year. Now to move on with my life!! So,so,thankful for all the great lady's here! HAPPY THANKSGIVING to all.
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Happy Thanksgiving to all the radiant ladies here. Finished my last whole breast treatment yesterday and begin my round of 7 boosts on Monday. Thankful for a long weekend which equals a break for my skin and a break from the 45 mile one way trip to the hospital. Wishing you all a time of rest, relaxation and time with family and friends. -
congrats to those finished! It's such a great thing to be done with active treatment.
I finished 4 weeks ago today. I still have a couple open spots that weep and scab over. Not typical but I had very aggressive rads. I had no real problems with the skin breakdown---beyond the pain and annoyance! I took a good turn a few days ago; I'm not constantly in a protective posture so I have less pain. I've been seeing my chiropractor and adjustments are getting easier. I have had more fatigue these 4 weeks after rads than I had during rads. The other time I had rads I had no skin breakdown and felt the fatigue during rads only.
I started arimidex a week ago. I hope I do ok on it. I get a monthly shot of Zoladex to shut down my ovaries. (Tamoxifen did not work well enough for me!). I feel older than 42 these days, but getting better. I still have really stubby lashes but at least I have enough now to put a little mascara on!
Enjoy Thanksgiving today. I need to go make the mashed potatoes now! -
Thank you Bounce and wyo for your comments -- much appreciated. I do try to exercise and will try to keep it going during the radiation treatments; I also attend a monthly breast support group and have a close friend who also had breast cancer, plus a very supportive husband. I may talk to a psychologist and will try meditation. I am thinking as the treatments go forward, I will calm down as it becomes more of a routine. I work three quarters of a day and love my job-- work with high-schoolers and hope I do not have to take time off from work. Working keeps my mind occupied. I agree too we all have our ups and downs as far as emotions -- that's normal. Sharing here helps too. I am thankful and glad people are reading my posts. Have a Happy Thanksgiving! I will keep you posted and love to hear from everyone. -
Finished 28 rads and 5 boosts yesterday! Had to do 2 boosts in one day to get it done but thankful it's over! Still suffering from back pain but hoping it subsides as the fatigue does.
Happy Thanksgiving everyone! -
way to go, katieAK!
Wow, quite a few of us finished in the past few days. High-fives to wyo, delerium pie, Anne, lav and Katie, too. (And anyone else I forgot). Now we are all truly radiant!
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Hi all. Congrats for everyone finishing! Tomorrow us 9/28...So glad one third of the way through! Skin is unchanged. -
Happy Thanksgiving Radiant Ladies!
I am thankful for all of you and your support I received during my radiation treatments. I don't have a support group to attend so you have been it. I am six weeks out and feeling better everyday. Thank you thank you.
((((Hugs)))
Cakes -
Katie, congratulations on becoming a radiant lady! Hope your healing continues and that you are able to rest your back.
Cakes, hello. I told my daughter yesterday that I felt so very good. She started crying. I didn't realize how long it had been since I felt good and how long since my loved ones heard that from me. Definitely something to be thankful for. So, ladies, if you feel good, shout it out. Your loved ones will really appreciate it. BTW...we skyped today and my daughter told me that my hair looks really good.
Kruise, soon I will be as pretty as you are!
Love to you all, MsP -
MsP - you outshine us all. I think you could wear anything at any time of the day or night in any state and your beauty would shine through.
Cakes and MsP - so good to hear you are doing well.
DeliriumPie and Bluebird - how are you ladies doing?
I have been thinking how it is becoming more common for women to continue working through treatments and how we are encouraged to keep exercising etc. and how we are told we will soon feel fine - and I think its all a bit unrealistic for most of us. The bar has been set very high.
Honestly - I guess some people enjoy their jobs and can function well enough to continue or make adjustments to cope well - personally I think it sucks that the RO told me I would be able to work through rads and I told my boss that. Now my boss thinks rads are easy peesy. I don't quite know how to tell my boss I hardly have the energy to think and that my breast and underarm are swollen, red and sore! I am not used to talking about my booby with my boss!
Any ideas about how to tell people you feel bad without them thinking you have a "bad attitude"?
By the way I only have 6 treatments to go and I am doing well. The pain hasn't gotten worse since it started and I can handle it fine for another week or so. My family are very understanding and are helping any way they can. I am just tired and feel like it sucks that I am still supposed to run my home, work and exercise and be cheerful.
I have stopped exercising - I promise to start again after rads - and I don't want to leave home or stop being cheerful - so maybe I should just take some time off work. I feel bad for the boss as I am the only receptionist/clerk there.
Maybe I'll work the first 3 days of the week and take the last 2 off.
Sounds like a plan to me.
By the way at 10:00 am this morning I had a veggie juice and a caramel donut for breakfast. I told you my mind isn't working well.
Seriously - since the Tired started I have been craving sugar! -
I had my dry run today, x-rays and tattoos. I plan on taking a shuttle to treatment, but can't get on the schedule next week so I will have to drive all the way to Los Angeles (traffic
) for one week. After that I can shuttle it from a halfway point. I finished chemo in October so I am glad to know I will start in December.
Reading this everyday helps!! -
I hear ya Bounce. Sometimes we are expected to be wonder woman and feel guilty if we can't take care of everything ourselves, even with the most supportive family. I own my own cleaning company so working through 2 lumpectomys, 4 rounds of chemo and 35 Rads was no picnic. It's physical labor but I pushed on through. If I didn't work I didn't get paid and had medical bills to pay for. I only took minimal time off for my surgeries. Honestly though, if I had to do it over again I'd pamper myself more. I finished Rads at the end of August and am now feeling back to normal.
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Bounce - I agree, it can be overwhelming, the expectation to work during treatment. So many ppl told me I could work thru chemo at first, incld. my dr., but I felt so extremely exhausted, plus I had a host of SEs that made it impossible to do my work (a desk job) with any level of precision & effectiveness. I didn't feel it would have been fair to my employer to do subpar work & on an unpredictable schedule due to my crappy energy levels. So I went on state disability, & am just now going back to work as I start rads (tho it remains to be seen how easy that is due to the appts. being in the middle of the afternoon, ugh; will be making up lots of work, I expect).
And don't even talk to me about exercise! That's a 'nice to have' at this point
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Bounce, thank you so very much for your kind words. I am going to try not to be so fixated on how I look on the outside, but getting my hair in a "do" after chemo is a milestone in my recovery from this horrid disease.
You always post about important topics and your last post is no exception. Why do we feel the need to compare ourselves to others? Our health and well being is foremost. For some, continuing to maintain a normal schedule is a healthful thing. When it is not healthful, we have to change the routine. It sounds like you need to take a break and an honest discussion with your boss is in order. I really don't think your boss thinks radiation is easy peesy. He/she probably think you are amazing....which you are, by the way!
And Jen...kudos for you for maintaining your business through surgery, chemo and rads. I was able to work through my treatment, but I have a desk job. I can't imagine trying to do physical work. We women do what we have to do and that makes us all amazing!
Shine on, radiant ladies.
MsP -

“Maybe Christmas doesn’t come from a store, maybe Christmas perhaps means a little bit more.” —Dr. SeussHello fellow radiation travelers- found this wonderful picture with those famous old words from "The Grinch" and thought they might fit today.
Bounce & Jen- loved your posts about working and managing during radiation. My thought was- who is it that expects us to "cowgirl up" and juggle daily cancer treatment with work,family, etc. ?? I take public transportation to work and just that hustle/bustle, walking to the station, standing on busy trains, walking to work or a hospital or getting on a plane for a meeting almost defeats me before I get out the door.
Well I puzzled and puzzled til my puzzler was sore- and started to think-----what if its really "us" that expect we should always do more....?? (sticking with the grinchey-clause theme)
I think we are sometimes harder on ourselves than our bosses, our loved ones or even society. Then it becomes really hard to maintain that facade to others and most importantly to ourselves- we just can't do it all and when we act like we can we shortchange ourselves and those around us. They don't appreciate what a life-changing time we are in during active treatment-and can't help us even in a small way unless we let them.
Then I kept on thinking and wondered if work and being "busy" also in some way lets me put this awful scary thing aside because I am doing what I would "normally" do. If you are filling every minute its less time to think about cancer you are just too busy living.
I also thought of something else- look how young we are seeing women on these boards- women in their 20s and 30s with small children and that job does not have days off. Single women who support themselves, women who live in states without disability so no work=no pay. Its a societal shift to balance work with life which for us includes a daily cancer treatment. No answers but it sure made me think
Finally Tanya- OMG are you sure there is no way to get on that shuttle? Huntington Beach to LA is a grind even without radiation treatment on the other end. The first week is a bit stressful getting adjusted to the routine and what it "feels like" I know you SoCal girls drive loooong distances so I am probably an old worry wart- -
Hello All,
So far I have had 15 of 35 rads and am doing pretty well. My last one is scheduled for Dec 30 and then I go to another area of the hospital and have my hysterectomy. I'm getting tired but am trying to hold out the best I can since I will be out 4-6 weeks for the surgery. I figure I will be able to get my rest then. Does anyone have problems with pain in the shoulder/neck area? -
re: working and exercising through treatment. I ended up retiring early. I had planned to work 6 more years, but I knew to be healthy, something had to give. I live with and care for my 93 year old mother who is like an infant in many ways. I have 2 big dogs that require a lot of cleaning up after. I have a big house and big yard and a husband with a chronic pain condition. I was superwoman, working full time, coming home, cooking, cleaning, etc. Taking care of everyone but me. something had to give, and it was work. which sucked, really, on many levels, but I really decided that if I wanted to LIVE, I needed to take care of MYSELF and make myself a priority. I've changed my diet, and that alone takes time and effort. I couldn't really exercise during chemo (other than walking in the yard with the dogs, cooking and cleaning, and light gardening) due to severe anemia, but I'm coming around and starting an exercise program. -
wyo - preach, Sister!
Bounce - you're so right. I don't know about you guys, but the fatigue for me was definitely cumulative during rads. Felt pretty close to normal first month or so. Last two weeks were harder. Worst was the first two (okay three) weeks after. (Or maybe it's because I was also starting Tamoxifen and traveling). Thank heavens we've been at my parents this week so I could nap without Mommy guilt!
Hang in there all you radiant ones!! -
Wishing everyone a great week. Tomorrow I will be on 7 out of 30 rads. Been feeling really fatigued the past few days. My family doesn't really understand why, so it is hard for me to explain to them. Thinking of you all. -
hobbesla4
we will be thinking of you too- if your family does not understand why you are tired- just fall back on the old "because I said so" sometimes people don't realize that while radiation is "targeted" your whole body is taking the hit
hang in there -
hobbesla4 - try to figure out what is actually hardest for you in the rads process - it will help you understand why you are tired. Maybe its the tension and worry, or the traveling, or the waiting. It turns out the lack of control was hard for me and caused me distress. But once I figured it out (with some help) I stopped feeling as uncomfortable.
I also explained to my family that my body is working overtime to repair damage and it take lots of energy and I need to rest. I don't know how much energy it actually takes but its an explanation they could all understand and relate to.
I am turning into a well-done sloth.
I come home from work, nap, get up and throw some supper together, say hello to hubby and to whichever of the children are home at the time and then go to bed!
The skin in my radiation area is getting dry and crispy and a blister has appeared.
Seeing as I have 4 treatments left I am ignoring it.
But shocker! The skin on my nipple peeled off leaving me with a very pale nipple. It looks weird. I only didn't freak out completely when it happened on the weekend because I remember 2 ladies not long ago commenting that something similar had happened to them.
Please tell me that your nipples have returned to their former color, ladies!
(I am lucky I still have a nipple to worry about so I'll take it pale if I have to) -
Bounce - My last Rad treatment was at the end of August and my nipple is still pale. During treatment it got very red/burned and peeled also. I'm hoping it gets back to normal soon. Looks silly. But like you said glad I have it. -
Treatment number one done! It took awhile because they x-rayed again and wanted to make sure everything was "perfect". The treatment itself was painless and fast. Hope tomorrow is more of the same. -
I have 12 left! My skin is holding up well, just a little pink. I'm fair skinned and was very worried. Now it's just the fatigue.
I use aloe right after rads. I put on some radiation gel when I get home and aquafor at bedtime. I also practice jin shin every night.
Below is the link for the holds. It's sponsored by my hospital and I believe it made a huge difference with chemo so I'm expecting good results with rads. -
Tanya, Glad to hear that your first rads went okay. I finished 7 of 30 today. The treatment process itself is not bad, but somehow I have been really tired lately. Pretty soon, both of us will be done with rads.
Hope everyone is having a good week so far. -
Hi Radiant Ladies - I will be 3 weeks out from last boost and I am still feeling fatigue. Thanksgiving was rough with all the cooking, cleaning and company. I loved every minute of it and was so grateful to be with family, but last night when youngest daughter and husband and baby left I went to bed and stayed in pj's all of today!! I may even do the same tomorrow. My skin has recovered well but I too have a "light" nipple after peeling. My RO said the color may or may not come back but who cares I can always put bronzer on it next time I go to the topless beach LOL!!!! To all you finished with RADS congrats! For those of you still being zapped - it won't be too long until you can look back at this time and be proud of the brave warrior you are! You all touch my heart in so many different ways - I've cried with you and laughed with you and learned from you so I am thankful for you and for this site. Hugs, Marilyn -
Hello all! Today I had a CT scan for my boosts that start Thursday. So I have my last whole breast rads tomorrow and Wed. Then six more boosts. So close to the finish line. It will be weird not constantly being treated somewhere. I've been plowing through everything since my diagnosis in May; feels like I haven't had much time to think.
Just a question...does anyone think they may have reconstructive surgery at some point? -
yeah to all those who started- the first step is walking in that door and hopping up on the table. a lot of people are in the midpoint and others finishing up. so good to see all ends of the spectrum- its encouraging. I am doing fine first week with no rads- I have the itchiest bumps on my chest- yiiiikes. Thank goodness I read here that is not unusual but its kinda socially unacceptable to be at work rubbing my chest LOL -
Finished up my super clav (collarbone) area today - thank God! That area is pretty fried. I can tell the skin is going to peel. 3 more regular treatments and then 5 boosts. The boosts have me nervous. My skin is holding up ok - but I don't know how it will do through stronger boost doses. Can anyone give some specific feedback on that? For some reason, the tech today told me she was concerned my skin on my armpit area was going to break down. It doesn't seem anymore pink/red than any other area. ???
Just want to get done without any major issues. I'm very grateful that it's all gone as well as it has. -
Hi LisaSp,
I've thought about it. I have mini breasts to begin with but now they are really uneven. I'm not a good candidate for implants and don't have fat in areas where it can be moved around (abs or back). I met with a PS and my options were frightening. So I'm thinking of just evening them up. They will still be mini boobs but the headlamps may align. What about you? I know some women feel thay afterball this BC horridness at least they should get great boobs! Good luck with your decision!
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