Really annoyed with my insurance company: BRCA1 testing

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  • sabihah
    sabihah Member Posts: 65
    edited November 2013


    Well, I tested positive for the BRCA-1 mutation. Sigh. I guess I'll waltz on over to the BRCA boards...

  • lintrollerderby
    lintrollerderby Member Posts: 483
    edited November 2013


    I just saw your posts. I'm very sorry. I'm BRCA1 positive and so is my daughter. My thoughts are with you.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited November 2013


    i'm very sorry Sabihah. I know you are frightened. (((Hugs)))

  • DiveCat
    DiveCat Member Posts: 968
    edited November 2013


    I am sorry. Please check out FORCE, too!

  • sabihah
    sabihah Member Posts: 65
    edited November 2013


    Thanks, ladies. I was actually more worried before I knew than I am now. Instead of worrying "what if...", I can start to plan "what's next...". Funny how that works.


    I think the hardest parts were telling my husband, because he worries so much about me, and of course my Mom. She *really* didn't want this to be something that we had in common.

  • lekker
    lekker Member Posts: 594
    edited November 2013


    I was really hoping for a big fat negative for you!

  • sabihah
    sabihah Member Posts: 65
    edited November 2013


    I had my second-look ultrasound after the MRI today. They decided to do a core needle biopsy of one area, which I can barely feel as a lump, now that I know where it is (12mm across). The radiologist said it has "some benign characteristics", but it's not a bad idea to check it out, especially given my family history. They're just going to monitor the other area, and have me come back in 6 months for another MRI, because is doesn't show up on the mammograms or ultrasounds.


    If you're the praying type, say a prayer that it's just a fibroadenoma or something!

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited November 2013


    You got it girl!

  • sabihah
    sabihah Member Posts: 65
    edited November 2013


    The preliminary results are in already: a benign fibroadenoma. My follow-up plan is an MRI in 6 months, to monitor the other area shown on the MRI. I do not need a mammogram in 6 months, because nothing else shows up on the mammogram anyway.


    This is great news. It's the first good news we've gotten so far. Yay!

  • DiveCat
    DiveCat Member Posts: 968
    edited November 2013


    That IS great news! While there is a lot else to deal with, at least you can breathe easy on that front. I am very happy for you.

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