double vision

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mags123
mags123 Member Posts: 18
edited September 2018 in Stage IV/Metastatic Breast Cancer ONLY

hi. just wanted to know if anyone has any problems with double vision.

(i was diagnosed with mets to my spine and pelvic area in march this year, started on oral  bondranat and arimidex and at the end of sept, my first lot of scans to see how i was reacting to the treatment showed that there had been an all over reduction in the mets)

last saturday i started with double vision in my left eye (whilst flying home from a much needed holiday). i put it down to tiredness and hoped it went away !!!!! ... but of course it didnt.

on monday i went to see my GP and he admitted me into hospital - here i had an emergency CT scan which came back all clear, now i have to have an MRI scan on monday.

i am trying so hard to remain positive but i think my nerves are starting to get the better of me and just wanted to know if anyone has experienced the same thing. i keep trying to tell myself that just over a month ago the treatment was shrinking these bloody things and there was no evidence of them in my skull or brain.

any info would be appreciated.

thanks

mags xx

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  • 3jaysmom
    3jaysmom Member Posts: 4,266
    edited November 2010
    mags, when you get all done with the tests, and are out of the hospital, check with an opthamologist. during tx. i went to one for double vision, and tearing.. they discovered a rare side effectZ too much pressure in eye. i had to use drops for tx, and it started up again 6 mos after tx. we're just gonna keep track of it, as the drops worked wonders.  hope all goes well....3jays
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  • IwillBhealed
    IwillBhealed Member Posts: 160
    edited August 2013

    3jaysmom....are you talking about Xeloda?Im taking 3 in the morning and 3 at night total of 3000mg a day My eyes have been tearing for 3days now .Im thinkinmg its allergies. I cant do nothing now Iam leaving on a cruise today. My off week is starting tuesday. Dam what should i do???

    Dee

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  • katie11
    katie11 Member Posts: 2,514
    edited November 2010

    I experienced both hearing and vision problems last year.  Of course, I also had an MRI but it ruled out mets to the brain and skull area; the problems were put down to side effects of the chemo I was on at the time - CMF.

    You're doing the right thing getting the problem checked out. 

    Katie

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  • chainsawz
    chainsawz Member Posts: 3,473
    edited November 2010

    My co-worker is also a charter member of club mets and she's been experiencing the same double vision!  Her brain MRI's and Ct scan have been completely clear so she is now visiting an opthamalogist and they are helping with it....seems like she is having a reaction to a med like 3jays. 

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  • apple
    apple Member Posts: 7,799
    edited November 2010
    it's probably from the pressure changes of flying.  try drinking lots of water.Smile
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  • lorieg
    lorieg Member Posts: 802
    edited November 2010

    I have had very blurred and double vision at times since i have been on Xeloda and Tykerb.  It has been almost a year now.  I was off these for 6 weeks during radiation and my vision improved.  i have 2 brain MRIs and have seen an eye doctor and all has been clear.  We are chalking it up to chemo side effects.  Symptoms only in one eye may, unfortunately, may be a little more concerning.  I have seen posts from people with skull mets also have vision issues, FYI. 

    I will hope and pray this is nothing!

    Hugs,

    Lori

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  • AmyQ
    AmyQ Member Posts: 2,182
    edited November 2013


    Reviving this tread as I have recently started experiencing double vision. I only notice it when I'm driving (a very bad time to know it) and have actually had to close one eye to see the road well and make it home. Otherwise life is normal at home and work. I just experience this, or perhaps notice it with driving. This past weekend its been continuous, but again, only when I'm driving. I will call my onc first but just wanted to see if anyone else is going through this and what their outcome has been.


    Thanks

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  • raro
    raro Member Posts: 1,092
    edited November 2013


    I haven't had double vision, but my vision has definitely suffered. It started with Afinitor/Aromasin, and I thought it was due to the diabetes they caused. But the ophthalmologist said diabetes wouldn't cause eye problems like retinopathy that fast, although the blood sugar ups and downs would definitely do it.


    I don't know if what you're on affects your blood sugar...it's probably a long shot but I thought I'd throw it out there. I still have a weird cloudiness in my eyes that makes it hard to focus, but the eye dr. says it's not anything he can see. Guess it's just one more gift from chemo, sigh...


    In case it reassures you, my onc said that most brain mets would show up (when there are symptoms) as more than just one symptom. Like, double vision and depth perception issues, or severe headaches and staggering, etc.

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  • Moderators
    Moderators Member Posts: 25,912
    edited November 2013


    The Vision and Eye Problems section of the main Breastcancer.org site describes several problems, and lists the breast cancer treatments that may cause eye problems - including some chemotherapies, hormonal therapies, and targeted therapies. Although there are strategies for managing eye problems (also listed), the first advice is to call your doctor if you notice you're having trouble seeing, or if your vision changes.


    • The Mods

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  • lotusblossom
    lotusblossom Member Posts: 121
    edited November 2013


    I just had cataract surgery. The opthamologist said the cataracts and vision problems I have been experiencing are due to long term chemo use.

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  • Capriness
    Capriness Member Posts: 246
    edited November 2013


    Are you taking Abien to help you sleep? That gives me double vision for most of the following day.


    Teri

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  • hansaim
    hansaim Member Posts: 278
    edited November 2013


    mags, I do not have any advice but wanted to let you know I am thinking of you. We all know how frightening it is to wait for scan results. I pray that it is something trivial and that your eyes clear right up. Hugs.

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  • AmyQ
    AmyQ Member Posts: 2,182
    edited November 2013


    No Ambien use for me. I am going to get my eyes checked out as it's bothersome, not to mention dangerous for driving...will let you know what the doc says.

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  • Wilsie2
    Wilsie2 Member Posts: 441
    edited November 2013


    I started getting double vision 4 months before my recurrence was discovered, and off and on ever since then. So it was before any drugs, so not related. Also, have had two vitreous hemorrhages, one so bad that I had to have surgery. Neither my oncologist or ophthalmologist think it is cancer related. So, I enjoy the times when it is gone, and when it is here, my eye doctor says its legal to drive with one eye!

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  • jo6359
    jo6359 Member Posts: 2,279
    edited September 2018

    I finished TC on June 18th. I continue with herceptin and perjeta every 3 weeks. This afternoon I noticed I was experiencing double vision. I haven't had this issue before. If I bring my cell phone within 6 in of my eyes my vision is fine but any distance further than 6 in it's double vision and blurred . Overall I had minimal side effects with chemotherapy and no noticeable side effects from herceptin and perjeta. Any advice on the double vision? I see my surgical oncologist tomorrow for my final discharge. I haven't seen him since the end of February. Friday I see my medical oncologist a few minutes before I begin my h&p infusion. My eyes do feel exceptionally dry.

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