How Many Are We?

BelieveInMiracles2 · November 2013

Add me too. New to the site but diagnosed with Stage IV in Sept 2012.

Kandy · November 2013

I am joining in, diagnosed Oct with 1 met to pelvis. Ready to start this fight again.

Fitzy · November 2013

I'm here now too, just dx with liver mets after NED for 9 years. Start Abraxane today

Anonymous · November 2013

hello. I'm joining you all with your leave. I have a recurrence that I'm told by some of my doctors makes me 4 and by some makes me 3. They seem to believe that the odd presentation makes it difficult to prove that it's one or the other but on balance are treating me as if it's a distant recurrence as it's in the contra lateral nodes: both axilla but not breasts. Scared, isolated, treatment ACT is helping, facing surgery and radiation. Suggestions appreciated esp for how to adjust to this new status.

Maureen813 · November 2013

new to stage 4. Diagnosed on my 50th birthday as SIIIa in 2010. Found out thurs nov 21 I'm now stage 4 with mets to l1 and l2 spine. Living the dream of life until I can no longer love life. I'm an engineer but more importantly a mom to wonderful young man and woman

Jorichmond-templespa · November 2013

Hi I was diagnosed with liver and bone mets in 2008. I receive 3x weekly Herceptin (which followed 6 cycles of chemo.)and will probably do so for life but a tiny price to pay for still being here! I feel so blessed as , despite giving my previous job up due to terminal diagnosis, I have now have a new career. I've seen my daughter start menstruating., embrace her first bra and boyfriend, attain A levels and gain a place at uni .Plus I've seen my son achieve A levels, go through Uni and secure his first job. A message of hope. My liver was 70% tumour before chemo . With that and Herceptin the tumours are microscopic.I go to the gym x3 week , have no pain and live my life to the full. Zometa was stopped a year ago as no benefits noted after 3 years. Praise God for the sheer fact I am so well. keep strong :-)

debraH · November 2013

Hi I'm Deb Hayes stage 4 with mets to spine and neck nodes, Breast cancer 2007 stage 4 2012,So glad to be here with you all!

MDtoMom · December 2013

Hi

Started stage IV in March 2013, with inflammatory breast cancer. Mets to brain, lung, liver, bone.

schubemj · December 2013

I am posting for my wife. We are currently suffering our 4th setback and starting a new set of chemotherapy.

As with many of you my wife's journey is too long to tell in brief. I see everyone lists the therapies and other details of their conditions. Is there a format to it or just list them and you format it? I also do not see many husbands involved in these discussion groups or social media postings. Am I just missing it or is it just taboo?

I will post more later.

DivineMrsM · December 2013

schubemj, I'm sorry to learn of your wife's diagnosis. I hope that as you navigate this site, you will find some help and support and insight for what both of you are dealing with.

Regarding the listing of therapies, ect. At the top of the page, on the right side, it will say "My Profile". Click on that link, and it will take you to some tabs including "My Diagnosis" "My Treatment" and "Settings". The one I have filled out is on the "Settings" section regarding some things about myself. The "Settings" section includes a "signature" section, which is where I filled out that I am er+, what treatments I've had, ect. You see that at the end of my posts.

As for posting as a husband, there are a couple sections on the boards for family members. Yes, what you are experiencing is difficult, but please know that those who actually have stage iv bc have a different outlook on things and one cannot understand unless you are in our shoes. Your best bet is to always identify yourself as the husband of a woman with bc.

Here are the links I speak of: Breast Cancer Topic: If you are NOT stage IV but have questions please post here

Breast Cancer Forum: For Family and Caregivers of Members with STAGE IV Diagnosis

And of course, your wife can create her own profile. Both of you can hopefully benefit from the site.

carolinachristy55 · December 2013

I have no clue as to what number I am but I am new here and hope to get to know you ladies and find some support. Hugs, prayers and love to you all!!!!

chanah · December 2013

Carolinachristy, welcome to the club no one wants to join. If you fill out your profile (biography, diagnosis, treatments, signature), you will connect more quickly with sisters with similar diagnoses, treatments, location or family status etc.

sherbab · December 2013

schubemj, I am very sorry you are here! My husband, who is overly supportive, doesn't agree with the boards only because he thinks they complicate the thinking process but I believe I just get expert opinions. Welcome!!

fmlyhm0 · December 2013

Stage 4 Diagnosed 8/1/2013 going thru chemo now.

Maelli · December 2013

One more still here! Over eight years and joyfully counting. We may be nearing 500 strong.

jessmarieberman · December 2013

hello, I'm new here for stage iv. Diagnosed with mets to liver and bones. Was on Xeloda for 9 months before slight progression, now on afinitor and aromasin combo but tumor markers are still climbing up after two months...couldn't tolerate the 10mg dose so cut down to 5mg. I'm so curious to find women that this A/A combo is working for....

positivenegative · December 2013

another stage iv here and fighting

NatureGal · December 2013

I'm here too. I post here and there - so busy with work I'm not here as often as I'd like to be. Everyone is the best. Mets to the bones, but fighting it all of the way. Got good news that the latest PET scan isn't lighting up, but the markers are still rising. I've told my cancer it isn't welcome here and apply Reiki and meditation to counter it.